Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

[Justonemoretime]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

barking I also get really strong flu-like symptoms during implantation and have also read it can be a sign of immune issues. The symptoms start quickly, last for 2 days, then stop. Am just worried I'm going to get a negative when I go to Coventry because then my theory is just rubbish but I think it explains so much. X

Barking** i do know what you mean - i think we almost get used to such grown up misery and repressing the emotions that we can sometimes struggle to give in to the grief. I didn't cry for mc 1, or 2, or 3 - untill i fell out with my friend, and the way i sobbed was about more than friendship, i know that. I suggest a film. 'Steel Magnolias', 'Terms of Endearment' or 'Legends of the Fall' do it for me.

Flen** so glad you found the puddy cat! I love my fur babies like a trully crazy cat lady!!

Minnie**

Pop - sending you love. I can't imagine the pain you've endured, and i hate that such a generous and wise lady has had to go through what you have. I wish i could erase it for you

Pop, thinking of you today. x

pop just wanted to add that I'll be thinking of you today. Hugs.

flen relieved your little kitten is home safe and sound and you are having some lovely cuddles. Hope it's scared her enough not to do it again for a while!

pop, big cuddles from me. Hope you find somewhere beautiful to scatter the ashes and that it gives you some peace to lay your little one to rest.

biscuit, I don't think they'll be checking for hospital appointments on your bank statement so I think you're safe. Good luck with the mortgage.
enlightened everything crossed for you today x
jady, ov can be very elusive for some people. I was surprised that the ic sticks worked for me but never tried cbfm. Hope you manage to pinpoint it.

Hope you're all feeling better freckle. It's horrible to be ill at the same time as looking after kids.

barking, that's really interesting about the immune thing. I know you feel like you should have done Coventry first, but even with a positive result you wouldn't have started steroids until bfp, so try not to beat yourself up. Of course it would be good to know if that is an issue for future pg but you didn't do anything wrong with this one. I agree a weepy film might bring the crying on naturally, or talking to someone new about it? x
mrsd, i would be testing again with a frer. My view is that Expiry dates mean very little, esp so recently out of date. In nov last year I used one my sis gave me that expired in aug 2011 to test if hcg had gone down after mc and it still gave me a positive (correctly). Fingers crossed for you.
Thanks girlie, I've been lurking on that thread so I'm up to date with you all but feel like a bit of a fraud at the mo as I might be leaving the trial if Coventry comes up with raised nk. I'll probably join once I've got the results of I'm going on the response protocol

Also thinking of Pop and her family today

Glad kitty has been found Flen, hopefully he will have learnt not to go so far next time.

Sorry to hear you're struggling with the hormones Barking. I think AF can be quite bad enough without the crash of fertility treatment to boot. Sounds to be me like you need an afternoon in bed with chocolate and a favourite film. Hope you're ok

So I ended up at hospital yesterday as the baby wasn't moving and I was utterly freaked out. Luckily his heartbeat was fine and he has decided to wiggle today. I can't see the worry ever going away!

Ok so same result with a new test. I don't know why I didn't buy a frer but was so busy trying to get in and out of boots without anyone from work spotting me that I just grabbed a test and ran. Might be a faint evaporation line on a cheapie from this morning too. Head fuck.

I wouldn't usually test except for being on the progesterone.

So you have a feint line on three tests? Then I'd say that's probably a result I would say keep taking the progesterone and test again tomorrow. Exciting!

*faint, not feint

pop Thinking of you today xxx

flen So happy that your kitten turned up! I have two, and they are definitely my first babies, I would be heartbroken if anything happened to them.

barking Don't feel bad about feeling bad. You need to grieve. Apart from the weepy films (I love Steel Magnolias!), maybe could you go for a brisk walk or do gardening? To get outside and blow some cobwebs away...

cat The worry never stops, does it?! Glad he's moving about again, let's hope he'll keep at it!

mrs I would keep going and test again tomorrow! How annoying! Can you get a FRER or digital test?

I have my appointment with the consultant tonight, to find out about the MRI results for my fibroid. Fingers crossed he doesn't cancel again...

I have also decided to sign up with Slimming World - I managed to lose 5kg before we went on holiday, but since then, the loss has not only stalled, but the weight has started to creep up again. So need a better plan. I've done WW in the past and got on very well with it, so curious what SW will be like in comparison (probably just the same...).

Aahhh Cat mini kitten is keeping us all on our toes!!!

So my plan until beginning of May when I can TTC again is to nourish my lining! Make it all rich and lovely - despite Mr Watts probably removing all of it in 10 days time...

So, going to carry on with the red raspberry leaf tea, pom juice.
Will take my folic acid as normal but also pregnacare tabs (which are in cupboard) every night as contains vitamin B

Will also continue with l'arginine and also take vitamin e supplement too.

Plus glass of whole milk a night and 2 x eggs a day.

These apparently help the body nourish blood and build cells. At 6mm I really want to try and encourage a better lining.

Got my acupuncture booked for mid May when I think it might be implantation.

So I've got a plan, I've got a goal. Look after my lining so little one can snuggle on down eventually.

Am I mad? I'm really worried it's my lining causing my problems so hoping the scratch, hystereoscopy, acupuncture, progesterone and other stuff will all help.

Makes me feel a bit more in control I guess

Mrs you need to crack open another test methinks!

My nerves can't handle more testing I'll go "insert" this morning's dose and test again tomorrow or Saturday. I've chased my results and asked poor Kerri what I should do!

sebs your post last night was very moving. I'm not overly familiar with rosacea but I had bad acne as a teenager and it completely destroyed my confidence and self worth so I think I understand what you went through. Luckily incredibly strong drugs and Dianette contraceptive pill cleared it up for me by my late teens but I have scarring to this day that still makes me self conscious. I know what it feels like to hate your body. But your body has also produced your beautiful son. It didn't let you down that time and it will come through for you again.

Hope your appointment goes well cloud, let us know how you get on.

Thinking of you today pop. The sun is shining for your beautiful DD today.

mrs that sounds very exciting! Buy a FRER!

I know how you feel barking, I always think the hardest bit is after the crying stops. I quite often feel I really want to cry but can't get it out. Second the idea of a weepy film - there's nothing better than a good cry about something entirely fictional!

Sounds like a plan brummie. We're both lining obsessives . I've got my gynae consultant appointment on the 21st so hope they will agree to a hysterocopy then.

My acupuncturist thinks I have 'damp'. Sounds revolting. Essentially it means I am stagnating down there and need to improve my blood flow. I've got a bit lax with the raspberry leaf tea and vit E - must start that again.

Am having a bit of an angry day. Heard from my auntie who is off to visit my cousin and her three week old baby. I'm just so fucking angry that here I am busting my ass at work (on a beautiful spring day) when I should be at home with either a nine month old or a three month old. But instead I'm sat here ignoring the blatant AF cramps that are starting up already.

flen so glad your kitten turned up all ok. What a relief!

pop thinking of you today, lovely lady. I can only imagine how difficult it is. I hope it gives you a little peace. Xxx

barking sorry you're feeling so down. Chocolate and sad films for sure (or i tortured myself by watching OBEM and cried shed loads! Not for everyone that though!) Hope whatever you do helps.

mrs I'd keep taking the prog and testing too. Three tests sounds very positive though (yippee!)

enlightened hand holding x

freckle hope the plague has left your house!

cat glad baby is ok- terrifying for a minute though. Little monkey!

cloud My dm has lost 4 stone on SW- she loves it. I'm trying to lose weight too. Using my fitness pal to calorie count. And thinking about exercising! Need some motivation as I really want to lose a stone before the end of July. I figure if I can't be pg, I'll bloody well be thin!

Feeling really sad today. My baby bomber friend has had her 12 week scan today, everything fine. Feel like such a bad friend (I really like her and she's been so good about the MCs) but all I feel is total sadness and jealousy Which makes me feel totally shit.

On a positive note a receptionist at my GPs has finally sorted things for me and my GP has written an expedited request for the rmc appointment so hopefully that's moving in the right direction. Trying to grasp at positive straws as all I feel is depressed.

Minnie I am shit, bitter, jealous and resentful all of the sodding time...

Monten I'm all about the blood flow did "legs up the wall" yoga pose last night to encourage blood flow

Try l-Arginine too as it encourages blood flow to the pelvic region

You need 2 eggs a day as well! They (and green veggies) are blood making food.

Not convinced acupuncture has improved my lining though, but my cycle has got slightly longer so who knows

Cloud- I'm a Sw member and lost 4 stone on it 10 years ago and kept the majority off since until I got pregnant with DD. Since that successful pregnancy and the subsequent MCs I've then used it to loose the additional pounds.

It's very like ww, so it really comes down to personal choice. if you have any queries let me know and I'll try and help.

March- understand about the response trial lurking. Will be fret if you do join but ok Coventry does show nk cells, then at least you'll have a plan moving forward x

Girlie I'd be interested in any info on how SW works, I don't have time for clubs in RL and it's just not me. But I have been overweight for years, although dropped back to pre preggo weight after both births no problems, but in the time of the 4 mc's ( so from sept 2013) I have put on 2 stone and feel awful. Would be good to drop a bit between now and may. Brummie fingers crossed may is a good month, we might end up on the wards together lol. Youngest just woke from nap so must dash, will try to read back on thread tonight....

Interesting all the comments on weight loss. I lost 21lb on SW b4 i got married, but in the last three years when i have gone back i never really got anywhere. However, the first friend i took lost 6 stones, and the second friend i introduced lost 5! I guess its just me. 5 years ago i did the most horrible, difficult Cambridge diet (shakes, soups, poridge things.) It's rotten...but you really do loose a stone a month! I lost three! It's not the kind of thing you could do long term - faddy and expensive. But short term weight loss? Amazing! I do not recomend it, but i have been thinking about doing it again just to get pregnant. Until tests prove otherwise my personal fear is that weight is my problem (the way that thyroid is linked to insulin...is linked to progesterone) Im sure it's all about ballance and that my weight has thrown my hormonal ballance out. Is this possible, or is it more self-flagulation?

Prof Quenby did say she thought a diet like SW, whilst she wouldn't recommend long term, can be useful when TTC Freckle. I lost 24lb 20 years ago on SW, but like you have failed on more recent attempts. I did lose 6kg first week on low gi, but still working our way through unpacked boxes so has gone by wayside last couple of weeks.

Barking def know what you mean about crying. I recommend The Notebook, that's the last film I remember sobbing to

Minnie glad things are moving with your referral.

Glad that baby is moving again Cat, can only imagine how worrying that must be.

Like your plan Brummie. Mines similarish....preconception pills, agnus castus (increased dose after reading that useful link someone posted), vitamin b12 and vitamin d. No idea where I've packed the raspberry leaf tea!

freckle I don't think it is the whole story but I think it's possible that if you have an underlying susceptibility to hormonal, insulin or thyroid issues that extra weight could tip the balance. I wonder if that is my issue.I have pcos and losing weight is meant to be key to controlling the symptoms. I am not loads heavier than when I conceived dd and I don't think I was when I had mc1 but I am certainly heavier than ideal and the fact I have gestational diabetes fits with the theory that my body is struggling a bit to maintain a healthy balance. I am not beatingwmyself up about it too much though as I don't think it would be an issue if I didn't have pcos, and I have had a long cycle all my life and my weight has fluctuated.

I think the key with any diet/ healthy eating plan is balance. Everyone has their preference and I can't say I've always followed Sw religiously however its I personally found it worked when I wanted to drop a few pounds. Mmy sister in comparison couldn't get on with SW and much prefers ww. Btw- I should be weighing in tonight but instead I'm at home eating chocolate- oops.

Loopy- Sw can be followed online if you can't manage to attend a group. If you google Sw the website will explain everything.

Obviously I meant 6 b, not Kg! I'm sure I've gotten nappy brain since first pregnancy.

Brummie your plan sounds great. I always threw everything at it and it sounds like you're doing the same!

Minie it's so hard to not be jealous and sad for ourselves even when we are happy for others. Hope you're as ok as you can be. I was very jealous of my friend who had fertility issues around the same time as me and she was so lovely and supportive that she even let me tell her I was jealous lol.

All this diet talk has me thinking I need to be good too. I do believe that a healthy body weight gives us the best possible chance so those considering a healthy change get the thumbs up from me! XxX

I want to know that I've done everything I can. It's also giving me an element of control.

I don't do stuff and then I kick myself and wonder "what if I'd done that"

At least now I won't do that. Same way I don't regret taking baby aspirin for pregnancy number 3. At least I'm not thinking "what if I'd done that"

Now I've been tested, I know there's no need for me to take it.

Bought my vitamin e tonight and scoffing down a glass of whole milk.

loopy Mr W is doing my op now on 20th - was Alex Blackwell originally but not anymore according to Monica. Not that I've been emailing her and making a general nuisance of myself, just keeping myself on the radar!!!! being annoying basically

Got the pre-op assessment tomorrow morning....

Hello all! Late to the thread, 3 pages in already!

Congrats maverick

Hope today brought you a measure of peace pop

Glad that flen-kitty has returned safely. We took advantage of the weather to let our old boy go out, he's been shut inside over the winter as he's poorly, but he's enjoying the sunshine warming his old bones.

My stats 4MC at 9-10 weeks, diagnosed high NK cells at Coventry, successful pregnancy on heparin, progesterone and steroids resulting in DD Faith born May 2014.
Unrelated diagnosis of infantile spasms/west syndrome January 15. Faith is doing well at the moment, spasm remission for 8 weeks and now off the steroids and just on replacement dose of hydrocortisone as her adrenal glands have been knocked out by the steroids. She is developmentally about 3 months behind and we are trying to get some support to help her progress. Still very anxious about her development and about relapses but we just have to take it one day at a time. We've had some lovely days out over the Easter holidays. and now I'll shut up about her for the remainder of the thread