Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
sites.google.com/site/pregnancysicknesssos/
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable for sufferers, with information about medications, coping strategies, hospital admissions, useful links, advice for family members, and much more.

I would like to thank MOH and Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

so am bewildered about when and how you are supposed to count the kicks??

Also had to ring MW as Ive been working with someone who's got shingles.. turns out its no big deal whatsoever. mw sounded irked Id rung her on a Saturday morning!

Chaffinch You poor thing, being snapped at for being sensible and querying it. You youngsters will remember better than mother hen how many kicks it is meant to be.
Punkstar Oh dear, that smell of breath thing is inconvenient. I remember the smell of badly ventilated rooms as particularly horrible, and as for dog...I was wondering if others found the smell of lavender as soothing as I did? Some find even herbal smells sickening.
Jen Hugs, I typed 'apathetic' but maybe it came out looking like 'a pathetic' - but you are generally too much the opposite of pathetic, 'overperforming' is the term, I think. You must waddle about asking people to fetch things and that explanation about is fascinating, lol, Meerka.
I hope Iworry is feeling a little better.
xx

Hello on ward on iv. Feeling sorry for myself-my cannula hurts a lot and I'm so thirsty yet not allowed anything to eat or drink.

Trying to focus on bigger picture here...

My mum flew over but I think she's lost her handbag on the way. Not been handed in. [Sad]

Lots of snoring on the ward and noisy mobiles...

Hope everyone's having a nice time and that sally you're settling in to new house well.

bless you IWorry you'll feel better after 5 bags of good old drip

IWorry, you will feel better after being rehydrated. And they'll give you the yellow vitamin drip as well - that really peps you up.

Lucinda, I have done practically nothing all day except lie on a sofa and read, eat a little and sleep. And guzzle peptac liquid every couple of hours.... I am being destroyed by acid. Feeling oddly weepy tonight, for no good reason, although family drama is as yet unresolved, that might have something to do with it. Sigh.

Iworry How are you this morning, any better? I wonder they allow noisy mobiles on the ward - they used not to be allowed on wards, rules must have changed.. Have some from me too...sorry about your mother's handbag, she must have been anxious enough.
Jen Try not to let the family problem worry you, though that's easy for me to say. I'm glad you are taking it easy.
Chaffinch I hope the morning Bile Run has stopped?
How is Everyone?
xx

Hope you are starting to feel a bit better Iworry. good that you are being looked after properly!

Jen im sure the preg hormones affect hormones too! I get weepy and (unfortunately rather more often) grumpy and snappy. Though family problems won't help at all :(

waves to DoomFinch

am a bit better here. Family friend gone home now after xmas and I will admit that it's less of a strain when it's only husband, little one and me. Any strain at all seems to make the fluctuating vomitting and nausea worse. Son going to grandma's for 2 days now though, which is lovely of her but I will miss him. But lookign after him still isnt really possible :(

Hi all

I'm moved!
However the place is upside down and really need to do a large grocery shop, just don't have any energy.
Dh has been great and unpacked all thd kitchen and most of my bedroom :-)
Tomorrow im sorting the nursery and I'm so excited to get my carpets and vinyl fitted on the 7th so I can totally relax.
The cat is loving all the new space to explore too.

Ended up in hospital again yesterday due to contractions and mega cramps but all is ok and was able to come home. It all started at 4am the day of the move, typical!

I'm now going to take it easy and try to just get through the next couple of weeks.

Hope your all coping xxx

Hey there. Still on iv. Still can't eat or drink and they arent bothered ny that. The nurses say as long as im not being sick there isnt a problem. Not being sick cos not eating oe drinking. Only bile to puke. V painful. I do throw up when I have any water whatsoever - needed a sip to take zantac and each time I throw it back up. They're telling me to eat and drink now without giving me anything to stop being sick. I dont feel well enough to handle this - tell me what I'm missing please x

IWorry This is awful, you poor, poor thing - I don't understand this - surely they should be giving you IV meds to stop the vomiting as well as fluids to rehydrate you? Have you got the strength left to ask the doctors about it?
Waves to Meerka Chaffinch SliceofLimeJen and Everyone.
xx

Sorry, IWorry That sounded condescending and daft - what I meant was, do the doctors know that the vomiting is so bad, as distinct from the nurses?
xx

Iworry .... sadly the only way to show them that you can't keep anything down is by trying and vomitting. Err ... if they won't listen to you, you might want to try to drink something and therefore vomit when they are actually in the room. or onto your sheets so they have to come and change them. Make it so they can't bloody miss how sick you are.

It is disgraceful that you are not being treated better. I'm so sorry :/ Can you even get your hands on some paracetamol to lessen the retching pain? I remember the bile, and whatever that foul salty stuff is that comes up from under the bile, all too well.

Do hope that you get a bit of relief frm the iv rehydration so the hell lets up a bit

sally congratulations! was wondering how you'd done, I can't even imagine how you managed. Do take it easy in your new bedroom!

I worry - how awful! I had a tough time with doctors not co-operating. I couldn't eat or drink in the very early days and was told to effectively get over it and try. I would second what Meerka says. If they want vomit, give it to them.

IWorry Thinking of you, which doesn't do much good- I can only second what others say about vomiting on the bedding, in front of them, etc. Can you get anyone to speak to the doctors in charge of the case as an advocate should be able to speak more easily - it's so hard to talk when you feel like this.
Sally Sorry, I didn't see your post - how exciting about the move, and so glad baby still lurking. Sorry about all these hospital trips.
Totes That is awful that medical people still took that line. I can't believe what is happening to IWorry in a hospital treating her for severe dehydration!
Waves anxiously to Meerka and Everyone.
xx

oh lordy IWorry

have they given you IV cyclizine? or ondansatron? does it say in your notes?

agree if you still vomit everything you have to get a sick bowl and show 'em, gal.

but don't worry because baby and you are getting everything you need from the drips, try and breathe deeply and get some rest.
it's vile but you WILL be OK X

Thank you ladies. I finally have had cyclizine into the drip so have eaten half a scone. It took four and a half hrs to get the medicine. And two and a half hours to get half a scone. I have a dreadful feeling that they will try ti keep me on cyclizine when I go home which doesn't work as I throw up the pills Its only worked as Iit hasn't gone via stomach. Can uou get melt in the mouth cyclizine?

Not throwing up on a drip as fluid is straight into veins (can only throw up stomach contents)

Been moved to a new ward! Great as I have my own room but would have preferred it without someone else's blood on the floor. They're measuring urine output too - I watched a nurse guess how much was there then tell me to reuse the disposable bedpan again. Hygiene issues anyone or am I being fussy?

oh my Christ what manner of hosp is this!! bedlam??!!

those things are one use only FFS

you have to start banging the drum for ondansatron if cyclizine is no good when your consultant comes round in the morning stress how cyc doesn't help in tablet form

there are meltables available for some drugs, but ondansers are tiny so easy-ish to swallow

And thank you all for your kind words. I feel a little shellshocked at the moment and im worried how January will pan out as it will spsn the legendary weeks 8-12.

Your support is very much appreciated.

And a nurse told me this morning "If you had proper Hyperemesis you would be..."

chaffinch - I had ondansetron but the nausea was amplified with it and I started throwing up even with iit... but definitely meltables of some kind...

I really want a plan for going home. A proper plan, not one which I know is doomed...

IWorry
Gah, they have no idea ....'if you had proper hyperemesis...' As opposed to the pretend kind that you have?? That has made me so cross, grrrrr.
Why does everyone have to prove themselves with this condition before they get appropriate help?
Stand your ground, like you say you need a plan. If your consultant isn't up to speed with HG then you need to see one who is.
I don't think there are many health professionals who really understand this condition and how debilitating it is...it's not just vomiting it's everything. Not being able to move out of bed because any stimulation enhances the nausea or makes you vomit, colours, smells, noises, fatigue, depression :-(

I remember what it is like at week 8...I just didn't want to wake up, sleep was my only respite. Didn't know how to get through the hours.....steroids have been the only thing to help but they were started based on my weight loss (I hadn't responded to four different anti-emetics and like you ondansetron made the nausea unbearable so much that I couldn't eat and I just continued to lose weight)

I know some consultants don't have experience or confidence with steroids either. It may not be the right choice for you and they have their side effects but just so you are aware of it being used as a last attempt....

I've heard of some people being taught how to do their own intramuscular injections at home so if IV cyclizine helps maybe IM would??

Sorry long message....I just remember what it's like :'-( xx

Iworry Mother hen is flapping with rage, would to peck that nurse
Is she an expert to presume to say such a thing? Why are you in hospital, unable to keep down water, if you don't have Hyperemesis? Grrr! I so agree with what Punkstar and Chaffinch and Others say, there are anti emetics in melt in the mouth form but I hope they give you ondansetron. I have heard of that, in fact, in the form of a suppository- someone, I think maybe WavesandSmiles had to have it, I'm a bit muddled about that, as sh was on IV every day too. If they discharge you with only cyclazine, then do please ring the
024 7638 2020 number for help from that doctor, as you know too well, it'll only lead to your being readmitted. I am so outraged.
Hugs to all enduring this miserable, misunderstood condition over this time.
xx

Dear god proper HG? what does she want you to do, die?

please, please do ring that number lucinda gave. YOu have to leave a message but they do ring back and the elderly doctor there is very experienced indeed. They know of HG - friendly doctors too.

Hi all back home now after very nice break where I was even able to spend a couple of hours shopping for maternity stuff although had to spend the rest of the day in bed! I think I have most of a wardrobe now ASOS is amazing :) definitely having to wear maternity stuff now which is exciting.

Made it back across the Channel in between storms thank goodness. We drove all day on Saturday m25 was a pig and made us miss the ferry but I ate every 2 hours and it helped a lot. But I was really nauseous again in the evening and all night so I didn't sleep much. I do notice an improvement during the day (now 17+2) but the evenings I am still useless.

worry I'm so sorry to hear you are in hospital. It sounds gruesome. How are you today. Just think at least the baby is getting what it needs and you are in a private room which is hopefully clean. Shocking. Make sure you or dp complain.

And urgh to being breathed on at night. DH is learning to sleep pointed in the other direction.

living glad ypu had a nice time popping over to France! Sounds very nice.

I'm to stay on the drip for a while and they'll start me on chlorpromazine suppositories. Just done a quick Google n they scare the heck out of me. They're for 'refractory' Hyperemesis - stubborn to treat Hyperemesis. ..

Truly, thank you all for getting outraged on my behalf esp with the "proper Hyperemesis" comment. Ive had four or five litres of iv fluids now and I feel a bit more sensible today. I've been very whiny recently and I honestly think being so dehydrated was contributing to me feeling so hopeless...

I'm also really scared about the next few weeks. I know weeks 8-12 are the big vomiting weeks anyway and in my previous pregnancy they were spectacularly awful. Im 8+3 today

worry very glad you are better now. Suppositories are grim but if they get the job done worth it! I hate needles so would actually pick that over a drip any day of the week never worry about whining you have just cause to. No such thing on this thread :) so say as much as you want! You've been treated badly by the hospital and it's not on. Just pleased you are getting what you need finally. People never understand unless they have been through it.

I live in the Netherlands (Dutch husband) so we were crossing back from the UK to go home. 14 hours! Worst bit of the journey was in the UK!

Oh and meerka I had a look in c&a yesterday yuk. And the h&m maternity bit is not as good as in the UK although the Web was OK. Sigh.

Sally glad you have moved at last what a relief!