Thank you sponge the page was actually set up by an ex neo nat with cerebral plasy he is now 12and has just learned to ride a bike!! so its just connected straight to the Specially Nursery and we dont have a comment page. I will pass on your wishes though.
On the rolling she isnt that clever she has to have one arm under her then she crosses her legs and twists right over but she cant do it unless that arm is there. I have to do alot of positioning with her so it started on her side...she happened to go onto her tummy then flip back again.....for a quadraplegic its pretty good though. The finner motor skills with the arms to face etc are very limited she doesnt have a full rage of movements at all so I have to teach her she has a face/chest another hand.....so when I said you can see her fighting the resistance, one part of her brain knows its there because I have showed her...and she wants to do it.....but her brain cant make the moves....she is FKN stubborn though she gets one arm half way up and you can see it shake under the strain then she brings her head forward as if sod this im not giving in!!
We have a routine as such and I hate it....8am Drugs and feed, midday feed, 4pm feed, 7pm bath/physio/massage 8pm drugs and feed...12pm feed....then its just hope for the best during the night hit or miss really if she wakes that will be her for 4hours or so usually 2am till 6am but thats not every night.
I know I should probably should talk to someone but I dont think I can, I know what I said sounds awful and if someone did turn up and my door and say its a mistake here is your baby I wouldnt let them take my Oli Bear away as I love her so much..DH is away and DD1 also hasnt been sleeping so no sleep ontop of it all makes me black.
Poppy if he sleeps sitting have you proped the cot & mattress? I have books under one end and a towel under the mattress its the only way she will sleep in her cot.
TGF I have a vibrating chair and it just makes sick in this house...chair is ace bar the vibrating bit.
Debs I must have missed it are you moving?
OK away to do the last feed thank you all for making me feel un ogar like