Recurrent Miscarriage Support Thread 19 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Yay! brummie that's great. Good to have something positive on the horizon. I'm going to consider it too once everything is (hopefully) back to normal and we've seen our rmc results.

loopy why do people feel it's ok to say things like that when they don't know you well. The day after I found out our baby died a local shopkeeper asked when we'd be having number two. DH had to take that one as I really wanted to say well actually our second go at number two has just died. What would they actually say then I wonder?!

sebs I've put on weight too (half a stone after the last MC in aug and then another 5 pounds this time) I'm disgusted at my body too and feel like I need to make a change. Just can't keep chocolate out of my mouth at the moment

Does anyone know what happens at 10 weeks with the placenta? I'm worried that I have some clotting problem that caused the placenta to fail. At our 10 weeks scan the baby's heartrate was high (200) and now I'm worried it was distressed because the placenta wasn't working properly. Do you think that could be it and maybe me just taking an aspirin would have saved it?! The baby only measured 10+3 so would have died soon after.

I hope I just made things better for miscarriage sufferers in my company...

Bumped into the PR director who is in kind of charge of the things that appear on the TV screens around the office. These are used for BBC news headlines, company and team news, charity bake sales and so on... and sometimes... baby bombs when you least expect it...

She was asking me to see a photo and said "I can even put it on the screen" and I said "no screens please, when you have had miscarriges you can control if you read an email but you can't control what you see on the screen" and she said it was good feedback...

So I hope they will stop those! especially as when they happen they come on rotation on the screens for a couple of days and unless you choose your desk carefully there is no escaping...

loopy unfortunately it is two cycles rather than 2 months. The reason they give is because of the risk of infection after mc and to make sure the lining is thick enough (as it can be thin post mc)
I'm going to take a chance and accidentally miscount mc as af1, and go after af2 (actually af1). I know this is a bit naughty but my cycles are long (32-38 days), so infection wise i don't think this will be an issue, particularly as it didn't get round to implanting much. and as long as my af is normal then i don't think this last mc will affect lining too much. After all, if i hadn't used frer i might never have known about it or is this just me trying to justify it to myself?!

Thanks tannyloo, I was aware of conflicting information about ttc but I guess I'm looking for a way to feel in charge of my body again. Oh well, back to the calorie watching on my mfp.

monten I get those pains too! Like twinges very low down in my pelvis. I also thought it meant I was pregnant, but I think it might mean I'm not! 7DPO ish is when I start to go mental too, that slide from positive to desperate. With the dog, we got him over the summer holidays (we both work in education) so did a lot of work to settle him (although in reality it took six months of intensive trying before the separation anxiety calmed). If we are out for more than 6 hours, we get him walked by a dog-walker. Because I am an outreach worker, I can often pop back and let him out at lunchtime.

March I would probably do the same but, once in your appt, I would come clean in an innocent kind of way so that they are clear on whether or not to include your stats in their research, which I presume requires some basic conditions (such as the 2AFs??). As I understand it the research is ongoing and all of our outcomes are part of it.
I may be talking rubbish though!

mimi, minnie, sebs and those talking about diets. I had put on half a stone too after the miscarriages last year. I went to a nutritionist who tested me and advised giving up wheat and dairy, which I have. My acupuncturist friend also advised low GI, which I am doing too. I've lost that half a stone since the start of January. Who knows if it will have an impact on ttc? I don't think I would have managed it in the first two months post mc, it would have felt like another demand, but it's ok now.

Good point me2, wouldn't want to jeopardise any results as there is precious little research as it is

I also went on a binge eating comfort eating phase after my miscarriages...

I actually then talked to my GP who sent me to an emotional eating workshop - but when that came along I was already 8w pregnant so had other incentives to eat better.

But as I have Gestational Diabetes (and had it last time) low GI, reducing carbs, cutting fruit juice it all helps... i still got GD but it's under control more...

Thanks girls, great info re. diets. First day today avoiding bread particularly and it's been interesting lol. For me it's laziness and habit. I've eaten a very restricted diet in the past do know I'm capable of sticking to it, it's just a case of new learning. Only reason I even thought to do it was the obvious one, getting bigger and bigger but yesterday I tucked into a bit of toast having hot really had lunch and I felt really hot and tired afterwards. It just feels like my body doesn't like it so let's see if I can keep it up.

Good luck Brummie sounds really positive

My bleeding seems to be quiet again so far today. I am intrigued what my HCG level is now and whether I might actually start a cycle once the bleeding has stopped. Will just have to wait and see and hope I see some EWCM at some point.

Hi Monten, it's our family dog, and as we're all living together at the moment my mum or dad are often in (wierd temporary living arrangements while we're in process of building a house!)
tannyLoo, the oddest thing just happened. On way to Tesco with my mum we passed a little dog. My mum said how pretty it was, I said it looked like a lamb. She said she'd also seen a Beddlington whippet cross which was also really pretty - co-incidence as I'd never heard of them before your post. Unless I'm just not up on the cool dogs of the day.
I'm living in kind of an annexe of my mum's house at the moment but she's just told me I might have to swap rooms with my sister in case she wants to have a baby - she currently lives in main house. As I said wierd living arrangements and I don't mind, just brought home to me that in my mum's mind I'm definitely done having kids - she knows I've had four miscarriages.

Shit. I'm so nervous. Have waited so long and invested so much emotion in this appointment. Hope we get some answers

barking good look for your app today.

brummie you're off to Coventry, yey!!

monten I have had those twingy, pulling feelings both when I'm pregnant and not. I think the first mc made ny womb more sensitive and I seem to feel more now. Which could be a bad thing as I'll be thinking I'm pg each time!

sebs your bleeding sounds like mine after mc1. It was so erratic, a few times I'd think it was stopping and nearly daring to wear a liner, then I'd be back on maternity pads. Hope it stops soon for you and your cycle gets back on track.

biscuits that must have been hard hearing that. Maybe she means because you'll be moved into your new house rather than have a baby there...?

I've had the opposite with eating, only ate for a couple of weeks after last mc because I had to (had a lot of shitty ready meals). And now I can't be bothered to eat properly (apart from tea 'dinner' when hubby is here). I just eat odd bits but unhealthy things, haven't touched any fruit for months. I should really sort it out and try and eat healthily.

Good luck brummie!!

Biscuits I am absolutely sure you're Mum wouldn't have intended to upset you but when we are uber sensitive to our situation the tiniest or most innocent of comments can be unintentionally painful. I would also have interpreted your Mum's comment badly and have noticed with my own family the dialogue has shifted now, where once there was hope now everyone is falling over themselves to make sure my only child has a close relationship with his cousins so he is not emotionally damaged I assume

Dropped DS off at his first half day at pre-school today. He just disappeared as he likes all the toys and activities, not bothered if Mummy is there or not. I walked back to the car and sobbed. I am such a fucking mess.

me2 I really hope it's implantation but sadly I seem to get it every month and for the last seven cycles I have not been pregnant!

I hope you get a reassuring answer from Kerri. If you're worried about your lining did it get looked at during your appointment? I know what you mean about a heavy AF - it's so counter-intuitive but i would really love a heavy period.

I have consulted dr Google who has give two possibilities for what it might be: either pain from the corpus luteum cyst that forms on ovary after ovulation (would make sense as I always ovulate from right side and I feel the tugging on my right side) or pain from the veins of the pelvis, which apparently swell under the influence of progesterone. They can become like varicose veins of the pelvis and sometimes will produce a throbbing pain, but which lasts throughout most of the last week of the cycle. This sounds like what i feel.

I really hope your appointment goes well brummie xxxxxxxx

sebs hugs for you! I know it doesn't feel like it but it really is a great thing he loves pre-school. It just shows what a great job you've done at making him a happy, confident, content little boy.

Monten, sounds miserable. Impressed by google analysis though.

I did make a big thing about my lining at my Coventry appointment. Prof Brosens seemed to think there is a link between less than optimal lining and poor AF, but when he scanned me he said it looked fine - thick enough. Where does all the lining go when it's shed then, if what comes out in AF is so paltry? arghhh

Thinking of you brummie. Hope the appt goes well. And well done for booking Coventry.

sebs my Ds sounds pretty similar. He doesn't look back when we drop him off and its usually me sobbing in the car because I can't compete with a room of toys!

biscuits love the Pinocchio line! Bless. Those long pointy noses do get everywhere. Our older dog has one as well even though he's really short legs. Think terrier or corgi x lurcher. Bizarre but adorable and short legs don't slow him down when he thinks deer are about

Good luck with the scan today barking

monten I live ridiculously close to work and come home to sort our pooches out. If I can't they come with me. If we couldn't get back I would ask family or pay a walker. Our dogs are harder work than Ds. I had huge problems with separation anxiety with my oldie and he spent over 5 years coming to work with me.

loopy hope the bleeding settles soon and you are able to take it easy a bit today. Easier said than done with young ones.

me2 I think I've read the biopsy can make AF early. Hope prof b helps.

So my world is a bit wonky right now. Keep spilling stuff and breaking things although technically it was the washing machine's spin that broke the wine glass. Hoping AF arrives in the next few days so we can TTC again post coventry. I'm the opposite to many it sounds on here and have problems remembering to eat esp when stressed or post mc. Saying that though I'm probably a healthier weight than I've been in ages.

Waves frantically remembering I should go get some lunch. Woops...

Oh but I do love my pooches and wouldn't... Couldn't... be without them or live an animal free life. Kind of made it sound like they were a pain. And they are when they steal ham. But they are amazeballs. A commitment just like everything in life x

Not much chance to rest here, nursery called and asked me to collect them early as they reckon ds2 has the runs. He seems absolutely fine and was fine all weekend so I'm not convinced. Think that means he won't be welcome there for his 5 hour session on Wednesday either.

Had an email from Monica today saying Mr Watts can arrange a hysteroscopy for me, to see what state my insides are in following the EMCS/ELCS/ERPC but not sure why, they say it has to be done at Kidderminster rather than at Worcester. Pain in the backside as it's a long way from here, Worcester is bad enough at 40-45 minutes. They have said I can choose to have it done under either local or GA. I can't remember who said they had had a hysteroscopy but can anyone who has had one please give me an idea as to what it's like, what it involves and whether you had local or GA? Keen to get it booked ASAP but just know so little about it.

Brummie I hope you have a good appointment with him, I can't fault all they have done and I've still not met the man! (Nor Monica!)

hey all, just to note that I had a post of mine above removed. I know it's a weird thing to do and not in the spirit of the thread but I suddenly worried something could be read the wrong way.

Hi all.

Well Mr Watts is just lovely. Really nice and really easy to talk to. Was great at explaining stuff and it was a proper chat rather than just telling me.

My tests results are absolutely clear which I suspected so he said it will be a try again. I don't need aspirin so I'm not to take that but he will be giving me heparin and progesterone.

He mentioned killer cells and endo scratch and that's when I mentioned Coventry. He was very encouraging about going to Coventry and said I would have to pay to have that at Worcester so if I wanted to see Prof Q then he was very happy for me to do that. He says he has suggested her to people before which is great. He said depending on results I may then get steroids.

He's booked me in for the hysteroscopy on 20th April under general anaesthetic at Kidderminster. Loopy he said they get done at Kidderminster because it's a day care unit. They don't do them at Worcester because too much danger of being cancelled due to lack of beds.

So we can't try until after the hysteroscopy which is disappointing - more time to wait but I feel like we are finally "in the system".

He's told me to let him know when my Coventry appt is. He said as id ovulated this morning I should be able to get in next week. I wasn't cheeky enough to say "actually already got it booked" so will just email him tomorrow.

But he was lovely and I came away feeling happy about being under his care.

brummie all sounds really hopeful! Could you please clarify the whole 'two cycles' vs 'two months thing? I'm wondering if we have to wait so long if we can go after 2 months etc etc? Thanks!