Recurrent Miscarriage Support Thread 29 - Support for Tests, Treatments and Trying Again

[barkingtreefrog]

Support, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so prepare to read fast!

Previous thread here

Link to the RMC investigations information

Stats update:

allthereis: 29. DC, 4MC
anniehoo: 42. TTC#1 for 2.5yrs, 4MC
barkingtreefrog: 36. TTC#1 since Dec 11, 2MC
bettybutterchops: 40. DS, 3MC, pg
bootles: 41. DS, 1TFMR, 4MC, pg
brummiegirl: 38. TTC#1 since Apr 14, 3MC, pg
bubblybubbles80: 34. TTC#1, 3MC
bumblebee0: 29. DS, 2MC, pg
bunnymad: 40. DD, 2MC
bythesea82: 33. TTC#1 since Dec 12, 3MC, pg
casiopeia: . TTC#1, 3MC
chrystley: 41. DD, 5MC, pg
cloudjumper: 43. DS, 4MC, pg
confu3ed: 39. DS, DD, 5MC, pg
desperatelyhopeful: DS, 10 MC.
emerald72: 43. DS, 3MC
enlightenedbunny: 34. TTC#1 since '10, 1TFMR, 3MC, pg
erica21: 32. DS, 2MC, pg
extrablessings: 33. DS, 6MC
fackinell: 44. TTC#1, 4MC
fififolle: 37. DC, 2MC, pg
flen: 36. TTC#1, 3MC, pg
floweroct: 34. TTC#1 since 11, 3MC
frecklefire: 40. DS, 3MC
genwah85: 29. DS, 3MC, pg
girliesaints: 37. DD, 4MC (1 twins)
girlinoz: 32. TTC#1, 3 MC
Ifinishedthebiscuits: 37. 2DS, 4MC
iloveyoubaby: . DD, 2MC
inamaymaybewrong. 37. DS, 2MC
jady77: 37. TTC#1 since Sep 14, 2MC, pg
kazz2112: 31. TTC#1 since Feb 14, 3MC
lauren83: 31. TTC #1 for 7yrs, 2MC (1 twins)
leah1984: . TTC#1, 2MC
loopyaboutmy2boys: 38. 2DS, 6MC
lovemylittlebear: 29. 1 ectopic, 2MC, pg
marchgirl: 37. DD, 5MC, pg
maverick79: 35. TTC#1, 2MC, pg
me2me2: 2DC, 2MC
mimidoddrioni: 35. TTC#1, 2MC
minnie74: 40. DS, 3MC, pg
monten: 37. TTC#1 since Apr 13, 1TFMR, 1MC
morganlefey: 29. DD, 3MC
mrsb0710: 29. TTC#1, 2MC
mrsconfusion: 36. DD, 3MC, pg
mrsdiddlydoo: 34. DS, 2MC, pg
notspartacus: 39. 2DD, 2 ectopic , 3MC
onedaymaybe1: 32. TTC#1, 3MC
onestep2015: 39. TTC#1 since May 13, 3MC, 1 ectopic /PUL
patienceisvirtuous: 37. TTC#1 since Mar 14, 2MC, pg
peqpit: 33. TTC#1 for 2yrs, 3MC
portmoon: 43. DS, DD, 5MC
sallywade: 36. DS, 1TFMR, 5MC, pg
sashakerr: 37. DS, 3MC
sebsmummy: 40. DS, 3MC, pg
sizethree: 35, TTC#1, 3MC, pg
snoopysimaginaryfriend: 29. TTC#1 since Sep 14, 3MC
spamminit: 25. 2DS, 2MC
strubidooo: 34. TTC#1 since Sep 12, 3MC, 1 ect
sunandrainbow: 38, TTC#1, 4MC, pg
teach3: 27. TTC#1, 3MC
texta: 32. TTC#1, 3MC
thepopandcry: 38, DS, 4MC
thornfield38: 34. TTC#1 for 2 yrs, 2MC, pg
tomcat81: 34. TTC#1 since Oct 14, 2MC
twilightstruggle: TTC#1 since Nov 12, 5MC
wadsy: 36. DS, 1 ectopic , 4 MC, pg

ourdaywillcome
daisybell

Thread babies
bakingtins: 40. 2DS, 4MC. Faith born May 14
tannyloo: 42, 2DS, 5MC. Bertie born Mar 15
tinytear: 41. DD, 5MC. Alice born Mar 15
justonemoretime: 39. 3MC. Scott born May 15
purplefrogshoes: 38. 2MC, 1CMP. John born May 15
longestlurkerever: 34. DD, 3MC. Beth born Jun 15
catlover2014: 35. TTC#1 since 09, 3MC. Louis born Jun 15
boozle80: 34. 3MC. Mhairi born Jun 15
belleende: 40. TTC#1, 2MC, 1 TFMR. Cissy born Jun 15

Hi ladies good to finally find a thread with people I can relate to.

I'm 25 years old and have had 3 miscarriages
1st - jan '13 5w mc
2nd - Apr '15 - 4wk 5days mc
3rd - May '15 - 5wk 3days mc

Just had my bloods tested and tested a weak positive for anticardiolipin which needs to be redone in about 4 weeks time to see if it comes back positive again. My partner and I really want to try again but obviously we need to wait to find out results. Anyone else ever tested positive on the cardiolipin? My doctor tried to explain it to me what it was, but I didn't really understand tbh

I had that Amanda, it wasn't discovered (or didn't show up) until after 9 miscarriages. If it is the same as I had it is called Hughes syndrome, or sticky blood. Lots of information out there.

In future pregnancies I was advised to take a tiny aspirin and something else I can't remember the name of beginning with a C by my consultant and progesterone suppositories.

Unfortunately I had decided that I had enough by then and decided to stick at one DC.

I think it is generally very easy to treat and there are lots of happy endings . It is good that something has been detected, good that it is a fairly straightforward issue.

Ah ok so it is the Hughes syndrome then! Annoyingly I asked to be tested for it after the 2nd miscarriage and they refused because I didn't hit the criteria. Good to know it's easily treated though :)

Well, mine was Hughes - antiphospholipid syndrome if that is the same as your diagnosis.

minnie Just got back from holiday so really sorry for late post (absolutely no reception up in Northumberland). I am so, so sorry to hear your news. I do hope you are getting lots of rest and and the hospital is providing decent support. I am absolutely gutted for you and am extremely angry you are in this really, really shit situation again. If there's anything I can do to help then you know I'm just up the road. xxx

Welcome Amanda and sorry to hear about your losses. Glad you have something of a diagnosis and a treatment plan. The c thing will be clexane (a form of heparin, which is a blood thinner). Fingers crossed this will help you carry successfully next time x

Sorry to hear about your losses too lavender, that must have been a very tough decision.

rubber, there's no medical reason to not conceive immediately after a mc unless advised to wait by your doctor, and people often find they are more fertile. I think it's more of a mental hurdle but if you feel you are ready then it'll be fine. My current pg was conceived immediately after a mc in june, and there are several other ladies on here who are the same.

minnie hope you're managing to muddle along. Thinking of you

spam I'm pleased they are going to take care of you properly next time but it's no excuse for what you had to go through. Hope it helps provide some kind of closure if that makes sense despite no answers and I don't mean in moving on and forgetting Jack.

Welcome Amanda and sorry you find yourself here but it's a good place for advice.

We're away with dh's family and today I have held my baby niece several times. I thought I'd be OK with it but each time my heart feels like its breaking. My last mc was due 5 weeks after her and it hurts so much more than I thought it would. I know how lucky I am having DS and being pregnant and I so appreciate everything in my life but it just doesn't go away ... The heart ache after mc. After mc. Very me post but I feel like I'm going to explode from how I feel. Everything just feels so fucking precious and like my luck will run out any second.

Am back in, yeah! So sick of trying to update my password!

Welcome newbies, you won't have seen us at our full strength yet, but hope you will find the help we have on here, although March is definitely a thread guardian and you have been well taken care of!

Back in with password changed - just back off my summer holiday (although 3 days on a campsite in the rain was not really the amazing holiday I was looking for after the horrendous month I've had, even if we did manage to get out running and swimming). Came home a day early yesterday as I'd had enough...

Minnie I can't put across how devastated I was to read your news . So, so sorry and very for you.

In the way of this thread we go from one extreme to the other - congrats for your scan Flen, hope next week and the second trimester come round quick.

spam glad you've got an apology and a good level of care for next time.

Hello to the new people, sorry you have reason to be here.

Thanks as always for the support ladies. The weekend seems to be dragging now. Just want tomorrow over with. Debating whether I need to defuzz the nether regions in case I change my mind about the Erpc! But can I really be arsed? Was in a foul mood all day yesterday not helped by the shitty weather.

barking sorry your holiday was a bit of a washout. Not what you need when you want to get away from it all.

mrsd I do completely understand the fear of losing all the precious things in your life. I worry constantly now that something will happen to ds. Sending him to nursery is really hard, even though he loves it, as I worry constantly that he won't come back. I worry about Dh driving to work on the motorway, having a heart attack if he rides his bike. Ridiculous things. But I feel like I know the worst can happen now so I'm just constantly waiting for even more misery to come. Maybe I need to see a counsellor.

Welcome to newbies. Sorry you find yourself in this totally shit club. You'll find lots of support and a fountain of knowledge though.

mrsd and minnie I totally get that. I have this fear that because it is being so difficult for us to have a DC, if we do have one he/she will be taken away at a later date. Quite morbid thoughts.

minnie I've decided after my holiday I'm going to start seeing a therapist again. I saw him after my dad died and found it so helpful. I didn't think I was a 'therapy' person and to begin with it was a bit awks but it really did help me so much. I've decided now after last mc and best friend now pregnant it's just all got a bit too much and I need help to work through these emotions.

Hugs diddly - it's so hard having a physical reminder of what you've lost.

Welcome newbies. This thread is a lifeline. It's a bit quieter than it was - there is also a private FB group if you'd like to join just shout.

I'm on holiday now so won't be on as much, will be back and posting again more regularly in a couple of weeks.

If you pm me your name and what your picture looks like rubber then I'll add you as a friend and then add you to the group.

minnie

Welcome newbies and sorry to hear of your losses. You've def found the right place here for support and strength. Nice to hear some old names pop up too like Spaminit and Pop and cry
Had a job catching up as been out all weekend.
Hope everyone is doing ok and hope Minnie and Monten you're both holding up x

Got my appointment with Dr Shehata tomorrow will let you know how we get on. I also went from clear circle to non flashing smiley face this weekend, what does that even mean??

Have some massive catching up to do on here since the hacking incident. Waves to all who are new here! Xx

spam I'm glad your appointment went well and you are feeling positive. It's great that you will be so well supported in your next pregnancy. It must be difficult not to have answers, but as march says, good that there is no untreatable cause.

rubber welcome. So sorry to hear of your losses, I hope you find us helpful here.

Missed a whole page. Argh with fb and this I am having a right muppet day.

mrsd I feel exactly the same, and have trouble believing that good things could happen. Hugs. And to everyone else who has similar thoughts x

welcome too amanda, sorry that you find yourself here.

Re: the CB opk... I've never had a flashy face. it's gone straight from blank to smiley? Should they flash??

I'm not going to be using them again for a couple of cycles when we're planning on going to Coventry if I don't get caught before then as I'm playing with fire and just enjoying not thinking about cycles etc (I will actively avoid though the cycle we go to Coventry)

For most people, allegedly, Cb opk will go from blank circle to flashing smiley to solid smiley. Before mc mine would go straight to solid smiley where as after they just went to flashing with no solid smiley so I gave up on them. Going straight to solid smiley just means both the hormones they measure have appeared at once and you're good to get busy asap. The flashing smiley just gives you a bit more warning. I've fallen pregnant when they go straight to solid and when I haven't moved off flashing.

Good luck with your appt today emerald

Feeling a bit better... Well controlling myself and my emotions better. Had a good chat with my baby niece about her should have been cousin (yes I'm mad) and it helped. I think I just have to accept its not necessarily going to be something I easily forget. And as for me losing my precious things, I just hold them tighter and tighter (without suffocating them).

Hope everyone's holding up OK x

It depends which one you have kazz. The ones we got for the trial don't flash,but there's another one they do called a fertility monitor that flashes before you get solid (though have heard a lot of people go straight to solid). I think it's the deluxe version!

Thinking of you today minnie xxx