Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

Mumsnetters with disabilities

Please see our webguide of suggested organisations for parents to support children with learning difficulties.

Neurodiversity support thread: Women with suspected/self-diagnosed/diagnosed ASC & ADHD

986 replies

EauRouge · 10/06/2015 16:45

No sign of our own forum yet, so for now here's a new support thread for women on the autistic spectrum and/or with ADHD. Newbies more than welcome!

The old thread is here.

Here are some helpful links for newbies:

List of female AS traits by Tania Marshall.

List of female traits by Everyday Aspergers

Musings of an Aspie- Cynthia Kim's blog (one of the few sources I have found about being a parent with Aspergers)

Autistic Women's Collective

Recognising ADHD in women from ADDitude Magazine

Resources for women with ADHD from ADDitude Magazine

Adult ADHD support (coming soon by the looks of things)

Books

Aspergirls by Rudy Simone

You Mean I'm Not Lazy, Stupid or Crazy?!: The Classic Self-help Book for Adults with Attention Deficit Disorder by Kate Kelly (I haven't read this one but I have heard it recommended many times- apologies if it's no good!)

I took off Tony Attwood because it was about people with autism rather than for people with autism. Anyone else got any book recommendations?

Online tests

(Online tests are not 100% certain but can give you a very good idea and a starting point for talking to your GP if you're seeking diagnosis)

RDOS Aspergers quiz (the best one IMO)

AQ test

ADHD test

ADHD questionnaire for women

If any of those don't work, it's because I'm cooking the DDs' dinner and I'm shit at multitasking. What's that burning smell?

OP posts:
EauRouge · 26/06/2015 08:42

Forgot to say, I would shit myself with excitement if Charlie Brooker was one of us. Grin

This article about functioning labels was posted on the aspergers FB group this morning.

OP posts:
LashesandLipstick · 26/06/2015 08:51

Eau interesting article. I don't know how I feel about functioning labels. I don't exactly have a proper diagnosis other than ADHD with traits but was told I was "very high functioning" and it was used as a justification as to why no one realised until I was 17, despite me having extensive problems (depression, severe anxiety, not doing well in a school environment, always in trouble etc) that are often related to being non NT. "She's on the G&T list, all G&T kids are like this" was used by the school a few times as well, which I now find very patronising and dismissive.

I think people have a stereotype that non NTs with high IQs are all running around inventing stuff while tripping over their shoelaces, and while they aren't meaning to be unfair, it actually dismisses the struggles and difficulties that these people go through.

BrittaTheNeedlesslyDefiant · 26/06/2015 20:13

I keep reading all this stuff about how asd people have such low employment rates compared to other disabled people. Starting to think I'm on the scrap heap and will never work again. I wish I could go back and just do a maths degree. I need to find a job that doesn't involve people/office politics

Me too. This is actually my biggest source of fear and anxiety. I have never had a career. I did a degree and then drifted about doing waitressing and menial / factory work. Never ever had a clue how to choose or acquire a career Confused

Then I met DP and got pregnant - it was unplanned but I went with it happily - I think deep down I was glad, because now a path had been presented to me iyswim? Anyway, he got a job, we rented a house, a few years later we had DC2. And for a time I didn't have to make any choices. I would talk vaguely about retraining (but as what??) and getting a job (but what job??) once they were both in school, but it always seemed so far off!

Fast forward to now, and my youngest is nearly seven. I feel utterly frozen and incapable Blush I just don't know what I can even do, never mind how to do it. Two years ago I did volunteering to try and gain some skills and experience. I lasted six months. I have obsessed since then about what went wrong...in fact it's part of what led me to wondering if there was actually something wrong with me. I could dissect at length why I failed, but would need to dedicate another post to it Blush

Briefly, though, it was one day a week (that's all FGS!) in an office for an advisory charity. On the surface everything was great, I did well and was praised, people were nice, but. BUT. My anxiety built and built until I finally futzed and quit by email. I couldn't cope so I turned tail and ran. This has been sort of a theme for me - I did the same after two years of university - I'd been doing brilliantly but I just crashed after year 2 exams. I just told my DOS I wanted a year out or I would have to quit. It worked out OK and I did have a year out and did eventually get my degree, but not before I fucked up my year abroad (language degree) and was only allowed to continue with Honours because the department staff went to bat for me.

I mess things up and then ignore or run from the mess because I don't know how to fix them. It's like the running theme of my life Hmm

Anyway, yeah, the work thing. I'm literally scared every day. I sometimes wish there was some kind of state-run work assignment department where they would run tests on you and just assign you a job that you'd be good at. "Show up at this location at this time and do X, Y and Z." Grin

EauRouge · 26/06/2015 20:27

I've never had a career either. I dropped out of uni and did a few McJobs before eventually just giving up about 10 years ago. It's not the actual work that bothers me, I can happily graft in the garden all day long. But I can't work to someone else's schedule. I suppose I'm a bit of a control freak even though I'm not in the least bit assertive. Faced with being under someone else's control, I just run away.

OP posts:
LeChien · 26/06/2015 22:15

I'm a sahm, I've sporadically worked in the last 10 years, but nothing taxing, as I get stressed when I can't have time to myself to wind down.
When ds3 starts school in September I don't think I can justify not doing something, but hopefully I can start drawing again and try to sell some work, I can do it from home then and still have my silent Wednesday!

ALittleFaith · 26/06/2015 23:08

I'm working, better being part time but have just been signed off work sick with stress/anxiety. I simply can't cope. I'm looking for something in a different area that I'll cope with better.

I think I'd go a bit crazy at home all the time. I need some structure which work gives me, I just need a slower pace and not so emotionally close to home (ward I nurse on has patients in the end stages of a condition my Dad is currently in the early stages of).

CrohnicallyAspie · 27/06/2015 07:31

Same here, I work part time because full time is just too tiring and if I didn't work I think I would just never do anything. My job is quite stressful (work in a school) but it's usually a good kind of stress that takes my mind off anything else that might be worrying me. I've said before, I have a very firm home/work divide, when I'm at work I don't worry about home and vice versa.

PolterGoose · 27/06/2015 13:30

This reply has been deleted

Message withdrawn at poster's request.

CrohnicallyAspie · 27/06/2015 14:45

polter I've got that book on order from the library, just waiting for it to come in. I also just read the Cynthia Kim one (nerdy shy and socially inappropriate), thought that might be useful for my family (particularly inlaws) to read.

PolterGoose · 27/06/2015 15:06

This reply has been deleted

Message withdrawn at poster's request.

CrohnicallyAspie · 27/06/2015 15:16

I had a word with the library earlier, I'm next in line so shouldn't be too long now. Thanks for the offer though!

LeChien · 27/06/2015 22:44

Not having a good day. I've spent the whole day catastrophising and feeling very anxious about things (mostly ds and talking to school).

CrohnicallyAspie · 28/06/2015 06:48

Hope you got some sleep and have a better day today! Would it help to 'talk' about it here?

Athenaviolet · 28/06/2015 16:09

I have a very firm home/work divide, when I'm at work I don't worry about home and vice versa

Yeah I'm like this too.

PolterGoose · 28/06/2015 16:19

This reply has been deleted

Message withdrawn at poster's request.

LeChien · 28/06/2015 17:14

Not good. Dh is worried, but I don't think he needs to be, I think it's been a lot of pressure over the last year or so and suddenly we don't have to prove anything, but then I'm worried that as things have never gone smoothly before, why should anything change now. All the worst case scenarios keep churning round, not sure how to stop it.
We told ds this afternoon, he listened but seems oblivious, but I suppose he'll ask questions if and when he wants to. We kept it light and positive.
Wine Cake

LeChien · 28/06/2015 17:14

Sorry, I'm being a right miseryguts!

Athenaviolet · 28/06/2015 22:12

I've found this which on page 20 gives an example of a form used in a formal autism assessment of adults. Thought it might be helpful for anyone awaiting assessment or thinking of doing it.

I've found out that in my area referral should be c. 6 weeks but then the assessment could take another 2 months with a weeks wait to be notified of a diagnosis after that. That just feels like so long just now!

EauRouge · 29/06/2015 11:10

LeChien, hope you are feeling better now.

We had a barbecue at the weekend. I was really stressed about it all week. I had to go into the supermarket on payday to do a big shop- it was packed but I survived. But I wasn't very happy about the party, loads of people said they would come and then either just didn't show up or sent messages when the party had already started saying they couldn't make it. So we had tons of leftover meat (I don't eat meat) and I was pissed off the whole day at people's bad manners. Also questioning why when we invited so many people, 75% of them didn't show up.

OP posts:
Allofaflumble · 29/06/2015 13:48

Eau. My conscience would torment me mercilessly if I let someone down like that with no explanation. To me it is such a dismissive thing to do. I would be v angry!

EauRouge · 29/06/2015 13:52

I'm trying not to be angry, but inside I am seething. DH is very laidback and is always saying things like "relax!" and "don't get so worked up" which doesn't help at all, in fact I think it makes things worse.

Most people we invited did not even bother RSVPing! I think it would have been easier 50 years ago when people were more polite. I think it would have been easier to predict people's behaviour and understand it. I thought some of these people were my good friends :(

OP posts:
PolterGoose · 29/06/2015 15:07

This reply has been deleted

Message withdrawn at poster's request.

LeChien · 29/06/2015 15:54

Eau, that would really bother me too, and someone saying "relax" about it would definitely make me feel worse!

I feel ok today, thank you. I didn't talk much over the weekend Blush

Athenaviolet · 29/06/2015 17:26

People are a lot more flaky with social arrangements now in the age of mobiles.

75% is actually a really good turnout! Smile

One of the things that for years made me think I wasn't really aspie was that I do want to be sociable, I want to have friends. I try so hard like having parties/bbqs etc. I think I'm a good host and amn't stingy about food/drink. But there are always loads of no shows!

EauRouge · 29/06/2015 17:48

No, I mean 75% of the people we invited did not even RSVP. I have been complaining to DH today about the whole thing, how I spent ages cleaning and tidying only for other people's DCs to trash the place and now I have to do everything again. I just don't feel it's worth it. He says he enjoyed himself but I didn't. I was glad when it was over, I want to get back to normal.

I do enjoy socialising in the right circumstances but I feel like my home is my safe place and I don't like it being invaded and people touching all my stuff.

OP posts: