Molar pregnancy - please tell me your positive stories! I need cheering up...

[Habbibu]

Just back from hospital - test results after EPRC showed partial molar pregnancy. Tired, fed up and in need of good news stories. Please!

Aww i'm sorry habbibu

i was remembered, too .

AND, i had a nurse who drew blood and didn't leave a mark!

i wrote the department a letter. she rocked!

i rememebered her name, too.

even though it's a horrible thing to happen, just so pleased you are being well treated at Ninewells.

'Klaw' also speaks most highly of them.

OK, before I go to bed, here's my big-up to Ninewells:

Dr A - a star and a hero
Midwife counsellors - who listen, arrange scans within 5 mins, phone up and let me cry at them for ages and ages
Sonographers - who take the time to break bad news gently and kindly, who are genuinely delighted to see us again and came rushing to find us on postnatal ward when LittleHab was born
Receptionists in ultrasound - who remembered us, ensured privacy and dignity when it was required, and were also excited about LittleHab's safe arrival
Midwife who delivered dd1, stayed with us, talked to us about her, took photos and tucked her up cosily. She then came to find and hug us when LittleHab was born
... and so many others. It's an amazing place and a model of good practice for pregnancy loss.

Thanks, everybody. It's been good to talk about it tonight - part of finding a home for it, I guess. Off to bed now. Hab x

PS - Binah - thanks. So good to hear all these stories, and thanks for the offer of help. It's much appreciated.

sorry hab . i know frogs had a molar pregnancy between her 1st & 2nd children, & went on to have a 3rd.

i have worked with a few people from ninewells & they have a great reputation for everything.

Habbibu - a molar pregnancy veteran here

Your odds are immediately better because you have a partial rather than a complete mole. The chances of you having secondary moles is much much lower because of that.

Your HCG should also be less elevated that a full mole, so should go down to the required level faster, which reduces the follow up period (which influences the non-pregnancy period) too.

You will need to take care with some forms of contraception - any hormonal based methods (pill and some coils) may not be used because the hormones can increase the likelihood of recurrance.

Please don't hesitate to CAT me if there is anything at all you want to know about my experience of molar pregnancy.

I wish you well in your recovery

Thanks so much, all of you. Woke up in a bit on a slump, so it's lovely to have all these kind and thoughtful messages. Soapbox - that's really helpful, thank you.

of a slump, I mean!

are they going to monitor your hcg weekly,habs? do they know what it's at now. mine fell slowly at first then plummeted, i was glad to say.

Don't know what it is now - they are sending out a kit soon. Don't think they do it weekly - as far as I recall they look at the first two and decide how frequently to monitor after that. Just tried to phone the unit prompted by your post, but got voicemail (she sounds v. nice!) - will try later on. I have no idea what a high level is!

Re the intervals of monitoring - what you are thinking is exactly what my friend has had - she's down to monthly now I think.

Sorry to hear about that Habbibu.

I've had a partial molar pregnancy before at the end of 2004, had a year of doing urine tests for a hospital in Sheffield to make sure my hcg levels were ok.

At the end of the year I became pregnant with my dd, because of molar pregnancy I did get two early scans one at 6 weeks and one at seven weeks, which sort of put my mind at rest (never really fully relaxed until I had her in my arms).

Anyway, dd will be two in August and she's just perfect!

Hope this helps and that everything goes well for you in the future

Oh Habbibu, I've just seen this. sorry to hear the news

No experience, but just wanted to say it sounds like you are in good hands and you sound positive and strong. Thinking about you, and wishing you well for the future and hopefully I'll see you back on KCA before I graduate in November.

Take Care lovely xx

Hello, Daisy, and thanks - you've been an absolute star over all this. Yes, onwards and upwards, I hope. Thank God for MN. You're all bloody marvellous.

I had one 7 years ago. I already had had one normal pregnancy. Hcg levels normalised quite quickly, did monthly urine samples for about a year, although was down to negative within 3 or 4 months iirc.
I then, for various unrelated reasons left it before trying to get pregnant, but now have a healthy and happy 5 year old after a trouble free pregnancy.
When I did get pregnant with him, I had to get an early scan, otherwise antenatal care was all the same. After ds was born I had to have a final blood sample taken to again monitor hcg levels.

Sorry, posted before I'd finished. Just got the facts down first. Wanted to say it is a crappy thing to happen, but monitoring is excellent. There are quite alot of us on here who've had them so come back if you want any more help or support. In the meantime take care of yourself x

Hi Habibu, and hi Posey! (Tis frogs btw).

I've had a partial molar pg as well, between dd1 and ds. I got pg with ds rather earlier than i was meant to (my hormone levels took flipping ages to go back down) but all was well. I've since had another uncomplicated pg as well. Do CAT me if you need support. It was hideous at the time (I went back to smoking and drank far too much) but it does get better with time, if you hang on in there.

((Hugs))

My goodness! You are all lovely. Feeling so much better now. Showed this thread to DH and it's really cheered him up. Wish I'd known about MN when we lost dd1 - we were desperate for good news stories then. Thank you, all of you.

I know what you mean Habbibu, I wish mn had been around when I had mine.

AgonyBeetle - thanks for outing yourself!! Is it a permanent new name or just for a special occasion?

oh i'm so glad that your DH is feeling a bit supported on here as well, because he deffo is, even if you're the one we all know. it's tough on the boy heart too, all this pg stuff.

Hello all - could do with some more advice. Bleeding/lochia post EPRC stopped probably about 4/5 days ago - nice healthy seeming tailing off, colour change, etc. PILs dropped by today, and while chatting I suddenly felt lots of fluid in my jeans... Now, I have pushed out a 10lb 11 baby, so my pelvic floor isn't what it was(!), but when I got to the bathroom, it turned out to be blood. Fairly bright red, looked like period blood, tbh.

Phoned hosp, and nice nurse said it's most likely to be a period - she said to keep an eye for changes/too heavy bleeding/going on too long, and she's making a note in my notes. I feel ok - tired, but no more than that - and think it is most likely to be a period, but there just seemed to be a lot of blood up front, if you know what I mean. Seems to have settled down now. I don't usually have heavy periods, but then I don't usually have molar pregnancies plus ERPC, so I'm willing to accept that things may be different. Does any of this sound familiar/ring alarm bells for anyone? I'm going to phone EPAC on Mon, but wanted to see what you all think. Many thanks.

PS - should I stick to pads, or should I use my mooncup, do you think?

Aw thats horrible for you isn't it. I had that though, and hadn't been warned it may happen and since then have warned people it may happen on discussions on here as it can be a bit scary. It was about a week after the ERPC, I was away from home, passing huge clots and a lot of pain. Rushed to inlaws GP, reassured, and told it was my body "clearing-out". It did calm down but was told obviously to keep an eye on it and get straight to hospital if very very heavy and clotty and painful.
I would use pads I think.

HTH