Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk

If you need help in obtaining medication, this phone number is
brilliant:
024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!scenario

I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

Hi ladies we have our much awaited (and saved for) holiday to USA this week - I have no idea how I'm going to handle it - I haven't been out of bed all weekend. I'm on 4mg ondansetron x 3 daily and some others. Wondering if I can up the dose of ondansetron myself? It will mean I will run out quicker tho

I have to find some energy this week to go and buy some holiday clothes, pack a suitcase and change sterling into dollars. I do not know how I'll do this when at the moment I am bed bound then I have to endure an 8 hour flight and all the rest of the travelling plus customs etc - I refuse to not go as we will lose all the money and we've really been looking forward to this for the last 7 months. Hoping some adrenaline and excitement will propel me through - or a miracle?!

Hi everyone, just catching up, it's been busy on here again! Mustang sorry to hear about your falling out with your OH too, I think HG (and I guess pregnancy generally) puts a strain on everything, I know me and my DH were just both super tired and a bit beyond exhaustion. We had family over for weekend which has been hugely helpful, DH got a long awaited lie in and I put my feet up too and we are both feeling much better for it!

Same old, same old sickness wise here, no surprises there, but no awful days which is a blessing. Flossy I hope you're able to make your flight with no problems, maybe you're right and the adrenaline will help, do you think you can get any special assistance from airline / airport? Or, my long awaited dream of an upgrade? Probably naive of me to think it's possible though! Do bring some food in case you can't stomach the airlines offering....oh, and a nose peg for that awful wafting of food before / after they bring it out...

@flossyfloss
I think you're very good for going! You're stronger than I, as we cancelled our trip to Denmark this weekend. At least there will be plenty of amenities and food choice, and you'll be near medical facilities. I know people do double up on ondansetron when needed. I really hope you have a great week. Where exactly are you going?

Thanks both - going to NYC, I'm wondering if I need to start trying to do more this week in advance of the trip so it's not a shock to my body on the day?

Good idea for the upgrade! Wouldn't that be amazing! Wouldn't even know where to start - should I email the airline?

@flossyfloss ha! You'll be lucky, we asked on our honeymoon and they were like "yeah, we don't do that!"
NYC- you'll be able to get some cute baby stuff from Bloomingdales. Maybe you can vomit off the Empire State?

Well I've emailed and explained the condition and nicely asked if there's anything they could to help the trip go as easily as possible - suppose you don't ask you don't get. Won't hold out much hope.

Yeah that's the only thing I'm looking forward to now - buying my first baby things. I imagine the trip will include me needing lots of naps back at the hotel and dp left wandering around on his own just going to try and make the best of it.

Haha vomit off Empire State or all over Trump or trump towers will do. You are awesome I'd have bailed I can barely do a trip round the supermarket without feeling like iv been kicked by a mule.

It's all fine now Pippa it was completely justified tbh he fell asleep whilst looking after our wee one I had nipped in the shower for ten mins to come out and discover my wee boy standing crying in our upstairs hall totally confused why no one was about . The what ifs are crazy as he is such a wee dare devil and knows how to unlock front door and has no road sense yet. I lost it just something else to add to his long list of irresponsibility and laziness. Sigh.

Hope you are still feeling a bit better thingy.

Oh gosh Can't that's totally understandable to feel anxious anybody would.

Flossy - I was allowed 3 x 8mg of ondansetron a day, so you can up your dosage, just remember laxatives for the dreaded constipation.
In NYC, you can do some great tours via the double decker buses with the open tops. The fresh air might help reduce the sickness, and with NYC traffic, they don't move very fast. The lines at the Empire State Building are horrendous, so be prepared for an hour long wait.

Lemon - I was prescribed metachlorpromide and ondansetron together. I could take 4 x meta a day and 3 x ondansetron. Until the meta started making me twitchy.

Holly - is this week your last one at work? All the best. Long may the vom free streak continue.

I'm down to one ondansetron every two days now, will continue this way until I run out in about a month. My ondansetron free days have more nausea in them, but still keeping food down, just. Was heaving after my small amount of custard a couple of days ago.
Constipation is awful at the moment, so I'm going to stop taking my iron tabs. Toilet trips are reminding me too much of being in labour but without my body actually wanting to push. Hoping it's the iron tabs that have decided to wake me up at 4am every morning too.

To those worried about ondansetron - we were concerned with DDs pregnancy so didn't take as much as I should've. Ended up getting a drip 4 times and being sick daily till 20ish week. Took ondansetron till 36w and had a perfectly fine baby. This time around we decided it was better for me to be as close to a functioning mama as possible, so have taken it consistently from 5w. No issues so far. And vomiting slowed down around 16w. The nausea never really leaves till birth with me.

Cross posted flossy - go to Gymboree and old navy does some lovely baby stuff too. Quite excited that number 2 will get to wear some of the outfits we got on last years states trip.

Oh no Mustang, I would definitely have lost it about that!!!

Don't worry too much flossy am sure you'll have a good time, me and my DH went to NY when I was pregnant last time and I was so worried about it, but enjoyed it in spite of the sickness. I was scared the jet lag would make things worse, but it was manageable, with plenty of rests / napping in the afternoon. Flying wasn't easy but was ok. Ooh a word of warning though - Empire state building can have v. long and misleading queues, even though we had bought those city pass tickets in advance we waited over an hour (went at a stupid time though) as there's security clearance and it's one of those places you think you're nearly there and then enter another room full of people...not fun if you're feeling poorly and can't escape. Top of the Rock is a good bet if you're not feeling great as they give specific time slots, so pretty much no queuing and there's a great view with some benches for you to sit down on at the top to take in the view and get 5 minutes breather.

Cross post with Mellee, glad to know we weren't the only ones to get caught up in the horrible queues!

Thanks everyone, I've been twice before so done all the tourist things so this time will be more chilled and shopping, I've done empire twice so not going to bother this time. Do want to go up the new world trade centre though so could vom off there It just seems alien that I've not got out of bed for the last two days how on earth do I think I can go on holiday long haul?!

Hi everyone. Flossy, I went to NY at 9/10 weeks. I had a terrible time, BUT I spent most of it in hospital after two major bleeds. In terms of the HG, I wasnt diagnosed then but was on useless cyclizine. The flight was surprisingly ok, I just tried to sleep for most of it. Fingers crossed it's ok for you. Even if you have to spend a lot of time in the hotel room, at least its a change of scenary! With room service! Good luck.

Yes Mellee, first week back since April, just one week. Mostly dreading public transport as I've been driving if I have to leave the house. Also not looking forward to the horrible environment I work in... Must keep telling myself, 5 days.

Sorry to hear of tensions Mustang. I have been snapping at DH too much lately. I sometimes forget that while he doesnt experience the physical side of things, he is affected by most others. I'm sure your DH understands how awful it is for you.

Nursery isnt as finished as I would like, but here are some pics...

Last one!

Hi everyone. Wow this board moves fast! It's hard to keep up. Hope you cope on your holiday, floss, and enjoy it. I'm sorry to hear you cancelled your trip, Thingy.

I was discharged on Thursday evening, with enough time to vote! I haven't properly vomited once since then actually, just some dry heaves. It's such a difference from not having eaten anything for days and vomiting constantly. Nausea is still pretty horrible though. Ondansetron is magic! Though I have awful constipation. Trying lactulose :/

I made it to HP & the Cursed Child yesterday! It was amazing. They were really strict about not bringing food and drink into the theatre - you are only allowed a bottle of water. This would have been a disaster for me, as I need to eat frequently and can only handle certain foods, so I spoke to the head security guy (John) before we queued to explain the situation and ask if it's ok to bring in a few snacks, and he kindly said it was fine. Might be useful for someone else to know! They search your bags and were making people chuck their food away, and you can only buy bags of sweets, Pringles, and small ice cream tubs inside.

In hospital I was given buccastem (prochlorperazine) once. I had such a horrible reaction to it. I went really really drowsy so that it made me dizzy, and every time I moved my head the world would spin around and I'd feel motion sick. It felt like my brain was spinning slowly in my head. My limbs felt really heavy and went numb, and it felt like I couldn't move them. I was twitching a little, and sweating. And then I was hallucinating that the ceiling had rolling clouds on it, and that a man came in my room and poured himself a glass of orange juice :s Cyclizine made me feel like this too in my last pregnancy so I stopped taking it as it made me feel more sick. Has anyone else had anything similar to that?? No way I am taking that again. It was horrible. Do you think promethazine would make me feel the same as well?

Ooh beautiful nursery Holly.

Flossy well done you still going in spite of hg.. very brave. You'll be fine. Hg is quite portable.. just have new toilets to expore and change of scenario for napping worsy case scenario! I went to Manchester for 4 nights with HG Whixh isn't as exciting g but was actually quiet nice to be eating out as then you really can just go.. oh what do I want for dinner from.this menu....oh a bowl.of sorbet please!! I slept a lot but enjoyed a few hours a day. Take it easy and have a great time.

Here are some photos of my new Grimms obsession 😂

Isith when I was on full 3x a day cyclizine I was a bit like thay.. heavy limbs, zombie ish and just hd to sleep all day, felt a bit numb and also got reallt bad dry mouth with little bit dots on tongue and cracked lips. Stopped it for a while and that improved then went back to ome a day and was a bit better but still had the dry mouth things and tiredness come back. Amazong for nausea though. Am off it totally now amd struggling again :(

Lovely nursery holly

Does anyone know is it ok to take ondansetron at a similar time to levothyroxine ? I have an under active thyroid and take my meds for that as soon as I wake up on an empty stomach. Ideally i want to take ondansetron at same time to try and get it working before I have to get up and start getting the children ready for school but wasn't sure if I can take the two together ?

@cantdothisagain2017 I am not sure, but I take ondansetron late at night and it stops my morning sickness and allows me a peaceful nights sleep. Maybe try that if you're worried? Failing that if you ring 111 they can get OOH GP to ring you and let you know for sure

Wow I missed a lot this weekend, apologies in advance for those I miss.

Holly: great looking nursery. My baby has no where to sleep yet so I'm a bit jealous. Both of us have our last week this week (I decided not to try and stay till 36 weeks and 34 takes me till the Easter hols next year anyway). I am so counting down the days and wish you well with yours.

Isith: glad you had a good time at Cursed child and are out of hospital. I am actually on prochloperazine for pregnancy onset vertigo and thankfully haven't experienced anything like you, but I did struggle with IV cyclizine when i was admitted.

Flossy: I wish you well with your holiday. I have no advice to give as I never really went anywhere during my first trimester.

Mellee: I was planning on weaning off my last ondansetron when on mat leave but I was a few ours late this morning and boy did I know about it. Think I'm going to have to stick to one a day as I can't stand the idea of going back to spending all day on the sofa feeling terrible and possibly being sick loads.

I've been having lots of trouble sleeping recently. The last two days I've been having a hot water bottle to try and ease aches and pains when I first go to bed. Had some success but still only maybe 3-4 hours, though that is better than the 1-2 I was getting for most of the week.

Cannot wait for this week to be over and then I can really start to think about baby's arrival and moving house. First thing is to start backing hospital bag and choose a moses basket for baby to sleep in I think...

Hope everyone has a good night

Yes I think I'll have to check. Logic is telling me that as we have thyroid hormones in our body all the time it should be fine but again my anxiety won't let that be enough I'll have to double check!
Sent my antenatal referral off today. So excited. No idea what the schedule of appointments will be as it's a different hospital to where I had my other children. Really hope I get a scan at booking in but I've had two at the epau so maybe they won't, just want to feel reassured all is ok if not I'll save up for a private one I think

flossy good luck for your trip, best bet for changing your money might be online, it's often cheaper and you can get it delivered. Just come back from a trip myself, it was fine, but booked priority boarding etc to alleviate standing in endless queues. Restaurant tables nearish to loos etc. I spent a lot of time sleeping, we both felt that was better than forcing me to cram the day full and feel worse at the end (took Promethazine one day and nearly fell asleep in my lunch on a boat tour!)

flap, holly nurseries look fab!

Fantastic nursery Holly, it's really cute. You must be pleased with it. Are you feeling happier now it's done, feeling more prepared?

Isith, glad you're out of hospital now. I hope you enjoyed the Cursed Child. I found promethizine totally zombified me, heavy limbs, foggy head etc. But I'm fairly sure Holly takes it without it affecting her. So maybe worth trying?

Flossy good luck with the trip. You're very brave. The reason we went to the Isle of Wight was because I daren't go further. Maybe take some cyclizine on the plane to know you out?

Love that Dino display Flap!

Girls, I'm afraid to ask this but when does this peak? I should know, this is my fourth time in 5 years, but I'm 8 +3 and not functioning at all. Thrown up twice in the last 2 hrs. I've done no work and have such a backlog. I seem to remember things getting worse till 10wks and then staying like that 3-4 weeks and then starting to improve. If this isnt the worst I don't know how I'll cope. Or get anything done. We're supposed to be on holidays week 11-13. Oh god, it's going to be hell isnt it.

Sorry, everyone, recovering from a migraine and feeling as if my brain is made of sawdust - even more than usual - so I'll just pop on to say:
You'reNotASausage Generally it gets a lot better for most people between 14 and 20 weeks. Even for those unlucky enough to suffer throughout, it's almost never as bad as in the first tri. The bit leading to and including 10 weeks does seem to be dire - sorry you have that underway. I think nature makes one forget the details of suffering as a protective device.
Hollyhop Your OH has certainly done a professional looking job. Is he very keen on DIY?
I hope everyone is surviving. Back soon, restored to my normal (in so far as I ever am) self.