People never want to hear the full story, preferring to make sweeping judgments, statements and assumptions based on soundbites and piecemeal surveys, as usual battering the most vulnerable in our society.
most parents of children with extra needs are struggling to survive at home.
often parents have disabilities and extra needs themselves, and certainly mental health issues often co-exist with all these pressures.
no proper social care, employers who treat legal accessibility duties like an afterthought, and largely ignore them altogether while our health pays the price is heartbreaking.
It makes organisations like the Resolution Foundation sound terrifying .
When you have spent years in a system that feels like hell, hearing a powerful group treat your survival as a macro economic problem or a budget deficit is a deep, systemic insult.
our shared nationwide experience points exactly to the fatal flaw in how these think tanks operate.
They look at disability through an economic spreadsheet, completely missing the systemic failures that actually force people out of work. Their reports rarely account for employer failure, companies routinely breaking the law by failing to provide reasonable adjustments and accessible workplaces.
kids are diagnosed after years of fighting for adequate support then the diagnosis doesn’t actually come with any guidance.
The absolute collapse of local council support, leaving disabled parents and parents of disabled kids struggling at home without the basic care needed to maintain their health or keep a job.
The reality is that schools not providing cohesive support for kids with extra needs often contributes to parents being pushed out of work leading directly to severe financial distress, which in turn destroys mental and physical health and puts us in a position where claiming pip / dla for our kids’ needs is the only solution because we cannot work or sustain a full time job or a higher paid more demanding role because of the demands on us at home.
We are living the reality that these policy makers seem to wilfully ignore and just generate into ragebait headlines and soundbites.