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Recurrent Miscarriage Support Thread - Thread 17 - Tests, treatment and trying again

984 replies

Flower29 · 05/02/2015 12:28

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats Smile

OP posts:
Marchgirl · 17/02/2015 08:57

Sorry your having pains tanny. I had a lot of hip and sacro iliac pain with dd and it was really bad at the end. I slept with a pillow between my knees for the last 3 months as it was too painful to put my legs together when on my side. Maybe that would help at night?

loopy, it's so hard to know what to do. Do you know if the consultant will order any tests at your appointment? If so, i would wait, as you don't want that awful limbo of doing nothing different when you don't know if there is a problem that could be treated. I also agree that things like progesterone need to be in early to be any use. I also have long cycles so found it frustrating to wait, but at least then you are fully prepared.

Re Coventry, i had the same dilemma. I didn't want to wait any longer to go there (already waited 2 months for rmc appt) so decided we'd try one more time and go to Coventry if it didn't work. For me, that gamble didn't work out, as I'm now another mc down and having to start again waiting 3 months (mc month and two more) to go to Coventry although might go after 2 . I'm wishing I'd gone before we tried again. By now we'd have been to Coventry and would be back ttc with that checked, but then you just don't know, do you?! It could have worked out absolutely fine and I'd have been sitting here pregnant having saved myself 360 quid. Only you can know what's right for you. Sorry i can't be more help, it's a hard choice.

Justonemoretime · 17/02/2015 09:04

Fwiw, I am so glad we took the time out to go to Coventry. The money and the treatment plan was 100% worth it. It would have driven me mad to get pg again without a proper plan.

Flen · 17/02/2015 09:08

Will be thinking of you today just.

So nice to read about the bumper crop of scans yesterday! Gives me a smiley, hopeful feeling.

Thinking of you too tanny, exciting!

I am CD14 today and feeling pretty good. Glad this ov is over half term, so much more relaxing!

mrsdiddly how much cider vinegar does your friend say to have? I've used a pessary and cream and thought it had gone, but it seems to be lingering.

Marchgirl · 17/02/2015 09:32

Glad things are more relaxed this month flen. Keeping my fingers crossed for you! Hope the cider vinegar works and that things clear up soon

longestlurkerever · 17/02/2015 09:54

Tanny is there any help you can get with childcare? Maybe call in a favour or see if there's a club that can take him? Dd enjoyed holiday club yesterday - phew!

Tiny, Just, sorry if I am being dim and missed it but did we make a plan for this week? Is it tomorrow?

Justonemoretime · 17/02/2015 10:02

Longest, I think there was a half plan. I'm around but totally skint (been doing some sums... scary...).

longestlurkerever · 17/02/2015 10:15

Just I think we were only thinking of pret, but is the train fare prohibitive?

Justonemoretime · 17/02/2015 10:17

Yeah, I'm in zone 9 Sad

TinyTear · 17/02/2015 10:25

Maybe we postpone it for another time...

I am SWAMPED at work and will probably just take short lunches this week... have so much to do before maternity leave...

Justonemoretime · 17/02/2015 10:27

I'm happy with that, then I can pair it with something else in London and make the most of the train fare. But it may be babies not bumps if we leave it too long!!! :)

longestlurkerever · 17/02/2015 10:31

Coolio, no problem. Hope work stress and money worries ease soon.

TinyTear · 17/02/2015 10:33

Babies and not bumps would be LOVELY!

Summer in the Heath... You can get to Euston and then get the Northern Line or a bus to Hampstead (being selfish me as that would be really handy Grin)

Loopyaboutmy2boys · 17/02/2015 11:15

March, sorry re your latest MC. Sounds similar timing, 2 months between my last MC and the consultant appointment. Re tests, I am not sure if there will be much more he can do but guess you all might have a better idea re that?! I had 6 blood tests last week, so if the other 3 come back ok then I think (based on what the nurse at the epau had said) that Mr Watts would probably want to look inside me/ my uterus with a camera (hysteroscopy I think??). Which I appreciate can't be done if I am pregnant, but then I doubt he will be able to just take a look when I see him in March so then it's another wait for another appointment, and then I have no idea how long for any results to be discussed. Struggling to shake the slight hope that if I manage to get a sticky BFP then it might be irrelevant?..I have no idea if progesterone or anything else would help me, she didn't seem to put much value on the benefit of people trying it. I just wish I knew what had caused the mc's. It could be unexplained and just bad eggs/a trisomy etc, or it could be something hormonal and I need progesterone etc, or there is something more physically wrong with my uterus as a result of 2 cs's and the ERPC. What test is it that tells you that you need progesterone? The cost of Coventry isn't an issue, I guess I'm just impatient and it's the thought of waiting in the system for months not feeling like I'm actually doing anything and not ttc.

Justonemoretime · 17/02/2015 11:31

Loopy, re results from a hysteroscopy, in my experience (I've had 2), they go in ready to correct anything that needs correcting on the day. For me, the first time it was a specialist referral and 2 weeks of hrt to kick start lining and hormones (following botched erpc), the second they diagnosed and removed a septum and put in two coils and gave me a month of hrt to heal it up. I'm sure you won't need that, but my point is, they will do one procedure and fix what needs fixing there and then rather than have a follow up appointment then a second, corrective procedure. They'll consent you for whatever they think you'll need and then respond to what they find while you're under. Hope that helps.

TinyTear · 17/02/2015 11:33

but sometimes waiting can be worth it... I used the forced waits before Coventry and before st mary's to start running, do zumba, try and get fitter, get counselling, and stuff like that...

and i am a big Coventry pompom waver... St Mary's didn't do anything for me as they found nothing so said bye bye and just gave me extra scans at 6, 8 and 10w and that was it... fortunately that one was a successful pregnancy...

i felt more supported by Coventry...

Brummiegirl15 · 17/02/2015 13:11

Hi Loopy if it helps my appt with Mr Watts is on Monday so I will defo report back what I asked / he said...

I have no idea what his protocol will be. Speaking to my sis who used to work under him as a registrar, apparently he does prescribe progesterone so I'm hopeful but she didn't mention anything else so who knows!!!

But I do know how you feel and as March said it's yet more waiting .

So if I get sent on my merry way with nothing more than "try again" we've already decided we 'll go straight to Coventry and try there. Rather than try again, potentially lose it and then be set back yet another 3 months before going to Coventry.

Will defo let you know how I get on Monday. Need to think about my questions! Did you see one of the Julie's in the EPAU? They are wonderful and were so good to me when we realised mc 3 was happening. Sad times made a little bit more easier.

Good luck today Just - we need to add to the hat trick.

Tanny sorry to be excited by you feeling uncomfortable but mini Tanny could be on the way!!!

Had meeting today and all I could stare at was colleagues bump just peeping up over the table

tannyLoo · 17/02/2015 13:56

Sat in soft play (cat, you were right!) and trying stay awake on a sofa...

Loopy, no one can tell you when to try again. Only you know how much waiting you can do, or how many trys you have left. After my 5th consecutive MC in just over a year I decided I needed to cross everything off my list and throw myself into testing and repairing and healing before giving it one last go, so I did wait, had acupuncture, gave up the job I hated, and went to Coventry. Was so scary to get back to TTC after that, but glad I did all that. I am 38 weeks and ready to pop. It has been totally shattering to go through it all, but am nearly there.

Good luck with it all.

Justonemoretime · 17/02/2015 16:09

Back from scan. Baby was fine (it has kidneys, and they are fine). I was asleep but soon woke up when the sonographer started to poke at it! All growth normal and on track. The placenta still very low, however, and the consultant has officially diagnosed placenta previa. They'll re-scan at 32 weeks but apparently it is so low it would have to shift about 7cm to get out of the way as it is completely covering the cervix at the moment. So we've had the EDD brought forward to 36 weeks (end of May) in anticipation of a planned sunroof exit... and I need to go straight to the labour ward if there is even the tiniest bit of spotting. Another thing to worry about... main thing is, baby is fine (it's mum that's the problem...!).

tannyLoo · 17/02/2015 16:13

Knew baby would be fine! And PP is not a problem with monitoring and sunroof plan... Yay x

Justonemoretime · 17/02/2015 16:21

It was asleep! I'm not taking that much of a relaxed and casual attitude to things!! Blush.
Thanks for the reassurance, Tanny. How are you doing? Glad you got to the soft play. Hope it gave you a chance to have a sit down?

tannyLoo · 17/02/2015 16:32

We knew what you meant! I could sleep through many things but not a scan Grin

I'm ok. We were there for nearly four hours! I found a sofa which helped...

I'm off to acupuncture in a minute. She worked miracles on my hip last time, so I hope she can do something again to ease it. She's also starting the induction treatment, but I've gone from thinking it'll be any minute to thinking it'll never happen so we might still be here in three weeks...

bythesea82 · 17/02/2015 16:47

Yey just baby just and a full set of kidneys Wink
Agree with tanny good that they'll monitor you but sure it'll be fine with a plan and May seems quite soon!!

tanny hope the acupuncture helps. You deserve a reward for that long in soft play!

bythesea82 · 17/02/2015 16:48

Please add punctuation to my post as you see fit Blush

longestlurkerever · 17/02/2015 17:11

Ooh just my edd is 30 May. We could be having babies at the same time! Glad all is well and you have a plan to deal with the pp.x

twilightstruggle · 17/02/2015 17:19

Oh just that's great news. And glad they're monitoring the pp and have a plan in place. What a lovely few days we've had - let's hope it continues!

After complaining about my lack of symptoms today I have thrown up on myself in the car en route to work and had (tmi) green poo. Is this (the green) usual/worrying?!