Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos/
Another invaluable website is:
www.pregnancysicknesssupport.org.uk

If you need help in obtaining medication, this phone number is
brilliant:
024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!scenario

I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

thank you so much, you've given me the confidence to go to the gps but will mention at the scan also. I can't face this for another 8 weeks! will let you know how i get on

jel2014 Welcome. You have had such great advice I don't think I can add much, save, how are liquids staying down? It's always worth investing in some kesostix if you haven't got them already, to check for the early stages of dehydration. I'm glad you're going for meds.
Blondes Sorry,I missed that about Reappearing Dinner - not nice.
Lucy Oh dear, I am sure you would choose a better hairpiece than Donald Trump! A friend used to increase her hair by wearing a real hair one to do Arabic dancing, which is why I wondered.

MotherofPearl That is so sweet.
Waves to LightTripper and everyone...

Ha! Oh, bless her, mother - so cute!

Lucinda, he was on the news at the time with his oh so stylish hamster head, made me laugh!

Hello all! Just checking in to see how everyone is doing?

My baby is just over 8 months now and I was starting to think that maybe my pregnancy hadn't been so bad, and that in a year or so, maybe we could try for number two…

Then I had food poisoning over the weekend. And as I raced between my bedroom and the bathroom multiple times, the sheer horror of HG came back to me in vivid detail and the thought of going through it all again, this time with a baby/toddler around made me break out in a cold sweat!

I think I'm going to need counselling to even contemplate doing this!

Huge hugs to all of you

TwoDrifters Lovely to hear from you; so nice of you to come back to encourage others. Sorry to hear of food poisoning and how it brought back the traumas. I really admire the way some woman nerve themselves up and go through it again, but you are sensible to defer. I sometimes think counselling, going into options if you do wish to go for it again, should automatically be on offer for all who have gone through this.
Lucy At least it gave you a laugh! I used to work for a man who had one just like it. My lips used to twitch a bit..
I hope everyone is coping today.

TwoDrifters I've not been as bad as many here, but my one (only!) reassuring thought this second time is that this is the very last time I ever have to be pregnant. Otherwise I don't think I could do it.

Jel one thought - when you go to see the GP (if the scan staff can't help) it may be worth printing out a couple of documents at the top of this thread (like the NICE Guildelines) and also the more recent RCOG Guidelines. I don't want to worry you, because all the GPs I've seen have been brilliant so yours hopefully will be too, but some are very anti-prescribing. It's worth emphasising the retching, and how difficult it is making things to cope with your job and looking after your DC, and then maybe just highlight a couple of key quotes from the NICE or RCOG Guidance in case you need them. For example "Women with mild NVP should be managed in the community with antiemetics." from the RCOG (i.e. even if you aren't throwing up, you can still benefit from antiemetics).

Forewarned is forearmed and all that, and when you are feeling rubbish it is very hard to stand up for yourself unless you are prepared!

If worst comes to worst and the GP is unhelpful, the number at the top of the thread for the PSS charity could be useful as they keep a list of sympathetic GPs around the country.

Good luck with the scan and the GP!

Sorry, I meant to include a link to the RCOG Guidelines - here:

www.rcog.org.uk/globalassets/documents/guidelines/green-top-guidelines/gtg69-hyperemesis.pdf

If you look at the back you can find the table for the PUQE score. You can see that if you have nausea for 6+ hours per day and are retching 1-2 times a day that would already give you a PUQE score of 7 which is moderate (even without actually vomiting), so they shouldn't be fobbing you off xx

P.S. MOP - that photo really made me want to stroke your DD's hair! I hope a view of the back of Trump's head wouldn't give me the same inclination!

Thank you Light. I went to the gp this morning as I got worse over night. Violently sick twice. Hardly sleeping. She didn't want to prescribe due to unknown effects on the baby. And was very much you managed last time you will do again! Advised to eat crackers before I get out of bed! Fed up but managed not to cry. She said they only prescribe if you have been hospitalised.

Hi jel, really sorry to hear about your experience with the GP! That is awful! Unfortunately, it doesn't seem too uncommon that some HCPs will try and fob you off with "normal morning sickness", "man up" etc. Some on here have found it useful to take their DH or DP to help reiterate the point and that this is not normal. Others have had success by seeing another GP, or simply persevering!

You do not have to be admitted to hospital before they prescribe drugs, and some have not "even" (I say this with gritted teeth) been sick but the nausea has been so dehabilitating they have needed meds to help with this.

Please don't be fobbed off, if it is affecting your quality of life - go back and see someone else!

I'm so sorry Jel that sounds awful. I definitely would have cried, I hate feeling furious and powerless at the same time.

It's definitely not right that you have to be hospitalised as a matter of policy. I have been prescribed meds by the consultant nurse, my GP and a locum GP, all without any query or question, on the basis of me struggling to cope with constant nausea and actually throwing up "just" once a day.

I'm so sorry your GP was so dismissive. Is there another GP at your practice you could see if the hospital can't help on Friday, and maybe bring your DH and the guidelines next time? It's so hard to stand up for yourself when you are feeling so awful.

Waiting until you get hospitalised is not a good use of the NHS's resources (by contrast the pills cost a few pennies each - see up thread a bit), let alone what it does to your sanity. The first line drugs they would try first (like cyclizine) have been used for years and years so there are really good studies with large samples on their (lack of) effects on the baby.

Alternatively do try the PSS phone number in Lucinda's e-mail at the top of the thread: finding somewhere that will prescribe if you are having problems is exactly what they are there for.

Jel, I'm just furious on your behalf. You've already had very helpful advice from both Happy and Light, but another option is to see whether you can self-refer to an EPU. The reality is that hospital consultants are much more experienced at treating HG (whatever the severity) and are much more likely to prescribe appropriate meds, even though as Light says, it's poor practice to wait until you are so bad that you require hospitalisation. An EPU self-referral is one way around the problem. Do you have one locally? I really feel for you. As the others have said, it's a quality of life issue,
Light, yes, her hair is very strokable, if that's a word.
Nice to hear from TwoDrifters. Yes, after a while the horror fades but it doesn't take much to bring it all flooding back.
Waves to everyone!

Jel 😡😡😡 for you ;( how dare your gp say no and you need to be in hospital. What total crap !! Try and see another one or you will end up in hospital on a drip

I escaped it just tho doc said I was dehydrated and I said if got worse I would admit myself then medication started to kick in

Rest of you sorry I can't name tag as on phone but the lady who said she's thinking about no 2 then had a bug. I'm the same - even if this wasn't a 5th attempt of ivf baby and I fell preg easily - I wouldn't be having no 2

Felt so crap early on thought was twins. Then stayed in bed most of the day as still as possible as no way I could do that if had a toddler /3yr

Send weird since being away my sickness has stopped am and gone to evenings. I feel fine daytime (apart from usual every day sick/nausea feeling that HG suffer)

Every night so far we have eaten and I've been sick. Think DF a bit fed up of me chucking up after dinner - told him have no choice

He was more sympathetic at home and am - noon sickness

So far I've managed to hold it till back at apartment - told him to be grateful I haven't thrown up over table !!!

So the dr has just called. She has conferred with a colleague and read the nice guidelines. She still doesn't want to prescribe but will see me next week to keep an eye on my weight. I've had a slightly better day by keeping DS busy and I've eaten a bagel! I've also asked my Sis in law who is a go what she would do. Let's see what the night brings. Thank you for all your support. You are all making me realise I'm not just being weak and it is an issue!

For the last 5w or so I've survived on bagels and chicken cuppa soup

Seems to be the only thing I can keep down easily

Tho as I send in previous reply I can eat anything daytime while I'm on holiday but always sick late evening now

Heaving up rice is the worst thing ever. Every little grain 😢😷😱😳

Aww blonde you poor thing heaving up rice is awful I have stayed away from it and try not to eat late in the evening except fruit or yogurt.
Hel - keep pushing and pushing they will eventually give you something!

Hope everyone else is holding up, so glad another week is nearly over

Sorry to hear your DH is not being very sympathetic Blondes. He should think how awful it is for you! Argh, rice is horrendous coming up, seconded by pasta, which was always my nemesis. Mulb, you are wise to stick to fruit and yoghurt.
Jel, sounds like your GP has at least made an effort to reconsider. But she's also missing the point! It's not always about weight; in this case it's about quality of life.
Gosh, I hope Rae, Sleepy and Autumn are okay. They've been quiet.

Jel2014 I really feel for you. I am dismayed that GP's ideas are so out of date. It used to be the policy they didn't prescribe until hospitalisation some years ago - and that meant that women got very dehydrated and had it worse than if they'd had treatment earlier. I hope I don't sound bossy if I say, do get some kesostix (available from any chemists) if you haven't got them, to check for dehydration. You've had great advice. I second LightTripper's advice of your phoning PPS on 024 7638 2020 for advice. They will have to ring back, but they've given great advice to people on here.
Blondes Rice - oh dear, 'The horror, the horror...' Sorry DH is not being sympathetic; perhaps you should suggest he does it for you, as on the plane...
LightTripper I'm glad that thought is getting you through! Great advice from you, happydays MotherofPearl and everyone...
Apologies to anyone rudely overlooked.

I'm painting a bad pic of DF / bless him he has redeemed his self. Out for dinner and just managed to get to loo in time and barely eaten anything :(

DF much more sympathetic. He knows I can't help it but strange how all changed from am to 9pm !!

And yes avoid rice !!!!!

mop, you're right autumn, rae and sleepy have been very quiet. I'm hoping that sleepy is busy having her baby and that's where she is. But early for autumn and hopefully rae isn't working herself too hard!!

After a marginally better week (sick twice a day instead of 5+) I stupidly thought I might have a good last trimester but it's back with a vengeance. Feel absolutely exhausted constantly, generally uncomfortable and the constant nausea has stepped it up a gear too

Saw the consultant on Wednesday who said ideally she would like to induce me any time from 37 weeks but because of the Clexane injections she is reluctant to. I got very teary at the prospect of having to go to 40 or 42 weeks. I see her again at 34 weeks so she wants to discuss again then. Am just praying this LO decides to come early naturally!!

Sorry for the rant, feeling a bit down this morning!

Waves to all - happy Friday

happydays So sorry you've suffered throughout and it's getting worse. It's very hard on those who do, though hopefully for most people it's never quite as bad as that awful first part. Hugs. I hope they do induce you before forty weeks.
Blonde Glad you got some sympathy.
MotherofPearl You are right; they are being quiet, and quite a few others, too...

blonde I agree about the sun, I have been waiting for cooler weather. Frustrating that this summer has been gorgeous with heat waves and I just sit by a fan literally exploding from the heat!!!
Has anyone else had more fatigue from 31 weeks on? My arms are like lead. Since dd started school I feel I'm doing more, walking with crutches twice a day taking her into school playground then picking her up etc I think is tiring my arms as my muscles are probably pretty wasted. Even picking up a carton of juice is making my arms tired. I just feel so drained and exhausted, trying to nap before picking her up from school. Just wondered if anyone else has had this severe draining fatigue where your limbs feel heavy and tired from 31 weeks?? X

Morning everyone, sorry to disappoint - still no baby! Getting very frustrated with on and off pains and tightenings for it to not amount to anything. Been busy this week with DS. Parents have just picked him up to take him to the seaside for the weekend - he wasn't happy as he's been super clingy and just wanting mummy. I suspect he's sensing that things are about to change.

Sorry that we've got more newbies - shocking treatment of jel, angry on her behalf. I would keep going back jel, ask for a second opinion and def buy some sticks to check your ketones. Anything above 2 means hospital. As others have said, if you have an EPU close by it might be worth self referring if you can?

Sorry others are still feeling so poorly, blonde, happy, autumn. All I can say is having HG sucks! I do keep telling myself it is all worth it and now I'm on the final stretch it isn't too bad as I think most heavily prednat women at this stage can't wait for baby to arrive.

Hope rae is doing ok, and not working too hard.

Hi to mop and lucinda. Keep those fingers crossed that baby decides to make an appearance soon!

Jel I'm being sick 50+ times a day & although have had many a hospital check up, I have not been admitted. I also don't have keytones in my urine samples. This is because it's being properly managed. Plus I'm on Ondansetron. Don't let them fob you off!
Angry for you!

50+ 😱😱😱 you def need help and more than likely fluids

Not liking sun - some foods - being sick each day let alone making me feel nauseaous all day - bloody bubs - even if wasn't ivf this will be an only child 😂😂
No way doing this again with a toddler !!!

Sleep /rest really helps

I know I've got mild HG compared to some on here but friends ask what it's like and only way I can describe it is a constant hangover feeling - horrible Tasts like a monkey shat in my mouth - salivating - queasy all day but thankfully no headache that comes with hungovers