Recurrent Miscarriage Support Thread 18 - tests, treatment, trying again.

[bakingtins]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Sorry tiny, someone always gets missed out - great for you to have another chance to see baby tiny and know that shes growing well. Are they thinking of getting her out early, what with the big tummy, or will they just monitor?

longest how was GTT?

Whoops I shouldn't have asked counting . I can understand waiting til 7 wks though as you should be able to see much more then. X

littlebear sorry about all the due dates. I had 1 natural mc - it was a few days of spotting, then heavy bleeding and passing of products (over maybe couple of hours). Bled for about 2 weeks.

littlebear that's really tough. My sister has my next due date, which I thought was bad enough!

Glad all is well tiny. Am sure she is very cute with her round tummy - hope dr was reassuring. Will be exciting to get a date.

GTT wasn't too bad really. Look a bit like a junkie now as they always have trouble getting a decent vein for blood, but the drink didn't make me sick and I survived the fasting! Results on Monday I think.

Bit of a headf**k going on here. So I've been diagnosed with a Pregnancy of Unknown Location but my HCG levels, according to latest bloods taken yesterday, are rising. Had an internal scan yesterday and Doc said he couldn't find anything (ie no sac or anything else) and it's unlikely to be ectopic as I haven't had very heavy bleeding or pain. However he called me today to say that levels have risen by 500 since my last bloods were taken last Saturday and can I go back and have yet another scan tomorrow. This is my 3rd mc in a row and I just want to forget about it and move on. I've been bleeding for 8 days now - it started to taper off a couple of days ago but then came back, but no big clots passed or anything.

Has anyone else been in this situation? Why the rising levels and what the hell is going on?!

Meanwhile I've been to the GP to refer me for tests re RMC, so waiting to hear the outcome of that.

I've finally had to tell my boss as need to take time off work for the scans. She was v understanding though and told me to take the whole of tomorrow off, which I'm grateful for as I also have a horrid cold and feel like sh*te.

Any words of wisdom gratefully appreciated.....

PS should add that I was 6w when started to miscarry...

Woop woop for the very casually announced bfp counting! Sorry to hear about your granny. Its good you and Ds were able to spend some time with her though.

Ronconcoke I'm not able to comment on your situation but I know one of these lovely peeps will be able to soon. I don't know your work situation but can you take more time off? Can your gp sign you off? You don't need the hassle of work right now

AndCounting, congrats! Sorry to hear about your Granny, though. It's always hard.
Flen, that card is a shocker! Not only is it insensitive, it's also horrible. I can only imagine that the woman who sent it designed it whilst still on gas and air. Hope you're OK?
Ronconcoke, I've never experienced what you describe. Sorry it's all so inconclusive. I have heard of pregnancies that find their way out of the tubs and attach to the outside of the bowel etc? I hope they can get you sorted out soon.
Cloud good luck with the MRI (or should I say the inevitable BFP you will now get thanks to the Law of Sod?)
Waves to everyone!

Sorry again tiny, didn't mean to assume they would be thinking about getting baby out early - think I somehow read it into your post. Quite wrongly, reading back. My diabetic friend had the same and had her DD at 38 weeks (totally fine), despite them thinking for a while about an earlier exit, and then deciding no need.

Argh I need to be more careful with my posts..

Bootles, its me that's getting a scheduled early delivery due to placenta praevia. Perhaps the cause of confusion?

Tiny, glad scan went well.

Congrats Counting! That’s awesome news.

Great scan news ourday and tiny.

Glad you're doing okay twilight. Eat lots, sleep lots, watch loads of TV/films. Look after yourself.

Hope this is your month cloud. Am entering ov phase now so hoping I can emulate your and flen’s good work!

flen that card is a total shocker. So they love each other SO much that they just can’t stop being blessed with angels. Angels are literally raining down on them. How awful for the rest of us, who obviously just don’t love our husbands and partners quite enough to carry a baby to term. FFS. Even the ‘born at home’ is so insufferably smug – I’m surprised they didn’t also say ‘and exclusively breast fed from birth, in terry towelling nappies and dressed only in organic, hand spun lambswool – British of course’. And sorry Esmerelda ??? It must be hormones, surely??

Am sorry you’re going through such a head screw ronconcoke I’m afraid I have no experience what you’re going through. I hope someone comes along with some more experience.

roncon can't shed any light I'm afraid. Hope you're doing ok, sounds like a very difficult situation to be in. We're all here shoukd you need.

just I've kind of come down now I think, have cried and done a few rants. Made me feel so isolated all over again, partly because people IRL didn't really get my upset ("you're going to have to get used to it" etc). I am now able to see a) cringe-inducing sentiment and b) hideous design, not to mention Esmarelda, so think I am coming out the other side. Hate those things that come from nowhere and wobble me though, takes time to get back on top of feeling ok.

Ourday, excellent news on the good scan. The nt measurement looks very good.

Sorry for the bits and pieces posts, i can't keep track of this thread during the day, so it takes a while to catch up.

My stats: 35yrs dh 32 yrs. m/c at 6w4d july 2014. m/c 2 was confirmed at 8w4d, it was twin's and was confirmed as completed yday. My question, although this is only my second m/c the epu agreed to refer to consultant tho can't guarantee that they will offer me anything past that. GP is happy to run MOT tests in 6 weeks. I dont know when an appt will occur for consultant but was told to remind them in 4 weeks. I'm doing much better this time round and can imagine getting back on with trying. Would you try again or wait for appts? Also, if we did try again and fell pregnant before appts, is there anything I could ask them to do or check to prevent m/c - they have already offered early scans to reduce anxiety based on studies. Any thoughts appreciated.

roncon what a difficult situation to be in. So are they suggesting they can't see the sac anywhere, so possibly that things haven't developed as expected, but also that as the hcg is rising, there is some development? I'm guessing things are harder to see if there is bleeding (that's what they have told me in scans when bleeding) which can't help. Sorry, no words of wisdom...it sounds like they will have to keep checking your hcg and scanning you until its clear what's going on. I hope you can get more time off work x

Glad your scan was ok tiny did you settle on an eviction date?

roncon sorry you are in limbo. I think they expect to see a sac once levels are >1000, are yours there yet? I hope you get answers tomorrow.

counting congratulations! You win the prize for quietest BFP announcement ever. Hope your tic tacs do their stuff.

Sorry you're having such a rough time roncon. What a worrying and confusing thing to go through.
A friend of mine had a similar situation which they eventually diagnosed as ectopic but didn't really ever definitively find the embryo, they saw a small mass but couldn't confirm without surgery. She also had very Little bleeding and no pain at all. Perhaps because it was still a bit small.
She was unfortunate that her hcg just kept rising so she was offered either surgical removal or methotrexate (a drug used to shrink/remove the tissue). She chose the latter to avoid any damage to her tube.
I think in some cases they resolve themselves without treatment, so fingers crossed this is the case for you, but glad you are being monitored by the docs. I hope they are able to tell you more tomorrow x

counting congrats! fingers crossed for the magic tictacs!

brummie sorry about work colleague, it's just too much sometimes isn't it?

monten are you feeling any better?

Flen I'm speechless. It is just such bad taste in every way as already outlined by everyone else. Just yuck.

ourday right now you have a successful pregnancy, hang on to that .

Sorry to anyone I've missed, as usual it's so hard to keep up!!

I was asked today about a retreat we're going on at work. It's basically two days in a hotel where the company gets together to review the year and make plans for the next. It's management only on the first day, then we stay overnight. The boss's PA asked me today if I had any objections to sharing a room with A, B or C. The four of us will be in twin rooms. But person B will be almost 8 months pg, and I will be at the end of my IVF cycle and going absolutely insane wondering whether our last chance to be biological parents has worked. I do NOT want to share a hotel room with a woman who is 8 months pg. But I don't want to explain why to the PA as it's none of her business. So I had to just say no, don't mind... .

Had a positive day today. My Mum is being amazing with me. My family were a little dismissive of my previous miscarriages and quite insensitive with comments at times. But I think this one has genuinely shocked everyone and as a result people are being very gentle and not trying to push me into feeling better or bombard me with positive information. Mum has allowed me to talk and cry, talk and cry and I think I actually need company at the moment so I'm seeing her tomorrow too and we are taking DS out so he can get rid of some energy.

We also went and purchased a ring to go with my eternity ring that DP gave me for Valentine's day when he proposed. Unfortunately he had my ring handmade to the wrong size and to size it down was going to cost a fortune. So I thought I would see if I could get a complimentary ring to sit infront of it and hold it in place. We went to an independant jeweller and they were so amazing and eventually we found a silver ring that fits perfectly and it was about £50. I can now wear my eternity ring and it feels as though something that was originally given to me with such love and hope can finally fulfil it's destiny instead of sitting in a ring box in a drawer.

Yay for the bfp Counting and here's to a happy, healthy 8 months.

Flen - I've showed DH the announcement and he is equally incensed.

Ron - sorry you're finding yourself in such an uncertain time. It's horrid. I hope you get good news soon.

Monten - x

Yuk to that card, wtf is she thinking? Lovely flen so sorry it upset you but keep in your mind that she is a giant right on, arsehole. Vile and so smug. hope life kicks her down soon xxx

counting congrats on bfp, lovely news. Sorry to hear about your gran though :(

barking sending a huge hug. It sounds like you'll need to go off with stomach flu just before that course. There is no way I would be able to face that. As my mum would say BE KIND TO YOURSELF!

Glad you're getting lots of support at home sebs. A little tenderness from family and friends makes all the difference.

Guys, I can't tell you how much you've helped me to get through the stupid horridness of today after that stupid card. Thank you thank you thank you. You're all awesome.

monten, you nailed it and made me laugh out loud. And cat you are ace xx