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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

988 replies

LucindaE · 15/10/2018 21:40

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.
MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk
If you need help in obtaining medication, phone them on:
024 7638 2020
Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy
I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.
Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.
On my image of a pink castle: that is an image I use because when I was little, my family had a Snakes and Ladders board with an image on the last square of a pink castle in the clouds. As Hyperemesis is so like a grotesque version of Snakes and Ladders - eat a meal, go up a ladder, first thing in the morning bile run, down a snake - I have used the image of that pink castle on the last square of that Snakes and Ladders board as a metaphor for the happy end of Hyperemesis.

Hyperemesis Support
Hyperemesis Support
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6
eallison88 · 01/11/2018 17:24

Welcome autumn there's competition about who's got it worst and certainly no excluding people here! Yes, one of the meds I'm on is cyclizine and it makes me drowsy. The problem you've got is that you need a constant regular dose of it so that it's in your system. I understand why you don't want to take when working, but this means it's not able to have its full effect on you. Howev

eallison88 · 01/11/2018 17:25

Sorry, phone did weird things. ...
autumn if cyclizine isn't controlling it(and you'll probably find it more effective if taken everyday) then there other meds your consultant should be trying you on.

eallison88 · 01/11/2018 17:29

sjouldo welcome. Yes There are guideline on appropriate care for hyperemesis. I've actually linked them in this thread, probably page 10 or 11, with some screen shots from it. The guidelines advise pre-emptive drugs (cyclizineis the first rung on the ladder). I'm not sure if I've understood correct; are you currently pregnant? M on my second pregnancy and had HG throughout my first. So my GP gave me a prescription for cyclizine b2fore I was pregnant that I could use as soon as I found out. So I took cyclizine from finding out I was pregnant . As soon as I started feeling sick even with the cyclizine I went to gp who put me straight onto ondansetron. After a hospital admissions metochlopromide was added to the mix.

Mammabear13 · 01/11/2018 17:38

Sorry I have been quiet, just at that stage of needing to hunker down to survive and screens can make me feel a lot worse. I feel like the medication combo is working for me now and seem to be on a fairly even keel with symptoms which I find more manageable so I am thankful for that.

Also my dating scan today and due 18th May - seems a long way off but we will get there!

Autumn I have found with Cyclizine that it's not so bad if you take it regularly as it build up in the system and your body is able to deal with it without getting so drowsy. Although I suppose there's no guarantees!

Reastiepeace · 01/11/2018 17:47

Hi all, I spoke to my gp today who was actually really helpful. Has prescribed a full 8mg ondansetron now not 4mg and I have a prescription of metclopramide but she said to try just increasing the ondansetron first to see if that was enough but it take metclopramide if needed.

Does anyone know if Metoclopramide is one that is best taken regularly to build up effects like cyclizine or if it’s more of an as needed type of thing?

Autumn yes cyclizine makes me sleepy but it does wear off once I’m used to it.

Shouldidoit I also was given a prescription of cyclizine before getting pg so I had it ready to take as soon as I found out.

MotherofPearl · 01/11/2018 17:48

This just popped up in active threads, and I was reminded what a lifeline this thread was through 2 HG pregnancies - in 2011 and 2015/16. Lucinda, you do such a wonderful job keeping this thread alive - it's always full of great advice and support.

To those going through it now, you have my every sympathy. It really is the absolute and utter pits. But it will end, and though it may seem unbelievable, you will feel normal again. Hope the Ginger Hit Squad are still going, ready to execute deal with anyone who suggests ginger to a HG sufferer.

eallison88 · 01/11/2018 17:56

motherofpearl I rememeber you from 15/16! Hope your little ones are doing well :)

reastie I'm so glad that your GP is now on board. I don't actually know about the meto - I just take it regularly. I tried not taking it last weekend but I definitely felt worse for it, so added it back in.

mamma hoping that things continue to settle for you.

MotherofPearl · 01/11/2018 18:03

Ealli, I remember you too! Are you on PG #2? I hope the sickness hasn't been as bad as last time?

Reastiepeace · 01/11/2018 18:31

Eall has Metoclopramide made much difference to your drug concoction?

eallison88 · 01/11/2018 19:13

reastie I think so. My baseline nausea is lower than last time (still pretty constant tho), my puking is less (still daily tho). But the important thing I'm noticing is that I'm able to eat a wider variety of good a stuffs, and slightly more quantity than I was last time. I definitely felt and was more sick without the meto.

motherofpearl yup, #2! As I said, slightly better than last time. But we prepared in advance, so had meds immediately, within 2 weeks of finding out pregnant I was on ondansetron. I put a bit of weight on in anticipation, so I was probably 5kg heavier at start of pregnancy than last time. The puking started earlier this time, despite the meds. And I still ended up hospitalised overnight for rehydration a few weeks ago. And still only about 8 wks!

LucindaE · 01/11/2018 21:58

Welcome to autumnleaves and shouldidoitspoilt.
shouldidoitspoilt This is belated, but if you suffered badly last time, definitely you should have for pre-emptive meds. Which meds helped last time, if any? As you are a veteran, you don't need my spiel about 'full sugar, flat coke and ice lollies and the juice of tinned fruit and have you got kesostix? ' Did you find an anti acid helpful last time?
autumnleaves Sorry things are getting worse. Cyclzine does make most people sufferers initially, but most get used to it. If it isn't helping a lot, do ask for something a little stronger, like stemetil. An anti acid can make a big difference. Some liquids that have helped others: full sugar flat coke, ice cubes, ice lollies, the juice of tinned fruit, Dr Pepper, Iron Bru, Robinson's fruit drinks,sips of chocolate milkshake (maybe soya), Lucoazade, soda water, fizzy water, fizzy orange, orange squash, orange juice (if not too acid) and lemonade.
Some foods of a sort, cuppa soup, tinned fruit, cheap ice cream, nibbles of crisps and chips, slices of melon and mango, baked potato and Scotch pancakes.
eallison Congratulations on that productive meeting at work (I think you said you are a teacher?). Much sympathy over horrible journey home complete with puke at MIL's. I am glad you had a nice booking in.
elpreggo I hope the hot dogs and kethup stayed put.
MotherofPearl Lovely to hear from you. I hope LO's are thriving? Thank you, and thanks for lovely supported message. Flowers
Reastie Some doctors prescribe meto. long term, but others are cautious about it, not through any threat to the baby,but because it can make the mother twitchy,and if so, must be discontinued. For that reason some doctors are wary of prescribing it long term. What does your GP say? I am glad you have got an increased dose of Ondansetron. It's infuriating about the red tape in prescribing.
Mamabear I am so glad that you are coping. Always lovely to hear from you.
SeaEagleFeather I think you have a great memory.
beanhunter I hope you don't feel too bad.

OP posts:
LucindaE · 01/11/2018 22:05

Sorry, elpreggo and Bumblebee. It was Bumblebee who ate the hot dogs and ketchup, which I hoped stayed put.
elpreggo I meant to say, that the babies seem to thrive amazingly, despite the awful diet.
Really sorry too, someone gave their due date as 18 May and now I can't find who it was to add to the Due Dates.

OP posts:
MotherofPearl · 01/11/2018 22:07

Gosh Ealli, just reading your post brings it all back to me. Sounds like you did some very sensible preparation which has enabled you to manage it better - but sorry you've still been suffering. It's so rubbish! All the best with the rest of the pregnancy.

Big waves to Lucinda! My DC are all thriving, thanks for asking. Always nice to 'see' you on here, and as I said, I salute your perseverance in keeping the thread going for so many years. Hope the Pink Castle is still going strong!

bumblebee39 · 02/11/2018 06:38

Yes hot dogs and ketchup yesterday were a success.

I am now waking up at 4am to take my PROCHLORPERAZINE (sorry keeps autocorrecting to capitals) which seems to be helping.
I can drink a hot drink by 7am then and am managing lunch after second dose. Yesterday which was Nandos which stayed down.

My DD said to me at dinner when I was heaving though "mummy when's the sick gonna come" it didn't come thankfully kept my ready meal down too. So yesterday was a very good day food wise in the end. Plus I took my folic acid OK as well.
So tired today after waking at 4am again but it is helping and I hate feeling like I'm going to be sick on the bus on the school run.
Have to say it would be worse driving though as it makes me anxious and the HG makes my anxiety worse and vice versa.

I am trying to have a bath each morning to relax me, and get an early night when I can.

Definitely not a perfect plan and am wondering if I need another antiemetic, as it did with DS my sickness is getting worse as I move from first to second trimester not better.

I had to take medication until the third with him.

bumblebee39 · 02/11/2018 06:46

I'm sorry everyone is struggling so much I have struggled with poor care and unsympathetic doctors in the past. It is such a post code lottery and honestly I am so grateful to my GP for listening to me. I just said "this is what I have, this is what I need, this id what has worked before" and he listened! Gobsmacked as doctors were so resistant in my last two pregnancies, did the whole first trimester unmedicated with no1 and no2 but I think they listen to you more when you have more pregnancy "experience" which seems unfair.

Likewise I had no pain relief but paracetamol with DC1 whereas with DC2 and now DC3 I have been told I can take co-codomol minimally if and when needed a they know my SPD is very severe. I know they are wary of prescribing to pregnant women, but not all women react to pregnancy the same.

I have HG, develop ovarian cysts, have severe SPD, and had pre-eclampsia with DC1 and had to be induced early with DC2 to avoid the pre-eclampsia risk and because he was big.

I got ignored with every concern with DC1, whereas I think they have learned from my experience that they should listen to me. Wish they could have saved me pain, sickness and fear the first time, it's very frustrating.

bumblebee39 · 02/11/2018 06:56

I will second that about poor diet...

I was anaemic, deficient in calcium and but D and low in folate with DC1 and she was a great birth weight, it was me who suffered.

Also, Coca Cola is my godsend in pregnancy, I get judged for it but f**^ em! It seems to do wonders for my sickness and the caffeine is lower than in tea or coffee but still enough to keep you going on those meds which can make you groggy...

I found I can't touch "diet" anything either has to be full sugar red original Coca Cola and it literally does wonders... Especially when it's a bit flat and not too cold which sounds gross but isn't.

I can't drink water much so try and have my soluble vit c and one litre of water a day, when decaf hot drink, and otherwise enjoy my Coca Cola. I think it's better than most antiemetics tbh and when I'm not pregnant it's my hangover "cure"!

SassehMonsta · 02/11/2018 07:07

Poking my head back in. Still on 4mg odansetron, two a day. Still shattered! Able to eat, it's a bloody miracle. Still not back to pre-pregnancy weight but have a hell of a bump for 10weeks.

Sad to see everyone suffering still, but pleased that several of you are getting the help and support you need. I asked to see a different Dr who prescribed me.another 2 weeks of meds when mine was being a knob about it.

bumblebee39 · 02/11/2018 07:43

@SassehMonsta
I don't understand it, mine prescribes me monthly, whereas I saw a different GP at the same practice who refused to prescribe me anything 🙄 I hate how we have to ask for a second bloody opinion all the time...

eallison88 · 02/11/2018 08:01

Hubby has just taken our son to nursery. First full day (he has had four 1.5hr settle sessions). He really didnt want to go and was very upset a put the whole thing. "I just want to stay at home!". Rationally I know that he will be fine, it's a fantastic nursery, and that he'll be fed engaged with and will be kept busy nd active all day. If he stayed home with me he would be fed crap, spend Most of the day watching telly, and certainly wouldn't get outside for any playing. So I know it's absolutely the best option for him. However, I feel so sad that I'm pushing him into something before he seems ready, and before we ideally wanted to. Oh mamma guilt is hard!!

bumblebee39 · 02/11/2018 09:09

@eallison88

DS will be starting nursery soon. Feel sad but it will just be 2 days and I know he will benefit from it. He spends most of the time his sisters at school asleep anyway, so it's not like we are doing riveting activities.

But yes ideally I'd have kept him home for another 6 months or so. The same 6 months I now need to get all my work done in preparation for time off once babies here etc. And when he'll be doing his 15 hours anyway.

Try to let go of the mummy guilt. I know it's hard and I'm struggling with it myself, but it is good for them to be socialising and we can't offer them much energy when we have none to give!

I expect I'll spend half his nursery time working and the other half sleeping 😂

eallison88 · 02/11/2018 09:29

TMI warning! Just done a poo for the first time in days. Had to be depressingly hands on to 'help must get lactulose!

bumblebee39 · 02/11/2018 09:58

Or raisins and orange juice @eallison88

eallison88 · 02/11/2018 10:38

Thanks bumble will try that too. I am eating at least 2 satsumas a day at the moment, and other fruit daily too. Ho hum

beanhunter · 02/11/2018 11:59

Had managed a mostly good week on holiday but feel yuck the past 24 hrs. Vomited my last 3 meals. Trying to keep drinking as it’s hot. Upped all my antisickness, including restarting ondansetron - which will play havoc with my guts. Meant to wean steroids again when I get back but think I’m going to have to ask for more advice as don’t think I’m ready to.

shouldidoitspoilt · 02/11/2018 13:21

So why has cyclising started making me restless?
I had this before with it and hoped it wouldn't happen again?
I don't know if I need to go back for Prochloperazine

I had most success with cyclisine
I've not been sick since taking it and can tolerate the day better now already
Imagine if that would nip it?
But I can't take it if I have to sit down as I feel literally like tickling inside my arms :(

That also happens to me with some other anti histamines like dipenhydramine ?