I'm worried for my friend who has secondary progressive MS, she can't walk at all but I think she only got standard for her care PIP (probably can wash above the waist etc) and she is very independent and possibly didn't get across the full impact of her care needs in the assessment, she does get enhanced mobility.
She's also in the LCWRA group but if that goes, and then her PIP would (?) possibly due to this 4 point rule, she could be really in trouble, she has just got a flat from the council as well which was so much better as it is adapted for her wheelchair.
I keep thinking of her and hoping things will be OK. The MS she has is not relapsing, and comes with a lot of fatigue which means she struggles just to get through the day never mind work.