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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

992 replies

LucindaE · 14/07/2016 12:51

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos/
Another invaluable website is:
www.pregnancysicknesssupport.org.uk

If you need help in obtaining medication, this phone number is
brilliant:
024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!scenario

I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

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Allaboutthecake13 · 16/09/2016 13:22

Hi mama - I'm only on clyclizine so I'm afraid I can't give you much info but I didn't want to read and run Flowers

It might be worth giving the Pregnancy and Sickness Support charity a call? I spoke to them earlier today as I was just feeling very miserable and they are both massively understanding and well informed about treatment options and how to approach these with HCPs so they might be able to give you some good advice.

Not sure how to link in here but their website is www.pregnancysicknesssupport.org.uk and their helpline is open 9.30-4.30 (I think) Mon to Fri.

MotherofPearl · 16/09/2016 13:23

Hi Mamato and sorry to hear about the sickness, and about the frustration of not being able to get the right meds. GPs generally seem reluctant to prescribe Ondan (as you say, it's the cost). IME the best route is a hospital consultant (either via A & E if you have ketones of 3+ or more), or at an EPU. If you have an EPU you can self-refer to, I'd say that's your best bet. Then once the consultant has prescribed, your GP can keep reissuing. Whoever you see, you need to stress how debilitating the sickness is, and that's effecting your ability to care for your child and complete your training. Let us know how you do.

MotherofPearl · 16/09/2016 13:26

Sorry, cross-posted with Cake, who has given excellent advice. Sorry to hear you're feeling so bad. Are you able to ask for different meds? I hope PSS were able to help?

SleepymrsE · 16/09/2016 13:44

Sorry to disappoint happy & mop, no baby yet. Did have some pains again last night but alas died off again after a couple of hours. Baby was going mental in there too - constant movements for a couple of hours too. I had that with DS a few days before labour so I'm hoping it's another positive sign. On a negative note, woken up with a stinking cold - boo!

Sorry to hear you've been in hospital autumn, the ondansatron should help. It has many of us and hopefully your GP will do a repeat script now you've been given it.

Welcome mama, sorry to hear you're struggling. Unfortunately I had to go through a similar process... Started with cyclizine, and tried them all building up to ondansatron but even then I was still admitted to hospital where a combination of ondansatron & cyclizine were prescribed. Great advice from cake and mop. How are your ketones? Not ideal but a trip to the hospital usually is a massive help as you often get the 'good drugs' plus the hydration and iv meds break the sickness cycle helping to get on top with the tablets.

LucindaE · 16/09/2016 18:57

Mamato1 Welcome. You have had excellent advice from Cake and MotherofPearl . As has been said, it is always good to ring Pregnancy Sickness Support on 024 7538 2020. They will have to phone you back as it's the weekend, but they will, and they have helped many women on this thread to obtain effective meds. How are the liquids staying down? As a nurse, I am sure you know about keostix to check for the early stages of dehydration. Unfortunately, while I understand you being reluctant to be off sick, it may be unavoidable if you have this badly.
SleepymrsE Sorry baby hasn't appeared yet.
Apologies to anyone rudely ignored. Waves to MotherofPearl and everyone...

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LucindaE · 16/09/2016 19:44

Mamato1 Silly me - mistype - 024 7638 2020!

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LightTripper · 16/09/2016 22:20

Great advice above. I find if something is going to work it does within a couple of days, so don't feel bad about going back quickly. I take cyclizine and metoclopramide together and they were enough for me. Cyclizine seemed to help with the nausea, metoclopramide more for throwing up. I've not had any side effects despite taking both for about 2 months now.

Good luck and welcome to the thread!

mrsmonkey14 · 17/09/2016 13:27

Hello all, just popping on to say hello and see how you are doing. Baby monkey is 8 weeks now and I can barely remember the HG. (In fact when GP was saying I might change my mind about having a third baby I even forgot to mention it as one of the reasons I will be trying extremely hard not to be pregnant ever again)
Much sympathy to all those suffering, and reassurance that your babies won't be harmed by the appalling diet etc. Oh and the tiny silver lining of HG is I'm back in my pre preg clothes due to the minimal weight gain (this situation may however only be temporary due to the vast amounts of treats I am scoffing)
Waves to MOP and of course lucinda
Much love X

LucindaE · 17/09/2016 20:25

mrsmonkey How lovely of you to come on to encourage current sufferers. So glad Baby Monkey is flourishing, and your horrible memories of Hyperemesis have faded.
lighttripper I am glad that combination of meds is helping...

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RaeSkywalker · 18/09/2016 09:06

Hi all, I'm so sorry for my silence! Couldn't find the flipping thread for some reason.

Welcome Mamato. You have my sympathies. As others have said, what are your ketones like? For what it's worth, I found that cyclizine reduced symptoms a little for an hour or so, but then made no difference. Ondansetron has saved my bacon.

.... Does anyone know how much ondansetron actually costs? I keep being told it's expensive by HCPs. I wonder how expensive?

Sleepy I've got everything crossed for you! Hopefully the active baby is a good sign of impending labour. Hope you're resting up y clear the cold.

So lovely to hear from mrsmonkey! That time has flown hasn't it! Interesting that your memories of HG are already fading slightly. I feel traumatised by it all! Hopefully a lively baby will be a good distraction for me Smile

I'm ok. Haven't even bothered picking up new iron tablets yet- bought Spatone instead. I can't recommend in terms of if it works (only been taking for 2 days), but my goodness it is so much better than the tablets. No increase in sickness at all. I'm going to see the midwife on Thursday, so will ask her what she thinks of it (and how badly anaemic I actually am). Might add in a tablet again if I need to, but I'd really rather not. There just seems no point if I'm sicking them straight up again.

Hope everyone is coping Flowers

MotherofPearl · 18/09/2016 09:23

Morning All,
Rae, that's good news about the Spatone. Hopefully it will prove effective as well as more palatable. How are your tiredness levels now?
Hi to MrsMonkey, so nice to hear from you! It is amazing how quickly the HG trauma fades. I feel the same. I think once the baby arrives, you feel so much better and then you're so busy, you don't really have time to dwell on what's happened.
Sleepy, sorry to hear you have a cold. Nasty at the best of times, but even worse for a heavily pregnant HG sufferer. Hope you've managed to rest this weekend.
Light, interesting to hear how your two meds have helped you in different ways. Both cyclizine and Metochlopramide are known for causing drowsiness - did this wear off for you after a bit?
Big waves to Lucinda and hope everyone is taking it easy on this slightly more autumnal Sunday.

Autumnsunshinebaby · 18/09/2016 09:36

Just checking here here. waves to all

Rae the midwife at the hospital said yes it was expensive but not that expensive compared to other medications the NHS prescribes. That isn't a clear answer for you but she wasn't too worried about the cost.

Pretty unwell here at the moment so will say bye for now.

RaeSkywalker · 18/09/2016 10:20

Mother I'm pretty much broken to be honest. I think I just need to accept that weekends are a write-off as long as I'm still in work. Planning to do a lot of high quality laying about! Maybe if the Spatone starts to help with my iron levels, things will improve.

Autumn sorry you're so poorly. Interesting r.e. Ondansetron- I've just been thinking a lot lately that I wouldn't be surprised if the cost isn't that high compared to other medication. I wonder if ondansetron is perceived as 'expensive' by HCPs because of the attitude a few of us have encountered (that we should just be 'getting on with it').

LucindaE · 18/09/2016 17:05

Raeand autumn Sorry to hear you feel so awful. Rae unfortunately, what you say about how expense is regarded re medicines for Hyperemesis sounds all to probable - I've known elderly people be on a cocktail of expensive medicines for a series of health problems for a couple of decades and that is not questioned, but giving Ondanssetron for Hypermesis for a few months is. I am still indignant about sufferers being told to 'man up'. Goodness, I sound strident and sour today! Sorry, everyone. Quite autumnal here, so hopefully at least people won't be suffering in the heat.

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Autumnsunshinebaby · 18/09/2016 17:33

Lucinda I'm indignant on your behalf! Man up?! (I'd love to see if men would do any better....) I have been shocked in the last few days about someone I know's opinion on HG. I am sure that they think I am malingering, need to man up, 'just drink', get on with it... And that my husband doesn't need the stress. I wasn't speaking to them directly as I was in bed, doing my best at 'malingering' but I overheard the conversation and I just cried.

Hope everyone is coping a bit better now the heat has gone. I am very grateful for the cooler weather.

Rae I'm sorry you are feeling so broken. How many weeks are you?

MotherofPearl · 18/09/2016 19:10

Autumn, your post made me feel so sad for you. As if you don't feel wretched enough! People really don't understand what it's like; I think the reason this thread is so long-standing and the work Lucinda does in keeping it going is so important, is that the only people who truly understand HG are those who have experienced it. Flowers for you.
Rae, sorry to hear you're broken with exhaustion and sickness. It's so tough, but you have done amazingly well, and you're so kind at supporting others even when you're suffering so much yourself. Hang in there.

LucindaE · 19/09/2016 10:13

Autumnsunshinebaby You poor thing. Hugs. As MotherofPearl says, when you are feeling so ill, that is the last thing that you need. Yes, that expression 'man up' is infuriating, when they think it's the end of the world if they have a stomach bug for a couple of days!
The only way I can explain it, is that I think a lot of people don't want to accept that there is a lot of unnecessary suffering in the world, and problems that don't necessarily admit of an easy solution, ie, ginger and wrist bands and getting on with it. There does seem to be an attitude of 'there must be a an easy solution' to much modern thinking, and also the New Age idea I personally detest that 'wrong thinking or attitude' must play a part in most ilnesses, for all that many health conditions are hereditary. Sorry everyone! Lecture over.

MotherofPearl Thanks for the flowers. Here are some back for doing such a great job Flowers.
Rae Did you say you've used all your leave? How are you now?
I hope everyone is coping today. Watch me cross post with someone.

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SleepymrsE · 19/09/2016 10:45

Not had chance to catch up on the thread, feeling thoroughly broken with insomnia. Surviving on a few hours sleep a night is not good. Laid on the sofa trying to nap now but failing miserably. Feel really sick again. Had a few emotional melt downs this weekend, everything and anything sets me off. More pains and braxton hicks. Just wish baby would make his/her exit now.

Sorry to all who are feeling so low and rubbish at the moment. Fingers crossed for a better day for us all.

happydays00 · 19/09/2016 10:52

autumn sorry to hear how inconsiderate people have been. It really is quite maddening: my 'best friend' is very insensitive and has said to me that "you're being sick because it's part of your routine" and "if it's any consolation, the worse the morning sickness is, the more healthy the baby!" My DP managed to calm me down before I said what I was thinking - I know it's incredibly hard but try not to listen to these hurtful comments: they are completely oblivious to what HG is actually like; as previous posters have said, unless you have had it, I'm not sure you can ever properly understand. Sending lots of Flowers your way though!

rae how are you after a (hopefully) restful weekend? I felt so sad for you when I read that you feel broken. It's just such a perfect way to put it! You have done so amazingly though and there is light at the end of the tunnel - i think you must be about 31/32 weeks now so just think: only another 8/9 Monday's to go! I met up with my friend and her new baby on Thursday last week and it gave me the reminder I needed that all of this will be worth it in just a matter of weeks!

sleepy how are you holding up? Has your cold improved yet? I really hope it has!

mamato, allabout, light how are you all?

lucinda, mop waves to you both

LightTripper · 19/09/2016 11:49

Rae I just looked up Ondansetron on the National Formulary and in fact although the branded version (Zofran) is £3.50 per pill, there seem to be generic equivalents for 17p per pill - so I wonder if the perception it is expensive is a out of date now? Although it came off patent in TEN YEARS AGO in 2006, so you'd hope people would know about the generic versions by now...

For comparison, generic versions of metoclopramide are only 3p per pill, but cyclizine 11p per pill, so the difference between cyclizine (which they pretty much give out like candy?) and Ondansetron just doesn't seem to be that much does it? Certainly cost doesn't seem like a major reason not to prescribe it if the first line drugs aren't cutting it.

www.evidence.nhs.uk/formulary/bnf/current/4-central-nervous-system/46-drugs-used-in-nausea-and-vertigo/5ht3-receptor-antagonists/ondansetron

I've had a much better few days here. Have gone down to 2 pills a day and although I felt a little bit worse it wasn't too bad and I haven't thrown up for nearly a week now. I feel really happy that I started drugs so early, because the sickness started out even worse than my last pregnancy but seems to be getting better much earlier (last time I was throwing up until 20 weeks and never stopped feeling sick), so I think there's a very high chance the pills are to thank for that.

I so agree about people not understanding. Even a friend who has been totally brilliant and sympathetic was really shocked when I said that if I knew I was going to feel like that for ever I would rather be dead. I just don't think people can really imagine what it feels like (and I haven't even had the worst end of the spectrum but I still couldn't imagine going on with it if I thought that was going to be the rest of my life). Even at my level I had thoughts about terminating the pregnancy, which then just make you feel guilty and even worse. It really is hell. The only silver lining is you know it won't last forever, but it feels pretty close to forever at the time.

Now I just have the "slog" to go ... feeling entirely bearable, but still nothing is really joyful or brilliant. I just have to trudge through these last few months. But still it's a hell of a lot better than where I was a few weeks ago, and I would no longer choose death over feeling this way for the rest of my life (though I would be pretty depressed about it).

Sorry to start talking about death and stuff. Probably not what you all need for a Monday morning. I hope you all have a good start to the week x

LucindaE · 19/09/2016 18:45

LightTripper That is fascinating about costs. Excellent research! Sorry your friends are being so insensitive, too. Routine?????!!!!!! I read of such a thing in a 1930's collectable book called something like 'The Maternity Book' and morning sickness. No progress in thinking in 85 years or so? Oh dear...
SleepymrsE I really feel for you. No comfort for you for anyone to say, 'Not long to go now'. Really sorry you're suffering.
autumnsunshinebaby and everyone, much sympathy for those suffering foul symptoms and annoying suggestions...

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LucindaE · 19/09/2016 18:50

Sorry, LightTripper and happydays I mixed up the one who was receiving suggestions about routine. Glad you're feeling a bit better than that all time low, LightTripper.

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Allaboutthecake13 · 19/09/2016 20:10

Hi ladies, hope everyone is coping ok.

Autumn I am so sorry to hear about the inconsiderate and unhelpful comments. Flowers

Rae - your description of broken seems so apt for HG. I hope you're managing some rest.

Sorry I've been a bit absent - mainly sleeping. I've been a bit up and down - had some better days, but I think they have made me more disappointed when the sickness comes back. I've also struggled with well intentioned but clueless people (DM, DMIL etc) saying things like 'try and go for a walk - will do you good to get some fresh air' on days where I have been too exhausted to even have a shower! I got a bit teary and called PSS who very kindly sent me some links to send onto people to educate them somewhat.

I'm having awful problems with near constant acid reflux now - anyone else? It's not a very pleasant feeling (particularly when my throat/oesophagus already feels quite sore/burnt from vomiting so much...)

Waves to lucinda pearl sleepymrsE and everyone else. Wishing you all restful evenings x

RaeSkywalker · 19/09/2016 21:07

Autumn I'm 31+1. Not too long to go now. I feel like I've been pregnant forever!!

Thank you MOP for your kind words Smile

Lucinda yes, I was guilty of the 'must be something wrong with your attitude' thinking- but towards myself Blush I just thought that everyone else seems to cope, so I was clearly just being a wuss. I would never think that of anyone else though, just myself. I've used all of my sick leave now, but have nearly a month of holiday left. I'm desperately trying to save it incase I take a turn for the worst again before mat leave. Luckily we do work flexi in my office, so I'm able to use hours I've banked to go home early every so often.

Sleepy I'm thinking of you. It doesn't help I know (as Lucinda points out) but you're so nearly there! Are you managing to rest much during the day? I had a bit of insomnia (dog tired but take a couple of hours to drop off), but nothing as severe as you. You must be exhausted.

Light that is fascinating about the prices!! I might wheel that little gem out if my GP gets funny again. I've always just had the generic version (not sure about what I had in hospital but i'dimagine generic also). Well done on cutting down to 2 a day! Fingers crossed your HG is easing a little now. Couldn't agree with you more about how HG makes you feel. I totally understand why some pregnancies are terminated because of it, it just descends and totally takes over your life. I occasionally have a little cry for the person I used to be, and I feel so sorry for DH. I'm no fun at the moment (he's so lovely though, he couldn't be more supportive).

cake so sorry that you're suffering this much. Hopefully the PSS links will help people understand. I think it's really hard to imagine it until you experience it yourself/ see a loved one go through it. I am getting a bit of reflux, thankfully not much though (touch wood). I think it's quite common in HG patients, so I reckon that somebody will be along with advice soon.

RaeSkywalker · 19/09/2016 21:11

I'm ok. Very tired as usual- really struggling at work now- feeling sick and shattered by early afternoon. Going to ask to work from home on Friday. I am so, so glad that the temperature has dropped!