One in six PIP claimants have no extra costs linked to their disability

[Allseeingallknowing]

https://www.thesun.co.uk/money/40693771/pip-claimants-disability-benefit/
So, can money be saved here?

I still think you are vastly underestimating just how expensive it would be.

As I said, there's a reason parents like me get carers allowance and aren't expected to work.

My son would need specially trained 1:1 care at after school club/holiday club. I have no idea how much that would cost, as I’m yet to find a single provider who can offer it in my area.

The source is at the foot of the graph.

Chatgpt is a really useful tool to quickly create graphs using accurate data. It’s a tool that helps the masses to make sense of complex information. It is also a serious tool used by a range of experts in various fields.

To put it on a par with reading information in tabloid newspapers shows that person doesn’t understand statistical validity, significance, data science, coding or perhaps the whole world of computing science.

An explanation for a trend is not proof that a trend ought to continue unabated

Possibly. I guess the logic I’m using is that if you’re able to look after your child (ie 1 person) then presumably the cost would be equivalent to 1 person for the duration of the session? So say £50/hour for the duration of the session. Clearly there’s be the cost of any necessary adaptations (but presumably they’d already be there if in school setting?) and consumables.

Personality disorders are not treatable

so I’d apply the same logic per my PP which your post seems to validate, he’d need 1 person full time.

The market will respond and more services providers will materialise as the need becomes established.

Most of what they posted shows that there is no steep upward trend.

This is very similar to the French model which I think works well (perhaps you even grew up there!).

Back.in the 70s/80s families had more of a village to divvy the shit. It was also very common for only one member of the household needing to work. Usually the men. Households could survive on one Income.

Comparing life now to back then can make a person look quite ignorant tbh.

Ok, I have learnt something, I hope the poster I was replying too, reads your post, seeing as they are assuming a lot, about some posters with MH difficulties.

They are not curable, but some PDs can be treated for improvement in quality of life. For example, EUPD can be treated with DBT and bespoke CBT plus psycho-social interventions.

That would be absolutely brilliant. I was earning £90k per year before being forced to leave work to care for my child and take a 2 hour a day, term time only job. If the market could respond before he reaches adulthood that would be great, although he will still need full time 1:1 care as an adult too. He also only sleeps 3 hours a night (meaning that I do too), so I’d need some overnight 1:1 care to be able to go back to my previous demanding role, but I’d absolutely love to!

SEN sessions don’t work for all DC with SEN.

Assuming the ratio of care would be 1:1 because parents care for DC alone is flawed. Social care/ICBs regularly expect parents to manage with 1:1 (or a lower ratio of care if they have other DC) yet acknowledge carers/PAs/school staff need a higher ratio. DS1&3 both have 2:1 care as part of their EOTIS packages and social care/ICB funded care, except we are expected to manage without. We aren’t rare in that regard.

My son actually has 2:1 at school. They would also need some medical training in my son's case. He's complex.

I look after him by myself because I'm his parent and that's just what you have to do as a parent to a child with complex needs.

DH had an aunt who had Down’s syndrome and lived with her mother then siblings (whose life and health was ruined) before ending up in supportive housing. They helped apply for full PIP for her. Her relatives lived in poverty and didn’t know about benefits etc when they were introduced.
She got healthcare a generation before she wouldn’t have gotten and would have died much earlier than her mid 60s.
This isn’t a type of society we should go back to. Her relatives became disabled herself from the strain and the poverty.

Have you read the report or looked into the citations? The data is from the Department for Work and Pensions, NatCen Social Research. (2021). Family Resources Survey. It’s a survey of 20k households.

Also, the fact that everyone here is quibbling about the fact that teenagers don’t know their disability costs ignores the fact that a large proportion of adults also reported no extra costs.

If we look at the table presented in the report and focus on adults aged 35-44, we can see those reporting no extra costs are 17% + 4% of that age group. That’s roughly 1 in 5 recipients in that age group.

I take your comments. All valid and noted. Except the one at the end where you say I’m ignorant.

The report itself is an interesting and balanced read. Of note, it cites that a large proportion of recipients cite the use of PIP for the general cost of living, something the report rightly states was not the purpose of the benefit.

Not to mention the fact that more people are also surviving now due to things like medical advancements.

Back in the 70s/80s, my son very likely wouldn't have survived in the first place.

I didn't say you were.

Mine goes on private physio for something I was signed off the nhs from 2 years ago but actually needs preventative work on twice monthly, I also pay for the mental health support I need because I am autistic and the NHS give me neurotypical therapy for 10 sessions based on a mental health profile I dont have and then wonder why im in crisis months later and referred back - so I use a neurodiversity therapist/coach which has been beneficial. I cant drive so I have to pay £6 for a return ticket to my nearby town if I have a gp appointment. When im in autistic burnout I physically cant do anything so I use some of this to pay for a tesco whoosh delivery. I have been able to buy loops for my ears - and other adjustments like that sunglasses because I cant bear the light - not expensive ones £6 pants from Tesco. I can pay for my prescriptions and also use the money for fitness, I pay a local fitness person in my village as a pt because it would cost me £6 a trip to get to the local gym so I price adjust to make it to somewhere I can walk to in my village, personal gym so I can work out, I can leave my house.

I live alone as an autistic woman with adhd. Is this OK? If I have any spare money I put it aside in case of an unexpected bill or save it towards another thing that would support or benefit me. Ie I did a webinar about autism and learnt new skills. I might buy a book on how to deal with the disability better.

Mine would have been put in an institution because of infant psychosis. Which is what autism was called back in the day.

You've made no commentary on what drove the rise in PIP, commensurate with the reduction in DLA, or the fact the further rate of change in PIP costs occurred during and after the pandemic - due to direct impacts of COVID itself on a sub-population of 70 million and/or existing claimants, where it may have exacerbated existing conditions, along with the psychological impact

To put it on a par with reading information in tabloid newspapers shows that person doesn’t understand statistical validity, significance, data science, coding or perhaps the whole world of computing science.

Epic. You could not be more mistaken if you tried and if you think I am going to out myself here, you're sorely mistaken.

Lesson 1: Never underestimate your opponent

As for to put it on par with reading information in tabloid newspapers, that's you being disingenuous, or seeing things that aren't there...and therefore that person can no longer be trusted to parse and present the information in a trustworthy manner 😎

My son requires 3:1 with specialist training. The market wouldn't respond to this as many children with this level of need don't even have a school place nevermind any social care provision. Many children requiring 2:1 support now struggle to get provision.