Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
sites.google.com/site/pregnancysicknesssos/
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable for sufferers, with information about medications, coping strategies, hospital admissions, useful links, advice for family members, and much more.

I would like to thank MOH and Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

IWorry Sending you gentle cyber pats, poor you. Thank goodness you've been given something not oral. The fact that it's for 'refractory Hyperemesis' doesn't mean that meds won't help - it means you've got a nasty case of it - so much for the nurses' arrogant remarks - and as cyclizine didn't work for you before I am so glad they are by-passing that. The trhoght of those coming weeks is alarming, but at least you are getting taken seriously now, so that it may not be as bad as you dread, and it will pass, like everything. The awful thing is, with this you have to live from hour to hour, but in the end those hours bring you to the end of the journey. Did you get much let up after the first dreadful bit last time?
Livingzuid That sounds like fun.
xx

Livingzuid Ooops, I meant the trip, not the nausea or travelling! I so agree with what you say about no such thing as whining. I always say, think of how men complain when they've given themselves a hangover for ONE day...
xx

Just been out in he gales with a very wet pony! Sorry I am late to the further outrage! Proper hyperemesis!? WTF do they want? the mind boggles. I don't think I have met anyone who found cyclazine effective. It's the first thing they dish out though and it then becomes an uphill battle to get anything stronger or more effective.

I hope you can have a few decent hydrated hours. It's so so horrible in those early days. I kept asking DH to knock me out for a few weeks I just found it so hard to bear. Take each day as it comes and don't think ahead. Every pregnancy is different. I was worse earlier on this time round but things became more bearable earlier than last time too.

Having a slight relapse now but hoping it won't last. I didn't have any relapses in my previous pregnancy...they are all different.

Oh, and did I tell everyone I am expecting a girl? We had it confirmed in a private scan as the 20 week sonographer wasn't sure.

Hope the unpacking isn't taking its toll Sally. I have just been hopeless this past week. Poor DH. He must be secretly fed up with my moaning.

Iworrry thinking of you. nothing takes away the misery of HG completely, but we will be here and you can always have a moan. That's what we all do. It's a horrible horrible condition.

living good to hear you had such a nice break :) lovley that you could enjoy it! I went for H and M stuff, it's not that brilliant but it was close to the parked car and by now I was desperate =) did get a nice top, but it was the trousers were the lifesaver :)

totes congrats on the girl =) lovley news. I did the asking husband to knock me out thing too. It became a bit of a joke I asked so often, the only bit of humour I could manage.

Congratulations totes what lovely news!

totes what lovely news - a girl!

And - I've read and reread the bit where you say you were worse earlier on and then better earlier. I am clinging to this concept now and determined I shall follow your example if at all possible!

Still not winning. Today's drug totally spaced me out. I felt completely dopey, slurring my words, black bits in front of my eyes. Horrid. Ive asked not to be given it again - but I have a feeling The Great Consultant isn't around to prescribe anything else and its wearing off. Which means I'm starting to feel sick again... will have to go bother someone.

I want to be suspended in an alternate time-space dimension where the next few months pass very quickly. As it is, every hour is counted slowly in crawling minutes... X

Iworry You poor thing, I do feel for you (clucks and flaps anxiously. offer gentle pats of commisaration). I The Great Consultant comes back soon to prescribe something else. Time WILL pass, but as you say, on wings of lead at times. Yes, like Totes it may be worse now and better later.
Totes You are riding while having a relapse, wowzers. Baby must get a good rocking, lol!
Hugs to Punkstar Meerka Livingzuid Sally in her new home, SliceofLime and others. I wonder how Howly SicknSpan MurderofGoths Feekerry Tallyra and others are doing,not heard from them of late...
Mother hen is gong to be away a few days, should be back 3 Jan - and my mother does not let me near her pc, given my luck with IT that should come as no surprise but I should be leaving you in good hands...Look after yourselves and IWorry I do so hope that they get something effective and you can stay out after this visit.
Apologies to anyone rudely ignored.
xx

Thank you Lucinda

I think I've scared everyone away with my whining... I hope in fact you're all feeling much better and are away scoffing nice food and having fun

have a great holiday Lucinda :)

It'd be nice to know how sick and Mog and everyone is doing!

and no, iworry, you haven't. don't be daft =)

Lucinda
Have a lovely break :-)
Even though it's only a few days, will miss your clucking ;-)

Iworry
I feel for you....please whine/complain/rant as much as you need..Even the thought of how bad things were at 8 weeks makes me want to weep
We all understand what it's like....

Totes
Lovely news about baby girl, have my scan in three weeks. Exciting!

yo yo hypremmers
Have a good break, Loopy Lou X

had a highly nauseous day started off by eating incorrect toast at breakfast, white bread ain't good.

HG is so fussy isnt it? wrong time of day, wrong type of water, wrong smell, wrong bread, wrong ... everything.

Hope tomorrow is better.

Have a good break Lucinda! Not riding, just grooming, feeding, de-mudding!

Finding myself leaning on cbeebies a bit at the mo! Can't sleep due to rhinitis so flopping around a lot.

Moan away on this thread. We all do!

Have a lovely break Lucinda !

iworry sounds like an awful experience - hope they can give you something else today. "Proper Hyperemesis " my arse! Nothing wrong with having a good moan here.

I have a little weep of self-pity about every other day at the moment. Haven't been sick for a couple of days but just constant nausea and lots of retching where I really fight not to throw up. Chaffinch the wrong kind of toast made me laugh -the 'right' thing seems to change all the time, my mum always looks nervous when I say I need to eat something because what was ok yesterday usually isn't today...

I've got my 12 week scan booked now for the 22nd so have something to look forward to. My brother is a doctor and I've repeatedly asked him to give me something to knock me out til then or preferably til July and he refuses

Thanks lucinda, have a nice break xxx

Hi, I'm new on this thread and mumsnet in general. I'll be honest I've popped on for some moral support as I'm sat in my Jim jams in tears! Dr finally agreed that I have hyperemesis yesterday and I've had two different types of tablets but nothings worked so far. It's the feeling sick that's pushing me to the limit. If I could vomit & feel better that would be fine (ish!). Today is the worst I've been, I was living on ice lollies but even the though of anything to eat or drink is making my stomach heave & cramp. Has anyone had any meds that have actually worked?! I'm also worried that I won't know if I need to go into hospital or not as my Dr's has a very busy walk in clinic that is open every day but I've got a DS with Aspergers whose 7 & I can't drag him down there all the time (also Dr not very sympathetic, basically tried to fob me off with ginger biscuits at first) any help/advise/sympathy very gratefully accepted!!! Xxxxx

Hiya frillypig and sorry to see you've had to join us, though congrats on the pregnancy.

Okay, with HG the big danger is dehydration. (Followed by the fact your life gets put on hold for a while and by the sheer misery of it). You can monitor your own dehydratoin levels with Ketostix, cheap little sticks you buy from boots or another chemists, or you can order them from Amazon. You just pee on them and then check the colour against the colours on the container tub. if it's deep burgundy/purple, you need to get advice immediately, probably from a holiday.

About meds, YES THERE ARE. What has your doctor given you so far? If it's cyclizine and vit B6, these are the first line meds. they do build up a bit over a day or two I believe, but they are pretty mild and a lot of people have to go for something stronger.

By the way, best practice recommendations now say that treatment of HG shoudl begin early to soften the worst effects of the disease, in most cases. So you should be getting meds now and you should be getting strong enough meds to actively help you.

This is a website that has some excellent information on HG generally and on meds: Pregnancy Sickness Support and this is the list of meds commonly given: Treatments. They also have a list of coping strategies under Get Help and some eating advice. Ginger is plain useless for hg - I've looked into some research articles and not one woman with HG has found ginger helpful.

Okay, about your doctor. The national Clinical Guidelines make it clear that management of HG should have these goals:

To reduce nausea and vomiting

To reduce time off work and other lifestyle disruptions caused by symptoms

To prevent complications

Have a look at the site: cks.nice.org.uk/nauseavomiting-in-pregnancy#!diagnosissub All doctors are supposed to follow these guidelines. They also lay out which drugs are supposed to be used.

So yes, there's more than just the two you're on at the moment and things -can- be done =) If your doctor keeps on not taking it seriously then there's a possibility of help from the Preg Sickness support too, but hopefully your own doc will be a bit more helpful if you can go in again.

Is there any chance of getting help with childcare? if it gets really bad it's simply impossible to look after children, though hopefully it won't get so bad. But if you can, rest, rest and rest. It really helps.

from a holiday?! - errrr from a hospital.

as if you were going on holiday with hg, heh

Hi Meerka, thanks so much for your post, has really made me feel better! I was on chloro something something and now I've got Prochlorperazine (eg Buccastem) which makes me sleepy but it's not made much difference to me feeling/being sick :( I'm going to take a look at the sites you linked now & my OH is on his way home to look after my DS thank god! I'll send him out for the wee sticks too! Xxxxx

I hope prochlorperazine helps. there are others too.

The bad news is that if it's a bad dose of HG nothing can make things completely ok. But meds and rest can help a lot. And this thread is always here for support =) we've all been through HG with loathing. Post whenever you need to.

and also .. even HG doenst last forever. Most people (not quite all, unfortunately, poor Sally) improve somewhere between week 14 and week 21. it's still a hell of a long time but ... there is an end.

Welcome FrillyPig
Congrats and commiserations!

Think Meerka has given you great advice. What I noted from the NICE guidance is that a recent change has been to suggest ondansetron as a possible second line treatment. This can work wonders for some ladies but can be difficult to persuade clinicians to prescribe. Knowledge is power and there is back up in the guidelines.

Rest is definitely helpful, the more you do the worse you will feel unfortunately.

If the meds don't work then you must get it reviewed. Some walk in centres offer pre-bookable appointments for registered patients, I hope yours can offer you this facility.

Hi FrillyPig, looks like you've had fab advice from Meerka. I'm not on meds so can't comment but hope ou find something that works for you. Hg is utterly miserable and it's so hard looking after another dc too, do you have any family or anyone nearby how can help out with your DS if you need more help? Congratulations on your pregnancy too!

I've been meaning to ask is anyone managing to take pregnacare or anything? I stopped taking it for a week because my gp said the iron might be making me more sick, but it made no difference so now I've gone back to trying to take it if I think I can keep it down. Punk has your Prof got any advice about vitamins and stuff?

Hi Frillypig - I think Meerka has covered everything. We are here for support and help in any way we can.

I had a bad night last night - my back spasmed in pain for a few hours and I couldn't sleep. Also I think part of my mucus plug is coming away, which is a bit worrying, but I remember that happened to Sally a while ago and she is ok....

SliceOfLime
He was concerned about thiamine replacement as risk of something called Wernicke's encephalopathy if malnourished. He said I must take some supplement for this.I had Pregacare which contains plenty of thiamine. There's been times when I haven't managed it or I had to break it up into little pieces or even re swallow own vom to keep it down. They are like horse tablets!!!

He didn't mention anything else though..,although the pregacare tabs seem to cover everything! I think a practical approach is required, if I was having a bad day I couldn't even look at them, you can only try.....