Recurrent Miscarriage Support Thread 23 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Oh cloud that's great news so relieved for you!

Woohoo cloud I'm so so so happy for you! Brilliant news

confused sorry you're in a crap place again. Know how you feel about spotting. Fingers crossed this time is different. And at the doctor!

So pleased for you Cloud. Been holding my breath this morning.

Been feeling icky last few mornings and little bit sick today. Really hope it's a good sign but equally now from previous mcs that I still get symptoms even if nothing is happening.

Hello again Confused. Sorry to see you here again. Hopefully it's just implantation spotting x

cloud hurray!!! That is fantastic news.

confused I am so sorry for what you're going through. I hope you can take some hope from cloud's news as she has had a few episodes of spotting now. It doesn't have to be bad news. How awful about the dr though. Don't listen. We have plenty of success stories on here. Have you heard about Coventry unk cell testing?

That's great news Cloud!! X

Frecklefire thank you and yep i am really hoping the same. No what's in Coventry? Not been tested for NKS X

They test for uterine nk cells via something called the scratch. If they're elevated they prescribe steroids alongside the heparin and progesterone they give to all rmc patients. It costs 360 pounds for the consultation but that includes everything (it's called nhs self funded) and you can self refer.

Everything crossed you don't need it but just to let you know you don't have to take your dr's nonchalance at face value.

Sorry, am not feeling very on the ball today. Have an awful cold and it's sapped what little energy I had left. Today will be one to be endured I think.

Sorry you think it might be happening again confused, I really hope it isn't this and it turns out to be nothing. Must be awful waiting for the scan on wed, I hope it is positive for you. X

cloud yeeesssss!! So pleased for you, that's amazibg news!! x

cloud what a huge relief! I am so so so pleased for you! Xx

confused i am so sorry for your losses. What a horrible time you have had. Really hope this one is not what you think. What an helpful Dr - I have had similar comments and it enrages me. I would also consider Coventry - quite a few of us on here have been to their self funded implantation clinic, which costs 360 pounds, one off payment, and they look at uterine natural killer cells. They are great there and really listen. I see you sadly had a later loss but I wouldn't disregard an implantation clinic on that basis. They are doing lots of research there. Hugs to you x

cloud that is wonderful! I may have shed a little tear

confused I am sorry you feel it's going wrong again. I think the NHS do us a massive disservice when they tell us we are unlucky rather than being honest and saying their tests are pretty limited and much is still unknown about recurrent miscarriage. You can only make informed decisions about things like the Response trial or the Coventry implantation clinic if you are told they are out there. I had my daughter last year, age 39, on the Coventry protocol for high NK cells after 4 losses and an NHS 'unlucky'. I hope your current pregnancy progresses and you have no need of other options, but if your fears are well founded and you need to try something different lots of us have found answers and the hope to try again in places off the NHS radar.

Cross post with longest
I mean UNhelpful Dr. At work and also not on the ball. Elevated uNK cells are an indication that the uterus lining is having an inflammatory response, which basically stops it working properly. Whether something like that could be linked to your later loss I don't think they could say - I had a tfmr at 13 wks, (and several earlier losses) with no known cause of the issues the baby had - Coventry couldn't say if NK cells may have been factor. I was later found to have high uNK cells, so who knows.

longest hope the day passes ok
girlie headf**k land is the worst. Sending hugs.
cloud have to say it again - so pleased!

Cloud, wonderful news! Such a good milestone!

Confu3ed, sorry you're spotting and concerned again. I spotted from weeks with 6-8 my recent pg (and bled for the 3rd tri) and baby Scott is here and doing well (6 weeks early), achieved, I believe, on the Coventry protocol.

I'm being checked by the mw today as I was feeling a bit headachy/blocked nose last night. I'm probably run down, but I'd never forgive myself if I gave Scott a cold. Once I've been seen, I hope to be able to go and visit him. Dh is in with him now, enjoying a cuddle. I'm a bit jealous but better safe than sorry. Feeling a bit sad today, as I miss being (massively, uncomfortably) pg. I expect its because I don't have snuggles to replace it with. Hopefully soon.

Girlie, feeling sick is an encouraging sign. Fx it means your twins (!) are coming along nicely.

Ive

Cloud, that is fucking fantastic news! Big beaming smile here!

Cloud I've just shed a little tear for you. I'm so so pleased that is wonderful news!!!

Confused so so sorry you are here again. I'm another one who is a pom pom waver for Coventry. Can definitely recommend it.

Am symptom spotting like crazy!!! Am getting vivid dreams - which I've had the last 3 times but it still could be nothing. Get moments of being queasy plus I'm so tired. Had the odd cramp but that's it.

Scared my symptom spotting is all in my head and I'm setting myself up for disappointment

There is a famous medical saying "when you hear hoofbeats, think horses, not Zebras"

It basically means it usually is the most obvious simplest thing rather than something exotic!

So my sicky feeling could mean I'm hungry. Vivid dreams could mean I slept soundly

I hate waiting!!!!!

Thank you ladies for your kind words and advice, it really helps speaking to people who understand. The Coventry thing is definitely something I will look into as the costs are minimal compared to what I had been quoted in London for NKS testing and treatment.
Justonemoretime so pleased it worked out for you and encouraging to hear that spotting doesn't always mean the worst.

I am on progesterone and low dose aspirin which is the first time I have been prescribed that but kind of confused as to whether the symptoms I have are due to the progesterone or the pregnancy? X

brummie everything crossed. Will you be able to resist packing a frer in your suitcase?

just I hope you're not ill and can go for cuddles. You're at the notorious point for a hormone crash even without the stress of being separated. Hugs.

So I'm going to Coventry tomorrow but now I'm starting to think I might be wasting their time as I'm not 100% sure I want to do the prog from as early as they say. I'm most definitely not hyperfertile so I'm concerned doing that will stop me ever getting pregnant again. Has anyone just used prog from BFP and been successful?
I would like the added fertility of the scratch though (and the experience of actually having someone listen to me!) so I'm happy to go for that. Am I being stupid worrying about the prog do you think?!

just hugs for the cold and the hormone crash-longest is so right about it just being round about now that they hit. xx

girlie hoping the next few days go fast and the little bean(s) are getting comfy in there.

brummie sometimes they will be zebras! Fingers crossed for you xx

minnie if you discuss your concerns they may decide on prog from bfp, or they may put your mind at ease by explaining their reasoning. I'm sure it will be a positive experience for you and you won't regret going.

confusion apologies as this is a personal question, but regarding the progesterone, from what the other ladies have said, it can irritate the cervix if used at that 'entrance' which may then cause spotting. So maybe this is a possibility?

Fingers crossed brummie! I have packed 2 tests as I'm away until 16dpo. I noticed yesterday our booking reference ended in BFP! Hoping its a sign!

I decided to forgo the front door this morning and went for the back as it went so smoothly (excuse the pun) last night! Definately easiest way for me.

minnie I haven't been to coventry but I think a lack of progesterone can stop implantation as well as making the lining less selective. Prof regan attributes it to a range of fertility and mc issues. I didn't take it till 8 weeks because my original consultant wouldn't prescribe it till the promis results were out but I did take agnus castus to try and give my progesterone a boost (I am not hyperfertile either) so I would be keen to take it but why not chat through your concerns tomorrow? Good luck!

Longest I have been debating that exact thought... That I could pick up a cheapie boots one at the airport and do it whilst away - because well you never know etc etc and I don't want to waste a frer

But I don't want to do it without DP being around if that makes sense...

I could do it Thursday night when I come home but then I'm only 11 dpo so too early. Friday morning I'm scared it will be a bfn as it's mc 1 anniversary.

Over thinking much????? I suspect I will probably do it Friday morning tbh and just deal with it - even though I really want to try and stretch it out to Saturday I clearly won't do that

Just I really feel for you, you need snuggles - it will come though and bloody hell it will be so worth it xx

Ooh cheesy I hope so!

Cheesy x post - I defo agree back door is so easy and no mess at all

What day are planning to test? How long are you going to hold on for?????

I can't count Thursday will be 12 dpo, Friday 13 and Saturday 14

I suppose Thursday is not too early. It's day 21 of my cycle and I've had a positive before so I could do it Thursday night when I get home

Thinking too much about this testing malarkey

brummie, maybe arm yourself with tests in your suitcase and then you wont be frustrated at not having them if you decide to fold? Hope your symptoms are zebras.

cheesy tests in suitcase for you too then.

just hoping you get snuggles very soon. You are being so strong about it all, and I have everything crossed you will have Scott home soon.

minnie discuss progesterone with them - it was described to me as 'driving the lining', to make it as good as it can be in order to get selectivity and receptivity balanced better.

Really not thinking straight here. At work getting nothing done. It seems I am not mad, as the hint of a shadow has turned into a very faint pink line. Previous tests were 10 mlu, last nights and this mornings were 20 mlu, and today the line is v v faint but one a normal person could see. Haven't mentioned to dp, he cant bear my test darkness comparison at this stage. V strong cramping, and been emotional and tired for days but the latter 2 are often normal for me! I cant bear the hope. Have never had a result this late (13dpo) so remain very unsure - but as this is attempt no.6, unsure is to be expected...at the very least.

cloud

bootles whispered congratulations

cloud brilliant news! So glad everything was bang on! Hope you are doing something nice to celebrate the milestone x

bootles oh my goodness fingers crossed you become less unsure in the coming days. Understand not sharing it with dp yet. My dh thinks I'm barmy looking at squinty lines and we have argued over it when I can see something and he thinks it's bollocks x