Recurrent Miscarriage Support Thread 19 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

counting - so pleased your gp was supportive and prescribed the recommended drugs. Re whether optimism is the best option versus managing expectations, I think you just have to go with whatever works for you at that point in time. You sound like you are dealing with the waiting / worry brilliantly and we will all be here for you whatever the outcome (hopefully twins!!) x

Thank you jady and sun. I cried a lot yesterday and I always get a weird euphoric feeling the say after a good cry. It'll be tears again tomorrow.
Here for you too, my dears.

Minnie, don't feel guilty, i only had 3 days off and i can honestly say that for the first three weeks after my 3rd miscarrige i have been loop de loop, fruits and hazlenuts BONKERS. Would he rather you had a 'moment' infront of the class and started talking about it all?!!!! The amount of times i wanted to shout something totally inappropriate about my dead baby at my bottom set y10, just to get them to shut the fuck up and leave me alone...you need to have all your faculties to deal with 28 children each demanding individual undivided attention.

By the sea...can i have a whop whop!!!!

Brummie - grrrrr...SO FRUSTRATING!!!

Everyone else...waves!

Sorry bt the sea, that whoop whoop was for counting...name confusion!!!

Happy to hear good scan news ladies!
brummie I'm sorry Coventry has been postponed. I hope your cycle behaves so you can get in soon.
girlie great news about your test results!
Minnie your boss sounds like a tool. What a completely inappropriate thing for them to say. You must take as long as you need and not rush feeling 'better'. Its a process and you need time to heal. Please try not to worry about it.
counting I'm so glad your gp gave you the levothyroxine, and for functioning today at work! I struggle with that at the best of times. Twins are my dh's dream future pregnancy. He thinks they make so much sense and is slightly obsessed with them.
baking hope you, faith and family are ok

It's Friday tomorrow hooray! Anyone got anything nice planned for the weekend. My parents are coming to stay. They don't live locally. Have already started cleaning the house... Its so exhausting. I'm sure if we saw them more often we wouldn't bother, but it always a big deal them coming so I want things to be as nice as possible for them. Can't remember when I last saw my mum on mothers day. Must be over 15 years ago. Probably using them and cleaning to block out my memory of last year, slightly pregnant and completely ignorant about the cruel world of mc. Happy to focus on something else

Haha, thanks freckle.

counting so glad your gp prescribed the drugs. That must feel such a relief. And optimism is a fab thing to have. I'm a total pessimist (about myself) and would love to have that optimistic attitude. Twins would be brilliant!

Thanks for the support everyone re my boss. I'm glad I have the extra week but I know I need to make an effort now to try and have a more positive outlook.

Thanks counting. You are right of course that I should approach friends and family and spell it out for them. I know their hearts are all in the right places. I am usually a highly reasonable, accepting, diplomatic kind of person, but every once in a while I just want to scream at everyone, 'can't you see how much I am struggling???' But why would they, because I don't show it. God I am way too many today. Tomorrows another day blah blah.

I also have the twins thought often. You never know. It's so hard to feel hopeful yet manage expectations - I never know how to feel in the early weeks. Go with what you feel, and as you say it's not over. Do 'they' (TABLET trial, GP) think your thyroid could be a potential cause?

I meant to say earlier, somehow I have got this far down the line without realising there was a theory about RMC after having a boy. I need to read up on it as I am sure (as I can be) that my issue is a immune problem, somehow more complex than the high NK cells.

Many? I meant moany, which isn't even a word I know but it fits.

Indeed the weekend is nearly here.

And I am getting pissed! Boozy girlie lunch. No boys allowed!!!! 2 friends with babies are desperate for a bit of adult company, 2 friends are single and have been treated like shit by men and well as for me..

Wine and cocktails all round.

DP is on a footy hospitality day

So Mothers Day is banned in this house and Sunday is recovery day and spending it with each other

Go brummie getting pissed can solve a lot of heartache every now and then!

bootles the rmc after a boy sounds interesting. I feel like my issue might be immune too. About ten years ago I was tentatively diagnosed with a pretty rare immune problem called Bechets. It was never definitely proved and after a while (and some drugs- can't remember the name) the symptoms which were largely mouth ulcers stopped and I haven't been bothered since really. But I do wonder about the mc link. I'm so desperate to get my rmc appointment to try and find some answers (or at least have someone to talk to about it)

bootles the TABLET trial reckon it's the thyroid antibodies causing the problem. The pesky beasties lie low until baby is conceived and then run amok, inhibiting thyroid function and causing miscarriages. If anyone is interested there's a meta study on it on BMJ, which sort of presents the case for the TABLETtrial. In short, presence of thyroid antibodies triples likelihood of miscarriage (presumably from 25% to 75%). A couple of earlier studies indicated levothyroxine may half the risk (presumably from 75% to 37.5%). www.bmj.com/content/342/bmj.d2616 meanwhile the GP partially buys it, but only to a point. My GP did test for thyroid function as part of the standard 3 miscarriages tests, but only TABLET tested for thyroid antibodies.

mrs I'm impressed that you clean in anticipation of visits!

brummie glad that you have a band of gals lined up for your boozy lunch

Well I carried DS and now have issues, my sisters first child was also a boy and she was 40 so had the odds stacked against her but went on to have a second boy after one mc (blighted ovum). I have had immune problems since contracting glandular fever as a child so I am also now very suspicious that my body is rejecting the pregnancies.

*as a teenager that should have said.

Can I ask how quick the Coventry tests come back btw? I understand the scratch can make a pregnancy more likely and if so would the results be back in time to start treatment if you were lucky enough to fall pregnant the following cycle?

Relieved that your gp has prescribed the meds counting. Let's hope they do the job. I think being positive is a good way to be. Being negative isn't going to change the outcome and much as we'd like it to, it doesn't really prepare you in my experience, so may as well be happier while you wait.

Getting pissed sounds like a good plan brummie, Best make the most of it before your long pregnancy and breastfeeding drought

Sebs, purely from reading on here, i gather Coventry encourage you trying again straight away to make the most of the scratch. I think most people's results came about the same time as their bfp or next af, so does that make it about 5 or 6 weeks?

monten I recommended the temp adjuster, always worked for me (ie it pulled it in line with what made sense and I would have expected at point in the cycle).
I come on this thread and a couple of threads where most of us have been ttc over 3 years. I don't go anywhere else as they give me the rage. I've been ttc for 4 months and I'm still not pg, I got pg straight away with my 2 dc, I don't know what to do. Well I know what I want to tell her to do....

Anyway!

bythesea keeping everything crossed for you . When is your next scan?

counting did you try getting an earlier scan? I think being positive is good.

brummie sorry you had to cancel, delays are so frustrating.

Minnie don't let anyone guilt trip you into feeling anything. You need to focus on you and getting yourself emotionally stable. You can't do that in a classroom.

I'm doing my ivf injections every morning, and I'm having weekly acupuncture as well as hypnosis sessions. In the last one it turned out I do have a subconscious mental block around the whole being able to get pg thing, and it wasn't the previous miscarriages that came out, it was my mother!! Anyway. Both things are helping lots and I'm feeling relatively calm about everything. Scan isn't until next Tuesday to find out how many follicles I've got. There's time to become a massive stresshead yet!!!

Barking how are you finding the injections???

Ha Barking!...I had hypnotherapy in last few months of pg with ds because i was pathalogically frightened of being pg/birth (oh oh oh the irony, yes, tis not lost on me) and it was also my mother that came out in all that!

Well, i have my first ever accupuncture appointment tomorrow...life has chosen to take me on a typically whimsical path from my days of being incredibly squeemish and frightened of needles. Baby hunger changes people. I wish i could go back in a time machine to visit myself before ds and hit myself hard across the face for being such a total wanker and waiting so long.

brummie gutted for you. An extremely frustrating situation. Booze is definitely the way forward.

minnie as a fellow teacher I absolutely agree with everyone else. Take the time you need, your class will be fine.

counting glad gp is listening to you even if it’s only partially

bootles I think the boy theory definitely makes sense for me.

barking keep injecting. But please don't every use the phrase 'ripe ovaries'. I have read this somewhere and it made me shudder.

Hello to everybody else!

So, I had another visit to Liverpool today, this time for an ultrasound. They confirmed that I too have a tilted uterus so I’ll join that club (but would prefer a tiled one, I think, march!) and also that it is arcuate. I knew both of these from previous scans but, as I’ve had ds, I don’t think either is a reason for what has happened.

They also think they have found uterine synechiae (Asherman’s). Am baffled as to why as never had a D&C (maybe c section with ds to blame?) I’ve got to back in two weeks to have a saline injection/ultrasound to rule this in or out for definite. If their hunch is correct then I think it could explain the two early losses last year post c section, and explain why my periods have got lighter since ds. But.. I really don’t think it would explain the recent 2nd trimester loss. Anybody ever had this properly diagnosed/treated?

freckle I've been having acupuncture for the last year to sort crappy cycles since ds. I credit it with getting me pg the last two times as I wasn't oving every time till I had it. This last time I had it weekly once I found out I was pregnant up till 8 weeks when she said as id seen a heartbeat it should be ok to go back to once a month. Now I wonder if I shouldn't have kept it up all the time. I wonder if we're seeing the same person- did you say you were Leeds based?

pop I don't understand a lot of the things in your post, arcuate and the uterine problem, but it sounds very positive that some sort of diagnosis had been made. They sound like they've been very thorough.

Sorry minnie! Arcuate means my uterus is slightly heart-shaped and can be linked to recurrent miscarriage. Asherman's means I may have scars that cause adhesions. These can also cause recurrent miscarriage. Which, all in all, leads me to say quite a loud 'bollox'!

That's good that they are doing some more investigations pop, and that you have a possible diagnosis. I think someone else on here was diagnosed with ashermans and should be able to advise. Fingers crossed they can sort it out x

I'm loving my acupuncture sessions freckle, hope you do too. Partly just because she actually listens to me and doesn't think I'm a totally nutjob when i go on about the different theories. I found someone who specialises in fertility, pregnancy etc and does the community clinic thing where you pay a smaller fee and they treat 2 patients at once (in different rooms)(tanny kindly mentioned this to the board). It's great.

Well, i have another appointment with the rmc consultant this afternoon, presumably to discuss my begging email for heparin that i sent her 2 months ago. Not sure what to expect but I'm armed with a few questions like why didn't you bother to call back when i needed advise during the last mc

Morning everyone. I'm going to start OPK testing tomorrow and have only done it once before with no success at all. Any tips?!

Exciting that you are getting closer to Coventry time flen . Last two times I've done them in the afternoon and just not drunk any water for a few hours before. (I think they advise against fmu because you might miss the surge, although i think this is unlikely) If it's the ic ones then it tells you to leave the pee to cool to room temp before you do them. Some people have used them successfully without the cooling off period (which, let's face it, is a right pain in the arse to have to leave wee around to cool! ), but i got a sample bottle with a lid, filled it only a tiny bit with wee (sorry if tmi!) And then put the lid on and ran it under the cold tap for a min. Seemed to work. I found the +ve on the ic was very obvious, but i didn't know that til it came, so was squinting with earlier ones thinking 'maybe that's it'. They do take a bit of time to develop but less time when it's on the surge. Good luck!

Thank you march, that's brill. Yes, have got the ICs. Pots of wee sitting around to cool, here I come...