Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.

There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.

I used to include extracts from MOH's wonderful website
sites.google.com/site/pregnancysicknesssos/
but I think that makes this link less visible so am merely putting the link. The information on this site is invaluable for sufferers, with information about medications, coping strategies, hospital admissions, useful links, advice for family members, and much more.

I would like to thank MOH and Everyone who has given such invaluable support and advice on this and on previous threads.

Remember when you are at your worst, 'This Too Shall Pass'. It really will.
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Oh, no, Tallyra Sally and Everyone, hugs, you poor things.
Totes Try not to panic, I don't have any experience of these dopplers but I know even experts find it hard to find a heartbeat before ten weeks or so.
Lucinda
xx

Hugs Tally. Sorry you have been having such a crap time. How many weeks are you now?

Aw tally it must be awful thinking of you

ah Tally it's all upward trajectory now. Cellulitis! Jesus. I had a tracking infection from a cut on my thumb - it was becoming cellulitis and that is very serious. They can't seem to do a drip right can they. mine slipped out of my arm and she spilled so much of my blood putting it in! I said - Err, I need that...

oh yeah - also, don't bother trying to eat healthily. I had a plum and it made me throw my guts up. Had burgerking for tea - A-OK. delicious.

Fee, meds taken and lesson learnt!

Not even going near anything g healthy. I am living off sweets, and i normally hate sweets! They take the taste away and focus the saliva which could probably fill a lake right now!

Managed two potato waffles for dinner but not convinced they will stay down.

Hope everyone is having good evenings.

totes!! I am so similar to things you say

I usually hate sweets; they make me cough

but having to suck all blardy day to use up saliva/ trick my traitorous stomach

Can you imagine the state of our teeth? After DS the dentist told me I had extensive acid erosion. He didn't believe me when I said I had thrown up solidly for months...he thought I was exaggerating.

Oh tally darling, I hope it starts to get easier for you soon xxx

Doing badly today again, I'm meant to be at an all day wedding/party next weekend, suspect I'm not going to make it. I can't manage a few hours without lying down, and the evenings mostly involve retching into a bucket (while sitting on the loo - thanks weak bladder)

Tallyra You must be feeling terribly down after everything you're going through. You will get through this, and everyone's here for you.

others hope you're getting a little relief with meds, plenty of rest and some rl support too. Great to see/hear that some of you are managing food now - result.

Re: sweets/teeth - I was worried about mine, and read on here that using Sensodyne Pronamel tooth paste is very good for acid wear, so have switched to that.

So sorry you're all having a rotten time :( I feel a bit of a fraud, things seem to finally be getting a little easier as I approach 18 weeks, here's hoping....

I have the dentist next week, I'm so worried about what will be said, my teeth feel horrible!

Hi all,

I posted on here much earlier in my pregnancy and am now 28 weeks. I still take 4mg ondansetron a day and generally feel well on it, if I stop or try something else eg metoclopramide the vomiting comes back. I'm very aware that I'm only just persuading the GP to prescribe it because I am a doctor and insistent. I just wanted to say to patio that I would question where your GP got his cost figures from. I wrote myself a private prescription for ondansetron before I got the first script from the GP (I didn't need to use it as she gave me an NHS one the next day). The cost from a tescos pharmacy was £40ish for 28 4mg tablets. That will be more than the price the NHS pays per tablet as the pharmacist gets to make a small profit on private prescriptions. It is also used in hospital in my patients (paediatrics) as a first line antiemetic. It used to be pricey but I just don't believe it costs anything like £11 per tablet now. Maybe you could try and call a pharmacy and ask what it costs on a private prescription. If they give you a more reasonable price go back to the GP and question where he got his pricing information from.

Hey all. I am feeling pretty low today, still very nauseated. I think my body might have finally noticed the drop in antidepressant levels and I'm hitting a low. Feeling miserable and taken advantage of.

I used to help my mum do a sat morning coffee shop thing for my dad's rowing club and she is insisting I help her again in the morning. I told her I have had a tough week at work but I am too weak to say no outright and she won't let me out of it. So I am feeling resentful that I have to get up early on my day off and do a day's work for no pay when I am feeling so crappy and I am pregnant.

JenYou poor thing, I don't think your mother would ask that of you if she knew how bad it is - can you get her to read up on Hyperemesis on the Pregnancy Sickness SOS site? Coffee smells particularly bad when sick.
Tallyra Are things even slightly better, poor you?
y2k1SophieThanks so much for encouraging and informative post for Patiodweller. Add to that the Pregnancy Sickness Support advice line, Patio and you could well get somewhere, I hope.
MOG This sounds awful. How are liquids staying down? Do let GP know how much you are going downhill, there might be something she can offer.
Choc I swore by barley sugar, but it's hard to find, I came across it in a funny old sweet shop.
Totes It is bad that things are meant to reassure can work the other way and am eager for you to reach the stage when you can hear the heartbeat.
Meerka How are you now? You are so right; the horrors of Thamedolide were fifty years ago and doctors really should have thought more then, but they have learned from that and dehydration is a big danger for pregnant women.
Peanut That is so annoying of MIL. I do think she should read up on it before saying that.
Sally How are things, back on the meds?
Feekerry How are you, now? Slinky Are you still slinky or are you filling out?
Sorry to anyone overlooked. Hope Everyone is coping today.
Lucinda
xx

Not doing well. still waiting for the packet of ondansetron that should be on its way. But the local doctors won't prescribe it here, apparently at all, and the sickness is unbearable. Starting to loose weight though no danger of dehydration yet. But the sickness is unbearable.

Trying to work out if I can come back to the UK for the period of the preg, though I'd hate to leave my son, or, well, the other alternatives.

Meerka I do hope you can manage a return if necessary, how awful that they should eject all medication in the Netherlands. I know in the US, Ondansetron is used as a matter of course (though under health insurance schemes). Can you get cyclezine or it's equivalent over the counter? In the UK, you can get cyclazine over the counter, and that other one used in pregnancy and in travel sickness, what is it, stemitil? Ludicrously, though cyclazine has been used for Hyperemesis for several decades without any problems, the pharmacist won't sell it to pregnant women. I have known people on this thread who are desperat4e and whose GP's won't prescribe until they are hospitalised, getting it over the coutner, it would make much more sense for doctors to prescribe, as you said earlier. Really sorry about the constant nausea, I think a lot of people find that harder to bear than the actual vomiting.
Do phone the advice line if you feel desperate for more advice, but I'm sure they told you that, anyway.
Hugs. This is such a shame, as a pregnancy late on is such nice thing for a woman who doesn't have to worry about this misery.
Lucinda
xx

They will prescribe something weaker, emesafene it's called here, and Im on it but it's making not a whisker of difference. I can get cyclazine sent over, and actually im waiting for some.

may well phone the helpline later, casting around for all the options I can atm

Jen and Meerka - sorry things are rough. I am glad you can get cyclazine sent over at least. Jen, I hope you can bear today. Depression is such a weight and very difficult to put into words thus hard for people to help. Hormones in the mix must be a bitch.

I haven't had a great 24 hours but that seems to be the lay of the land for me at the moment, up and down a lot. Off to tackle a two hour car journey...terrified. Will clutch bucket all the way!

Totes Best of luck with car journey.
Meekra Best thing. Jen as below, I do feel for you, bad enough having to work al week.
Lucinda
xx

Hi everyone, thanks for all the advice.
Gosh, Tally, I feel for you. It all sounds horrific even by HG standards.

I do think that cyclizine works for some women especially if taken with the pyridoxine (B6) but when they don't, there has to be something else.
Y2K, thank you for your advice. I will go back and ask again.

Yep to sweets here too but jelly tots in my case and only the yellow and green ones which is driving DH mad.

Thanks to all of you for your good advice. I'm sorry if I become a sporadic poster but some days the screen really hurts my eyes.

I survived the day, it was pretty dead so there wasn't actually much need for me to be there. Mum has now said she only needs me on big event days so I can use my Saturdays to rest.

I decided against going off the meds, after feeling so ill from missing one metaclopramide.

OH and I are going out tonight to meet my brother and his wife for dinner. I haven't been out in so long and I am actually really looking forward to getting a bit dressed up and going somewhere. I should be able to eat as well, as I don't feel too bad today.

Sorry to hear that everyone else is struggling. I imagine if it weren't for the meds I would be barfing copiously and often so I am very thankful that I have them.

As for the depression, it is an ongoing issue and I am used to it.

Hope that totes and meerka get a little better, and everyone else too. Thanks as always for the kind words from Lucinda. Where would we be without Mother Hen?

totes Good luck, hope the journey is nice and uneventful for you x

jen I'm glad you made it through, don't blame you for sticking with the meds. I don't think I'm going to dare come off them either.

patio I find looking at screens can give me motion sickness, so don't worry about being sporadic.

I managed to go to the supermarket alone today, only got a few things, but my shopping trolley looked like I have the world's worst diet, sweets, croissants, ready meals etc.

Feeling rough.

I've had a ham and pickle sandwich and a banana today. Trying to drink more water too.
I am impressed with myself though as I have done a little house work. My husband was amazed when he got home and couldn't believe I even made him a sandwich too.

I'm liking the smell of clean laundry drying on the radiators. Strange I know but the fabric softener smells yummy.
Suddenly I'm wanting to disinfect everything too. The sofas, although fabric have even been washed with a full packet of antibacterial wipes. Good job i didn't ruin them, don't think my dfds guarantee covers that :-)
All curtains are going in the washer today regardless of wether they are supposed to and 90 degree washes are now a must.
The poor cat is going to get a trim. She's long haired and I'm sick of finding stray hairs on my sofa.
It's official I'm obsessed! My OCD is in overdrive.
At least it's something other than puke to think about.

MOG-
My trips to the co-op have been the same. Sweets, crisps, pop and generally rubbish.

Well done all for various battles conquered today. I ate sweets the whole car journey. Feeling rough as now but made it!