Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
sites.google.com/site/pregnancysicknesssos/
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable for sufferers, with information about medications, coping strategies, hospital admissions, useful links, advice for family members, and much more.

I would like to thank MOH and Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

Thanks jen I don't think anyone has judged me except me...... (at least not to my face)

Your inlaws sounds as 'helpful' as mine. I came out of hospital the first time to find mil had dropped off gingernuts as they 'helped dd when she felt sick'.

I just felt so selfish putting everyone through it again while dc2 is so dependent, it'll be different in a year or so, esp if we can plan things.

I spoke to my gp last week Meerka about taking cyclizine and b vits before conceiving and they said no the advice is to start cyclizine along with the beginning of the vomiting and work up which is why I wanted to see what other people get esp as the consultant advised taking it as soon as you get a bfp. I have got another appointment next week though and will see if I can print something off and discuss it again.

Sorry my replies are slow I'm at work.

Tevin Welcome, and here's a link that I hope will provide lots of answers about pre emptive meds
[[https://sites.google.com/site/pregnancysicknesssos/treatments/obtaining-treatment-1]
I am really sorry about your feeling pressured to have a termination when you didn't want one - that's so awful, hugs. I don't know how people cope with toddlers, either.
Exquisite How are you today? You see how in awe we are of third timers!
Livinzuid Of course, those travel sweet tins!
SliceofLime Never worry about tmi, anything goes on here, bowel and bile, foam,and my jolly experience - I don't know how common this is - of liquids coming out from every available orifice . I'm glad the raisens worked, that saves a lot of pretending not to be pregnant at Boots or sending someone else...
Chaffinch Hugs. Time does seem to go on wings of lead for sure with this thing.
Jen Sorry sickness goes on.You deserve to do nothing but rest after somehow working through this horror. One poor woman on this thread specialised in teaching cookery, she only posted a couple of times, I am sure I don't know how she managed.
Meerka That bag sounds impressive!
MurderofGoths It's nasty the way this thing lurks about, it just hates to go completely.
Apologies to anyone rudely ignored.
xx

Tevin Me and IT! xI'll try that link again
sites.google.com/site/pregnancysicknesssos/treatments/obtaining-treatment-1
xxx

Thanks LucindaE that looks like the stuff the consultant was talking about!

The pressure was awful but I can't blame anyone - they took something I said as how I really felt and then I thought my doubting myself proved they were right as I was so ill, weak and confused. I'm sad that the fact I had the termination (thinking I was doing right by my family) has now been taken to mean I never wanted the baby by my dm who tells me this everytime I'm upset and she has voiced her disapproval of me having more dc, telling me it'd be selfish and unfair. If I hadn't had hg there is no way I'd have had a termination. If I can't get support from my gp etc I'll be sterilized rather than risk this utter hell again!

Hi all

Ooo had some crappy days but increase of steroids again has got me functioning and stopped the vomiting (again) so pretty pleased but would love to get off the pred.

Tevin
Pre-emptive medication is definitely the way forward, there is something in the NICE guidance about it but Pregnancy Sickness Support have some info about it and I think there is a link to the study on their site.

I started cyclizine as soon as I found out I was pregnant, I quickly worked through the standard ones but this meant when things really kicked off I wasn't fobbed off with ineffective meds because we'd already tried them. Only managed to get ondansetron because of this (although GP was unhappy when OH dared to suggest it, he was brilliant though....asked her what the next step was then for a bed bound vomiting pregnant woman who was too ill to get to the practice. She rang obstetrics on call and we had success and a plan!)

The pre-emptive meds didn't help to stop things progressing but it meant my level of treatment was stepped up more efficiently. Hope you have some success, an advocate always helps if you have anyone to go with you.

Nearly 19 weeks now....20 weeks to go til CS day!!!!

Keep well fellow HGers

yes Lucinda had that experience of every-orifice too. Specially with ligaments and muscles loosening ... was a case sometimes of a bucket at one end and a bedpan at the other. Deeeeeelightful. There were a few tears shed now and then.

Hello. I'm still making heavy work of this - I'm just really struggling with feeling so awful . I want to cry all the time. My three year old keeps feeding me his dinner as hes getting upset at me being so sick and today I had to stop eating, throw up and then carry on eating as I was so hungry it was making me feel so sick.

Im on prochlorperazine. Ondansetron doesn't work for me and chlorpromazine had awful side effects. Cyclizine is way too mild. I'm throwing up between 3-6 times a day and the nausea is intense, relentless and dominating my thoughts. Does anyone have any experience of anything else I could try? My mum is back to look after is and I'm taking her to the doctors with me next week as all I would be able ro do is cry.

They have said they won't help any more and just to go to A&E when I have ketones but I need more support than that. I'm a mess. Could I ask for an early appointment at my hospital in case they could help? No checking in appointment yet (Im 10 weeks) and thats goig to be a ddifferent hospital to the one I was admitted to for iv...

Anyone any ideas? Im beginning to think awful thoughts and they arent really what I think its just im feeling desperate. I shake when I have to eat.

That's good to hear Punkstar!

My gp was, to their credit, very quick to prescribe ondansetron (and in a melt under your tongue form as I couldn't keep anything down!) it was just too late for it to be really effective as i was already vomiting non stop and by the time I got to hospital for steroids (a week later) I was really ill. I'm hoping that pre-emptive meds would maybe stop things getting as severe as they were when I terminated, although that time was much much worse than my first two pregnancies; vomiting started at 4.5 weeks, I wasn't keeping food/liquid down by 5 weeks and ended up being admitted at 5.5 and again at 6 weeks then had the termination at 7 weeks.

I think I'll speak to the gp about options for pre-emptive meds; maybe I could try cyclizine and then move on to the stuff that works (for me) with nausea rather than vomiting and work up to taking everything before the vomiting gets bad! I'm hopeful that it sounds doable with a bit of help though!

It sounds like steroids are working for you though which is good and fingers crossed for the rest of your pregnancy.

was napping on sofa to be woken by a Braxton - the 1st one Ive been aware of/noticed properly. so weird.

oh Iworry I do think you need to speak to a consultant at the hospital. Do ring them. I am not sure if you need a miracle at this point but a consultant may be able to help.

have you rung the sickness support line? 024 7638 2020. You leave a message and a really lovely elderly doctor will ring you back.

it really is hell going through it isnt it? we do understand and will always be here.

Iworrymyselftosleep poor you that is awful. Some GPs are so unsupportive.

Are you keeping any fluids down at all? I had to have a combination of just about everything in my second pregnancy, have you tried any combinations? (sorry if you've already said this earlier) The cyclizine might work to help some of the nausea if you're taking something else to control the vomiting?

If you can't keep fluids down and aren't producing much urine (I was told 500ml in 24 hrs) then might it be worth considering A&E now to get some more help?

Tevin and IWorry I'm sorry you've both had such a tough time of it so far.

Iworry - I didn't get any useful meds until I'd been admitted at week 9 and fought tooth and claw for ondansatron. I felt hopeless around that time, but every week that passes gets a fraction better.

iworry am so sorry you're having such a hard time, I have nothing useful to add but just wish I could give you a huge hug. I hope your mum can stay for a long time - dd and I have moved in with my parents because i just can't do it on my own, and I don't have it as bad as you do. Hope you have more luck with your meds soon.

And lucinda and meerka I too have peed while puking, ha ha it was grim! I managed to laugh about it afterwards... After a good cry...!

I worry I echo Meerka do phone the number she quotes, you need a bit more treatment and are getting desperate. I do so feel for you, and anyone who gets less than sympathetic treatment.
Meerka and ohters, peeing while Puking was a regular with me for sure, but on a few occasions, losing control of bowels too, vomit coming out of nose, truly awful.
Tevin Hugs. It's hurtful people come to these conclusions not understanding the facts.
Waes at EveryoneGlances anxiously about, goes off clucking...
xx

Thank you (again). I've been trying to keep my misery to myself but I'm getting desperate. The nausea is worse than the vomiting somehow too as its constant.

meerka and lucinda I called them this morning and left a desperate message but no one called back.

The middle of the night, I have to take a pill and I'm normally sick afterwards. (It's a buccal dissolving one so I'm not throwing it back up). That's just after 3am. I'm normally sick off n on til about 6, drop off then get woken by DS at about 7. I then throw up off n on all morning. It's grim and I dread... Well most of the time I dread actually.

I feel I should have high ketones to get someone to take it seriously. I don't as I was so scared by how bad I felt that I'm persevering with the prochlorperizne and eating and drinking even though I'm throwing up. Twice I've thrown up while eating today and carried on after - while I'm not starving or dehydrated I am building a whole world of hurt connected to food which can't be good.

I guess I just wanted others to say that I should see if more help is available. So thank you.

Iworry maybe you need a better drug; maybe even the steroids, it sounds awful how bad you have it, you're a hero for keeping eating, have you got ketones sticks, are you regularly testing yourself. oh god this is a horrid illness, bah.

mumbles yuh, didnt quite like to admit it wasn't only mouth and bladder ... only place it wasnt coming out of was ears, and even they seemed to produce unnatural amounts of earwax.

Meerka today I pondered on ear wax and why I had so much

lol, yes. Do you get the awful, awful excess saliva too?

The saliva? Oh heavens, yes. I can fill bowls with it (tmi sorry). I had no idea a human could produce so much saliva. When I feel really bad, I do spit it out - it comes in waves somehow? I feel like a snail - you know when you poke them and they go all bubbly and upset. I have the saliva production capacity of a distressed snail. Yay me?

and the smell of it. oh god. when it was really bad, it was a steady productoin for me. it was just unspeakable.

it has got less thank heavens. Like the rest of the misery. this preg is better by far than the last (helped by the iv rehydration in hospital I think) but it was bad while it lasted. Still don't feel well as such, not at all, but sooooo much better than the worst.

though I'm not sure I will ever want intimacy again until I've had my tubes tied. In fact I'm damn sure I won't.

IWorry
I also wonder if steroids are the way forward, your HG sounds unresponsive to anti-emetics...
I could cry thinking back to that part of my pregnancy. A big hug to you.

iworry :( get to a&e if that's all that will work. At least you'll get on a drip and feeling better. And change surgeries if possible?

Saliva ick. I don't want to be hydrated sometimes otherwise there's too much going on water wise in my mouth!

meerka and chaffinch yes! I get this too I thought it was just me with crazy amounts of ear wax!

I had to always go before vomiting. Had a couple of accidents . Fortunately sink was right next to toilet if I needed it urgently.

IWorryYou poor thing, I hope they have called back? I've heard they are good for that, but it can take a few hours. How are those hateful ketones? As Livingzuid says, do go to A and E if necessary. A couple of people on here, MurderofGothis was one, I remember, have been greatly helped by steriods as she says. That spit is awful, the ear wax sounds awful. I remember a streaming nose nose.
Meerka Lol, being doubly incontinent at times seems to put the final, exquisite touch to the misery of this thing, along with the taste .
xx