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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

981 replies

LucindaE · 11/11/2014 10:38

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos/
Another invaluable website is:
www.pregnancysicknesssupport.org.uk/
If you need help in obtaining medication, this phone number is
brilliant:
024 7638 2020

Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy#!prescribinginfosub

I would like to thank Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

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6
elizabethsmum · 03/12/2014 07:17

jenpatnim welcome back to the thread! I remember you from before! [crosses fingers for you that this pg is easier than the last].
I had hg both times but second time round it went away earlier xxx

Meerka · 03/12/2014 08:40

HIya Cee and welcome. Congrats an commiserations!

Are you on any meds? If you have it bad nothing takes the nausea away but some meds help. They are safe!

newshoes still pleased to hear the babyshoes is alright. How are you feeling now, yourself?

jen babyjen sounds lovely ... ours is the same. Such a happy, laid back easy baby. Even teething isn't going too badly! He does tend to wake in the night but compared to some of the horror stories he's fairly mild. Such a joy!

Have you thought of stuffing your face for the next 10 days til the sickness hits, to give yourself a cushion? your body will only just have got back to normal I suppose!

Newshoesplease · 03/12/2014 10:40

Hi meerka, feeling a bit tired from the blood loss, but also floating in a bubble a bit! I can't believe s/he looked so fine in there!!

kalidasa · 03/12/2014 11:07

That's brilliant news newshoes! How amazing.

basgetti the cyclizine definitely either causes or at any rate makes much worse my dreadful restless legs, and I do have a small amount of proper twitching which I reckon is the cyclizine too, having been on it all the way through in two pregnancies fairly close together. In hospital I couldn't tolerate it this pregnancy by IV or by injection, it made me feel very dizzy and unwell (and actually often throw up, ironically) whereas in my last preg I quite like having it IV as it knocked me out. So my reaction to it has definitely changed. To be honest I am sort of ignoring the effects at the moment because they don't seem too bad - compared to the ones I had with meto - and as far as I know there is no evidence that cyclizine can leave you with permanent extra-pyramidal probs which I know metocloprimide can (which is why it is important not to take it if you have had those sort of side effects in the past). My guess is that the trials that have been done on all these anti-emetics generally don't involve taking them at high doses over a very long period of time.

basgetti · 03/12/2014 11:51

Thanks Kali, that's really interesting. I've also been sick a couple of times immediately after having it IV this pregnancy, I hadn't really connected though, just assumed I didn't get it quickly enough and got caught short. I've had it alot IV in the past including when I've had my bowel problems and never experienced that before, I usually quite like the woozy feeling too! This is by far the longest I've ever been on it though. I'm feeling quite drowsy and exhausted, it feels like the first few days on it again. Although I'm not sleeping well, DS still ill and maybe I've just got 37 week fatigue! First dose of steroids tomorrow, apparently it hurts!

Hope everyone is doing okay today xx

muddylettuce · 03/12/2014 12:19

cee just wanted to pop on and say, you are in the midst of what was for me the worst time for hg. It does get better I promise. Get rest, stay off work and eat whatever you can tolerate even if it's salt and vinegar chipsticks for breakfast.
Hope newshoes and everyone else is ok today.
Back to work this evening, bah! X

jenpatnim · 03/12/2014 12:24

Kali, cyclizine made me terribly restless last time - I couldn't sleep or settle when I took it and it made me feel like my skin was crawling. One of my midwives said it had the same effect on her.

The only thing which helped me was ondansetron, so I will ask for that (or demand it) when the time comes.

This pic was over the summer, he is a little bigger now - 9 months and wearing 18-24 month trousers and 12-18 month tops!

Hyperemesis Support
LucindaE · 03/12/2014 16:12

Waves to everyone. Still so happy about Newshoes happy news.
Jen what a lovely picture. elizabethsmum There was no hiding it in those circumstances!
MucclyLettuce I hope you are well enough to go back to work, but as that 's what I always say Jen remembers, I'm sure, from last time when I flapped and clucked when she returned...
Apologies to anyone rudely overlooked.
xx

OP posts:
Newshoesplease · 03/12/2014 16:13

Hey muddy am resting as much as poss. Vile headache though.

jen beautiful! !!

Meerka · 03/12/2014 16:37

jen lovely little baby =) such huge eyes!

HexyQueen · 03/12/2014 17:26

Hmmm, bit of advice needed ladies. The docs increased the metoclop to 10mg x 3/day, stayed on same ondansetron & stemetil, but if I'm still puking next week they want to inject me with steroids...

Is this necessary when I'm not so bad as to need to be admitted, but now weight 7st wet (dropped most of a stone in 7.5 weeks)?

Are steroids ok for baby? I've been told if the rheumatoid arthritis flares I'll need steroids, but bit wary of them cos of side effects. X

jenpatnim · 03/12/2014 21:15

Hexy, I don't know!

Yes, Mother Hen was not impressed with me working as much as I did last time, but I didn't have hospitalisations while I was at work.

ovaltine · 03/12/2014 22:06

Steroids are fine for baby, it's more the mum that can suffer long term (I used to have to take for asthma, forget what they are though but pretty sure long term use can effect muscle tone). Baby be absolutely fine :)

New shoes - heart in throat reading posts, SO glad you ok!!

I've had nearly 3 weeks of illness! Cold, sore throat, sinus infection, on anti-b, horrible horrible time. Turns out I do still need the ondanestron as I just cannot function with the nausea!! I really feel for everyone who is throwing up, I can't believe I survived being sick so much last time. I don't think I got much nausea then, if I felt sick I was sick! I've got a day trip to cadburys world on Saturday that I can't get out of at all, dreading it!! Hours on a bus, walking round, in charge of children. Urgh. Trying to conserve energy. Spent all day in bed today with a mega headache.

Anyone with cravings??

Meerka · 03/12/2014 22:32

hexy afaik steroids do have a slightly increased risk of impact on the baby but are NOT seriously dangerous. But because of that slightly increased risk, consultants are very reluctant to give them and only give them where they feel the risk to baby is greater if you don't.

Remember, medical people generally don't like giving meds to pregnant people. So if they are recommending it, there's a reason; if they are recommending steroids, there's a damn good reason. 7 stone is very light indeed.

Yes for the adult there can be side effects for long term. But pregnancy is not long term and they will stop the steroids as soon as they reasonably can.

htf2 · 03/12/2014 22:42

Hi everyone, I haven't posted before. I am nearly 14 weeks and generally doing ok now, but I have a question about meds- I am on promethazine and just got a second prescription, and the chemist said it was cheaper to get the generic version which is available over the counter than the actual prescription, so I did that. I was wondering if anyone else has done that and found it less effective, I have heard this about other medication? I kind of rely on knowing it will work! (for history I took cyclizine from pretty much as soon as it started, which worked for about 5 days and then just stopped, then metoclopramide, which made my heart beat really fast so changed, and since on the promethazine, which works but does make me sleepy.)

Meerka · 04/12/2014 04:25

Different manufacturers make up their versions of a med in slightly different ways. The main ingredient is the same each time of course.

In theory the non-active ingredients should have no effect but anecdotally in fact they can have very slight variations which affect different people differnetly. (I used to work in both retail and a hospital pharmacy for a time, though at a low level).

There is frankly a very great deal of underreporting of minor side effects of meds and all good pharmacists will tell you individual people can have individual reactions.

So it's not impossible that the generic is having a slightly different effect on you than the branded, but it is probably only a small effect.

It's an anti-histamine, same as cyclizine but stronger. As you say, it's known to make people sleepy as well as being a good anti-nauseant. In fact they use that side effect to bolster the sleepy-making properties of pethadine and counteract the nausea that it can cause.

Give it 3 days or so to build up in your body. After that if you feel it's not working well, you could ask for another prescription maybe. Sadly I can't check prices as I can't get onto the British National Formulary or the NICE sites anymore, they've put some annoying layers of control for people who live abroad so they can't read them.

Meerka · 04/12/2014 05:22

hexy I think what I was trying to say is that sometimes there are, sadly, risks either way if you get meds or if you don't. If they are recommending steroids, they consider it a better choice than not taking them.

if you wish you can ring the Preg Sickness SUpport line and leave a message for the lovely elderly doctor there to ring you back. He will be able to talk about it with you.

Hellohellohowareyou · 04/12/2014 08:12

Feeling thoroughly fed up and sorry for myself today, still losing weight, still being sick despite ondansetron and I've got a horrible cough and cold which is making me feel even worse, I just keep wishing the days away but then feel guilty as I'm wishing time away with my DS who is doing so fantastically well through all this and I just feel so guilty and like a shit mum : (

htf2 · 04/12/2014 08:36

Thanks Meerka! I haven't actually tried the generic yet, but going away this weekend (very quiet weekend in small village in France, nothing too exciting :P )and got a bit anxious. I hadn't actually realised it made me sleepy till recently, I felt too rubbish overall to notice one more effect :) I see a few names from my 'due in June' thread I think, hope to see you ladies back over there and hopefully feeling a bit better. Generally thanks to everyone, I have really found reading this thread helpful over the last few months although haven't thought myself sick enough to join in.

muddylettuce · 04/12/2014 09:12

hello we feel like shit mummies all the time even without hg. My friend said to me last week, if you are feeling like a shit mum it probably means you are doing something right.
newshoes glad you are resting. Hope everyone else is doing ok.
Work was predictably horrendous. Thought I might be eased in and allowed time to catch up on working practice and changes, not to mention read my (272) emails! Alas, the first 4 hours were spent frantically dealing with the utter shitstorm that is front line policing these days, I managed to run to the loo once and someone else made me a cup of tea. Not surprisingly I felt very sick. Eventually managed to start checking emails and realised I have been rostered to work xmas day and ny day without my knowledge. Having always had to volunteer for bank holidays I am not happy. So rage at that and dd's cough has ensured I got about 4 hours sleep. Have a day of toddler care ahead before going back to do it all again tonight. Not happy! Sorry for the rant! Aside from rage I feel ok...probably won't later but not much I can do about that at the moment except try and rest.

Newshoesplease · 04/12/2014 09:50

Urgh muddy xmas and ny??? Ffs! So annoying as you weren't there to say no!
I've just been sick on my floor in a plastic bag. Thought sickness had gone, silly me. My mouth tastes like actual poison.

Newshoesplease · 04/12/2014 09:52

hft2
While your prescriptions are free id get whichever works best for you!

LucindaE · 04/12/2014 11:02

Oh dear, suffering all round.
htft Welcome. I'm glad those meds are helping. A trip to France?! You are very brave.
muddlylettuce It sounds as if your return has been very insensitively handled - didn't they have any sort of easing you in idea? Oh dear; and working on Christmas day, too. Are you still on the meds as the nausea unfortunately may need combating with these stresses?
Hexy Seven stone sounds alarmingly light - how tall are you? I'm slim build and five foot five (and a half!) and considered underweight at eight and a half stone, so...
Ovaltine I didn't realise the nausea had been continuing since the birth, you poor thing. That's very unlucky and thank goodness they've kept you on meds. As for a day trip to a chocolate factory with kids - that's pretty hellish.
basgetti I do hope the treatment doesn't hurt much.
NewShoes That sounds very nasty, poor you. As others say, rest as much as you can.
Meerka What wonderful, concise yet detailed advice - you are invaluable.
Waves to elizabethsmum and Everyone. Apologies to anyone impolitely overlooked.
xx

OP posts:
kalidasa · 04/12/2014 11:17

hexy steroids are usually pretty 'last-ditch' and I am also surprised that they are considering them when you are not in hospital, but I am guessing that they are concerned about your weight in particular. Unless you are extremely tiny, 7st is very light indeed and although they don't really know why steroids often help with hg, one thing that is definite about them is that they increase your appetite. I was on them for a really long time (from 7 weeks to about 20, at varying doses) as they were the only thing that really helped this time. I found that unlike almost all the other drugs they actually helped the nausea as well as the vomiting, and most of all they helped me feel like eating at least a tiny bit. This was particularly important for me as I had lost too much weight and couldn't eat enough to get out of ketosis. Even though this pregnancy has actually been a lot worse than my first in almost every way, I have never totally lost confidence in eating this time which I did last time - and didn't get it back until months after DS was born. I think this is partly down to the steroids.

How far along are you? There were historically concerns that steroids might interfere very rarely with the very early stages of the baby's development, but that concern has not been replicated in any more recent trials, all of which suggest that they are safe for the baby even in the first trimester. For comparison, the same concerns were raised about ondansetron at one point, but again, all the recent studies have been reassuring, and steroids have been used in pregnancy for much, much longer than ondansetron. I was actually more worried about the possible long-term effects of the ondansetron (especially for me) than the steroids, for just this reason.

If you are 8 weeks or more they are almost certainly completely safe. Other specialities (e.g. rheumatology, asthma doctors - like you I also have RA and have been on steroids for that before) are much more relaxed about steroids in pregnancy and often consider them the safest option - it's quite odd but obstetricians are generally much more cautious about them than other specialisms.

There are recognised risks to steroids, especially if you end up on a fairly high dose for a while, but they are risks to you, not the baby - of bone wastage, muscle weakness, and a considerably increased risk of developing gestational diabetes. You may find that if they start you on them they will also want to test your blood sugar regularly. If you have ever had any mood disorders (e.g. a serious depression, or a manic episode) than you also need to keep an eye on this as steroids can destabilise your mood a bit, especially in the higher doses. (Though in practice I found that they just slightly counteracted the incredibly depressing effects of hg, so I was quite grateful for that!)

There are different protocols for using them, but it is quite likely that they will try you on a very short course, starting with a fairly high dose and then tapering down very quickly to nothing over only 5-7 days, and then see if that is enough to improve your condition even after you are off them. If they help to start with but you lose control of the sickness again towards the end of that taper (which is what happened to me - I was back in hospital after only two or three days out) then they may put you back on them again.

There seems to be a lot of difference between individual doctors re: steroids for HG, some are very against it (I had a massive ongoing struggle with my first consultant, even though absolutely everyone else, including all the nurses, thought it was obvious that they were the only thing that was helping), others very pro. My father is a retired doctor and he looked up all the studies for me and was reassuring about them. But if you feel that you are managing OK without them, I think it's fine to ask them to explain in more detail why they are recommending them at this point. If it mostly to do with your weight loss, you could also ask to see a dietician for ideas.

NoRoomForALittleOne · 04/12/2014 12:19

Hi Ladies,

I've not been around for a while because I have been improving lots, reducing meds and had other problems to be dealing with.

Please can someone tell me what to do now though because I simply don't know. I suddenly started being sick again on Monday but was managing to keep some stuff down. On Tuesday I laid off the ondansetron in case it was a stomach bug and I needed to clear it. I was very nauseous but not sick. Yesterday I was fine until the night. Now, since the early hours of the morning I've not been able to keep anything. I've had a bit of bleeding as well. Do I go in now or not?

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