Recurrent Miscarriage Support Thread 29 - Support for Tests, Treatments and Trying Again

[barkingtreefrog]

Support, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so prepare to read fast!

Previous thread here

Link to the RMC investigations information

Stats update:

allthereis: 29. DC, 4MC
anniehoo: 42. TTC#1 for 2.5yrs, 4MC
barkingtreefrog: 36. TTC#1 since Dec 11, 2MC
bettybutterchops: 40. DS, 3MC, pg
bootles: 41. DS, 1TFMR, 4MC, pg
brummiegirl: 38. TTC#1 since Apr 14, 3MC, pg
bubblybubbles80: 34. TTC#1, 3MC
bumblebee0: 29. DS, 2MC, pg
bunnymad: 40. DD, 2MC
bythesea82: 33. TTC#1 since Dec 12, 3MC, pg
casiopeia: . TTC#1, 3MC
chrystley: 41. DD, 5MC, pg
cloudjumper: 43. DS, 4MC, pg
confu3ed: 39. DS, DD, 5MC, pg
desperatelyhopeful: DS, 10 MC.
emerald72: 43. DS, 3MC
enlightenedbunny: 34. TTC#1 since '10, 1TFMR, 3MC, pg
erica21: 32. DS, 2MC, pg
extrablessings: 33. DS, 6MC
fackinell: 44. TTC#1, 4MC
fififolle: 37. DC, 2MC, pg
flen: 36. TTC#1, 3MC, pg
floweroct: 34. TTC#1 since 11, 3MC
frecklefire: 40. DS, 3MC
genwah85: 29. DS, 3MC, pg
girliesaints: 37. DD, 4MC (1 twins)
girlinoz: 32. TTC#1, 3 MC
Ifinishedthebiscuits: 37. 2DS, 4MC
iloveyoubaby: . DD, 2MC
inamaymaybewrong. 37. DS, 2MC
jady77: 37. TTC#1 since Sep 14, 2MC, pg
kazz2112: 31. TTC#1 since Feb 14, 3MC
lauren83: 31. TTC #1 for 7yrs, 2MC (1 twins)
leah1984: . TTC#1, 2MC
loopyaboutmy2boys: 38. 2DS, 6MC
lovemylittlebear: 29. 1 ectopic, 2MC, pg
marchgirl: 37. DD, 5MC, pg
maverick79: 35. TTC#1, 2MC, pg
me2me2: 2DC, 2MC
mimidoddrioni: 35. TTC#1, 2MC
minnie74: 40. DS, 3MC, pg
monten: 37. TTC#1 since Apr 13, 1TFMR, 1MC
morganlefey: 29. DD, 3MC
mrsb0710: 29. TTC#1, 2MC
mrsconfusion: 36. DD, 3MC, pg
mrsdiddlydoo: 34. DS, 2MC, pg
notspartacus: 39. 2DD, 2 ectopic , 3MC
onedaymaybe1: 32. TTC#1, 3MC
onestep2015: 39. TTC#1 since May 13, 3MC, 1 ectopic /PUL
patienceisvirtuous: 37. TTC#1 since Mar 14, 2MC, pg
peqpit: 33. TTC#1 for 2yrs, 3MC
portmoon: 43. DS, DD, 5MC
sallywade: 36. DS, 1TFMR, 5MC, pg
sashakerr: 37. DS, 3MC
sebsmummy: 40. DS, 3MC, pg
sizethree: 35, TTC#1, 3MC, pg
snoopysimaginaryfriend: 29. TTC#1 since Sep 14, 3MC
spamminit: 25. 2DS, 2MC
strubidooo: 34. TTC#1 since Sep 12, 3MC, 1 ect
sunandrainbow: 38, TTC#1, 4MC, pg
teach3: 27. TTC#1, 3MC
texta: 32. TTC#1, 3MC
thepopandcry: 38, DS, 4MC
thornfield38: 34. TTC#1 for 2 yrs, 2MC, pg
tomcat81: 34. TTC#1 since Oct 14, 2MC
twilightstruggle: TTC#1 since Nov 12, 5MC
wadsy: 36. DS, 1 ectopic , 4 MC, pg

ourdaywillcome
daisybell

Thread babies
bakingtins: 40. 2DS, 4MC. Faith born May 14
tannyloo: 42, 2DS, 5MC. Bertie born Mar 15
tinytear: 41. DD, 5MC. Alice born Mar 15
justonemoretime: 39. 3MC. Scott born May 15
purplefrogshoes: 38. 2MC, 1CMP. John born May 15
longestlurkerever: 34. DD, 3MC. Beth born Jun 15
catlover2014: 35. TTC#1 since 09, 3MC. Louis born Jun 15
boozle80: 34. 3MC. Mhairi born Jun 15
belleende: 40. TTC#1, 2MC, 1 TFMR. Cissy born Jun 15

kazz I'm sorry you are in limbo land. Will keep fingers crossed that the spotting has subsided.

barking I am wishing this week away for you and will breath a sigh of relief for you come Friday pm.

monten I am so very sorry you have had to go through this but I think you have been remarkably brave. I hope you are not in any physical pain and have managed to get some rest.

Hugs to the rest of you. Xxx

Kazz I'm sorry you're no closer to an answer, everything crossed for tomorrow .

Still no AF here, been off the progesterone since Saturday....

kazz fx for you, the bleeding lessening is a good sign i suppose but how irritating that the mw didnt ring you

monten hope you had a good nights sleep and your dh was home for support. Take it one day at a time xx

Yesterday i kept myself together quite well but i can barely hold my tears in on the bus to work i feel like my head is going to explode :( 2 more days of work and then i can let it all out

noodle and barking it's so hard being at work when you feel close to tears all the time/like your head is going to explode. I applaud both of you for keeping it up. Hoping the week passes quickly.

barking I think my worst progesterone come down lasted about 4 days at its worst, and about a week altogether. It was Horrible. You're doing brilliantly with that plus the situation plus the shitty work week plus dh being away. One foot in front of the other and all that. Sending you a hug across the tinternet.

monten how are you doing this morning?

freckle love the cartoon, so very apt.

flen were you asking re clexane? I found injecting after a shower I seemed to bruise less. Hope the nausea and sickness aren't too unbearable - you too march.

Hi ladies, thanks for all your support. There's no way I'm braver than anyone else on this thread and indeed I would never have had the guts to collect it (or even know that was a possibility) without this thread.

Now just need to take it down to the EPU. Judging by the perplexed/confused/disgusted/indifferent attitude of the girl on reception when I called yesterday I think it will be an awkward conversation.

Should I be asking for a scan to confirm it's all gone?

Hugs for everyone else. Sorry for dominating this place, I didn't mean to turn it into a live miscarriage thread.

Surely we must have some scans coming up this week?

monten you are amazing, so brave, and so empowering to have all these women supporting you online. This thread is here for whatever each lady needs to NEVER apologise please!

barking, patience, noodle, kazz hugs hugs hugs. And to everyone we. I'm struggling to keep up as I'm so wiped out and pukey by the evenings.

'12 week' scan today although I'm only 11 weeks today so I'm steeling myself for going back to the hospital department where we got all the bad news last year (almost exactly a year ago we had bad 12 week scan then baby died 2 days later). I was dreaming it on constant loop last night We also need to convince them we need another scan given how early today's is and the timing of the previous loss.

Love to all x

That was meant to be hugs to everyone else, not we! Sigh. Must learn to type

MrsC Imagine the lot of us all there with you at the scan today. I'd like to see them turn you down for another scan with all of us behind you .
Thinking of you, it's tricky to go back to places where you've had bad news before but this is a different pregnancy .

monten I just kept having to go back for blood tests until my hcg levels had dropped to 0, they did a scan a week later but that was the one already booked in as there was no heartbeat at the first scan. It wasn't complete at that point but I only had blood tests after that.

Two more days noodle

AF has arrived here! Well done raspberry leaf tea .

bootles thanks for the shower tip. Nausea bearable in the morning, proper yucky in the afternoons... How are you doing?

monten I begged for a scan after my second, and am so glad I had one, it really helped peace of mind. Hope you're doing ok today.

mrsc that sounds very scary, I hope it goes ok and that they are understanding and book you in for another.

barking glad AF arrived, hope the progesterone come down is easing.

I have 10 week scan tomorrow. After feeling relatively calm for most of the week, I am scared again today. My second mc was at 11.5 weeks (although we don't know when the pregnancy stopped developing) and I am having kind of flashbacks, which I'm finding hard to manage. I haven't got a date for a 12 week scan yet either - here the EPU boot you out after 11 weeks, so I'm anxious about the gap in between the two, especially given the timing of mc2. Providing all is ok with this week's scan, I will talk to the midwife about it I think.

Monten Kazz Noodle and Barking thinking of you all

Noodle not long until you finish. I hope you are finding this group helpful. As someone else said pls don't be alarmed by our histories, but I can guarantee we all know what you are going through.

Barking glad AF has turned up, raspberry leaf tea is amazing, I used it religiously after mc #3

Flen fingers crossed for your scan

Hope your scan goes OK mrsC. Will be waiting for your update.

monten don't be daft about hogging the thread. We all care. End of. I've never been offered follow up scans or monitoring. Just told to test in a coupk of weeks. If you want some, demand it.

flen will be thinking of you tomorrow

You'd think it gets easier once you are pregnant, and I hope it does for many, but I'm struggling to sleep worrying about something going wrong then having bad dreams when I manage to sleep. Told dh we need to get the spare room ready in case something happens and we need emergency childcare. He thinks I'm bonkers but goes along with it. The things they put up with.

MrsD I am paralysed with fear with this pregnancy. I expect to see blood everyday, I don't think there will ever be a point when I will relax and the thought of announcing it to anyone bar the three people that know (my parents and my hairdresser) brings me out in a sweat. I can't even imagine telling my sister and she will be so pissed off with me if I try and hide it for too long.

This process has totally ruined me mentally, it's really sad.

sebs i felt pretty shitty last time until i had a 10 week scan with a hb because i know the rate of mc goes down significantly then but after this i dont think i will ever enjoy pregnancy ever again - i feel sick at the thought of it - and yet all i want to do is be pregnant again... they never show any of this anxiety in the movies!

My uni friend has just announced the birth of her pfb im so happy for her but i didnt expect it to knock me off balance so much..

I lost after seeing a hb in mc 3 so I don't even really trust scans anymore.

Everytime I feel - ahem - a bit "damp" I rush to the loo in a panic convinced I'm bleeding.

I spoke to my Mum last night, they'd been to cinema and went to John Lewis afterwards and my Mum said "I finally felt brave enough to go in the baby section in John Lewis"

Breaks my heart hearing her talk like that. She said before she couldn't even go near it because it upset her that much (this would be their first grandchild).

And whilst I feel like that - hell I'm still not brave enough- it upsets me so much hearing how my mc's have affected other people.

My midwife was quite pussy with me during my booking in appointment as I had no interest in talking about birthing options or making 17 week appointments. They just don't get it.

*pissy

Good luck for your scan mrsC

barking glad af turned up and you have lots of things planned in the evenings, so hopefully this week will go quickly. How have you been at work today?

Also thinking of kazz, noodle and patience

I hate how mc takes away the joy of trying to get pregnant,being pregnant and all of it in between. I'm sure if I ever get past 12 weeks I'll be an absolute nervous wreck all the time. I hate how it makes makes us panicky and anxious and all of the above.

I have to go to the midwife unit tomorrow for my TORCH bloods and then go push my GP for blood tests.

I know that you've all had to go through it, and worse, and I don't want to moan, but I wish I could just fast forward through it all.
I just have the fear now that I'm never going to make it. And that feels shit

barking can you please tell me more about the tea?

And Brummie you are at least part of an ante natal group and, I assume, having normal pregnancy conversations. That's real progress to my mind and much healthier than the negative cycles my head whirrs round constantly. I have promised myself that if I can have a good 20 week scan I will join an ante natal group and post on it!

monten don't apologise for hogging the thread, it is exactly what it's for. Hope DH looked after you last night. Ignore the stupid receptionist at epu who clearly hadn't been through anything like this and therefore doesn't understand. Hopefully you'll get to speak to a consultant or someone who can help.

I dropped it off. The nurse was one of those big maternal types, very sweet but a bit dim (I had to help her spell karyotype ). There was quite a farcical debate between her and the consultant about where the products needed sent - the consultant won, apparently half needs to go to histology and half needs to go to another hospital for karyotyping. The nurse came back in with it in two bottles and then proceeded to tell me how bad she felt for cutting it in half . I'm actually quite amused by the whole experience.

To be honest Sebs I've not spent that much time on ante natal thread recently.

Not sure why. Lots of ladies in different places to me. Plus as my due date is 1st Feb I feel quite far ahead of a lot of people

But I'm grateful to be on a thread, although feeling a bit " low and teary" today. I didn't make it to work today as struggling with exhaustion and feeling horrendously sick. Then I feel guilty for struggling when other ladies really are struggling