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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent miscarriage testing - 1st app

296 replies

Softscoop35 · 09/12/2019 19:04

Hey 😁

In short, 4 pregnancies, 4 losses. Ds (living) was the result of 3rd pregnancy but as he was a twin, my GP has classed that as a loss too.

2 losses from CP
2 losses after seeing heartbeat.

Im lucky that i have managed to get a cancellation for friday after waiting only 3 weeks.

What should i expect from my 1st appointment?

Im also lucky in the fact that my local hospital and clinic where im receiving treatment is where Prof.Quenby is based.

Not sure how relevant that is mind as my app is on the gynae ward.
I have a few questions if anyone could answer?

Would i be eligible for Kryotyping on NHS?
As ive had a child, would i even need it?
I know they test for blood clotting and thyroid, but what else will the test for?

I do wonder if i would see Prof. Quenby as an NHS patient. My bet is i wouldnt. I have a very vague memory of having a chat with her way before i had DS but i could be wrong.

Any advice would be handy. I have a tendency of having high expectations so i want to go in there, kinda knowing what im going to get out of it.

(Ps, i know there is a 50% chance i wont get anything out of it)

Thanks in advance

OP posts:
HalGem99 · 09/02/2021 14:03

@treesall I felt exactly the same and was actually hoping something would show up in my bloods which could've been a cause for the missed miscarriages so it could be treated. Everyone thought I was mad and said I should be hoping all tests come back fine so I could try again and remain positive knowing there is no reason I can't have a healthy pregnancy next time. Looking back, I definitely agree with them and can't believe that I was wishing something would be found. So take it as a massive positive and focus on the fact nothing has been found which together with the fact you've already had a healthy pregnancy is great news! Xx

Babyghirl · 11/02/2021 11:31

Hope yous girls don't mind me jumping on sorry for all your losses and congratulations on the new pregnancy's.
My story I have had 4 miscarriages 5 including a cp first ending at 10.5 weeks don't know when it started thou as never had a scan second one ended 6.5 weeks third ended 10 weeks but went for a scan when I was meant to be 7 weeks and was only measuring 5.6 so could off ended before the ten week mark and forth ended 6 weeks just getting over it now cp was the very first one but doc told me they r not counted so I never did count it as a loss. Just need to tlk to someone that's been going. Through what I have been going through just for support. 💚

HalGem99 · 11/02/2021 12:29

@Babyghirl I am so sorry to hear what you've been through and what you're currently going through. It must be so hard.

Have you had any tests to date? Xx

Babyghirl · 11/02/2021 13:53

@halgem99
Have had bloods done just last Jan after 2 miscarriages at the fertility clinic so nw waiting on an other app to get more indeapth tests done just can't be down to bad luck x

HalGem99 · 21/02/2021 08:01

@daffodil21 how did your scan go last Friday? I've got mine tomorrow xx

Daffodil21 · 21/02/2021 08:51

@HalGem99 I had a massive panic on Monday so I moved it to then instead. It went well - it's a boy! Got another one this Friday.

How far along are you now? Hope all goes well tomorrow x

HalGem99 · 21/02/2021 08:56

@Daffodil21 omg congratulations!!!! How far are you now? Why did you have a panic?

I am 11 weeks 1 day. Very anxious about tomorrow as had 2 days of weird pulsing pains really low down. I can't even explain how it felt. And virtually all symptoms apart from fatigue stopped a week ago. Just hoping for the best but expecting the worst xx

Daffodil21 · 21/02/2021 09:11

@HalGem99 I always have a panic a week or so after a scan! But similar to you actually - I had a weird pain but not quite pain sensation and also felt some twitching. I had twitching last time after I knew it was all over. I also didn't need to get up in the night to pee as much, which worried me as I don't have many symptoms but that is one of them. I am weaning off steroids though and peeing lots is a side effect, so maybe it's that rather than a pregnancy symptom? I'm 15+4 😱 no idea how we've got this far. I actually finally ordered some maternity clothes yesterday - none of my clothes fit except leggings (another side effect of the steroids!) very weird feeling to be actually buying maternity clothes though.

What time is your scan tomorrow? I hope you don't have to wait around all day. Is your partner allowed in with you?

HalGem99 · 21/02/2021 09:20

@Daffodil21 I love reading your updates. It gives me hope. What other symptoms do you have? Does sound like the less frequent peeing maybe because of the steroids. I bet buying the maternity clothes is making it a bit more real! Have you told anyone yet?

The scan is under the recurrent miscarriage unit so my husband can't go. It's at 2.45pm. he waits in the car. I have my NHS official 12 week scan on 5th march and he's allowed to that one. Xx

Daffodil21 · 21/02/2021 09:29

@HalGem99 it's so tough that he's not allowed in! We've been lucky that my DH has been allowed to everything (all 6 of them!)

We have told people. I told my close friends and family very early on as I would have felt really isolated dealing with pregnancy after loss on my own, especially in lockdown. I'm very much against the keeping it to yourself until 12 week 'rule'! We have now told all family but we won't do a SM announcement until after the 20 week scan, if we decide to do one at all (and if we're still going by then of course).

Have you told anyone yet?

HalGem99 · 21/02/2021 09:36

@Daffodil21 at first I hated the fact he couldn't come in but it was the same with the two previous missed miscarriages so I'm kind of used to it now. And the fact that I've been through the worst of it on my own, I can handle anything else that is thrown at me!

I bet everyone was so excited for you! We've only told my mum and step dad and my boss due to all the time off I've needed for appointments! It's been hard though as had severe nausea in the early weeks and look like crap lol xx

Daffodil21 · 21/02/2021 09:42

@HalGem99 my boss was one of the first to know too! When are you planning on telling people? Yes they are excited. Some know our history so are a little more realistic (which I actually really appreciate) but some don't so they just assume it's going to be ok, which in a way it's nice to have a bit of normality!

HalGem99 · 21/02/2021 09:52

@Daffodil21 if everything is still ok at the NHS scan, I will be 13 weeks, so we will tell my husband's parents and our brothers and sisters. In relation to everyone else, I will wait as long as possible to tell them! I just don't want any added pressure. I don't think I will start to relax until I'm at least 6 month's. Xx

Daffodil21 · 21/02/2021 10:47

@HalGem99 it's hard to know what to do isn't it. I just figured I wouldn't relax at all until he was here and ok (if that actually happens). When we found out he was a boy or all became a bit more real, so we just thought we'd try and treat it like a normal pregnancy and hope for the best...

HalGem99 · 21/02/2021 11:20

@Daffodil21 absolutely! Keep me updated xx

Daffodil21 · 21/02/2021 11:41

@HalGem99 will do! You too x

treesall · 21/02/2021 15:22

@Daffodil21 & @HalGem99 I'm so pleased to hear things are going well for you! Super lovely to read. Please keep putting your updates!

Please also cross your fingers for me. I tested positive yesterday. Not even 4 weeks yet. I am in such an anxious funk, this is the third month in a row of testing positive and I can't feel happy because I know it's highly likely that in a week ir two it'll all be over. I want this to stick soooo much, I'm not sure I can bear another loss. 4 in a row would surely mean something is def wrong with me. The only good thing is that DH has agreed I can make an appt at a private miscarriage clinic if this pregnancy fails. Desperately hoping it doesn't come to that, but feeling resigned to the fact it probably will.

HalGem99 · 21/02/2021 15:32

@treesall congratulations! Positive thoughts and everything crossed for you!!! Xx

Daffodil21 · 21/02/2021 17:50

@treesall I really really hope this goes well for you!!!! Keep us posted. It really is such an anxious place to be in isn't it x

treesall · 21/02/2021 18:49

Thanks so much @HalGem99 and @Daffodil21. I feel like I'm in a constant state of mild panic, but trying to relax as I know stress isn't going to help anything.

Daffodil21 · 21/02/2021 19:02

@treesall @HalGem99 shall se set up a separate support thread for each other? It really is such an anxious time but we get it and are here for you

HalGem99 · 21/02/2021 19:17

@Daffodil21 yes but I don't know how to do it lol xx

treesall · 21/02/2021 19:59

@Daffodil21 that would be so lovely but I have to say I'm 99% sure I will be dropping out in a week or so. (And obviously desperately hoping I'm wrong!)

Daffodil21 · 21/02/2021 20:03

@treesall you don't know that. I know it feels that way because that's all you know, but this time could be different. I never thought I would get this far either, obviously nothing is guaranteed though.

I've set it up and tagged you and @HalGem99 let me know if you can't find it and I'll post a link

treesall · 21/02/2021 20:29

@Daffodil21 I can't see it - what's the thread called? I'll search. Thank you for setting it up