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Neurodiversity support thread: Women with suspected/self-diagnosed/diagnosed ASC & ADHD

986 replies

EauRouge · 10/06/2015 16:45

No sign of our own forum yet, so for now here's a new support thread for women on the autistic spectrum and/or with ADHD. Newbies more than welcome!

The old thread is here.

Here are some helpful links for newbies:

List of female AS traits by Tania Marshall.

List of female traits by Everyday Aspergers

Musings of an Aspie- Cynthia Kim's blog (one of the few sources I have found about being a parent with Aspergers)

Autistic Women's Collective

Recognising ADHD in women from ADDitude Magazine

Resources for women with ADHD from ADDitude Magazine

Adult ADHD support (coming soon by the looks of things)

Books

Aspergirls by Rudy Simone

You Mean I'm Not Lazy, Stupid or Crazy?!: The Classic Self-help Book for Adults with Attention Deficit Disorder by Kate Kelly (I haven't read this one but I have heard it recommended many times- apologies if it's no good!)

I took off Tony Attwood because it was about people with autism rather than for people with autism. Anyone else got any book recommendations?

Online tests

(Online tests are not 100% certain but can give you a very good idea and a starting point for talking to your GP if you're seeking diagnosis)

RDOS Aspergers quiz (the best one IMO)

AQ test

ADHD test

ADHD questionnaire for women

If any of those don't work, it's because I'm cooking the DDs' dinner and I'm shit at multitasking. What's that burning smell?

OP posts:
PolterGoose · 13/06/2015 18:57

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Athenaviolet · 13/06/2015 19:01

I used the word functioning a couple of times yesterday at my appointment where I asked for a referral. From what I've been reading that seems to be a key part of the pushing for a referral process in that some people have said doctors don't see the point in an assessment if you are 'functioning'.

This is a distinct definition from the iq one.

More confusion!

bat

If I'd only had dc1 I'd have though that was just what dcs are like.

It's only because I had another dc who is very nt that I see how different it is.

I'm now having another. This one is still more likely to be nt than asc. But even if they are we are aware from day one what to look for and how to adapt to make life as smooth as possible. I'm not worried about it.

Athenaviolet · 13/06/2015 19:02

Oh that's such a good analogy eaurouge

LeChien · 13/06/2015 19:06

Batfox, I know what you mean. On our bad days, if I had my time again, I probably would have stuck to dogs!
It does seem to get easier to remember the good times once you get your head round things and find ways to manage Thanks

Does anyone else find it difficult to let go in a discussion when you believe you are right and everyone else is wrong?
I do this in RL and online, but can't seem to stop Blush.

PolterGoose · 13/06/2015 19:11

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LeChien · 13/06/2015 19:14

Ha, yes :o
That's reassuring!

LeChien · 13/06/2015 20:12

The musings of an aspie blog post is very good.
I was going to ask about driving not long ago, the post described my driving style perfectly.
Usually ultra observant and would consider myself a good driver, but then have off times where I drive too close to a hedge and whack the wing mirror, or misjudge distances.

PolterGoose · 13/06/2015 20:58

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PolterGoose · 13/06/2015 21:00

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Athenaviolet · 13/06/2015 22:19

Yes that's a good explanation Of high/low functioning.

Sometimes I do want to describe times in my life where I've been more 'normal'. I don't know what other terminology to use other than 'functioning' though.

I was wondering, how accommodating are posters' DPs to their traits?

DP and I often have little bickerings, usually over something (reasonable) he's done which has messed up my 'routine' or moved my 'objects'. He's learning now that these are traits and that our lives will be much easier if I can regain a lot of the control I had over my environment I had before he moved in. Back in the days when I was 'high functioning'. How much can I expect him to adapt or do I have to accept that living with other people isn't something I can do?

SouthWestmom · 14/06/2015 07:58

Interesting brief discussion above about .not wanting to 'cure' asd. Tbh if I could remove ds' asd I would. His life is so impacted by it and he has so much confusion and isolation I wouldn't think twice.

ALittleFaith · 14/06/2015 09:26

Marking my spot and will read back.

BatFoxHippo · 14/06/2015 13:07

Polter He is nearly 5. I find him hard to manage as he is in some ways the opposite to me, always wanting to touch, hit and climb on me, while I hate being touched. I am also not a good advocate for him as I find it hard to explain things and I know professionals write us off as 'mum has MH issues and is over anxious.' I feel like he has actually contributed to that, not a kind thing to say, I know, as its not his fault. But a child that doesn't sleep for years, always wanting you, climbing, jumping, shouting, wrecking things and having meltdowns/tantrums is surely going to affect a person?!

Ugh sorry I know I am moaning a lot but in RL I try and keep up a facade of coping and just getting on with it so it is quite liberating to let the bad stuff out too.

Thanks for all the links everyone, very interesting. Well done to all those going through diagnosis.

PolterGoose · 14/06/2015 16:27

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LeChien · 14/06/2015 19:03

Having a panic about tomorrow. I've tried to be laid back about it, but the control freak inside has won and I'm going to write some notes tonight.
Childcare has fallen through so I'll have to take little ds with me - not ideal, but no option.

Bat, Polter is very wise, following her advice we have got our lives back together after some really difficult years. I hope things get better Thanks

Athenaviolet · 14/06/2015 19:10

bat yes I had that 'touch' difficulty too when DC was small. Funnily enough bf didn't bother me and I did that for 2years but the climbing up on me- I hated that!

It's an issue that resolves itself by age though.

PolterGoose · 14/06/2015 19:46

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ISaySteadyOn · 14/06/2015 19:59

Found you all. Good luck tomorrow, LeChien.

I recognise the touching. I think for me it's partly because my DC are quite strong and forceful whereas I prefer to be touched v. gently so being jumped on is no fun.

Allofaflumble · 14/06/2015 20:08

Good luck Le Chien.

I brought my son up as a single parent and he was a complete nightmare! Barely slept and was clingy and so complicated.

After a day with him I could not stand for the cats wanting my attention to sit in my lap. I felt really mean but I'd had enough contact thanks!

LeChien · 14/06/2015 20:12

Thank you. Think I've rushed into it a bit. Not sure about it now.

EauRouge · 14/06/2015 20:24

LeChien, I've PMed you. You'll be fine tomorrow :) I don't think you've rushed into it. It's nothing formal and you don't have to have any kind of follow-up if you don't want to.

OP posts:
LeChien · 14/06/2015 20:41

Thank you :)

ToadsJustFellFromTheSky · 14/06/2015 22:20

I've just discovered this new thread so Smile

SouthWestmom · 14/06/2015 22:40

Oh good luck chien.
I found it quite draining and also got bored halfway through. I really wanted to know where a door in the room led to.
Notes are a good idea really.

JugglingFromHereToThere · 14/06/2015 23:01

Ooh, have just found this in "active convos" looking for something else (like you do) and now quite happily diverted here! Looks interesting
I think I have attention deficit traits
My dd may have as well and probably has mild dyslexia though doing well at school now in Y11
Am particularly concerned about my DSis who I've recently thought may have been living all these years with the challenges of un-diagnosed Aspergers. Growing up it was always said that she was quiet and shy but I think she actually has significant social interaction challenges
So, I'll be interested to read some of the links in the OP and to hear people's thoughts on how different NNT traits might be related (ie ASC and ADHD) and whether people have family members with a variety of NNT challenges