Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

twilight

Twinkle, twinkle little star
Three/four/five babies lost is where we are
You wish, and take a baby home
It's not like that for everyone
so please retract, to make it right
your patronising heap of shite.

Go on, send it, I dare you!

Oh Tins, that made me weep a little bit with laughter. I'm on the wine tonight so it's not beyond the realms of possibility that I'll drunkenly post it to Facebook.

Sorry, didn't get further than Tins' post.

Snoopy - yes, that one did cross my mind too

Tiny - I like that idea. I think people do find positive stories helpful, but I know what you mean about it needing to be 'controllable'.

Yay Just that's amazing!!!!!

I would love to see pics of Scott and Alice but completely understand others may not. I actually find scan pictures a struggle, and actually not new baby pics.

So I'm happy to peek on a side thread or pm Just and Tiny - whatever is best xx

Holiday booked for Mencora for end of June. ???? Can't wait, although again the credit card has taken another battering after another MC!

Can I join you ladies baking tin sent me! My history is 7 years ttc, 4 ivfs (last 2 with donor) got bfp with twins last month with clexane Gestone and Pred but mmc last week at 8.5wk, one stopped at 4-5 and one was bang on size so had just happened, had surgical management fri, I have 2 Frosties at my clinic (Care) but I'm after getting some tests done first as I can't afford to waste them, had a referral to St Mary's where I had my first ivfs and all my gynae ops. Has anyone had the recurrent MC tests there? I'm looking at doing hidden C at Serum and Chicagos through Care but wondering when SMH will tests for?

Brummie - I'm a CB digi repeated tester in the first 6 weeks or so too. Found it helpful to know the blighted ovum wasn't going to make it in the privacy of home (went back down to 2-3 after week at 3+) rather than EPU & helped me to think positively in the most recent pregnancy...

Girlie - Sorry to hear your sad news too but pleased to hear they're taking care of you. I hope you get results from the karyotyping - though they can be sad either way...

Tiny - I'm another one happy to see baby pics - but rage at scan pics... Perhaps a side thread would be the best option to avoid bombing people though?

I also like bakingtins' poem for twilight!

Someone I told after the last miscarriage asked me to tell them as soon as I get pregnant next time (!) so they can't start praying. Nice idea - but I've lost 3 babies because I didn't pray or want them enough?! Hmmmm...

Girlie** just read your news - i am really sorry. I know you had prepared yourself for this, but it doesnt make any difference, it's horrid horrid horrid. Glad you are being looked after and as others have said, hope your recovery is fast. We are here for you xxx

just brilliant news that you're all home. The next exciting phase begins!

I agree with brummie that baby pics don't really bother me (unless very close friends for some reason) but scan pics do. Can see how it would be a struggle at certain points though. Would love to see a pic of the thread babies either here or on another thread xx

snoopy sorry your skin is playing up alongside all the other shit.

girlie yay for booking the holiday! something positive to look forward to. Xx

Love the rhyme tins

welcome lauren so sorry about your losses. It's a horrible club to find yourself in but this thread is a wonderful place to get things off your chest and find support.

Afm been invited to a play date on Sunday with two friends who are pg (one just finished for mat leave) and another who I'm worried is going to announce her pg as i know she's trying. Last time we met up the whole conversation was about Mat leave girl's baby so I can only imagine it will be even worse this time. I really don't want to go but ds misses out if I don't go. May not be able to stop myself talking about MC if they do which I know would be hugely inappropriate!

girlie I'm so sorry. Even when you know it's coming, it's just the pits of the pits. Very glad that they zoomed you in first, and agreed to karyotyping. I relate to your feeling of relief, I think that's entirely normal in the long drawn out MC's. Book yourself a damn good holiday, and I hope you get the time off/rest/support that you need xx

sun that's great! Wonderful news. Hope the next two weeks go quick.

just bloody brilliant news. Am so happy for you! Would to see a picture. Maybe tiny has a good point about a side thread - love to see Alice too. Instead of having to pm everyone, you could just post once?

march with the pred: last time I had a very nervous gp who reluctantly prescribed me a week, to come back to ante=natal clinic a week later (ie. pass the buck). The gp the next week didn't bat an eyelid, nor did the gp this week. I have also had it topped up by epu before. They vary a lot, maybe try another Gp. If they struggle with the concept of Coventry, I say, 'self funded NHS clinic', which helps. As a last resort I think Prof B would e-mail you a private prescription - you could get a week whilst finding a gp to prescribe it further.

twilight hope Coventry all goes according to plan and things start to move forwards (no worries about name muddles, I do the same!)

cloud hand holding x

minnie I don't think it would be inappropriate to talk about miscarriage if these girls are your friends. I've had people give me all sorts of unsolicited personal details about their successful pregnancies (including one woman who told me her clitoris had to be stitched back together after child birth ) I understand what you mean though, I only told a handful of people about my second mc and only one person that I didn't have to inform about this third one.

twilight a bin of bounty packs of miscarriages?
The bounty pack theme could continue on many levels..

baking you made me smile

Minnie no shame in bringing it up and helping them realise their conversation isn't easy for everyone.

snoopy sorry you are feeling so rubbish, the skin can't be helping. Hope it improves soon.

Thanks all again for responses about the meds, much appreciated.

Right if I go to bed now I am at least getting earlier...

And welcome Lauren, sorry for your losses.

Minnie fuck that. Your mc's are important and part of you. It's appropriate xx

Sun** - glad scan was positive!
Cloud** - you are really in my thoughts just now, am really holding your hand for tomorrow.
Snoopy**, god life is such a heartless fucking bitch! I get awful excema on my hands. It's contact dermatitis really and it's nickle and cobolt metals that causes it. Hence - my hands are in a terrible state mainly due to my mobile phone being a sony, and their covers don't cover the buttons and needing the support of this thread means i'm never off my bloody phone! Oh rmc, you are a trully generous mother#####r!

freckle I had never considered phones when it comes to metal allergies. You need to get yourself one of those gold plated ones the millionaires have haha

Snoopy** now that woyld be WONDERFUL!
Twilight** a headfuck of miscarriges,
a minefield of miscarriges, a grief of miscarriges, a snatched breath of midcarriges...

Oh, so obvious...a mother###### of miscarriges! Night night! X

Side thread created...

www.mumsnet.com/Talk/miscarriage/2390560-Recurrent-Miscarriage-Success-Photo-thread-Baby-photos-here?msgid=54665788#54665788

Maybe the link can be added to the stats post on new threads

I'll post some pictures of Bertie on there later. That's a really nice idea, I'm glad we can celebrate here too...

Cloud good luck today. Crossing digits and limbs. x

Girlie so sorry for how things went yesterday, hope the holiday gives you a break to heal.

Sun so pleased your scan went well.

Just hope your first night home as a family went well. You don't need a team of nurses etc, you and your DH will do just fine. The first 6 weeks are tough, but then they tend to have a routine and bigger tummies so last longer between feeds, after the battles you went through to get to this stage I'm sure you'll sail through the next few weeks!

So, I'm a bit of a POAS addict. Stupidly did a test yesterday at 9 dpo, nothing there but with a torch a possible shadow, just POAS today so 10dpo and there is a very faint BFP line , no torch required
So as per every other time, I was right that I could feel it happening, and an egg is trying to implant, and in the last 24 hours at least the hcg is increasing and so for today at least that makes me 3+3 (doctors will initially insist I'm way further on though as my lmp started 19th April) But am now so worried that it will either stop growing and turn into a chemical pregnancy or that it will all be over within the next 3 weeks like the last 4 bfps that ended in mc. Have one FRER left and one clearblue digital. Am guessing my hcg won't be high enough by Monday to use the clearblue then at 12dpo if I'm only getting a very faint result on frer at 10dpo? (As I don't think I will be able to stop myself using the frer tomorrow...)

Welcome lauren, so sorry you find yourself here but hope we can provide some support x

Loving the rhyme baking, and all the collective nouns!

brummie, i also think it's reasonable to keep testing if it gives you some comfort. I would try not to do it every day but i think it's perfectly ok.

minnie, I don't think it's inappropriate at all to talk about it (although I understand why it feels that way). I think we all do ourselves a disservice when we feel we have to keep quiet about something that's a very important part of what's going on in our lives. Society makes us think we can't talk about it, and I think for me it probably contributes to the feeling that I have nothing interesting/worthwhile to add to any conversation with a non mc sufferer, which definitely makes me feel a bit worthless at the moment. If one of your friends had something like a new job (which basically had nothing to do with anyone but them), you would still expect to speak about that for a while, so why should mc be any different?

twilight, you're not going to like what I'm about to say but have you considered putting Coventry off for another month? I'm only saying that because of the benefit of the scratch, which only lasts about 3 months. I can't work out where you are in your enforced break but might be best to do it at the end of that so you get the full benefit. (maybe you're at the end, in which case ignore my rambling!) I know it might not be as simple as this. Maybe you just need to feel like you're doing something constructive in this frustrating time. Sorry if I've spoken out of turn but just thought I should mention about the scratch.

snoopy, prof b has prescribed me (for high uNK)
20mg pred per day from bfp to 12 wks (tapering off in last 2 weeks)
200mg progesterone twice daily from 7dpo to 12 wks
Heparin daily from location scan i think to 12 wks but can't quite remember

Consultant had already prescribed prog and agreed to the Heparin (after a bit of a fight), but refused the pred.

Does anyone know how private prescriptions work? Do i pay prof b, or the chemist, or both and how much are they? Will my gp not be a bit pissed off with me going against her wishes?

Sorry for the epic post!