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One in six PIP claimants have no extra costs linked to their disability

1000 replies

Allseeingallknowing · 15/10/2026 14:39

https://www.thesun.co.uk/money/40693771/pip-claimants-disability-benefit/
So, can money be saved here?

OP posts:
Thread gallery
12
Bushmillsbabe · 15/10/2026 16:03

Octavia64 · 15/10/2026 15:07

Hmm I note it says that many of those who report no additional costs are 16-24.

I have a disabled daughter and I pay most of her additional costs so she is not really aware of them.

i’d swop pip for the nhs providing wheelchairs in a heartbeat though. Her last wheelchair was 8 thousand.

I think you can swop the mobility component for a powered chair, under motability scheme?

NoisyHiker · 15/10/2026 16:04

Better start paying carer's allowance at a basic living wage then.

Allseeingallknowing · 15/10/2026 16:07

Greenseawitch · 15/10/2026 16:03

You need to stop reading the sun and find a new hobby that does not involve victimising people with disabilities.

I am so sick of these random threads from right wingers who know nothing about living with disabilities and are too daft to realise that disabled people are just another scapegoat that the right wing media picks on because, god forbid, rich people could actually be asked to pay their fair share of tax if people stopped falling for their propaganda that disabled people and foreigners are responsible for the UK's cost of living crisis...

It was in multiple papers, on the news etc. All saying the same thing.

OP posts:
BerryTwister · 15/10/2026 16:08

OldTiredMum1976 · 15/10/2026 15:16

Well I’m one of them. My DH earns well, I can only work part time due to my disability but we can afford to have our 2 autistic children in private school as they couldn’t cope in mainstream. However, disability or not, I would still only work part time as I like to be able to attend all the children’s sports events etc.

I had never claimed at all but when the 20% VAT came in I was so pissed off that we were being asked to pay even more just because our school system is so crap for SEND children that I claimed for everything! I claim PIP for me and DLA for the 2 children. We are now over £1000 better off each month. If Labour are going to screw over those that try to do the right thing then I’m going to jump right on that benefits bandwagon. And we can now afford a luxury holiday every year…gives me great pleasure and a huge screw you to Labour.

@OldTiredMum1976 and a huge screw you to the people who don’t have a husband with a fancy job, whose benefits are cut by the government to save public money. Who are you actually trying to punish?

Notonmyland · 15/10/2026 16:09

We need a healthy economy.

If you want to take good care of all members of society there must be money to pay for it.

BillieWiper · 15/10/2026 16:11

HelpMyBlackLabradorVotesReform · 15/10/2026 15:34

Just because you haven't met someone doesn't mean that don't exist? A survey like should logically lead to an underestimate because you'd not be the sharpest tool in the box if you go around telling people you get money for nothing.

But it depends on how it was carried out. I can't see that being the case for most adults.

Moonbourbon · 15/10/2026 16:11

OldTiredMum1976 · 15/10/2026 15:16

Well I’m one of them. My DH earns well, I can only work part time due to my disability but we can afford to have our 2 autistic children in private school as they couldn’t cope in mainstream. However, disability or not, I would still only work part time as I like to be able to attend all the children’s sports events etc.

I had never claimed at all but when the 20% VAT came in I was so pissed off that we were being asked to pay even more just because our school system is so crap for SEND children that I claimed for everything! I claim PIP for me and DLA for the 2 children. We are now over £1000 better off each month. If Labour are going to screw over those that try to do the right thing then I’m going to jump right on that benefits bandwagon. And we can now afford a luxury holiday every year…gives me great pleasure and a huge screw you to Labour.

Actually this is potentially a huge ‘screw you’ to the ordinary taxpayer.

Also, when needs cannot be met then the local authority tend to fund a place at a private, specialist school.

It could reasonably be argued that raising young children tends to require one parent to work part time anyway. I would also expect that most ordinary families of young children cannot afford a luxury holiday every year.

This makes the debate about taxpayer value for money all the more pertinent. I saw a poster arguing on here that there are extra costs of medication - I’m sorry but what are these given we have the NHS and children get free medication? I’d be even more annoyed if people started talking about ‘medical’ cannibis.

In reality, most comments about extra costs are about the cost of living, something that everyone is suffering. It could be argued that giving money to those with disabilities because ‘cost of living’ is part of the reason inflation is creeping up. If one set of people can pay for more their gas bills then supply and demand to the extent that prices go up even more….for everyone.

gamerchick · 15/10/2026 16:12

SubstandardMotelsOnTheLa · 15/10/2026 15:05

Strongly agree. This thread will soon attract the ableists and benefit bashers.

Edited

Like the OP.

This relentless attack on disability benefits is a disgrace really. Pick off the vulnerable first seems to be a human trait.

HelpMyBlackLabradorVotesReform · 15/10/2026 16:16

BillieWiper · 15/10/2026 16:11

But it depends on how it was carried out. I can't see that being the case for most adults.

Which is what the survey says. Most adults did have extra costs, A minority didn't.

Hatty65 · 15/10/2026 16:16

This reply has been deleted

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OhMyGodSusan · 15/10/2026 16:18

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They wont do anything as bashing threads generate activity. The mods don't give a fuck one of my comments was deleted yesterday as apparently its offensive to call someone albeist yet not offensive to benefit bash..

JoannCourcyIveGotThePowerNSoul · 15/10/2026 16:19

Allseeingallknowing · 15/10/2026 16:07

It was in multiple papers, on the news etc. All saying the same thing.

Ooo so it must be true,the usual suspects,daily mail,daily express,the sun
The bastions of truth.
Here's an idea and I've never said it before be careful what you wish for.
If misfortune comes knocking
And a dose of reality comes your way.
It's deserved.

EasternStandard · 15/10/2026 16:19

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

It was a lead headline along with the RF press release.

Greenseawitch · 15/10/2026 16:19

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

I agree. Ableism on Mumsnet is appalling and allowed to carry on unchallenged every day.

dreamiesformolly · 15/10/2026 16:20

NoisyHiker · 15/10/2026 16:04

Better start paying carer's allowance at a basic living wage then.

Absolutely this (speaking as a carer for an elderly parent).

gamerchick · 15/10/2026 16:21

Thing is, what the thick twats who want an end to disability benefits. The system is designed to pick you up if you fall. Disability can happen to each and every one of us. Just because it doesn't affect you now, doesn't mean it won't. Dismantling it isn't the smart move you think it is.

Who will pick you up?

dreamiesformolly · 15/10/2026 16:22

OhMyGodSusan · 15/10/2026 16:18

They wont do anything as bashing threads generate activity. The mods don't give a fuck one of my comments was deleted yesterday as apparently its offensive to call someone albeist yet not offensive to benefit bash..

It's been getting worse recently. The unevenness of moderation is more marked now than it's ever been in the nearly 9 years I've been on Mumsnet.

OhMyGodSusan · 15/10/2026 16:24

dreamiesformolly · 15/10/2026 16:22

It's been getting worse recently. The unevenness of moderation is more marked now than it's ever been in the nearly 9 years I've been on Mumsnet.

Yes because its all about click bait and generating money for them. Im at the point of deleting this app as these posts are daily now it's disgraceful.

TopPocketFind · 15/10/2026 16:26

https://bsky.app/profile/louisemurphy.bsky.social/post/3mxvz7xpg4y2t

Most people agree PIP could work better: spending on the benefit is rising fast, yet many claimants are let down by poor-quality decision-making. We surveyed over 2,500 PIP recipients.

Here are five common myths about PIP reform, and the hard truths behind them

Myth 1: we could save money by cutting PIP for certain conditions.

Reality: few recipients have just one condition. A third of PIP recipients report depression, but only 2% report it alone. And around nine-in-ten of those with anxiety or ADHD report extra costs, much like those with arthritis.

Myth 2: PIP has to be an ongoing cash payment.

Reality: We think that cash should remain at PIP's core, but should be supplemented with help for one-off costs (eg buying equipment), and a new ‘participation’ element (therapy, training, etc), so that getting better doesn’t mean losing all support.

Myth 3: The kindest - and cheapest - review system is one that leaves people alone.

Reality: Less than one-in-ten recipients say their condition is stable, yet people often go years without engaging with DWP. It would be better to have a system with more frequent, but lower-stakes, engagement.

Myth #4: young people need a separate disability benefit.

Reality: Young people are more likely to expect their condition to improve, so should have their PIP reviewed more often. But their conditions aren’t as unique as people might think, with many MH conditions prevalent among all age groups.

Myth #5: Better targeting of PIP could save tens of billions.

Reality: we think that savings of £4.4bn a year are possible, by ending cash payments to people who don’t report higher costs. But that’s a ceiling, and bigger savings would mean taking PIP away from people it’s designed to help.

TopPocketFind · 15/10/2026 16:27

PIP does need reform. We think it's possible to move to a system that targets support more effectively and does more to help people disabled participate in society.

Read the full @resolutionfoundation.org report: https://buff.ly/PEuB0qu

fridaynightzzz · 15/10/2026 16:27

I’m on carers Allowance and the PIP I get for DD helps with that. I had a great job 6 years ago, now I get £86 a week. I’ve just spent £50 on petrol.
Luckily DH works. I think PIP is also financially supporting others as carers allowance is a joke.

Q2C4 · 15/10/2026 16:27

dreamiesformolly · 15/10/2026 15:51

Yes it is unreasonable. Instead of baying for the blood of those who are least fortunate in life, people should be getting angry about the UK's low pay culture and the ableist workplace culture that means too many disabled people struggle to get so much of a sniff of an interview.

So the IMF is being unreasonable?

Notmycircusnotmyotter · 15/10/2026 16:27

I don't really understand why providing cash is the answer. All sorts of aspects of life cost more money but we don't get government funding for it. My kids don't have grandparents so we miss out on childcare, trips, gifts, most importantly the love and support of a wider family. Do we get money for that? No, as we shouldn't. The idea that having a condition or disability should automatically mean cash payments regardless of financial status is bizarre.

BluebellBeth · 15/10/2026 16:28

Octavia64 · 15/10/2026 15:07

Hmm I note it says that many of those who report no additional costs are 16-24.

I have a disabled daughter and I pay most of her additional costs so she is not really aware of them.

i’d swop pip for the nhs providing wheelchairs in a heartbeat though. Her last wheelchair was 8 thousand.

Mine wouldnt have a clue either. I wonder how many 16/17 year olds even have access to their own pip?

TigerRag · 15/10/2026 16:29

Notmycircusnotmyotter · 15/10/2026 16:27

I don't really understand why providing cash is the answer. All sorts of aspects of life cost more money but we don't get government funding for it. My kids don't have grandparents so we miss out on childcare, trips, gifts, most importantly the love and support of a wider family. Do we get money for that? No, as we shouldn't. The idea that having a condition or disability should automatically mean cash payments regardless of financial status is bizarre.

You don't get money just because you have a disability. You can get money if you meet your criteria

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