yw we see the peads on 24th July, so not long to go now really. I've been doing the exclusion diet since 1st July except one day early on which included chocolate cake, after talking it all over with DH. I had hoped for an obvious improvement by now, but it's not materialised. DH really wants to try giving T egg and milk as pure foods to see if he reacts again. The first reaction was very mild so he's not worried about what might happen. I'm worried, but can't feel I can dictate on this, so I've said he can do it on a day we're both home with the car so if we have to rush him to a&e we can. This passive aggressive compromise seems to have worked so far and he's not tried it.
The thing with the meds is that they're sort of prescribed by proxy. The dr wrote the consultant a letter, she phoned me directly and told me about changing dose and if that didn't work changing meds. She didn't then write the promised note to the dr telling him this. So dr gave me omeprazole based on my description of the conversation, but with no advice to go with it.
We opted for just omeprazole, which he took this morning. He's seemed a bit refluxy today, but not too bad. Not sure if it was just one off hiccups and a bit of a swallow/suck session (his silent reflux mostly showed up like this). He's never been very sicky, mostly just if he's sat up right after a feed when I think his nappy can dig in to his tummy.
We've been lucky that he's never been very bad with reflux. He used to hiccup all the time, would often be visibly sick into his mouth and swallow back down with a grimace and shudder, and often smelled very acidic on his breath. He also would thrash, kick and sweat lots when feeding, and always had a cough/cold (cough and mucous) overnight but never in the daytime. He never really cried for no reason, or seemed in pain. He dropped from 75th to 50th %ile when the symptoms all started, at around 10 weeks. By 14 weeks his sleep had gone from 4 hours at a time to 1-2 hours.
There's a chance his wake ups are bad habit now, and the ranitidine was working. He's not had the obvious day time symptoms since being put on it, but when I'm holding him trying to get him to sleep after the early wake ups I can hear him gulping and swallowing so wonder if he is still suffering at night. I just want to rule it out before trying any kind of sleep training.
The plan is to give him omeprazole till peads appointment, if things aren't better then we'll try stopping all medication. If things are no worse, we'll keep him off it all. If things are worse, we'll obviously start him back on it. We'll then look at challenging him through me eating either eggs or dairy, see if that has an effect. Then the other one. By the end of it all we should know what's what.
The problem is stuff is changing all the time and all together. I've stopped dairy and eggs, introduced omeprazole, he's started solids and is growing older.
I do ok on that much sleep, mostly, because we're cosleeping and the wake ups are very short. He usually feeds back to sleep within 5-10 minutes, and I'm asleep before soon after. When I get overtired I get really angry at everything. I've started getting DH covering wake ups from 8-11 or so while I sleep.
This has turned into an essay. Sorry.