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I cried my eyes out when i put her to bed tonight.

150 replies

Thomcat · 01/09/2005 21:31

She was asleep. I had read her a story and laid next to her, she asked for 'more tic tic' which means I have to stroke her tummy and she fell asleep, all messy hair and little soft round face. One arm on her nappy, the other above her head. So perfect, so beautiful. I just cried and cried. I can't bear the thought that her life will be hard, that she'll never speak properly and that people won't understand her, that she won't be happy, that she'll know she's different. What if people leave her out like they do now because they assume she can't do stuff, or is just not like them? What if no-one other than her family ever really, really love her? I want to freeze time, keep her like she is now, protect her. The future is so bloody scary. I know this is my pregnancy hormones making me feel so emotional and taking my thoughts into the future, somewhere I never go, and this is why.

Sorry, nothing you can say, just started crying while I was on here so let it all out rather than coming off line.

I'm okay now, well, you know, I'll go and get that other piece of chocolate cheesecake out the fridge.

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Are your children’s vaccines up to date?
Flum · 01/09/2005 21:51

Coddalicious!! I just gutted one of your brethren. Quite minging. When are you coming up for coffee then?

soapbox · 01/09/2005 21:51

Thomcat - perhaps you are right- she is different and always will be different but its not a bad kind of different is it!

We met a family on holiday with a teenage girl who has DS and yes she was different but she was delightfully different IYKWIM.

She was just a lovely kid - nice to spend time with, interesting, sparky but yes different.

And if it helps - even I have those weepy times when I look at my two sleeping - they are growing up quickly and are not babies or even small children any more - and on the surface at least, they don't think they need me as much as I need them in many ways - boo, hoo!!!!

I've read your work thread too, and its not on is it

You need to get yourself recharged before you have to go worrying about work!

anniebear · 01/09/2005 21:53

Don't know why, I always thought Lottie was older.

Didn't realise she was similar age to Grace and Ellie

As you know, they were 4 yeaterday!!!

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Thomcat · 01/09/2005 21:53

so glad i posted this as I feel much better. You lot rock, you really do.

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Gobbledigook · 01/09/2005 21:55

You're a star TC - Lottie is just pure gorgeousness and she has everything she needs. She is SO loved, and not just by her family, but by a whole internet discussion forum

Flum · 01/09/2005 21:55

I know this is prbably totally stereotypical and I haven't got loads of knowledge about DS but, from what I've seen there is a lot of love going on in their lives . Used to see a gang on trips at a park in London, on an outing and they were always snogging and giggling.

She will have ups and downs just like anyone. It will feel different to her and you can't know exactly how she will feel, but I bet she understands cuddles doesn't she. and that is what mums are for.

cod · 01/09/2005 21:55

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Thomcat · 01/09/2005 21:56

Thanks everyone. Sorry, just had a moment you know and you were there to witness it. Eyes dried and cheescake gone! Bed and sex and the city sound just the ticket.
Thanks gain for letting me work that one through and saying all the right things.
TC xx

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Thomcat · 01/09/2005 21:57

oh cod, you so, so rock, esp now. Bless your funny fishy heart.

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hub2dee · 01/09/2005 21:57

4 long years of 'how will she be', I bet... and doubtless many more to come... If at 4 you can grasp some of what she's saying, that's surely a good beginning, right ? Maybe have a sniff around for a therapist you feel more confidant in ?

There's enough time for lots of other skills to be learnt.

Does she like cheesecake, TC ?

BTW, I get the impression you and dp are music-mad... does Lottie like music ?

cod · 01/09/2005 21:57

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Thomcat · 01/09/2005 21:58

Cod, you've left me laughing, ohhhh, feel so much better than I did about 30 mins ago. Blimey have I been banging on that long, sorry!

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cod · 01/09/2005 21:59

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PeachyClair · 01/09/2005 21:59

I often feel the same about my DS1 who has SN, AS TBE. People tell me he might be able to have 'a life' (Paed says 50 / 50 he'll leave home), but in my heart I know that won't happen, he's just not in control enough. I think it's likely he'll end up in prison or in housing( I sound awful don't I? but he is incredibly violent and there's a difference between a violent 5 and 21 year old)

So my heart goes out to you, you are a wonderful Mum to Lottie from all that I have read, and I think it's normal to feel like that sometimes, PG or not. they're our babies, we should be able to protect them, and we can't.

Love and hugs going out to you.

X

cod · 01/09/2005 22:00

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nutcracker · 01/09/2005 22:00

Awww Thomcat don't cry, you are the most wonderful mum your Dd could wish for. I for one think you are fab

Feeling quie teary myself now. Not sure if it's you or the shock of Cod being so nice

Thomcat · 01/09/2005 22:00

hub, you are too cute for words, and i know what you look like so can say that and mean it in every sense of the word.

How'sthat baby girl of your btw.

LOL - does Lottie like music. Blimey, she adores it, seems that drum and bass goes down well with her if the Big Chill and Notting Hill Carnival are anything to go by!

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cod · 01/09/2005 22:02

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cod · 01/09/2005 22:02

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nutcracker · 01/09/2005 22:02

Thats odd a sentence went missing in my last post.

Meant to say you are a fantastic mum and Lottie is lovely, i always love seeing her piccies and hearing about what she's been up to.

hub2dee · 01/09/2005 22:02

Rainbow trout, grilled, with almonds. Secured my entry into, ahem, adult life...

... she was so impressed.

nutcracker · 01/09/2005 22:02

I have several

cod · 01/09/2005 22:03

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Thomcat · 01/09/2005 22:03

Ohhh PC, blimey, sorry, that's tough man, , jesus...........

Hmmmmm.....................

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cod · 01/09/2005 22:03

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