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Miscarriage/pregnancy loss

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Recurrent Miscarriage Support Thread - Thread 17 - Tests, treatment and trying again

984 replies

Flower29 · 05/02/2015 12:28

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats Smile

OP posts:
longestlurkerever · 13/02/2015 12:28

Ourday I first heard the hb with a doppler at 14 weeks and that took ages to find so please don't worry. Take one day at a time till the 26th. Tyap!

ourdaywillcome1983 · 13/02/2015 13:53

Thank you - thats good to hear, i will leave it in the drawer for longer. Thank goodness i dont have access to any form of scanning equipment, i'd be a nightmare.

Brummiegirl15 · 13/02/2015 14:08

Oh ourday big hugs. As others said - you are so nearly past the the danger point. You can do this!!!

Interesting to see what other people are saying about NHS protocol and just being told their tests are clear and to try again.

That is my fear ( and probably where the fear of being dismissed comes from) in that I'll just be sent on my way.

The thought of trying for 4th time with nothing terrifies me. But interesting that progesterone / heparin was prescribed when asked for.

I took 75mg of aspirin this time and it did bugger all so will defo ask for more.

Waves to everyone. Hope you are all ok. That the poorly ones are keeping warm.

I'm another who's DP gets stroppy and shirty when he's upset. It's a bit better now but I struggled with DTD last night - my mind was racing and I just couldn't relax and then all I could think was " oh god, don't let this be an issue" which of course doesn't help!!!

Anyway planning a nice chilled valentines weekend, despite seeing MIL on Sunday. I admit I've avoided seeing her because she'll be all OTT about whether I'm ok and I'm worried I'll fall apart. Not seen her since before mc which is very unfair on DP. Unlike seeing my parents all the time.

Off to see Fifty shades of shite tomorrow!!!! Hugs to you all and hoping for a peaceful weekend Flowers

Seekingmiracles · 13/02/2015 14:11

Hello Ladies,
I'm a returning mumsnetter who had to take a break from it at the end of last year. I do recognise some names. I was under a different nm but I feel it's too associated with bad news so I'm back under a new name. I was EnglishGirlsReturned.
Anyway for those of you who aren't familiar with my TTC hell here's the low down...
TTC #1
MC1: Dec13 5weeks
MC2: Blighted ovum discovered at 6weeks, ERPC at 10weeks. June 14
CP October 14
Had initial nhs consultation dec 14. Full thrombophilia screening done - all negative. Follow up appointment and scan booked for March 11th.
I'm also booked for a private consultation with Dr Shehata at the Miscarriage clinic in April.
I'm convinced there is some kind of immunology issue, for which the nhs don't test.
Have any of you seen him?

Sorry to jump in and be all me me me. It's a shit journey to be on and I'm sorry you're all here too. Any way look forward to getting to know you all and if I can give any advice I will. Smile

Catlover2014 · 13/02/2015 14:26

Welcome to the feed seeking. Sorry to hear of all you've been through, you have come to the best place as the ladies on here are knowledgable and supportive! Afraid I don't know much about immunology but I'm sure someone on here will be able to advice on that.

ourdaywillcome1983 · 13/02/2015 14:26

Thanks Brummie I hope i can do this too. I am one of the people who was told to go and try again with no protocol, then asked for progesterone and herparin/fragmin - he said yes to prog only. I then emailed him at 5W pregnant and told him something graphic relating to MC3 which id forgotten to say in my consultation and asked a 2nd time and got the go ahead for fragmin. So i was a bit of a pest. Nothing was offered before i asked and i was already on 5mg folic acid anyway. Oh and i also tried the low dose aspirin with MC3. Have a lovely valentines.

Flower29 · 13/02/2015 14:27

This reply has been deleted

Message withdrawn at poster's request.

Catlover2014 · 13/02/2015 14:29

ourday step away from the Doppler, those things can drive you mad and I agree with the others that you're unlikely to hear anything before 16 weeks.

Hugs to barking and brummie even the best relationships can be tested with mc and ttc.

Flower29 · 13/02/2015 14:33

Like fifty shades of shite brummie! I started reading the book and only got about a 1/3 through as it was a bit boring (apart from the sex bits obvs) Although Jamie dornan isn't bad eye candy so will probably see the film.

Welcome back seeking, let's hope this year is your year!

OP posts:
Flen · 13/02/2015 14:35

longest and cat I had exactly that thought - will the stuff from the pessary get in the way of the sperm?! Or harm it?! In any case, I did a pessary last night so keeping my fingers crossed for it sorting out ready for SMEP.

Welcome seeking, sorry to hear what you've been through. This thread is a wealth of information and I'm sure someone will be able to tell you about Dr Shehata.

flower that sounds really hard. It amazes me how insensitive people are, especially those who are family it seems to me!

ourdaywillcome1983 · 13/02/2015 14:41

flower your SIL sounds totally selfish and i have the same kind. I think shes totally thoughtless, some pre-warning wouldnt have made it any easier but at least it would have shown some consideration from her part - feeling angry for you and sending you hugs Angry
cat doppler will be going in the loft :) wish i could leave my anxiety up there with it.

Catlover2014 · 13/02/2015 15:17

Glad to hear it ourday. Know what you mean about the anxiety though. It's my 20 week scan on Monday and I have started to look on google at all the awful things that can be found. Don't know why I do it to myself but after all I've been through I just cannot believe there could be a happy outcome for me and dh. X

Brummiegirl15 · 13/02/2015 15:17

Seeking I remember you under your previous name from TTC after mc board. Big hugs xx

Ourday I fully intend to be a pest. I'm a salesperson so I need to sell like my life depends on it...

Need to convince Mr Consultant for a protocol that doesn't involve sod all

Marchgirl · 13/02/2015 15:29

Welcome back seeking. Really hope you have success this year.

Big hugs ourday. Such a worrying, difficult time but you're doing so well. Hope your 12wk scan gives you a bit of peace of mind. Stay away from the doppler just now!

Girlie, my consultant put me on progesterone 400mg twice daily. I have still to receive a reply to the email I sent her 3 weeks ago asking for heparin, but it's not something she normally prescribes unless clotting diagnosis. Just feel like telling her to go duck herself at the moment after her complete lack of care over the last week. So much for the letter that said they'd be happy to support me through any future pregnancy. so I'll revise my previous post saying I felt everyone was generally caring. Not this consultant. Feeling very bitter about her.

Survived the zoo. Just about. Pregnancy passed in a public toilet in the car park Sad.

Just feel so angry about everything today. Can't wait for the day to end.

ourdaywillcome1983 · 13/02/2015 15:44

Cat this is my thinking to a T. As soon as the happiness of making it to 10 weeks sank in i started to think about how many people then miscarried, i was then tempted to google and find stories. you echo my feelings exactly, i just cannot believe that things will go well because of the past. Your 20W scan will be fine - will you find out what youre having?!

brummie i think on thread 15 you said you were a Key Account Manager in sales? I am too! So yes, helps us be a total pest. Its the only way.

thanks for the hugs march, no more doppling or googling for me.

Thank you all for being there for me today, i should have turned to you wwhen i first started struggling x

ourdaywillcome1983 · 13/02/2015 15:45

Oh march i missed the last line of your post, im so sorry. Are you home now? MASSIVE hugs to you x

Seekingmiracles · 13/02/2015 15:50

Thanks for the welcome girls.
March - big hugs. It's very easy to get angry. I seem to sway from inconsolably upset to fiercely angry these days. Especially when it seems the world and his wife seems to have no problem at all! I was fb baby bombed twice yesterday!!

So what seems to be the norm at first nhs consultation? I was given progesterone to take as soon as I had a positive hpt.that's all. Was left feeling very angry that more tests weren't being done straight away. Almost like I'd qualify for more tests when I had more mcs.

Have any of you read Dr Beers book - is your body baby friendly? It's fascinating. Scary but enlightening

Boozle80 · 13/02/2015 16:00

Oh March. I've just read back. That's so so shit. Sending you massive hugs xx

Catlover2014 · 13/02/2015 16:04

march just read your post. God I'm sorry, it's so cruel. Thinking of you xxx

Catlover2014 · 13/02/2015 16:07

ourday yes we will ask to know the sex if all is ok. I think it's going to be a boy but I'll be happy so long as he/she is healthy. When's your next scan? X

tannyLoo · 13/02/2015 16:14

Oh march that has made me feel unbelievably sad. So sorry Thanks

ourdaywillcome1983 · 13/02/2015 16:29

cat my next one is on the 26th, glad you don't have long to wait now but I bet it feels like it's been a long time coming. What makes you think boy? I think this one is a boy but the only reason I think that is dh is one of 3 boys and also because his sperm results said 'very fast' which makes me think all he's got is male sperm! X

girliesaints · 13/02/2015 17:06

Oh March, biggest hug ever coming your way. Hope Mr March looks after you over the weekend x

bakingtins · 13/02/2015 17:25

Massive hugs march hope you got home ok.

welcome seeking and hope the change of name brings a change of fortunes. Most of us here who have investigated immune issues have been to Coventry to see Profs Quenby & Brosens, but there is a long running 'pred thread' on the conception board with a lot of patients of the London immunology doctors. I had high NK cells diagnosed in Coventry and had a successful pregnancy on pred, heparin and progesterone.

Catlover2014 · 13/02/2015 17:29

our how scientific of you hehe. I'm not sure why I think a boy, just a hunch. My hubby thinks it's a boy too. I'll be over the moon whatever we're having so it doesn't matter. X