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Miscarriage/pregnancy loss

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Original poster

Recurrent Miscarriage Support Thread 19 - tests, treatment, trying again.

995 replies

bythesea82 · 06/03/2015 12:07

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

OP posts:
sebsmummy1 · 18/03/2015 11:39

Maverick - did you just ring the EPAU and ask then to check the computer?

Brummie that sounds like you have everything in order now ready to go. Fabulous!! Do you know I have no idea what a hystereoscopy is. I've heard it mentioned loads but am clueless. Is this an NHS thing?

Brummiegirl15 · 18/03/2015 11:50

It's a procedure where a camera is placed inside the uterus through the fanjo. So they dilate your cervix and then insert a tiny camera.

It can see if you have any adhesions (and treat on spot) or see if you have a septum or wonky shaped uterus.

Hopefully if all ok they just remove camera and that's it.
At Kidderminster (where they carry out day case ops) you have option of GA or being awake but they mainly do them until GA. Thank Christ. I think benefit of being under is that if you do need treatment it can be done very easily

Marchgirl · 18/03/2015 11:56

Great news brummie, sounds like you have everything mapped out.

flower, i would agree that they mostly don't hurt. There is a point in the top of my foot that stings a bit, but apart from that i barely feel them. the way they are put in, is with something that just goes click and they are in automatically, it just feels like she's tapping you with her finger.

Flower29 · 18/03/2015 12:15

Seems acupuncture is the way forward!! I've sent an enquiry email to Dr Li Qin Zhao on sheffield (who seems very reputable after googling) so hopefully will hear back soon.

I've just rung the Drs to chase my bloods and the receptionist said clotting screening came back normal, but thrombophillia isn't back yet. I've read that these tests should done twice though to give an accurate result. shoukd I be pleased with the normal result or should I go back and request repeat tests?

brummie that's great news. It sounds like you have a plan now to move forward which sounds very positive.

sebsmummy1 · 18/03/2015 12:21

Ok, I know a bit more now. Was the hystereoscopy offered as part of the recurrent miscarriage treatment through the NHS? I've looked at the price privately and it's thousands of pounds Confused

I feel as though I don't have a enough time fertility wise to be going down all these investigative avenues. It's a bit frightening.

Brummiegirl15 · 18/03/2015 12:30

Hi Sebs yes I was offered it through my NHS Consultant, Mr Watts at Worcester.

Have you got an rmc appointment booked? Or are you waiting for one? Apologies I can't remember!

I know Monten was going to ask for one during her appt, if it hadn't been cancelled, and Loopy is also having one through Worcester too. But yes it is defo done on NHS

Monten · 18/03/2015 12:53

I wasn’t offered one at my RMC appointment sebs, despite me telling them I was worried about light periods, something I’m a bit Angry about. At that stage I wasn’t panicking yet so really didn’t push it. So crossed my appointment has been pushed back by a whole month! And in the text to tell me so, there was THREE spelling mistakes/typos. You do have to wonder sometimes.

So pleased for you brummie that sounds like an awesome plan. Do you use CB digi dual hormone opks? Do they not get confused if you use them twice a day? I have only ever had a fixed smiley once so might give twice a day a go if it works for you.

Brummiegirl15 · 18/03/2015 13:02

I do use them Monten - I only do twice a day if it's an empty circle. Then I got a flashing smiley last night which changed to fixed this morning. You just can't test again once you have a fixed smiley

The only thing to remember is that they work on an algorithm so the first day will always be a empty circle as it has nothing to compare to. I start on cd7 and always get a fixed smiley on day 9

I love them and have always worked for me. I don't like the uncertainty of the internet cheapies and seeing if the line gets darker

sebsmummy1 · 18/03/2015 13:33

Brummie I'm currently deeply entrenched in a WTF/limbo land. No appointments booked, no hormones.

When I discussed with EPAU what options were available for this MC I asked if I could be referred to RMC via EPAU so I didn't have to go back to my GPs. She said that was absolutely fine, yep, then explained they would wait until 6 weeks then get me and DP for a variety of tests yada yada.

It's now 3 weeks and I am just drifting about and wondering if I am actually in the system and will an appointment appear through the post.

sebsmummy1 · 18/03/2015 13:35

Monten I would be fuming too. There is no sense if urgency is there? I really feel as though it's in their best interests financially to allow our fertility to disappear on us as they then don't have to bother dealing with us anymore.

longestlurkerever · 18/03/2015 13:46

Is the hysteroscopy the same as a saline scan where they pump your uterus with water and then put a camera up? I was going to have that at St Mary's on the nhs but got my bfp before I could go. It wasn't a standard test though - it was because my uterus was "slightly arcuate" when looked at with a normal scan.

Great news about ovulation Brummie! It feels so much better when you've got a plan, eh? Hope yours fall into place soon sebs and monten.

cloudjumper · 18/03/2015 14:00

brummie Great news about the ovulation! Hope it'll all go as well as to be expected on the 27th. (I'm getting my MRI results on the 27th, too!)

flower In my experience, they will only repeat the thrombophilia tests if anything noticeable comes up. And even then it's not necessarily very helpful... I've been found to have slightly low levels of protein S (involved in clotting process), but it has never been followed up further.

I'm also a firm believer in acupuncture. Haven't used it for anything mc-related yet, but I had it years ago for my migraines - they disappeared and have never come back since.
I did see a local acupuncture specialist after my third mc, but I didn't 'click' with her - she wanted to sort out my cycle temps, which would have involved me completely changing my diet, exercise regime and drinking ttc-incompatible herbs, whereas I just wanted to relax and maybe some help with staying pg (since the getting pg didn't seem a problem then). Her approach might have worked, but I didn't do it in the end, as I did not want to wait with ttc while having acupuncture. And I didn't agree with her opinions about my diet and exercise regime...
I am thinking about getting reflexology - love it, and it's also meant to help with fertility issues. My problem is that because I had a DVT, most reflexologists are very hesitant to treat me.

7 DPO today - hate this stage, it's just waiting waiting waiting.

Brummiegirl15 · 18/03/2015 14:03

Hmm Sebs I had to wait 3 weeks to get my bloods done as they were adamant I couldn't be pregnant when blood taken so I just had to wait until I got a bfn then go back.

Might be worth going the GP route or calling the EPAU back and asking how you go about getting your appt done for bloods. At Worcester, as long as you have the relevant request the bloods is just a walk in clinic

But I know exactly how shit wtf. / limbo land feels like. It's literally only now that I have everything pencilled in that I feel like it's starting to fall into place. And my mc was over new year. So it's taken 3 months to get to this place and looking at last months random 37 day cycle my body probably wasn't ready before now.

That said if anything gets cancelled my plan will fall apart like a house of cards so I'm not there yet.

Yes longest the womb gets inflated with either gas or saline so they can see.

I could try again before the hysteroscopy (after Cov) but part of me thinks, you've come this far, don't throw in the towel now because you couldn't wait another cycle. I need to be patient a little bit longer

longestlurkerever · 18/03/2015 14:10

Yes Brummie that's sensible. I would have decided the same except that I had already had the go-ahead to start ttc from St Mary's at my private appointment - the nhs one was only supposed to be so I was in the system for when I got pregnant and it was difficult to unmake the decision to ttc (didn't actually expect to get pregnant first cycle though - that has never happened to me before). But it turned out the NHS appointment was more thorough - they did repeat the TEG and scanned me, which I hadn't had at the private appointment. I had the TEG (Is that thrombophilia? It's certainly something to do with clotting) three times altogether - twice before BFP and again after.

Marchgirl · 18/03/2015 14:54

I think the filling your uterus and tubes with fluid is a hysterosalpingogram (hsg), which i think is different from the hysteroscopy, but don't quote me on that!

Monten · 18/03/2015 15:16

sebs I would definitely call your EPU and just ask. No harm in asking, and the limbo feeling is the worst. Being a tiny but pushy in these situations is helpful I think.

Ladies, I need your advice. I realise me and only me can make this decision but I need to throw it out there. AF is five days before my wedding. So I have two more chances to get pregnant before the 23 May. I am organising a trip to my mums for beginning May, DP won’t be coming with me. Am just about to book my flights and realised I will be away for my entire second fertile window. Now of course I might be knocked up by then Grin. But if I wasn’t, is this perhaps fate giving me a helpful way of ensuring I’m not either newly pregnant or sad I’m not pregnant at the wedding. I was considering taking that month off anyway. It just feels so ……………scary to not try for a month.

Monten · 18/03/2015 15:26

Oh and I meant to say ages back - I'm so happy my wedding is on Faith's birthday baking!! So auspicious. Smile

ourdaywillcome1983 · 18/03/2015 15:28

Hi Ladies, i havent posted since the last thread - i know these threads move so fast but my head has been very comfortably buried deeply in the sand.
Hopefully i will be able to read back a few pages. Hugs to you all Flowers im so rubbish at staying online but im trying to remain sane not that its working ha

Marchgirl · 18/03/2015 16:01

monten, i would say that as long as it's not going to cause you any more stress by not ttc then give yourself a month off to enjoy the wedding (and honeymoon?)
It's not going to affect your long teem chances of becoming pregnant and maybe the break will help you to come back to it with a new energy. You deserve to be able to let your hair down and not be worrying about drinking or feeling sad. Still keeping fingers crossed for bfp before then, but if it doesn't happen then take the break and enjoy Grin

Justonemoretime · 18/03/2015 18:14

March, you're rights about the difference between a hsg and a hysteroscopy. With an hsg they put dyed liquid in and then x-ray you. With the hysteroscopy you're usually under GA and its a camera inserted.

mrsdiddlydoo · 18/03/2015 18:20

monten I agree with marchgirl. If it happens next cycle great, but if it doesn't, put all your energy into enjoying your wedding and who knows, maybe a honeymoon bfp will be the result! You know what... I'm excited about all these wedding plans Smile

ourday we all know the trying to stay sane feeling. And fail at it too. Nice to hear from you

Flen · 18/03/2015 19:12

No ovulation here, despite ewcm this morning. This is what happened last time I tried OPKs, no definite change just a very very faint line (although I am going to keep going for another few days, day 13 today). Was hoping I would get a positive today, otherwise 7-10days for Coventry falls over teh weekend. Agh!

longestlurkerever · 18/03/2015 19:19

That sounds like a plan monten. Good luck with ovulation flen.

I think it must have been an hsg I was going to have. No one mentioned a GA.

Justonemoretime · 18/03/2015 19:49

I was booked in for an hsg and had to cancel it because I got pg. That was after 7 months ttcing. My gut instinct is that, mentally, I'd let myself off the hook for that month as I knew we had investigations coming up so there wasn't so much pressure. What ever the reason, having it booked seems to have done the trick. I've also heard that it can boost fertility for the ov immediately after the procedure is done as your tubes are freshly swooshed out.

Monten · 18/03/2015 19:54

Thanks everyone. You're right of course. If I don't get knocked up next cycle unlikely given I haven't the previous eight then it makes so much sense to have a month off. It's frightening how hard I find the thought of that though - of course in the grand scheme of things it makes no difference, but it's made me realise quite how much I live month to month. If I get pregnant this cycle I will have baby in Sept/Oct/before Christmas/before my next due date etc etc. This is no way to live Confused

mrsdiddly I'm excited too! I was all 'oh I don't want a proper wedding, just a few friends, pub, registry office' and now I'm getting really into it Blush. I've bought a dress - it is not white it is bright yellow Smile