Catching up - TTC after miscarriage part 2

[BecsterG]

Hi Ladies, here is our part two for pregnancy after miscarriage. X

@Leok83 the nipt usually only screen for the three: Edwards, downs and Pataus.

So it would not be the right test for her unfortunately I would imagine and not only is it not 100 percent diagnostic like amio or CVS, it is only testing really for down sydrome which is potentially something they have already ruled out from the scan she's just had combined with the other issue. It is confusing because the NHS screening could have missed it when they did their screening as there down sydrome screening is not accurate as it doesn't test any dna but it would be unlikely I suppose as well so they are looking for another kind of genetic disorder that is not routinely tested for.

Otherwise she would have been offered the nipt for free, though I think they pretty much go straight for amio or CVS now for full conclusive results

@Whiffle77 yes the miscarriage risk from amio is absolutely minute isn't it, I really just couldn't imagine waiting a month until a full scan which could still highly possibly be inconclusive, or not conclusive enough, then to have to inevitably have the amio anyway at twenty weeks 🤷‍♀️

It's a terribly scary and pressured situation though already, I can't imagine really, we all think we know what we'd do but in mils shoes actually going through it, it's totally different from hypertheticals. Its so difficult 😔

Thank you @ChampooPapi @TerribleImagination @AlviesMam 😔.

It's such a horrible situation to be in. I can't actually believe it. I think we're feeling like we'll wait till the 20 week scan because it didn't look like there were any issues at 16 weeks (obviously it wasn't as detailed a scan as the anomaly scan at 20w). They looked at the hearts and both had 4 chambers, AV flow, aortas present etc (heart defects can be a common abnormality, so I suppose they wanted to check that straight away). We also feel like the fact that one twin looked absolutely fine, spot on for growth etc is maybe a good sign as they are genetically the same? I've since read that the umbilical cord (where the abnormalities are) isn't formed until around week 7 of pregnancy, so I feel like surely if there was something wrong with them both, they'd both have abnormal umbilical cords? (If they did have a genetic defect and that defect caused abnormal umbilical cords? If that makes sense). We might end up changing our minds and having the amnio done at my 18 week scan, but the consultant told us miscarriage risk was higher when it's twins so I'm obviously so freaked out about that, especially if there was nothing actually wrong with them. I couldn't live with myself. If I end up having to TFMR it will be horrendous if I did it now or at 20 weeks, so we'd rather wait and see what happens in the next 4 weeks (even though it's gonna be mentally horrible).

I just want to cry and cry and cry.

We're also clinging onto the fact they told us it's a 10% risk. Which means 90% of babies with this abnormality in their umbilical cords are fine.

🙏

@MilsCookie yes that makes really good sense, especially as you have another appointment in just under 2 weeks to break up the interim, and having that higher chance of loss with twins is the deciding factor I imagine for you. A sensible and logical decision made in unbelievably horrible and emotional times, you have down so we'll Mils, we are here very step of the way towards that twenty week appointment. It is incredibly unlikely anything will even be amiss with their development but it's the bloody unknown of it that is so difficult. It will pass, and the next scan may be more conclusive to seeing as well I guess that everything is A typical with them both so then leading up from 18-20 weeks could be much more positive mentally then I imagined. So the next scan is the 5th of August for you? I had a feeling they were of the female persuasion, though I had a fifty fifty chance let's face it! 💜

Hi @MilsCookie sorry to hear you’ve had some worrying news. Hopefully the further scans will show things are ok with your little girls and as others have said, the odds are very much in your favour. Your little girls are lucky to have such a lovely mummy!

@MilsCookie we are all here for you. Let's try and makes these next few weeks go quick there's nothing more slow than having to waiting while worrying

Hope you're OK today @MilsCookie! The reassuring thing about it is that it is not time sensitive- there is no pressure on you both to make a decision immediately, as it won't affect the outcome (I.e. you wouldn't be starting medication or medical intervention until later if you wait). So just take whatever time you need to think about it, and things will become clear. It sounds like you both have good heads on your shoulders, and the odds are in your favour. Its just so difficult having to wait but we are all here and will be keeping our fingers crossed for you! This thread is always here when you need a vent.

And let yourself cry and scream as much as you want! Whatever you need to make yourself feel slightly better. Lots of love xxx

One tiny bean

Yeay @Ejb86! So glad it went well! 😍😍😍

Congratulations on your little girls, @MilsCookie. I'm so sorry you've got this extra worry, I have everything crossed for you

Ooh, look at that @Ejb86 congratulations!

@MilsCookie... Hope you're doing OK. Xx

Has anyone experienced braxton hicks?

I feel like baby is now sat really low down in my pelvis, it's so uncomfortable! So much pressure!!
But the bottom of my bump keeps going rock hard and then releasing, like tightening... At first I thought it was the baby pushing himself out, but it's been nearly all day on and off, so not sure now?! X

@Ejb86 I'm so so happy for you - you must be so relieved! (And also relieved that it's just one this time because of the complications you had to deal with last time). In some ways I'm envious of people having singletons because my twin pregnancy is causing me so much stress and worry, but then I feel awful saying that because I love my babies but I just want them here safe and well! And I know singleton pregnancies don't come without worry - I would probably still be a nervous wreck if it was just one! Hopefully you can relax a little bit now 💖

Thank you everyone for your kind words and reassurance - it means a lot to be able to talk to you lovely ladies on here. We're all rooting for each other and it's so helpful to know we've got each other's backs, even though we're kind of internet strangers 🤣

I managed to speak to a lovely midwife this morning at the fetal medicine unit where I have my scans because I had written a page of questions that I wanted answers/reassurance for. We were on the phone for about half an hour and she definitely made me feel better about everything. We've decided that we're going to wait until the anomaly scan and see what we find there. Even if it's all looking good, we might still opt for the amniocentesis to just put our minds at ease. We'll definitely have it if they find any structural anomalies. I can't even bare to think of losing them (or even one of them), but I'm not naive and know that could be a possibility and it would be horrific whether it was now or at 20 weeks. So even though it's going to be mentally challenging for the next month, we'd rather give our babies the best chance at this stage by not interrupting their amniotic sacs! Just praying and hoping they're both okay and keep growing and doing well. At my scan they roughly measured 16+4 and 15+4 (I was 16+2 that day) with nothing else standing out as a problem (other than the smaller twin's umbilical cord). I might go a bit quiet on here as I come to terms with it all but will still check in from time to time 😘

yes brilliant! @Ejb86 🎉🌈

Yeay @Ejb86 . Fantastic news

@Ejb86 that's great the scan went well, you must be so relieved! When will you get your next scan?

@BS9790 yes I get Braxton Hicks loads. They're really uncomfortable this time round though! Maybe to do with the position? With my pregnancy with my daughter I had them all the time too but they weren't uncomfortable in any way! This time it feels so tight and almost like I've been winded!

@MilsCookie I am so sorry you having to go through this extra worry, please keep positive for your babies (I know it's harder said than done)

I had my scan today and didn't particularly get the news I wanted she said I was measuring at 6 weeks rather than 8 which I don't know if it's plausible with dates 😞. She told me to self refer to EPU so I've managed to get an appointment for Monday at 9:20. I'm just hoping that they are able to scan more accurately and give me some better news.

@MilsCookie was just checking the thread and i am sorry for the news you got at the scan. I can't even imagine how worried you and your dp must be. Hoping that the 20w scan will be all good for both girls 🙏
Sending hugs! 😘😘

And hugs over to you too @Ljm0101
This must be an anxious wait until monday.
Did you have any other scans before?
😘

I am not joining the thread but hopefully in a couple of days 😬

Hiiiii @SunnySideUp2020 ❤️❤️ Bloody lovely to see you here lovey! Crossing fingers you’ll be joining in a few days 😘😘

@Ljm0101 I'm sorry you didn't get the news you wanted. You must be feeling so anxious now. I really hope the scan on Monday is more positive for you. xx

Thank you @SunnySideUp2020 - really hope you'll be joining in a few days!! So so happy for you and your BFP and BFD in one day .

Ahhh @Ljm0101 I'm so sorry you didn't get the news you'd hoped for today. From what I've seen on here that can go either way... I know it's easier said than done (cos I'm in a similar but different situation at the mo!) but try to relax until you know more on Monday. Did they see a heartbeat today? Also where did you go for the scan? I find that the private clinics are generally not as accurate and the doctor who was scanning me on weds pretty much told me off for going to a private scan at 14 weeks (because I then panicked one twin was a week behind and called up the hospital for reassurance and created more work for them...) She basically told me there are very few that they actually trust. I found her a bit rude to be honest! She also told me to keep still - I was trying my best!! Try to stay calm over the next few days. Sending lots of positive vibes xxx

@Ljm0101 was it an internal scan?

I've got everything crossed for Monday for you