Active discussions

Please or to access all these features

Talk
Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Molar pregnancy - please tell me your positive stories! I need cheering up...

264 replies

Habbibu · 24/04/2008 15:31

Just back from hospital - test results after EPRC showed partial molar pregnancy. Tired, fed up and in need of good news stories. Please!

OP posts:
hazeyjane · 23/05/2008 20:16

Glad that things went ok today, Habbibu.

It's great that your local hospital is the treatment centre, we had to travel up to Charing Cross for my treatment (well to start me off on chemo, anyway), and although the staff treating me were great, the hospital wasn't so good. Although it felt wierd to be a long way from home, we were lucky in that we've got lots of friends in London, that dh could stay with. Follow up ended up being really complicated, because the village we lived in then was a long way from the nearest hospital (I did become a minor celebrity in my local doctor's surgery, not sure if that is a good thing!)

The wierd thing about looking back at my notes (I needed a diary to keep track of hcg figures etc), was that dh and I have both got really happy memories of that year, I think we just made a real effort to be good to each other, and tried to do lots of lovely things.Best of all we ran away and got married the month after my treatment finished, to celebrate!

Hope you all have a good bank holiday weekend, and things are ok on Wednesday.

Original poster
Habbibu · 23/05/2008 20:22

Funny you should say that, hazeyjane. We lost dd1 in 2005 at 21 weeks, and it was awful, but I do have some lovely memories of that year - an amazingly great holiday, lots of closeness and talks and same as you, just doing lovely things together. And so much support from the lovely ht, hence the love-in above! DH is being wonderful again just now (not that he ever isn't to be fair) though I think in some ways he's finding it harder than me - he was sad when he dropped me off this morning, poor love. I guess sometimes it's easier to be in the moment if it's happening directly to you.
I feel like such an old hand in Ninewells now - won't be long before I've met everyone in the obs dept, I think.

OP posts:
Posey · 23/05/2008 20:47

Good to hear you've had such lovely care today Hab. Those last 2 posts are very heartwarming. I guess it sometimes takes something like this for us to sit back, take stock, slow down and make more time for each other.
Have a restful weekend x

PS I wasn't sure of your "history" until that post, so really sorry to hear that

AitchTwoCiao · 23/05/2008 21:13

glad it went okay, habs. i know what you mean about being the person etc, i think i'll never forget the look on dh's fact when i was wheeled off to the op theatre. in fact... i'm off to give him a kiss right now...

hazeyjane · 23/05/2008 21:26

So sorry about dd1, Habbibu.

I think it was very hard for my dh too, as he had to carry on day to day, whereas I was in this wierd bubble, where I knew that there was nothing I could do about what was happening, I just had to do what the doctors told me!

It must be hard for you both looking after a toddler whilst you are going through this.

Original poster
Habbibu · 28/05/2008 12:39

Hello!
Another scan today - no sign of any remaining tissue - uterus still a little open, which explains why I'm still having light bleeding. Chest x-ray was clear (despite my psychsomatic cough on the day!), and blood hcg from last week was half that of urine hcg, strangely. So, so far good news. Results of today's bloods and urine tomorrow, and that'll help decide where we go from here. But good so far. Poor DH was more stressed than I'd realised - he was a bit pale and shaky today!

OP posts:
Original poster
Habbibu · 28/05/2008 12:40

psychosomatic, I mean..

OP posts:
hairtwiddler · 28/05/2008 20:36

Good news Hab. Poor Mr Hab. Hope he felt better afterwards. Might speak tomorrow.

Original poster
Habbibu · 29/05/2008 21:35

Another update - hcg levels now down to 360, which is good. Fingers crossed they're down again next week, and then we might see light at the end of the tunnel. Phew.

OP posts:
hazeyjane · 29/05/2008 22:26

Habbibu, that's fantastic!

I'm glad that things went ok on Weds, and that your hcg levels are going down.

Look after yourself (and dh and dd of course!)

Original poster
Habbibu · 29/05/2008 22:30

It is good, but I think next week will be a bit more of a clincher - these were tests just after d&c, so if it's down again next week, I'll feel more confident it's not growing back. Bless lovely co-ordinator - rang me as soon as she had the results! Must have been the second after she'd checked with Dr A. Thanks, hj - keep that diary handy, just in case!

OP posts:
Teddimac · 29/05/2008 22:53

Habbibu, so sorry to hear about the molar pregnancy - haven't read the whole thread, but wanted to give you another positive story. This happened to my sister several years ago, and she ended up having to go through chemo at Charing Cross (who were fantastic). Once her treatment was finished she was told she may have to wait up to two years before ttc, but luckily her hormone levels were back down quickly enough after one year and she has since had two wonderful boys.

Original poster
Habbibu · 30/05/2008 08:04

oh, thank you, Teddi. That is good to hear!

OP posts:
Original poster
Habbibu · 05/06/2008 15:11

Hurray - down to 77 this week!!!! So pleased - was getting very blue about not even getting to the 6 month countdown. I know that things can go very slowly towards the end, but at least it's in the right direction!

OP posts:
hazeyjane · 05/06/2008 16:02

That's a fantastic drop, Habbibu!

Like you say it can start to slow down towards the end, which is so frustrating, but hopefully it won't be to long before you can move forward.

It's wierd, I just got home and my urine test package from Charing Cross (I do 2 a year) had come in the post,and I wondered how you were getting on. I turned on the computer, put the kettle on (both girls are asleep in the pushchair - very rare!), of course clicked on Mumsnet, and the first thing I saw was your post!

Original poster
Habbibu · 05/06/2008 21:04

Thank you, hj - am very touched that you were thinking of me. Co-ordinator at Ninewells is very sweet - "I was just about to phone you! It's good news! - she is really very kind.

How long will you have to continue having tests ? I'm presuming they're because you had chemo?

OP posts:
hazeyjane · 05/06/2008 22:31

As far as I know I will always have to be monitered, but I think it is because it was so persistent(I had to swap types of chemo at the end, which I think is unusual). I feel happier knowing that they are keeping an eye on me (sorry if that makes me sound wierd!)

Your co-ordinator sounds fantastic, it's great when you have someone you know you can rely on. I know most of the ladies at Charing Cross were lovely, and I felt really lucky to have the nurse I did, I could ask her anything without feeling like an idiot.

Original poster
Habbibu · 05/06/2008 22:36

Always? Wow. There's rare and there's rare, I guess. But Lord knows, you'd rather someone was paying attention - don't think it's weird at all. The whole MP follow-up set-up seems to be really good - easy for me to say, living on the doorstep of our local centre, mind.

OP posts:
corblimeymadam · 07/06/2008 20:17

This reply has been deleted

Message withdrawn

Original poster
Habbibu · 09/06/2008 19:26

Thanks, bb. Much appreciated.

OP posts:
Original poster
Habbibu · 09/06/2008 21:23

Anyone around? Feeling really low just now. I know results are good, but still have no idea when we'll get to normal, and THEN there's still 6 months at least before we can even start to try again. And I keep seeing these m/c threads with people fed up with having to wait one cycle to try again, and I completely understand their frustration, but this is so hard. I'm so lucky, I know, and feel shitty posting this after today's news, but I feel down and thought if I just wrote it it would be out of my head.

Och - ignore me. I'll be better after a cup of tea and a night's sleep!

OP posts:
cmotdibbler · 09/06/2008 21:28

Its crap isn't it. And your pain and frustration is just as valid as anyone elses, and you're entitled to feel down/angry/peed off with it all.

I'd send some stealth hugs if it wasn't nonmumsnet, but have some virtual Green and Blacks with dried cherries. And a nice glass of rose (or other drink of your choice)

Original poster
Habbibu · 09/06/2008 21:32

Thanks, cmot - much much appreciated. Lovely friend I work with phoned today to tell me she's pregnant - she was just great when we lost dd1, we were pregnant together in 2006, she had a mmc last year, and must have got pregnant not long after me this year. She's great, and it's lovely news but I'm not coping with it too well just now, and it sent me on a bit of a downward spiral. But, I've been here before, and know I can get by. Just helps to vent sometimes.

OP posts:
cmotdibbler · 09/06/2008 21:38

I know what you mean. When I got pg the first time, I was worried about telling my colleague who was embarking on IVF. By my third mc she was worrying about telling me that she was pg (although she lost one of the twins around 15 weeks).

The only time I really, really lost it was when one of DH's friends sent an email 'ooh, contraception doesn't always work, we're having another DC, ha ha'. To my work email. The week after mc2 - my baby would have been due the same week as theirs. Burst into tears in the office.

Much as your rational head says its not that they got a baby because you didn't, the emotional part doesn't always listen does it ?

Original poster
Habbibu · 09/06/2008 21:43

Oh, bloody hell - how awful. The other difficult thing is that I've been pregnant 3 times, each time got pregnant in Jan, due in October, and so I know the pregnancy year she'll be having - know when scans would be, bloods, the works. But I think a lot of this is that it's dd1's 3rd anniversary on 21st, and so much of me is just thinking "3 YEARS!" - it's just been so strange and sad and happy and confusing.

OP posts: