Please sign this petition re the lack of care for lipoedema patients

[bringonthecrumpets]

Lipoedema is a chronic condition with no cure and the only treatment is surgery. NHS won’t cover, neither will any private insurance.

https://petition.parliament.uk/petitions/758164?fbclid=IwdGRjcAQepQpleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEeVIB3zqR2hsGOwlFAOuDPGlZ0a-FKGxfTNktvatsehXSkVqkl0zf2LOm15_Q_aem_YLsvXZex_AstbEsCXG-W1g

@Piknik I used to have it many years ago when I lived in a different part of the country. I remember her doing one leg and seeing the difference it made when compared to the other - was really striking. She was newly qualified in the Vodder method and I think had found the course and its intensity quite gruelling and I was her first patient. Seeing those results spurred her on to keep going with it!

Can you please PM me with some information about your surgery, where it is and cost etc? Thanks. If pm-ing is still possible on MN

@Piknik I had a few sessions with a suit (before I knew I had lipoedema) and I felt amazing after it. I will have a couple on the run up to my surgery (recommended by the surgeon). Lots of people in the lipoedema Facebook group had it regularly.

Signed

More signatures!! Thank you 😍

@Kdobeldasent you PM :)

Signed and bumping! Thanks OP

Lunchtime bump. Please sign

Anyone else willing to help us?

We’ve gone over 4,000 now. We still need to get to 10,000 for someone to listen to us. Please sign

OP might be worth posting the link in 'Chat' for more traffic

This condition predominantly affects women, doesn’t it? And is associated with the hormone oestrogen (notably during biological hormonal changes that only affect women) and is rare in men?

Sounds like a clear case of discrimination to me by the NHS, butting up against the protected characteristics of sex, pregnancy & maternity, and disability.

Adding another little bump

@TheAutumnCrowyes it is hugely affected by hormonal changes and as far as I know it’s 99% women who are affected. I’ve read more stories about gps telling people to walk more and lose weight and their legs will look and feel better. It’s very sad really. In the US at least private health insurances cover it. That’s not the case in the uk either.

@Pikniksomeone said you’re not allowed to post petitions elsewhere?

Bumping this for the Sunday crew. Please help us and sign our petition. Thanks.

@bringonthecrumpets I've definitely seen petitions in Chat. MN HQ may move them at some point (I'm not sure) but you might get a good few sign ups and shares before they do....

Thanks so much for sharing this @bringonthecrumpets

signed!

We are close to 5,000 now. Please keep signing. I’ve read more stories of women being fobbed off and told their legs “don’t look too bad” so it can’t be lipoedema. Those with no means to pay privately for surgery are being left in pain.

Did you know about about Mumsnet's campaign, @bringonthecrumpets?

I wonder if you email Justine at MNHQ she might be able to assist?

https://www.mumsnet.com/talk/mumsnetcampaigns/5507431-medical-misogyny-women-are-being-systematically-dismissed

Thank you. I didn’t know about it. Will message them.

Bumping this again in case you haven’t seen it. We’ve gone over 5k now so more than halfway. Please help! Sign and share. Thanks

Signed!