Thanks everyone. This thread helps keep me sane.
Hugh that pic is adorable!!!!!
DS was born on 15/3, I think he was 22 weeks today, I've lost count !
The appt with the sleep lady went well. She asked lots of questions and basically said she thinks he has built an intolerance to the milk he is on. I didn't realise it could happen weeks after as he had been settled for about 7/8 weeks on the nutramigen. She said babies most commonly build an intolerance, if they are going to, 6-12 weeks after starting it. Nutramigen is a hypo allergenic milk for those of you who don't know, but it is partially hydrolysed which means it still contains cows milk protein but it's so small that that the body doesn't usually recognise it as an allergen. Neocate is a milk which is amino based and doesn't contain any cows milk protein at all. She said she doesn't think ds has a sleep issue or even a dummy issue as such but more that he is really uncomfortable and the flare up of the reflux symptoms suggests the intolerance.
She suggested taking no action on the dummy front for now and going back to GP / buying a tub of neocate and seeing how things are after 10 days. So off I went to boots and bought a tub (at £51!). Phoned the docs and was lucky to get a cancellation for today. Gp wholeheartedly agreed that ds has built an intolerance and so prescribed the neocate to try in the meantime whilst we wait for an appt with paediatrics. I feel terrible that I never realised it was the milk. Should've really clicked when doubling the omeprazole didn't really do much. The sucking-the-dummy-ferociously action is soothing as it helps produce excess saliva which neutralises the acid.
Just thought I would update you guys as you might come across it at some point (hopefully not though!).