Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

Lovely to hear from you Sasha and hope tomorrow goes super well

Yay wadsy!

Why oh why am I still up...

loopy lovely, I am so sorry. Definitely think you need to get an appointment with Mr Watts and ask plenty of questions. Look after yourself x

wadsy that's brilliant! Good to hear.

sally great news for you too!

Jady Thank you - yes those anxieties are only for early pregnancy next time - have a whole load more for if we get beyond that..! But meeting Counsellor again on Friday so will try to work on positive thinking techniques.

BunnyMad Our results appt is this Friday which is probably why anxiety overload as just feels there are too many variables & I'm a control freak! I can argue the case for why no specific cause found or cause found could be a good thing - perhaps I'll jot them down in envelopes & read the relevant one for a pep talk on the way home!

SashaKerr I think the personal training sounds like a really good idea! I need to line something like that up I think...
Feeling pretty all consumed myself - constantly counting in 40 week chunks from where I am now & thinking about age gap/career implications.

I also wondered if anyone else has been on aspirin while TTC & whether they noticed anything different with their periods? TMI warning - but I'm on my first post ERPC - WTF cycle took forever but now I'm day 12 & still fresh red blood?! Seems mad. Thought just crossed my mind could be aspirin side effect in which case worried about what it's doing to my endometrium! Or thinking more positively what a glorious endometrium reset (!)

Congratulations to all the posters with good news too - I've lost track of you all!

Wadsy & Sally glad to hear it was great news x

Morning all, a friend just sent me this article which has some interesting info in it, a fertility tips type thing...

www.telegraph.co.uk/news/health/11632555/How-to-increase-your-chances-of-getting-pregnant.html

loopy so sorry to hear, hugs to you.

On the EWCM subject I have uncovered these things that supposedly help: evening primrose, green tea, raspberry leaf tea, grapefruit juice, lots of water. Will give it a go this month and see...

AF arrived yesterday. Here we go again...

Sorry af arrived flen, but hoping it will feel like a new start with your adjusted plan. Cheering you on more than ever this month.
Now I'll go and have a read of the article. Thanks.

Yikes. Just read that article. That's about twenty more things I have to worry about!

A friend texted me the other day to say that that a lesley weegan (I'm presuming it was actually lesley regan) was speaking on women's hour on radio 2 about nk cells on Monday. I don't have access to iplayer while I'm away but if anyone listened, let me know

She said it had a good news story in it! Hmm. Maybe I'll just skip it then

Just had a listen. Its Radio 4. The success story was a woman who had heard about nk cells from another woman's hour think Siobhan must have been on a show once. Presenter is thinking she must mean Lesley Regan, hence her name being mentioned. Anyway, this woman had tried iui and then ivf, all ending in mc. Does blood test for nkcells (pays £500 for test to be sent to the states) and has successful pregnancy on prednisilone.

Oh Flen that's rubbish! :-(

Thanks so much Sasha it still doesn't feel real and every day I wake up worrying about something. Next Friday can't come soon enough.

Looked up my due date on NHS due date calculator and sure enough, because of my short cycles, it says I was 5 weeks yesterday so due date approx 2nd Feb. only a few days after the 1 yr anniversary of my first due date.
I'm trying to see something positive in that, in that maybe I wasn't ready, my body wasn't ready and I've come full circle.

It's not doing much to reassure me though. Still got due date number 3 to come yet on 7th August

Flen so sorry AF is here. I think I would pursue some fertility testing, even if only to make you feel you're doing something. My doctor scoffed at me when I had been trying for about 5 months saying I had to waste at least a year but relented when I pointed out I clearly had a dodgy cycle, and they have been much more supportive post mcs. Have you had 2 and 21 day hormone testing? If AF has just arrived you might be able to get the first one sorted today? And sod's law says this'll be your bfp month if so - it worked for me!

sasha welcome back but so sorry you're feeling low. Really good news about the appointments - I hope you start to feel better once under some proper RMC care.

No news here. Had 2 contractions in the night but nothing since. Another sweep at lunchtime then induction tomorrow. Getting increasingly nervous. One of the babies from the May antenatal thread is extremely poorly and is not expected to survive and one from the June thread was stillborn . Just so sad and an awful reminder that there are still a number of hurdles to cross.

longest I haven't had the 2 and 21 testing, did you arrange that privately or through GP?

Through gp. I basically rang her up and bossily said I needed it because of RMCs and could come in as soon as AF arrived the next day. She admitted to not knowing much about RMC but agreed to do it and I could collect the form from reception. But AF didn't arrive .

Trying to keep up, sorry to those I miss:

barking I think you asked about Bounty packs and Emma's diary - they are free material they give you at booking in appointments - lots of information about pg/birth, freebies of various stuff as a marketing ploy and Emmas Diary is a week by week thing of a presumably fictional pg person, with information about what happens in each week. I hope you get them one day, though you're not missing much in terms of the packs!

minnie so sorry to hear about the stomach bug - that must be so frustrating. You may have done enough already, and maybe if you were able to dtd tonight it would still be in time. Wishing you well soon.

sasha good luck with RMC appointment, and great news on the NHS referral to Mr S!

flen, sorry about af. Hoping this month is the one, and you are feeling more comfortable not taking progesterone until bfp.

morgan I know just what you mean - I run through what I have had (anembryonic, tfmr, mmc, hb seen, no hb seen, etc etc) and work out what is yet to come. Sorry you are feeling so anxious. I hope your results bring some sort of answer. In terms of age gap, that is something that used to bother me, but I have totally let go of now. I hope you get your sticky one before having to worry about it too much longer. We have had many discussions on here about how RMC means living life in limbo, in terms of career etc. It all gets a bit much sometimes. Thinking of you for friday. Also re your heavy bleed in the WTF cycle, maybe the aspirin is having an effect, but for one of my mc's my WTF cycle was a huge bleed, nearly as bad as the actual mc - sometimes I wonder if it is the body just trying to sort itselg out again.

To those who are on high doses of folic acid, what is the reason? No-one has ever suggested I should do so, but I am always tempted to take a few more.

Lesley Regan is not a fan of the NK cells theory, I had quite an uncomfortable conversation with her about it. Will try and listen on the podcast though.

longest what sad stories. I think it is entirely natural to be nervous at this point, as you probably were with DD 1 too. What has happened in between is adding to your anxiety I know, but you are so close. Induction tomorrow if you don't go into labour tonight! Just hang in there. Hoping the sweep gets things going for you. Thinking of you x

The anxiety is really getting to me now. On pred and progesterone it's impossible to follow symptoms as they mask and give symptoms anyway. I was feeling decidely ropey though for a week, and not so bad today. With the last one, on the same meds, I had barely any symptoms, and it still got to 9 weeks. So now I am worrying that my hcg must be too high and it must have a chormosomal problem, for me to be having symptoms on the pred. And worrying that I feel ok today.

Yesterday I fell apart when DS cried being dropped off at pre-school - he only goes 2 sessions a week, and had got to a point of being ok. Out of sight of him I cried all over the manager. I am very soft hearted when it comes to DS and hate leaving him at the best of times. Then I cried because I lost his hairbrush (he has big hair, it is a kind of disasater but doesn't warrant tears). Today I feel more stable, so am worrying about that....and so it goes on.

Sorry I know I shouldn't moan when others are going through much worse at the moment, I just had to rant somewhere, and here is the only place.

bootles fwiw you sound like an entirely normal, hormonally messy, pregnant lady. Every pregnancy I have had has been different. I know it's so hard to think all will be well - it's a nightmare. Do you have any distraction techniques?

You are much kinder hearted than me re your ds! Dd starts school in September. Well, she is supposed to but actually it doesn't kick off at all till late Sept and not full time until mid October. Cue panic from me about what on earth we are going to do with ourselves once all her friends have started their (different) schools and holiday club is over for the Summer! Have signed her up for gym, swimming, drama and ballet and now thinking when school does start the poor thing is going to be exhausted.

Oh you also asked about folic acid. The consultant just said to me that it can help prevent miscarriage. I didn't get 5mg prescribed though - he just told me to take 3 tablets.

Thank you for the kind words. I also feel guilty complaining. xx

Bootles 5mg folic acid is apparently standard for women with bmi over 35. I'm guessing it's to do with absorption. I've been taking 800mcg anyway, but nowhere near enough by the sounds. Wish I'd known sooner.

I think it was just the presenter just assuming the caller was referring to Lesley, but it was prof quenby. Had a look and Prof Quenby's been on the show a couple of times, but unable to play back the program from Sep 2013 when she talks about unk cells. Sort it out BBC!

Listened to the 2011 show Prof Quenby was on and she doesn't talk about uNK cells but standard miscarriage care and wanting it to be the norm to carry out some lowcost simple tests after just 1 mc. Says she's thinking of making a case for this. Would love to know what progress she's made with that, precisely what those tests are or if she's just decided to focus on uNK cells. Love how passionate she is on the subject.

Received my bounty pack yesterday, basically a bunch of leaflets. Turns out DP used to work on all the data for those things when it was marketing for cow & gate. No sign of Emma's diary though.

Flen good luck for this month. New lining, new cycle, new egg, new hope.

Good luck Longest, hoping your birth goes as smoothly as possible. Looking forward to seeing pics of Shortest on the other thread soon x

Sorry to hear the witch got you Flen. This cycle is a fresh start and hopefully it will be a bfp for you

Hope your little one gets a move on Longest. I think pregnancy can feel like an endless time of worry but I imagine it's a whole new set of worry when the baby gets here!

Brummie only just over a week until your scan now. Keep fingers firmly crossed for you.

Waving hello to everyone! X

flen I know hugs don't fix everything but I'm sending an electronic one anyway because AF sucks and this whole ttc business is so soul destroying sometimes. Glad you have a plan and I'd go with longest's wise suggestion with the hormone testing (and being bossy about it)

Great scan news sally and wadsy

Sasha hope your rmc appt goes well. Let us know how it goes.

brummie just have to keep taking one day at a time my lovely. I'm too scared to use those calculators because obviously it's going to cause a mc if I do

longest you and your body have got this far. It's natural to feel anxious and nervous. Rmc certainly makes all eventualities seem more possible. Do you have a time to go in tomorrow or will they call you?

bootles please don't apologise for getting things off your chest. It's what this thread and we are for. Your post helps me feel not alone in how I'm feeling. I am failing to function and falling to pieces at the slightest things especially involving ds (a lost welly and sun hat has set me off today). 11+4 today and mc at 11+5 last time.

Going to have a listen to that podcast in a bit. I'm hoping I can pull myself together in a couple of days and that normalish service will resume shortly. Maybe one that involves going to work and not vomiting because of the smell of everything including my family!

jady the sept '13 show can be found here and Prof Q starts just after 10 minutes in... Talks about her research briefly...

www.bbc.co.uk/programmes/b039rqpj#auto