Please or to access all these features

Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Recurrent Miscarriage Support Thread 25 - tests, treatment and trying again

999 replies

Marchgirl · 07/06/2015 19:08

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread here

OP posts:
Thread gallery
8
Justonemoretime · 15/06/2015 13:02

Peqpit, sorry for your losses. Re surgical management, its not so much the pain from the op, more the effects of the general anaesthetic that you need to recover from. That takes about 48 hours in my experience. Look after yourself. Work will have to manage. x

ThePopAndCry · 15/06/2015 13:11

A quick question on the supplements thing... brummie am I right in thinking you were taking larginine as well? Are you still on it or did you stop with the bfp?

Marchgirl · 15/06/2015 13:18

Welcome peqpit, and sorry you've been through such a difficult couple of years Sad. I've not has a d&c/erpc, but I really think you should give yourself a bit more time if you can, as the GA will probably make you very tired and really just to give yourself time to recover emotionally as well as physically. Do you think you could take the rest of the week off? It's only two more days and your head isn't going to be in it anyway after what you've just been through.

Thanks for all the kind words everyone. I'm at work but getting nothing done. The office was empty most of the morning so that was lucky. Going to try to think of it as just another cycle (even though it wasn't) At least this time all my tests are out of the way so there's no reason to wait. Just emailed the prof so will see what he says. wadsy, just going through the stats and noticed a lot of your losses were early (hope I've got that right). Did they give you any reason for why you lost them so early?

OP posts:
Brummiegirl15 · 15/06/2015 13:20

Hi Pop yes I took l'arginine as it encourages pelvic blood flow but I stopped with BFP. My acupuncturist told me to take it and it's an ingredient in the pregnacare pre conception tablets

Sebs noooo!!!! Keeping everything crossed that it's not bad news. Gutted for you and March today Sad

Peqpit welcome to our little gang. I am so sorry you find yourself here - it's truly shit.

I've had 3 mc's and have no children yet. I'm now pregnant for the 4th time after taking progesterone and clexane injections and I admit I'm bricking it. There is lots of advice, support and general chit chat (usually about shite telly) on here so pull up a chair and get comfy

I've also had surgical twice and it was absolutely the best decision I've made. There is no way I'd do medical. If god forbid it happened again, I'd choose surgical, no doubt. It's very quick, you open your eyes and it's over. No pain, minimal bleeding but as Just said it's the general anaesthetic you have to get over.

MrsD good luck for today!!!

Am seeing Mr Watts this afternoon so I will be quizzing him about what happens now. Saw my GP this morning and she's happy keep prescribing the clexane / cyclogest etc but needs guidance from Mr Watts on how long.

She also informed me I'd be consultant led due to my age Hmm

bootles · 15/06/2015 13:22

march I have previously cried over my boss too, and it's a normal reaction to a sad situation. Chuck that thought in the fuck it bucket. I hope you have gone home to rest and gather your thoughts a bit. Please keep talking to us, especially if you have a bad progesterone come down (which you might not).

Oh no sebs you don't need that spotting..any news yet on the hcg? There may still be hope. Keep talking to us too..

peqpit welcome and so sorry for your losses. You must be feeling very raw having your third diagnosed just morning. I have had natural/medical/erpc's....erpc's are fine. Personally I have always felt physically ok after them, but mentally I would say if you can take a bit more time off work it's a good idea. Put yourself first - it's a hard enough road as it is.

mrsd wow this afternoon...huge hand hold, deep breaths, all the signs are very encouraging indeed and I look forward to your update.

Sunandrainbow · 15/06/2015 13:22

Hi peqpit - so sorry to hear what you are going through. I would agree that's it's really the effect of the general anaesthetic that mean you are likely to need a day or two afterwards to recover. The blurb from the hospital says you can't drive for 48 hours afterwards (in case you drive into work) and shouldn't make any important decisions etc for that time too. I also found I was pretty tired for a couple of days. x

bootles · 15/06/2015 13:24

Cross post march hope the end of the work day comes soon.

OneStep2015 · 15/06/2015 13:24

Hi Peqpit so sorry to hear what you are going through. I can't comment on D&C or medical management. All my mc I have managed naturally, all thoroughly exhausting! I hope everything goes ok for you.

Flen I read somewhere that an Irish university did a study of MC and GP's records and found that a huge percentage of women also suffered from IBS. After my 3rd mc my doctor diagnosed IBS, my body was all over the place, took a couple of weeks to settle down. I really have to watch what I eat now. I'm 5ft 4in and have put on 2 stone. Currently 11stone. Think I'm going to cut out eating bread for a while, but I loooove bread!!

Justonemoretime · 15/06/2015 13:30

Onestep, that's interesting. I've had IBS for 10+ years....

Floweroct · 15/06/2015 13:40

sebs sorry about the bleeding, hoping the hcg results give you some clarity.

mrsd fingers crossed for your scan
peqpit sorry to see you here, as others have said you may feel a bit groggy after the ga for a couple of days so it may be better to see if you can have a bit more time off

inamay I don't know if you've contacted lwc yet but tomorrow's support group isn't going ahead as they didn't have enough interest but they are offering a free nurse consultation.

TomCat81 · 15/06/2015 13:41

So sorry for those of you with bad news today. This is really shite. March I am totally with you on crying on the boss ... mine is used to it now. And I love the expression 'chuck it in the fuck it bucket' bootles. I'll have to remember that one! Be kind to yourself and leave work early if you can / take some time off this week.
Well, the pg colleague is still stuffing her face and looking peaky (and the wristband has switched sides today). I am obsessed, but quite proud that I've managed to get some work done this morning, which is more than I managed on Friday. Also spent 20 mins on phone to my Employee Assistance Programme this morning, and they've said I can have six sessions of counselling, and they should be able to arrange it within a few days. So glad I did it now, so thanks to Brummie (think it was you) for suggesting it.
I am useless at keeping on top of these things (especially as a newbie) but I've read all of your posts in the last few days and think you're a really inspiring bunch. Flowers to all.

SashaKerr · 15/06/2015 13:48

This reply has been deleted

Message withdrawn at poster's request.

tannyLoo · 15/06/2015 14:09

March lovely, I'm so sorry this is looking like number 5. It is total shitbuckets. I hope you've gone home and get to talk to Prof B. Biggest hugs.

Sebs honey, literally crossing everything that you're not out, but we're all here for you whatever the results are. Squeezing you hand.

Marchgirl · 15/06/2015 14:29

IBS thing is interesting. I'm another one who has it. Although you could probably also have a theory about teachers being most at risk given how many there are on here, so it's hard to know what is linked and what isn't.

OP posts:
OneStep2015 · 15/06/2015 14:31

Yes if you google IBS and recurrent miscarriage... First two articles are from the Daily Mail, yes I know DM! But one DM article dated March 2012 states that the research examined info from GP records of 100,000 British women who became pregnant between Jan 1990 and Dec 2008, more than 26,000 had suffered from IBS. The researchers found that 6,500, 6%, of the women suffered a miscarriage which is within the normal range.... But when they looked at the women who also had IBS, the proportion who lost their babies rose to 7.5% which is considered significant.

The risk increased further - up to 30%, if the women also had pre-existing problems with depression and anxiety. IBS is linked with chronic fatigue syndrome and fibromyalgia.

Study was by a team from University Cork in Ireland and the University of Manchester. One of the author's Dr Ali Khashan, from the Dept of Obstetrics and Gynaecology at University College Cork, said: 'we think this will open the eyes of clinicians and GP's to the possibility women who have IBS should be cared for in a certain way if pregnant.'

www.dailymail.co.uk/health/article-2119880/Bowel-condition-increase-risk-miscarriage.html

In my case, I really feel there is a link between my diet, stress, IBS and the miscarriages. My mother suffers with her nerves and bad stomachs, her sister is caeliac. I've suffered from panic attacks on and off since I was 17, I've been through a divorce, now happily married. I've always been an anxious person and given myself a really really hard time. I'm a freelance graphic designer so I can pretty much chose when and who I work for, so now I'm trying to cut out the stressful, deadline driven work and opt for a slower pace of life, outside of crazy London and try and help myself. Scared to try again now!

sebsmummy1 · 15/06/2015 14:33

No news yet. I have no idea if they will come back today. Normally blood tests take days to get the result. I am feeling ok, bit tight of stomach but I'm an old hand at this now so if it's ending in just glad it's sooner rather than later.

Holding your hand for this afternoon MrsD. Praying for fantastic news xxxx

OneStep2015 · 15/06/2015 14:41

Also thought I'd mention I did a 'Geneva Genetics' saliva test two cycles ago, just before I went to Coventry, thought we'd give it a try. It involves spitting in to a tiny tube on certain days of your cycle, freezing then and once all are completed throughout that cycle, sending them off via courier in a special bag supplied for analysis. The results were interesting. They showed my Progesterone was as flat as a pancake all month, spiked very slightly two days before I ovulated. That I was adrenally fatigued and that was no doubt why my Progesterone was flat too. My cortisol total was too low. Melatonin too high etc etc.

I briefly discussed and showed my results to Professor Quenby (who didn't immediately right them off as my doctor did!) and she did agree that there was something in the results.

Anyway enough of my waffle. Just thought I'd put it out there with you all.

bythesea82 · 15/06/2015 14:51

twilight hope you have a lovely time in Bruges, it's such a pretty city. Yes, the fear is much much reduced from the first trimester. I guess for me once I got past 11 weeks and my MC point, it started to get better. As you say, I think RMC does make you view pregnancy differently with much more awareness of potential problems but I hope everyone on here gets to still have small moments of enjoyment of it in time. We sure as hell all deserve to stumble upon an easy pregnancy at some stage!!

peqpit I am so sorry to hear what you are going through again, I hope the D&C is ok. I haven't had one, all my 3 MC have been natural but I am sure someone on here will advise. As you'll hear on here, there are a few avenues to explore even if bloods tests were clear. Sorry to ask but have you considered asking for the tissue from this MC to be testing to check for chomosomal problems? My 3rd was tested and found to have a chromosomal problem. It was hard to hear but kind of made trying again with no additional treatment an easier option for me as all other tests were clear. Currently nearly 24 weeks pregnant so sometimes even after 3 MC, you can 'get lucky'. For now though, hugs and look after yourself.

cheesy fingers crossed......

March you shouldn't feel bad for crying, anyone would in your position. Hope you are looking after yourself Flowers

I am another IBS sufferer. It's been much better the last few years but I have had bad spells in the past. Some bodies prone to physical reactions to stress?

Sunandrainbow · 15/06/2015 15:10

march - definitely don't feel bad for having a cry at boss. It is all just too much sometimes, and a completely natural reaction. Hope you manage to escape early today - take care of yourself and huge hugs. X

sebsmummy1 · 15/06/2015 15:24

I've just had a phone call from the EPAU. My blood results were 3000 and something on Friday and 12000 and something today. She seemed to think that was good news, I have no idea if it truly is. I did ask if they seemed robust for 5 weeks but I didn't really get a clear answer. Does anyone know?

I am booked in to have a scan on Friday at 10.30am. I suspect it will be too early for a heart beat but I think their main concern is to rule out ectopic though last time it was to confirm a complete miscarriage

Floweroct · 15/06/2015 15:29

sebs those figures look good to me, you'd expect them to double in 48hrs so it's increased by more than that. I think the values themselves look good too! So def think it's good news x

Floweroct · 15/06/2015 15:31

Just to add im no medical expert! But friend had hers done the other day and it was around 3000 which she was told was good and she was just under 5 weeks.

tannyLoo · 15/06/2015 15:35

If I can get the link to work, this table seems to suggest all is good right now... www.babymed.com/is-my-hcg-blood-level-normal# Fingers crossed for continuing good news

Sunandrainbow · 15/06/2015 15:46

sebs - I seem to remember from what I read when I had my hcg bloods done that it's not so much the absolute numbers but the doubling that's important as for the absolute numbers there is a range of levels that are completely normal. So those results look good hun. Got everything crossed for you. x

Lovemylittlebear · 15/06/2015 15:47

Sebs google babymed hcg calculator - I used that in the past. Not this time as no hcgs as kept myself out the EPU until I got a bit further along as had gone private...seems a good tool to look at hcg though - fingers crossed for you.

Thanks by thesea - love the idea of sending the dress to Africa - that's wonderful :) I BOUGHT the dress today ...needed a welcome distraction and I LOVED the dress. Ordered a massive size just in case but can always get it taken in xx