Please sign this petition re the lack of care for lipoedema patients

[bringonthecrumpets]

Lipoedema is a chronic condition with no cure and the only treatment is surgery. NHS won’t cover, neither will any private insurance.

https://petition.parliament.uk/petitions/758164?fbclid=IwdGRjcAQepQpleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEeVIB3zqR2hsGOwlFAOuDPGlZ0a-FKGxfTNktvatsehXSkVqkl0zf2LOm15_Q_aem_YLsvXZex_AstbEsCXG-W1g

@olympicsrockthe petition is not just for surgery. Even compression socks are not always available. Some GPs haven’t even heard of it. I’ve been on mounjaro privately for 2 years and yet my lipoedema has progressed. But I respect your opinion.
I also hope that any changes in the nhs might encourage private health insurers to review their polices. It is only uk and Europe that have it as an exclusion.

We have doubled the number of signatures in the last few days. So please keep signing and sharing. Still a way to go until 10,000 but I believe we can do it. Thank you all

Morning bump. Please sign

Signed

We have doubled the number of signatures in the last week alone. Please continue to sign. Thank you!!

Signed.

Bumping for the evening crew. Please continue to sign

Signed.

Signed. It’s a cruel, distressing condition that some GPs are ignorant and unempathetic about. The more puny the better.

Harsh.

signed

Publicity I meant!

Thank you all. TBH my main motivation is for people I’ve met who have no means to afford surgery privately. It will be challenging for me but I will manage. Others don’t have this option.

I have actually been on mounjaro for well over a year and don’t have any more weight to lose. I have a healthy bmi and exercise regularly. And yet my legs and hips are covered in fat, permanently swollen and bruised. It’s demoralising when people say you should eat less and move more - this will not cure the disease.

Let me guess, this is a condition that affects mostly women?

It’s JUST women 👀

I have lipoedema (as mentioned above), hypertension, sleep apnoea and angina. But because these are all inherited conditions and I am not massively overweight (just under 2 stone), I am not eligible for mounjaro which I know would help. I can't afford mounjaro or surgery for the lipoedema so i spend my life on pointless diets that don't seem to do anything much and certainly never touch the leg issues. It's pretty depressing

It’s time it was taken more seriously, and GPs need to be more educated about it.

@Pikniki am sorry to hear that. It really is soul destroying. I’ve been on mounjaro since before I knew I had it (just thought I had fat legs) so I don’t actually know how much it helps. But I have also read it is meant to reduce inflammation and lessen symptoms.

We are slowly getting up to 4,000. Please continue to sign.
In a nutshell:
lipoedema is a chronic / progressive condition
There is no cure
Fat cells are diseased and cause inflammation as your body tries to fight them
your legs / bum will be bigger than the rest of your body
No diet or exercise will make a difference
You will be permanently covered in bruises
Your legs will swell up all the time
The NHS will not treat you
Surgery is the only option
In the uk it will cost you approximately £11k per surgery - most people need more than one
In Europe it will cost you about £6k plus travel costs
if you can’t afford it you just have to live with it.

Done. I’m currently saving (not easy on Mounjaro) and looking into surgery once I have starved myself got myself down to as low a weight as possible. Would love to be able to afford regular MLD too.

3,796 signatures.

Well done, @bringonthecrumpets.

@TinyRebelit’s good to have a plan.
I am booked for surgery in the summer - going to Europe. Weirdly excited about it!

Signed. My daughter has it after having chemotherapy and radiotherapy.

Signed. I have had virtually no help or understanding. A nurse recognised it when various doctors did not.

Has anyone tried lymphatic drainage btw? It's something I have considered as I don't have the money for surgery but no idea if it genuinely helps.