Recurrent Miscarriage Support Thread 19 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Good luck for your scan counting everything crossed x

I think you're right marchgirl I'm waiting for the rmc appointment as a sign things will get better I think. Or that at least I've got things I can do and maybe get some answers. Once I get that letter I'm hoping it'll feel more like a new start.
I'm also thinking that the nurse said after the testing's done (in about 6 weeks) then the baby's ashes get scattered at a local crematorium's baby garden and Im looking at that as a time when everything will feel like it's moving on too.

Minnie, I had 2 wks off with MC1 but was still running to the loos for a cry every so often. Have had 4 days off with MC 2 but only knew I was pg for 2 weeks this time. I think The counsell I had after MC 1 has helped me this time.

Your colleague who's only had a day of to mourn her father is either having an internal breakdown or had a terrible relationship with her father and secretly said her goodbyes years ago. Don't measure your grief or allow other people to measure it by their standards. You are feeling what you're feeling because you need to and you can't heal without going through it

All fingers crossed counting and bythesea.
minnie I am with you on the text thing. Had one yesterday from a pregnant colleague which started with 'hope u r ok'. I mean, a) no I'm not and b) at least bother to spell your platitudes properly. I am not replying to her, obviously.
flen your blog sounds very interesting. Any chance you could post a link please as I'd love to have a read. Thanks!

Counting I hope the scan today goes well, and the same tomorrow for bythe sea.

Minnie, if that were me I would be happy to lose her as a friend. Woe is her, cos of course she would rather swop places with you rather than worry about her live baby?!?! She needs a reality check.

Minnie can you pm everyone your friend's phone number? I'm sure we'd all like to sympathise with her morning sickness .

I really don't think I would ever be speaking again to anyone who sent me a message like that. I'd almost feel like replying 'well with any luck your baby will die too so you don't have to worry about it.' Because essentially that's what she's saying by her reply. Wow, between us we've got some insensitive friends haven't we?!

Hi ladies, I need some advice from the RMC hive mind please.

I've got my follow up scan tomorrow morning for MC 2. I had no sac showing last @ 5 wks, bleeding has just about stopped and got a bfn this morning, so I think they will just confirm that MC 2 is complete and me and DH are eager to try again. What questions should I be asking so I'm prepared if I MC again and can make sure I can get tested for the right things?

I'm a relative newbie to this thread, but I was referred for blood tests, all came back as normal apart from one of which tested positive which was for lupus anti coagulant so I need baby aspirin, progesterone and heparin to prevent miscarriage/still birth/premature births. Apparently it's one the few things that can be treated and most people end up with a baby, and i think I saw stats saying something like 20% of women may have this blood issue and not know about it and it can appear from nowhere. They also did thrombophylia screening which needed 3 tubes of blood, hbac1 to check for diabetes, some other clotting test, tsh, and cardiolipinabs? They are also going to do a hysteroscopy to rule out any physical issues with my uterus as have had EMCS/ELCS/ERPC.

I think my only other avenue would be the clinic at Coventry to check NK cells, and if positive I believe prednisone would be needed, oh and they do something called a scratch. I think that's all that is available, but someone else might be able to confirm if I've missed anything out!

Ps I have no idea re any homeopathic treatments, but I know quite a few people in here take them.

Brummie posted a list of questions this week before she went to her appointment if you trawl back which might help?

Hello everyone. Hope you are all ok today. Minnie that is shocking. And incredibly insensitive...

Counting and Bythesea good luck.

Ok, another complete mind fuck. I think I've started AF. I'm bleeding. But I ovulated yesterday. I don't understand!!!!!!

I had a positive ovulation test and now I am bleeding. Can you ovulate twice in one cycle?

Whilst the bleeding will have stopped by Monday I assume this now means I can't go to Coventry.

It could just be a bit of bleeding but not sure.

My body is utterly WTF

This will be quick because I'm in the car. The scan showed a pregnancy sack measuring 4/5 weeks. My dates indicate 6 weeks so it does not look at all good.
Thanks you all for your good luck messages. It's not impossible that it's still a pregnancy, just younger than we thought. But it doesn't seem very likely. I'm booked in for a re-scan in a fortnight. Meantime nature may take it's course. I'm still taking the progesterone as it's not over until it's over. But I think that could delay the bleeding is that right?

Oh counting. Hoping it's going to be ok. Thinking of you and fingers crossed xx

loopy those results appear to my non-expert eye to be quite helpful, eg you may have identified the cause and it has a treatment.

Oh brummie what is going on?

I don't know where i am now. My phased return to work ends next week and it was just starting to look like a success.dammit.

Thanks, brummie.

Oh counting, really sorry you're left in limbo. Such a difficult 2 weeks ahead, that's a really long time. Could you push for another scan in a week? Yes, the progesterone could delay bleeding if it comes to that. Mine didn't start till 2 days after i stopped it, but there is still hope. Lots of stories of people who measured small then caught up, so keeping everything crossed for you that this is what it is

Sorry for jumping on without reading back. I get the sense lots is going on.
We're in hospital tonight as Bertie has jaundice which needs light therapy. Feeling a bit of a failure, but hoping this will get better soon.

I should have some time to read back at least.

Sorry to hear about the jaundice tanny. It's nothing you've done wrong though. You've done am amazing job . Hope bertie is back to full health soon x

Oh counting - really hoping that things could still be ok. Keeping everything crossed for you. I would also push for a rescan in a week. Big big hugs to you.

brummie after my first mc I started using opks about day 20 as had been told not to expect af for 6 weeks. Anyway at 28 days I tested positive on an opk and promptly got af the next day so I think there may be some hormone change around af that it picks up. Never managed to get confirmation of this but did read someone had been told by clearblue that their opks are not calibrated for after ovulation and before af.

Grrrr just lost my reply.

Brummie I was going to write similar to sun. I know you can get a positive opk before AF as I've had it happen to me many times. It's something to do with a hormone shift. Although on the one hand it's bad news re. delaying Coventry, at least you are into a new cycle now so can get to Coventry at the right time this your testing will be more accurate re. lining.

Counting - so sorry you are left in limbo until your next scan. I think you are going to just have to try and think positively even though you must be screaming inside. I have read stories going both ways, positive and negative. It's such an early stage for accurate measurements. I assume you tracked OV and you definitely didn't ovulate late?

Tanny thinking of you darling. Must be horribly worrying but I think it does happen a lot so hopefully it will be very routine and you will have Bertie home with you quickly right as rain xxx

Oh Tanny thinking of you and little Bertie but you are most definitely not a failure - you are doing an amazing job.

Thanks ladies. The bleeding is very very light - in fact now when I've wiped it's nothing. Going to monitor overnight and see what happens.

Could be random spotting but if not, I'll delay Coventry

Grrrr!!!

Tanny, hope Bertie is home and well soon. Its nothing you've done. x
Brummie, could it be spotting from dildo-cam if they scanned you yesterday? Hope that's all it is.
AndCounting, sorry to hear about your scan. Hopefully it is wrong dates, but I understand how worrying it is. Hope you can get a quicker scan to lessen the time in limbo.

Minnie - thinking of you, and don't judge yourself by someobe else. She might have physically been in work, but she might have been fruits and hazlenuts! Or maybe she didn't really care for her dad?!

By the sea, thinking of you too - been there. Hard to even breath or sneeze i know. Deep breaths and happy thoughts xxx

Watching and waiting scan and coventry people (brummie) with bated breath!

'friend' at work made sure she didnt cross my path today and i stayed in my cave. I felt better for it. So sad, this lost friendship will forever be woven together with miscarrige 3. So much sadness. How do u go about getting counselling then?

counting sorry it wasn't conclusive but as others said, very early and a few days out could make a big difference, will keep everything crossed for you.
brummie sorry wtf cycle is still testing you.
tanny hugs. You'll be home soon and it won't be anything you have done.
freckle glad your 'friend' had the sense to stay away today. I am sorry you have this extra sadness to deal with.
loopy if you haven't already, maybe push tomorrow and see if they will do some blood tests now. Some people on here had them after mc2. I hope the scan is ok, I found those follow up ones really hard even though you know what to expect.

tanny sorry to hear that but it's v common and absolutely not your fault. Faith had 2 sessions under the lights, we have photos of her and her toy rabbit all masked up and sunbathing. I know it's crap being in hospital when you want to be home with your family, but Bertie will be fine.

Big hugs to anyone whose friends and family are being crap minnie sebs freckle some of those comments are jaw droppingly insensitive.

andcounting sorry your scan is not looking more positive. i hope the story is different next time ( and agree 2 weeks is a long time to wait) but we have all been there too often to offer false optimism. Will they tell you if you are on drug or placebo? Does being part of the trial mean you get the same TLC and definitely the treatment another time?

bythesea good luck tomorrow

brummie Mr W sounds great and goes on my list of RMC heroes. Hope the spotting settles so you can do Coventry this cycle.

barking good luck we are rooting for you.

sorry to whoever I have inevitably missed out, the thread gets ever faster!

counting how frustrating. And worrying. Again. I'm sorry the scan has left you in limbo. I hope its a mess up and a slow grower, but know where my thoughts would be. I don't know what to suggest with work other than you have to take care of yourself. Be kind to yourself. I would be wanting to hide. Could your phased working pattern be increased if you want to continue going in at the most?

Tanny you ain't done nothing wrong! Bertie is so lucky to have such a caring mum. Don't be too hard on yourself.