Recurrent Miscarriage Support Thread 20 - tests, treatment, trying again.

[barkingtreefrog]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Thinking about you Loopy, I second that I wish we all lived closer so could help out with small people looking after duties. Let us know how you get on

Hope it goes well today loopy, and that you get the all clear.

tiny, This time tomorrow you might be going in to meet teeny tiny!

Hello everyone! loopy I hope it goes really well today and tiny I wish I could find a way to type an excited, high-pitched squealy noise, because that is the feeling I have.

I wrote a thing yesterday about going to Coventry. For anyone who is thinking of going, it might be useful (although to be honest, I think all of the info in it has been covered on here by wise and experienced women anyway...) thingsaboutmiscarriage.wordpress.com/2015/03/29/things-about-miscarriage-no-30-going-to-coventry/

Morning Flen great blog as always!

That's exactly how mine was and what I understood it to be too. And I took great gulping gasps on the gas and air!!!

Defo got lining envy though....

Great piece Flen :)
The gas and air must be new. I had two biopsies done as the lining was on the thin side and no gas and air (although I spied it in the corner afterwards). Still, I'm a pompom waver for the clinic, as you know
Hope it goes well today, Loopy.

Great blog Flen.

Prof Brosens did my biopsy himself and no one offered me gas and air! Waaahhhh!

And I just wanted to say to all thanks for your support since thread 5 or 6, can't remember when I joined, and convincing me to go to Coventry who I thank to being where I am now...

This evening I go to the hospital (because of gd they want to monitor me overnight) and tomorrow morning it's all go for teeny tiny...

Thanks again

Good luck today loopy

Yey tiny, not long now til you'll be holding teenytiny in your arms!

Read your blog last night flen, it's awesome!

Xxx

Good luck for today loopy and all the best for tomorrow tiny .

I've got a sore throat like razor blades and a stinking cold. NOT what I need right now .

Thinking of you loopy hope today goes smoothly

And eek tiny How exciting!! Not long to go now

good luck loopy
Not long now tiny, what time are you booked for tomorrow?
Hope you feel better barking
[waves] to everyone else, have a good week

Just Prof B mentioned doing 2 biopsies on me too due to the thin lining, but then said hopefully the hystereoscopy would do the trick of irritation as well so not to bother. He also said, you can do too much sometimes and just give it a go.

We did however say if god forbid I lost a 4th, then I would be straight back to Cov to do it again.

Good luck tomorrow Tiny can't wait to hear about mini Tiny x

Tiny, I'm so excited for you

Yay tiny how exciting

Lovely new piece on the blog flen! Made me chuckle as well which always helps on a Monday morning.

To those graduates of Coventry, how long did it take your results to come through?

CD 17 here. We're worn out from ttc. Think I have ov at some point this weekend. Start the progesterone later on this week whilst we're away. Is it going to make me even more of a cowbag than I usually am at the end of my cycle? Might have to start practising being mrsnicediddlydoo...

I fell pregnant on the second cycle after going to Coventry and the results came about the time of the BFP, so about 6 weeks.

tiny Not long now, so exciting! I can't believe that you are there now, it seems like yesterday that you announced your BFP! All the best x

sebs Just tell your sister how you feel! There is nothing wrong with it, and hopefully, she will understand.

I had quite a wobble yesterday. We had friends over for lunch who have 2 DS, and the older one is DS's best buddy from previous childminding days. As he was chatting along excitedly, he somehow started listing the siblings of his friends, i.e. 'X has a brother, and Y has a sister'. And then - completely casually - 'I don't have any brothers and sisters.' It really floored me. It was completely deadbeat, he was simply stating a fact, no questions associated or anything, but it made me so so sad It's the first time ever he has mentioned it, and ever since I have the echo of his little voice in my head, repeating that sentence over and over again. Sigh

I got pg 7-8 months after Coventry, so only did the progesterone from day 21 thing for the first 3 cycles because they thought they'd 'over adjusted' and sent me too far the other way into 'sub-ish' fertility. In the end I just took it from bfp. Got my results about 5 weeks after the appointment and then just kept in touch via email and one extra phone consultation after it took longer than expected to fall pg (then booked hsg and fell immediately and had to cancel it).

Cloud, sorry to hear that, but your ds sounds like he's just telling it as he sees it and isn't upset, so try not to let it get you down (easier said than done, I'm sure). x

Oh cloud it's so hard. I will be experiencing the same in the future I'm sure and it's going to be difficult. Thing is he said it matter of factly, he didn't get upset, I think children are extremely resilient and really do make the most of their situation - whatever it may be. We however are desperate to change the dynamic and are extremely sensitive to it - so it will have affected you far worse than your son I promise you.

I'm still bleeding slightly so I don't think I'll really know whether my last period-like bleed was really AF until the next one arrives. I think my gynae did a bloody good job being extremely conservative when removing the pregnancy (as requested) as the amount of bleeding Ive had is very reminiscent of my two natural miscarriages. I suspect I'm probably still testing faint BFP if I took a test, perhaps after this bleed the lining will finally be gone.

Great blog entry again flen, it's good to hear all this stuff. I think I'm starting to understand it a bit more now since reading what you and bootles posted. I had assumed that the nk cells were attacking the foetus, but it seems they are a symptom rather than cause. Interesting.

I felt fine whilst I was on the progesterone diddly, but when I came off it I felt very very low, teary and at rock bottom. The first month I had no idea why, as the consultant hasn't mentioned it, so was totally desperate, as I thought I was sinking back into depression, until i realised why. The second time I was a bit more prepared, so it felt manageable (plus it was combined with mc, so more understandable). So I'd just say to be aware of the hormone crash and that it will get better within a week. But hopefully you won't have to think about that as you'll get your bfp straight away

Sorry you had a difficult day cloud. Sometimes the honestly of children floors us, but as you said, it doesn't sound like he was upset, just stating the fact. It's hard not to take it to heart as I think this experience makes us blame ourselves for what we feel is a failing when others don't feel that way at all about it. Try not to be sad about it. He had wonderful parents who he probably has more attention from, so maybe in his eyes it's not sad.

Sorry your cycle is a bit all over the place sebs. I hope it gets its act together soon. I remember mid cycle spotting with mc1 and mc3 and it's so disheartening when you just want to get back to normal

Am home. Shattered and sore but home. Brummie the hysteroscopy will definitively irritate your lining as it turns out mr watts doesn't just look, he favours doing a d and c, effectively he scraped the all lining away which I guess is on a par with the Coventry scratch you all talk about. He also found some adhesions in one area of my womb which he got rid of. So he said we can ttc straight away but what he means is after next AF as in his words "you have no lining as I've just scraped it away so you can't try this month, you need to wait until your next cycle" so I won't be ttc until mid may I think, depends on how long my cycles take. He also said that as soon as I get next BFP to contact them as they want me to start clexane injections immediately which I will take for the entire pregnancy, he isn't going to bother with aspirin for me again. Going to rest as much as possible for the rest of today and they gave me some cocodamol as they think I'm going to need strong painkillers, not sure if that's normal or because of adhesions or what. Didn't realise I'd need maternity pads, wasn't mentioned in any of the pre op bumph so felt an idiot.

Ouch, Loopy, this sounds rough... a d&c, but good if the adhesions are gone. Did he mean you had the beginnings of the Asherman's syndrome?

Why clexane and not bother with aspirin - do you have proven issues with thick blood or the genetic mutation?

I am still testing pos after 9 days from eprc, which in itself is OK, but what is weird is that I have not bled at all since procedure, and the test line is as strong as it was soom after eprc, no regression whatsoever. Back to docs by Fri if the line is still as strong by then. two weeks from operation. Guess a second cleanout is coming my way, since My uterusnever botthers to do any of this itself. Stupid thing has probably not noticed at all someone came in and stole the baby away, so closed the cervix and thinks all Ok.

That sounds rough loopy, glad you are home now. Would have been nice if they'd told you what the procedure involved in advance! That's good news that he has found a potential cause and fixed it. I really hope that's it now for you. It's another thing ticked off the list at least. glad you have a firm plan in place for next time. Sounds like he is very proactive and supportive. Take care of yourself x

Sorry to hear you're still testing positive jass. I haven't had an erpc so no idea how quickly it's supposed to go down, but I was several weeks with the medical management. It's such a stressful time when you just want it to be over so you can look to the future.

Cloud that must have been so upsetting, hugs to you. I I keep faith you will get there and one day DS will have a little brother or sister. My DH is an only child (his mum had too many health issues for a second child) but he is one of the happiest and most well balanced people I know so please don't feel bad that there isn't a sibling right now.

Sebs and Jass it's so upsetting to still get a BFP after a lost pregnancy, sorry to hear your waiting. With my 2nd miscarriage I didn't allow myself to test for ages for fear it would be false positive. Hugs to you both.

Loopy sorry to hear you're sore. I had three D&Cs over my course of TTC and they do knock you around. That said I am sure they are great for giving the lining a fresh and healthy start. Fingers crossed you get a BFP in the next 3-6 months while that lining is lovely and new.

Know I wont be able to get on here tomorrow so want to say GOOD LUCK TINY. We'll all be cheering you on and so keen to hear your news. I know your happy ending will keep others going so keep us posted!

Ladies, which rainbow baby is due next on this feed? I'm due 2 July, god willing. If we make it he will be my first baby after six solid years of trying.

Just had a sleep, feel like a zombie now. Jass I tested positive for lupus anti coagulant, so my blood clots and so yes guess it is sticky, means likely to clot and stop flow to baby, and causes miscarriage, still birth and premature births. I was meant to start injections last time after the 6 week scan, but didn't get that far. So next time clexane from BFP. Horrid injections. But worth it if they work.

mrsdiddly I agree with March, I am fine while on the progesterone, but really hormonal when I come off it. When the iui failed and I stopped the progesterone I was a mess for a week, then suddenly as the hormones left I could see things in a bit more perspective!