mini forgot to add Samuel is doing just great, hes having his 3rd injection this week hes often been ill so couldnt have it, and 3 times i took him the computers were down so they couldnt do it, typical
hes speed crawling now, loves to be outside my dh built a huge decking area complete with fences so he has a lovely safe area to play,
you can see in his face that time is now running out as one of his eyes is drooping lower than the other and he cant close his eyes properly as his forehead is bulging out so far it keeps his eyelids open. just over 4 weeks till operation now, were not thinking about it just going to deal with it when its here.
im strangely calm at the moment about his op, i can see hes suffering a bit now keeps rubbing his head as the pressure in his skull is rising, the choking is more severe and he needs more oxygen, and you guys know how i feel about the op
i just want his better now, ok im going to hate every minute and cry when i see him and leave him in theatre, but i always said i dont want to see him suffer.
this is why we have booked disneyland paris for christmas i need to focus on something beyond the operation, iykwim, the boys dont know its a complete suprise for them too, there coming to the hospital so we can pray together, and they can hold his hand give him strength, then dh got this job too, i feel there is a light now, it has to be ok all of it because i need it to be, we need to get samuel well, over this hurdle really
then he has to have open heart surgery approx 6mth time, we are a strong family unit, and there is so much love in it , he will be ok , for me there can be no other way.
sorry long rambling post off to do lunches now.