Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk

If you need help in obtaining medication, this phone number is great: 024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!scenario

I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.

So many women on this thread have thought they couldn't get through this, but they did.

Also, is anyone else in 3rd trimester and feeling ridiculously cold? I've got thick pjs on, thick slipper socks and a dressing gown drinking a hot chocolate. I'm still feeling cold...

Shehz sorry you are having such a rough time. I didn't get on at all well with the prochlorperazine buccal tablets that dissolve in your gums as they were so bitter they just made me throw up, I now take them in tablet form and they seem to help me quite a lot - but they don't for a lot of people. Do push for something else if it's not working for you as there are lots they can try - I have found that the GPs don't tend to know very much about it off the top of their heads so it might help to take the guidelines with you if you can, there is a really good list with all the pros and cons of each one here www.pregnancysicknesssupport.org.uk/documents/page_pdfs/PL14_Treatments_Information.pdf

The combined folic acid and vitamin d is so much smaller so much easier to swallow and keep down than the pregnacare.

1 good day in 30 is definitely not going to compensate for the bad days and isn't enough to get your strength up mentally or physically, I'm not surprised you are feeling down and hope that you can get some support to get through this really hard time. Definitely my first and last too! x

justtheonethen what an awful unsympathetic thing for your MIL to say! It baffles me that people can be so tactless and lacking in empathy when it comes to this illness. I'm not surprised it made you cry, it just shows that she really doesn't understand what it's like to live with HG xxx

@natsku hugs back to you. I am glad atleast one of us is feeling a bit better! How far along are you? If I am not mistaken anomaly scan is at 20 weeks?
Hope everything goes well tomorrow. Do keep us updated!

@Emu31 Thank you for the website! Just going through it now and i think I need to print off a oot of stuff to go to my GP and also show MIL ;)
I was wondering if they do give out Ondansetron (sp?)in the UK? I have read about stories of HG survivors who were able to control nausea and vomiting with it.

I'm 21 weeks. Have to go an hour and a half away to the city for the scan, luckily OH was able to get time off work to come with me (otherwise it'd be a whole day job catching buses etc) but means DD will be alone after school for much longer than normal and I don't like that.

Shehz So glad the website is helpful. I think it really varies with regards to prescribing Odanestron, I've asked for it and been declined it - though I was so poorly at the time I wasn't really able to advocate for myself and fight for it. It seems to me that the only real barrier is the cost, so that shouldn't really prevent you from getting a treatment that will help you if the others have failed. I think they tend to give it out more following hospital visits and my GP friend said GPs rarely prescribe it, but it might be different in different practices. From what I've read on support groups, and heard from friends it is the most effective treatment and can really help. I think the pregnancy sickness support helpline are able to give good advice on the treatments and what to say to the doctor to get the ones you need.

Welcome to Shenz21. Sorry you are suffering. Three admissions, oh dear. I so agree with others and you need additional meds. Ondansetron is available in the UK, but because of the expense (though it has come down in recent years) it tends to be prescribed after they have exhausted the other options. If you do get it prescribed, ask for something for the awful constipation that accompanies it! You have already had great advice; I wonder; can you get vitamin drops prescribed, as these are more easily digestible. Have you got kesostix to check for the early stages of dehydration in case you unfortunately deteriorate again? Sufferers have found some of these helpful. Full sugar flat coke, ice lollies, the juice and fruit of tinned fruit, soda water, Dr Pepper, Lucozade, fizzy orange, orange juice, ice cubes, jelly, sips of chocolate milkshake (maybe soya) Elderflower Water, cuppa soup, nibbles of plain crisps and cheap ice cream. A truly awful list of unhealthy foods, I know. Some people can stand home made vegetable soup.
dillydollydarling Sorry stemetil was no good. 10+ sounds horrendous if erroneous! Goodness; I suppose, unfortunately, you have been admitted this morning?
justtheone BlueButTrue and others: I am so sorry to hear of unsympathetic mothers-in-law and of invidious and unfair comparisions. I don't see how she can insist that that woman was more ill because she flew home from Australia - how annoying. Why are people so judgemental? I do hope MamaBear has her baby now, but I'll leave her on the list for a couple more days. Waves to Emu21 Oklahoma and everyone.

Here's the updated list.
Due Dates
MamaBear 7 September
MrsK8541 15 September
MuvaWifey77 17 September
UnbornMortificado 25 September
Lemondrop09 30 September
RubyReins 3 October
Passthesickbucket 4 October
FlapAttack 10 October
Heartburn247 23 October
FluteyTootey 26 October
mrsgembles 27 October
BlueButTrue 17 November
putput 17 November
DeadDoorPost 19 November
pippasnippa 19 November
Oklahoma 21 November
NonStopDisco 23 November
OnNature'sCourse 23 November
Satsooma 4 December
Mustang 18 December
millsbynight 20 December
mumoftheark 28 December
BeautifulLiar 29 December
can'tdothisagain late December
Thingymaboob 10 January
mrsb87 13 January
Flossyfloss 13 January
1984fs 27 January
Natsku 27 or 28 January
Ameliablue 22 February
justtheone 9 March
Shenz21 22 March

I expect you have got your own list of rehydration technqiues.

...Ah, and Natsku All luck for scan, you almost certainly won't need it, and it must be worrying to be away from LO too long.

Thank you for the warm welcome @LucindaE !

This group feels more like family than my own right now. I can relate to all of you and your suffering so much that it almost feels good to not feel left out and lonely anymore

@Emu21 I might give them a call soon followinv the projectile vomiting I had in my shower today.
Am I the only one to feel like I need to nap for hours after a shower?!
How are you feeling now though? How far along are you?

@Natsku it must be worrying to leave DD for too long but hopefully they dnt take too long at the hospital. The hospital where I had my 12 week scan ( King George ) they were really fast but I am guessing an anatomy scan at 21 weeks would require them to take more time than a 12 week scan for sure.

I can't stay awake passed 8.30pm help I'm 27 weeks I shouldn't be this tired right?

Shenz projectile vom in the shower does not sound like fun at all! I'd say give them a call as I bet they'll have lots of useful advice and be able to offer some good support. They also do a buddy scheme where they can find someone in your area who's been through it so you have someone to talk to. I'm 17+5 now and it's a bit of a rollercoaster but I'm really lucky that I have some good days in there, and they are getting more frequent over time. Though I'm still being sick every day it's probably more like normal morning sickness now, as I think the meds are helping me - but I still get really scared of going back to how I was. A few weeks ago the thought of standing having a shower was too much and I had to just sit in it and then would throw up afterwards, so really understand feeling like you need a nap afterwards. I would say you are doing really well to have a shower, there have been lots of days where I just couldn't!

She most of the people on this thread end up on Ondansetron in the end. I'm on a combination of Ondansetron and Promethazine (Avomine) which helps keep the vomiting vaguely under control but doesn't get rid of the nausea. I'm 31 weeks and still throwing up though so I'm unlucky in that it has continued throughout. Most people do get much better 20-24 weeks.

Yes also for showers. I find them utterly exhausting and have to lie down afterwards.

Emu31 well to be perfectly honest, I had one after a week and that too cus my husband has night shift today and he was there to help me with most part of it. The last time I had a shower on my own, I passed out before I could even wrap myself in a towel properly and it kind of traumatised me waking up on the floor, realising I was just lying for quite some time.
Oh a buddy scheme sounds good, I moved to the UK less than 6 months back so wouldn't mind sharing my misery with someone right now. (Though this thread is being really helpful atm)
I am glad you are feeling better though and hopefully many more good days to come until this passes completely for you!
When is your due date? Haven't seen you on the updated due dates list. I am still definitely last though 13+5 lol.

@Oklahoma I'm sorry about the ongoing vomiting at 31 weeks. I hope you get some respite soon and are able to enjoy the rest of your pregnancy
Glad you mentioned the Avomine though since I did not get it prescribed from GP, I was worried whether it was okay to take it. I read some pretty awful things on another MN thread about avomine side effects on baby but then I am also aware of how bad dehydration in pregnancy is for both me and baby and since the avomine seems to be the only thing which can sometimes control the vomiting, I decided it was better to be able to keep food down with the avomine than end up dehydrated and very sick without.

it must be worrying to leave DD for too long but hopefully they dnt take too long at the hospital.

Decided now that we're just going to take DD out of school early tomorrow and take her with us (fingers crossed her teacher doesn't mind) after she was calling me today after an hour alone complaining of being bored and not having enough to eat (she had cartoons to watch and an ice lolly...!). She can't come into the ultrasound but there's a playroom down the corridor so she can hang out there.

Hi everyone. Haven't been on for for months as (I'm ashamed to say this) I had a termination at 9 weeks :(

I've just stopped the pill and we're going to try again. This time DP is going to quit his job as soon as I get sick. It may sound extreme but with four other DC to look after it's the only way. Hope everyone is coping x

Welcome back BeautifulLiar and everyone copes differently with things; I honestly don't blame you. But glad to see that you're going to try again. Maybe this time you won't get sick, but at least you're fully prepared for how bad it can be.
Mustang I've found myself more commonly sleeing more and more atm, although I've gone to bed later. Realised I'd had a 3 hour nap over lunch so only recently eaten lunch myself!

Don't be ashamed BeautifulLiar you made a difficult decision for the sake of your health, there's no shame in that. Hopefully this time you won't get so sick - have you discussed with your doctor starting meds as soon as you get pregnant? That might help reduce the severity of the sickness.

I'm knackered all the time too but the last two nights I've not really been sleeping, woke up at 1am on Monday and didn't fall back asleep again, last night was a bit better thankfully and slept on and off through the night. Think intense dreams are part of it as after I wake up from an intense dream I'm too worked up to slip straight back into sleep and then its so hard to fall asleep again. That and OH snoring half the night! And occasionally whacking me with his elbow when he rolls over.

Thank you. I was just so desperate! I hadn't thought of that Natsku. I'd worry that the doctor would judge (28, fifth child etc etc).

@BeautifulLiar Welcome back and sending hugs your way. Tbh I considered termination several times during this pregnancy.
I did have one in the past due to HG itself. I didn't know it was termed as HG then and the severe nausea and vomiting getting worse everyday made me take the decision to terminate at 8 weeks last time.
This time round my DH has been way more supportive and this gave me the strength( despite the idea still crossing myself at several desperate times).
Hope this time round its easier on you and I read somewhere thay agressive approach with medecines since early stages of HG can help cope better.goodluck to you for the next time round.

The number of times I sat in the bathroom and sobbed my heart out because I couldn't cope with the vomiting is ridiculous. I'll still occasionally have a meltdown when I'm exhausted and can't deal with things anymore but at the end of it I'm glad it's almost over. I do keep saying that I don't want to be pregnant again though and DH just nods and goes 'ok'. I've said it so often now...
Liar I don't think the Dr will judge you. This time around you're more prepared for what's likely to happen and I think that's the main thing. It's better to be in a good mindset than not from a MH perspective for you.

BeautifulLiar I think a lot of us on here have thought we would be reaching that point. I'm so sorry you had to go through it.

So glad it's not just me, I did get a couple of weeks were I felt I didn't need to sleep as much but the bone tiredness has returned and i just want to cry as i just want to start getting organised now.

Thank you everyone, you'll make me cry!! DP was gutted when I had the abortion (it would have been his first baby) so he'll be over the moon if we conceive again. And I'll definitely be back here for support!

Just dashing on to sympathize with BeautifulLiar (sorry I still had your name on the due dates list, didn't realize) and Shehz21 over terminations. It is so hard that I think most people do think of it at some point. Perhaps with better understanding and more effective treatment of this illness women would not feel forced to take that decision.
Due Dates
MamaBear 7 September
MrsK8541 15 September
MuvaWifey77 17 September
UnbornMortificado 25 September
Lemondrop09 30 September
RubyReins 3 October
Passthesickbucket 4 October
FlapAttack 10 October
Heartburn247 23 October
FluteyTootey 26 October
mrsgembles 27 October
BlueButTrue 17 November
putput 17 November
DeadDoorPost 19 November
pippasnippa 19 November
Oklahoma 21 November
NonStopDisco 23 November
OnNature'sCourse 23 November
Satsooma 4 December
Mustang 18 December
millsbynight 20 December
mumoftheark 28 December
can'tdothisagain late December
Thingymaboob 10 January
mrsb87 13 January
Flossyfloss 13 January
1984fs 27 January
Natsku 27 or 28 January
Ameliablue 22 February
justtheone 9 March
Shenz21 22 March

Welcome back Liar. I'm sorry to hear that you felt so unwell that you ended up taking that route. I can completely sympathise. Around 8 weeks I swung between being utterly terrified I would miscarry (as I'd have been through weeks of horror for nothing and I didn't think I had the strength to do it again) and between feeling like a miscarriage would be a relief. I didn't really mean that, I desperately wanted my baby, but I couldn't see another way out and 9 months felt like an eternity. It's a dark place many of us have been to. I hope you get the support you need this time around. It might be worth talking to your GP in advance of conceiving to get a proper medication plan in place.

Waves to everyone else. Sorry I've only been dipping in and out of the thread. It's a mix of end of third trimester exhaustion, an increase in vomiting over the last few days and a hormone surge which made me seriously grouchy and antisocial. After a few days sulking, I feel a bit better now. Not a twinge from baby, I'm fully expecting him to not appear until October.

I walked to work yesterday as my bike was broken, long hour walk, and by the end of it I was in so much pain in my hips, groin and lower back and the pain hung around the rest of the day. Seems OK this morning but it seems to fit pelvic girdle pain symptoms - has anyone had this? I'd still pick that pain constantly than HG though - had a middle of the night reappearance of that, due to acid I think, forgot to chew on some Rennies before bed.

Natsku Could it be spd? Worth investigating. Sounds very painful.
Lemondrop Cheering you on up the drawbridge to the fabled Pink Castle.