Tiny DS in hospital with bronchiolitis - hand hold

[Floopyandtired]

DS 14weeks has had a bit of a cold the last few days but this morning really deteriorated. I took him to the GP who said it was just a cold and sent me away. Throughout the day he got worse, fighting for breath, not feeding at all etc so I insisted the GP see him again this afternoon. One look at him and we were sent straight to hospital. DS is now on oxygen with a feeding tube and I’m in bits seeing my tiny baby so helpless. I’m trying to pump but I’m so exhausted and hungry I’m not getting much. DP not allowed to stay due to bloody fucking Covid even though we’re in a side room. Not sure why I’m posting other than to just get it out there.

@Floopyandtired I am so glad to hear that. Sending big hugs

I have tears in my eyes reading this op. So pleased for you and little Henry. I hope things are still on the up for him

Yes Henry! Keep going little man, were all thinking of you and your family.

Amazing update!! You must be so relieved. Fingers crossed he'll be home again soon x

Wonderful news!. I hope your little man is soon back home xx

So happy to hear this op I hope he will be home soon and do remember to look after your self you have been through a major trauma.

Fantastic news. Don’t be alarmed if there might be a little blip here and there. Sounds like your little one is on the mend now though. Sending you both hugs x

Wonderful update OP - so pleased and relieved for you. Go Henry - what a little champ!

That's wonderful news. I've been checking for an update! Sending big hugs. Good for Henry - hope he carries on getting better!

I'm delighted for you OP. That cuddle must have been just wonderful!

Great news, well done Henry 🥰

Wonderful news well done Henry xx

Amazing update ! Thankfully

I'm so happy to hear this, sending lots of hugs to Henry and you

Ah that's just amazing to hear, well done little one!

I wonder if anyone here has experience of babies having drug withdrawals after coming off heavy sedation? It’s been 48 hours since H was taken off the ventilator but he’s still having a bit of a comedown! I’m not sure how to help him, he’s miserable. He’s still on oxygen and has a feeding tube. He’s showing no signs of being ready to feed. However, he was showing no signs of being ready to come off the ventilator then 24 hours later his tube was removed so 🤞🏼🤞🏼

I my experience of babies and NG tubes (worked on a neonatal ward) it is much the same as the vent, one minute they aren't at all interested in feeding then, all of a sudden, they are. Fingers crossed Henry does the same.

My daughter was transferred back to our local hospital after being discharged from PICU and was there for 4 days being weaned off the sedatives. They cut the dose down really slowly and she was absolutely fine. Have they discussed weaning with you?

@MoreGinPlease2020 they haven’t done gradual weaning, just gone cold turkey. He is scratching a lot. I have discussed with consultant and they have prescribed some oramorph (spelling?!)

Maybe ask the consultant again but I guess if H is already off the drugs, then they won't need to wean him - just manage any withdrawal. Different drugs must have different protocols - they'll know what they're doing but you know your DS so definitely mention anything you notice that doesn't feel or look right.

Is he on clonidine. That's what is used to wean from
Prolonged sedation. Speak to the children's pain team. They deal with withdrawals.

So pleased that your little H has come off the ventilator. He's a little soldier!!

Wow, came back to see how H was doing and so pleased to hear of the great progress!

Im so, so sorry. Poor little lad. I hope he recovers soon.

Hope things are okay OP x