Recurrent Miscarriage Support Thread 30 - Support for Tests, Treatments and Trying Again

[forestnest]

Support, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so prepare to read fast!

Previous thread: www.mumsnet.com/Talk/miscarriage/2441180-Recurrent-Miscarriage-Support-Thread-29-Support-for-Tests-Treatments-and-Trying-Again

(stats etc to follow)

allthereis massive congrats on scan x

missie hope you're doing ok hun, glad the doctors are referring you asap! X

Must have been ib...no more bleeding (for now) fx it stays that way!

Thank you all for the posts xx

That’s good news paws, hope bleeding stays away!

freckle glad it was okay. I find keeping busy actually helps a lot, it’s when I have time to dwell (like the middle of the night) I get myself in a right state. Glad your scan is booked for not too long too.

allthereis - that’s amazing about the HB! Fantastic news. How many weeks are you now?

hels your hospital sounds amazing! If only every unit could be like that! I’m glad you’re having time off work, and you too missie. I think it’s very important to have peaceful, quiet time to allow yourself to process what’s happened. My go to’s for survival in those first few weeks are: TV box sets (there’s a good list now on the FB thread ) sorting things round the house (the cupboard under the stairs gets sorted out A LOT), gardening (very therapeutic), colouring in books and (when I’m feeling better) shopping .

I second the power of a good cry. I actually prefer it when I’m crying, it feels like a release. The worst bit for me is when the crying stops. I think freckles idea of a sad movie is a good one, there’s nothing better than crying at someone else’s problems! The last film I really sobbed at was the Amy Winehouse documentary but I wouldn’t recommend that because of course it’s real and so desperately sad .

paws great news that things are looking up. Fingers crossed the bleeding stays away x

hels your hospital does indeed sound amazing. I've only just twigged (sorry - I'm still not completely compus mentus after the last few days) that your last mc was so recent. I'm so sorry hun x Sounds like we're in fairly similar situations. Hope you're doing ok and are being well looked after x

I'm off work at the mo as well - not been in since first sign of a problem last Wednesday (then ERPC was Friday). Was thinking of going back tomorrow as I'm not great at the thumb twiddling thing but just this morning been feel suddenly uber emotional and having all sorts of random outbursts. Most recent one this in the Royal Mail collection depot - just dissolved in tears. Poor guy behind the desk didn't know where to look. I only work Monday to Weds anyway so think I probably will just wait until Monday. Not sure I'd be much use at work anyway!

monten and freckles good tip about the sad movies to get all the tears out. Will have to compile a viewing list :-)

Marking place. Good luck everyone

Great news about your pt request and grades freckle! and your app is only a couple of wks away too.

Big hugs to those struggling. missie it is still very early and raw so completely understand the bursting into tears.

I agree that taking time off work is very important. I had a few wks off after mc1 but was still bursting into tears when I went back so had even longer off.

I lost you!

My stats: ttc #1 since December 2011. Clomid bfp then mc in summer 2013, iui bfp then mc in summer 2014. 5 failed rounds of clomid, one failed iui cycle, one failed fresh ivf cycle, one failed frozen embryo ivf cycle, remaining embryo perished when taken out of the freezer. Nhs no longer interested in helping us get pg. Going private thanks to funding from MiL.

I've been awol as I was away for the weekend then droid arrived early (totally unexpected, just before starting a triathlon, in the middle of a field with nothing with me ) and as a result ivf is delayed another month . Then I got ill and I still feel like shit .

I shall return and post properly when I feel more human. And a nicer person...

Ps great news allthereis

Sorry to have missed so much. Not much in the way of wifi signal at the house in France so been reading but not really posting.

Big hugs to everyone going through difficult times xx

allthereis, I'm absolutely delighted for you. Another milestone crossed off. Stay strong x

Summary from me:
Me 38, DH 45. DD bn aug 12, normal pg
Jan 14: mmc@12w1d (measured 6w)
Jul 14: mc@8w4d (measured 5w)
Oct 14: mmc@8w1d (after hb seen@7w1d)
Feb 15: v early mc@4w5d
Jun 15: v early mc@4w2d
No result from testing on embryo for mc3
All rmc testing and karyotyping on us normal.
Tested high for uNK at Coventry (7.9%).

12w pg today (eek!), on the Coventry protocol of steroids, heparin and progesterone. 12 week scan is tomorrow and I'm absolutely bricking it.

Oh barking that is shit, how frustrating. I hope you feel better soon and the month goes quickly.

march everything crossed for tomorrow

Embryo transfer for me tomorrow, bricking it that there'll be nothing to transfer, then if there is will I get bfp and then if I do get bfp will I miscarry? So many bleedin hurdles!!!

Good luck floweroct
What day will the embryo be at tomorrow? Sorry I've lost track of when EC was. Are you having one put back? Do you have more than one embryo still going?
How were you feeling after EC?

Good luck tomorrow flower! Really hoping the transfer goes well and you'll be informing us of your BFP soon! Do you not find out about your embryos til tomorrow am?

march massive good luck to you too. It seems to have gone quickly, can't beleive it's your 12wk scan tomorrow! I know it will have been the longest 2 months if your life tho! Hope you can relax a little after tomorrow.

barking sorry you're unwell. Hope you feel better soon. That's shit about ivf being delayed too! But does it mean a potential september baby? Surely that's worth celebrating??! Sorry I have a bad sense of humour!!
When do you start the tests you're having done?

Had a mw app yesterday and heard the hb on the Doppler, another milestone reached...

Thanks barking it will be day 5 tomorrow so hoping to have a blastocyst to put back in. Out of 9 eggs, 8 fertilised and all were still going strong on day 3 so hoping there will be some left tomorrow! It's policy to only put one back so hoping we can have a couple to freeze too. Felt a bit sore after ec but not really when I moved or went to the loo! Have a hen do to go to this weekend so hopefully that'll make time go by quickly!!

Good luck tomo flower. One day day at a time to deal with the mind fuck of possible hurdles. And if a day's too long... An hour at a time x

Still 8 on day 3!! Wow! Fingers crossed for some frosties as well then, for baby two when this one is a bit older .

bumble, nope, it would be end of August...

Good luck today flower and march xx

barking bugger on the delay. Impressed by the triathlon! Hope you feel better soon x

missie hope you start to come out the other side a bit soon. Crying really helps, as does time off work I think xx

Just popping in briefly to say thinking of you both today flower and march.

Sorry for quiet this end, have been having a hideously stressful time with a house move and not coping terribly well. Just trying to keep my head down and get through the days.

flower wow 8 out of 9 sounds great! Hope they all make it for you and there are plenty to freeze. Good luck again for the transfer.

Good luck again march!

Sorry you're having a stressful time flen. Hope you're moved soon and them can start to enjoy your new home. Keep going, you will get there!

Oh no! Maybe you could hold onto it another wk until September barking...

Thanks everyone!

flen sorry you're having a tough time x

Scan was ok! Jumping about and measuring a couple of days ahead. Hopefully the bloods will be ok but at least the nt was good.

Good luck today flower. Keeping everything crossed for you xxx

Me-33
Dh-36
Mc#1-March 14 - 6/7 weeks. Natural.
Mc#2-Aug 14 - 12 weeks. MMC
Mc#3-June 15 - 9 weeks. MMC
I live abroad so testing/treatments are a little bit different

Wow! These threads move so fast I can barely keep up.

I came for some advice today really. I have now had, what feels like, zillions of blood tests although I am still haven't been tested for NKC, was thinking about having that done in the UK in Coventry.

Basically a couple of weeks ago the haemotologist told me that he is pretty certain that I have something (didn't quite catch what it was) that means I will have to inject myself with Heparin from the day of the BFP until 2 months after birth. The gynecologist also wants me to use progesterone. I also have a hysteroscopy scheduled in for end of september just to check everything is ok.
We booked a holiday in October to Asia a couple of months ago, before I had the results from the blood tests. Problem is we have still be trying in the meantime - so just imagine I get a BFP in a few days, obviously I would have to cancel the hysteroscopy but what about the holiday? Does anyone have any experience with heparin, can I just pop it in my suitcase or would I need to think about cancelling?

Completely hypothetical but I want to be mentally prepared!

Thanks everyone for the support and advice given on this thread x

Hi peqpit, i remember you from before. Heparin is fine to take abroad. It doesn't need to be refrigerated or anything, but i got a letter from my doctor so i could take it in my hand luggage (in case my hold bag was lost). It basically said it was essential i had the injections with me at all times. She exaggerated a bit! But i think it's very common to take injections on planes due to diabetics etc, and security didn't make a fuss at all. It sounds like you have a clotting disorder. So glad you have a treatable diagnosis. Enjoy your holiday and fingers crossed for a bfp!

Great scan news march!

floweroct Good luck for today! Fingers crossed that all goes smoothly xx

barking Oh, how rubbish! Hope you feel better soon!

peq This sounds as you might have a clotting disorder, and as you are at an increased risk for DVT during pregnancy, you will have to inject heparin while pg. Progesterone is standard treatment for women with rmc issues. Where do you live?
Travelling with heparin should be no problem. However, if you want to take this into your hand luggage on the plane, you will need a letter from your doctor stating that you require this medication. Another thing to consider is that, while heparin should not be stored in the fridge, it should be kept under 25C, which could be an issue when in Asia... I have never figured out how this can be achieved, but it might be worth asking your consultant about this, should it become necessary.

Hi, I do not know If I am in the right place, i think people start with there stats so heres mine-

me- 26
dh- 29
1st m/c- complete & natural 6 years go (different partner, complete surprise)
2nd m/c- April 2015 Missed M/c (d & c)
3rd m/c- June 2015 Chemical
partner has a 7 year old son from previous partner
All tests negative, advised to take low dose asprin from next BFP
PREGNANT AGAIN! 09.09.2015 and scared

Is there anyone who has had any luck after 3 m/c? or just understands my anxiety and being pregnant again? I hate that i can no longer get excited and just try to block it out, or at least i try, i guess i am trying to protect myself until 12 weeks.

i do not want to feel so sad again, its been a hard year. xx

Thank you cloudjumper and marchgirl :) This is the most helpful thread ever!

Bit nervous about having to inject myself when the time comes, not a big fan of needles!

XXSophieXX I think there are quite a few on here who have been in your situation and have gone on to have beautiful babies! You are in the right place!
Have you had any tests to find out why you keep having mcs?

Hi Peqpit thank you for your reply! yes I have had tests done and all have come back normal! I have been told to take low dose asprin this time from the day I get a BFP which I have done. I am glad I have found the right place!x