Recurrent Miscarriage Support Thread - Thread 17 - Tests, treatment and trying again

[Flower29]

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats

Struggling to keep up at the moment... Really busy both at and outside work, it just never seems to stop.

March So so sorry, how devastating. It never gets any easier, does it... Hope that you have lots of support from your DH/family/friends. June seems a long way away, but it's only 3 months - a long time for ttc, I know, but do you think that maybe a break might help?

twilight Sorry about the less than optimal scan, but to be honest, your sonographer doesn't sound very capable!
Where abouts is the bleed? They saw one at my first scan last time, but weren't too concerned. It had disappeared by the time I had the next scan 2 weeks later, so try not to worry too much (easier said than done). Will you be getting another scan?

baking Glad to hear that you're starting to get some responses - long may it last!

Sorry for not more name-checking!

I had some very unexpected good news yesterday - we have private health insurance through DH's work, and even though they have it plastered all over their T&C that they do not cover anything pregnancy-related, I thought I'd ask them if there is any chance they might help with the MRI scan, given that it is not directly related to pregnancy. Lo and behold - they will! I spoke to someone from their Ob/Gyn department, and it is no problem at all! And not only that, as I've had 4 mcs in a row, they will also cover any mc-related investigations that I want to get done! All they need is a list of my mcs with dates from my GP. I was so gobsmacked that I forgot to ask if they might re-fund me the consultant that I saw 2 weeks ago, so need to find out. So glad I asked, as from their information booklet, it really looks as if they won't touch you with a barge pole for anything pg-related. Who would have thought...

So - my question now is: Which tests could I still do? I've had all the usual, although I want a record of all rests and results to check.

Also - does anyone know if you can have an MRI when pg? I am now wondering/worrying if I need to hold of with ttc this month, so that I can get that out of the way...

twilight - really sorry to hear scan wasn't more reassuring - hugs to you. It sounds a bit strange though - how can you have measured 8 last week and 7 a week later? Sounds like she should have done tv scan so it was comparable. Could you ask to be rescanned by someone else as the result doesn't make sense? If not, glad to hear that you don't have to wait too long until the next one. x

I agree with cat. Sorry it wasn't as reassuring as it could have been. A hb has to be good though. DD weirdly measured a week behind what I would have put her at all the way through - never did get to the bottom of it but she was born a healthy 8lb9oz. Grr to dismissive sonographers. I have found a disproportionate number to be quite abrupt. Maybe they get stressed about having to give bad news?

I think bleeding would only be bad if the hb was not there?

Good to hear you can meet tiny. Which day would be best for you?

baking chuckling re fanny-cam It shall forever more be known as this to me!

Just another thought twilight - could you phone st Mary's and ask them if they can see you sooner to put your mind at rest? Its appalling that you were left with such confusing results and not scanned internally. Don't these people realise how bloody scary scans are when you are used to hearing bad news at them in the past. Ggrrrrrrrrr!!!!

Thanks for the support folks. I'm going to hold tight a bit and assume a combination of tilted uterus, uncaring/rushed sonographer and lack of transvaginal scan. I have to get better at asserting myself at these things - why did I not insist on a transvaginal?! Tit.

Great news Cloud!

twilight if she was rushed and uncaring she probably would have tried to insist she hadn't got it wrong even if you had insisted on an internal scan, and you'd be left even more worried. I second the suggestion to try St Mary's if you still feel worried.

Great stuff cloud. I am afraid I don't know the answer to your qs though!

twilight I'm going to join the expressions of disbelief at you not being given a dildocam. Especially after you mentioned the difference in size from the last scan. Surely if something is potentially amiss (with her scanning, not you) then you defer to the more detailed alternative?!
I'm going to breezily state that I don't see anything to worry about other than her competence. Easy for me to say though, I know . HB is good news. Shrinkage is not possible therefore should be dismissed as her lack of skills. So there.

Loving fanny-cam too

Twilight not your fault she was crap!!! I'd call St. Mary's and ask if they'll see you sooner though. Can't harm to ask.

Great news cloud!!! Get everything you can have under the sun. Tell the private hospital you have funding they will make a list too haha. I had Allergiries, intolerance, blood levels, celiac, hormone levels, scans. dna, the works!!!

Yes ditto everything said. Without a dildocam how could she tell? Silly woman. I think you should stand down red alert, it sounds like a sonographer in need of lunch rather than anything more sinister.

Cloud that's great news. I have no idea what to ask for, but Cat's list sounds like a good start...

joining at the being appalled they didn't do dildo cam!

i think you got a crap sonographer!!1

Twilight try not to feel bad for not asserting yourself. It is frustrating, but unfortunately it's not all within our control how others behave or treat us. Hope you stay strong before next scan.

That's really good news Cloud! Keep meaning to call my company health care to find out what's covered myself.

Had my 2nd counselling session yesterday, finding it such a godsend to have that support. Realised just what a knock I've taken to my confidence. Slowly healing though and becoming more patient in planning to TTC probably May after Coventry. If AF ever arrives again that is. 4 weeks 4 days since ERPC and no sign. Last time I was waiting a very mean GP advised it could take up to 3 months, turned out I was pregnant again. Being much more careful this time though.

Baking so glad it seems you're making some progress, I hope the new tests turn up something. Where's Dr House when you need him.

Yes - should have added twilight - for all my outrage and suggestions of demanding another scan, I am actually rubbish at being assertive in these situations.

I think because many of the health care professionals I have seen on this journey have been very matter of fact - 'miscarriages are incredibly common', 'there's nothing you can do about it', 'you just have to try again' etc, i usually end up feeling like I am a neurotic, mad woman when I talk to them and (try) to demand tests / explanations etc that makes some sense of the situation, and far too often I just shut up and accept what they say. And then wished I hadn't afterwards. x

Sorry your scan was somewhat inconclusive twilight. I think the main conclusion we can draw is that this sonographer is crap at her job. I echo what everyone else had said. Tilted pelvis will make a difference. Hb seen at this stage is most positive. And why on earth didn't she use dildo cam if there was any doubt at all (and by 'doubt', I mean "oo, a week's worth of baby that was measured only last week has magically disappeared! "). Stupid woman. Hand holding for the difficult week this is going to be. Hoping the bleeding is nothing serious either x

Tiny and Longest, I don't think I can face being so far from home, otherwise I would have really loved to meet up.

Next time maybe...

twilight sorry it wasn't a good experience today. Agree with others, she sounds like she did a crap job, really hoping time doesn't pass too slowly till the next scan.

jady glad your session was good and you're finding it's helping. It's a relief when the ball of knotted brain wool untangles a little.

march have been thinking of you today, hugs

Thread moves fast!
twilight your scan sounds like a nightmare. Last thing you need. Hope you can hurry another one for reassurance.

march I'd discount the cp for the purposes of Coventry. Presume it hasn't sent your hormones as cycle too off. I must say, having decided to go to Coventry and therefore not ttc, I am feeling massively liberated, which I wasn't expecting. The tww is such a drain. (I don't quite trust myself not to jump on dh when I see the ov signs tho)

baking glad consultant has you in hand once more.

And cloud great news about insurance.

Waves to everyone else.

Next time with babies Tanny

Made me well up. Definitely x

twilight sorry your scan has caused so much confusion. Hand holding for the next week..I hope it doesn't drag too unbearably.

march, hope you are coping. Coventry sounds like a good plan.
me2 Coventry for you too then - good to have a plan.

cloud I think MRI's are ok in pregnancy

tiny can't believe how far along you are! When does mat leave start? Am away next week so can't meet with you and longest this time...one day though. For some reason the thought of you Tanny, literally ready to drop a sprog any day, going to London for a meet up, makes me smile..I picture you with longest and tiny fussing around and praying that baby doesn't decide to start arriving that day. Defo think you need to stay near home!

Morning lovely ladies, as ever, so much has happened over past few days on here can't possibly name check everyone, so hand holding everyone that's needs it, hugs to anyone that feeling ill and warming the blankets for Tanny x

Can I ask a question? I finally have my long await consultant appointment week to get blood results and have pelvic scan. Assuming it shows nothing wrong, what protocols if any were people given by the nhs?

starting to get a bit nervous as for 6 months been on an in forced ban, so haven't had to deal with the prospect of being back on the ttc wagon/ mc danger zone stress. Starting to wonder if I can cope with the stress.

March, sorry to hear about your scan experience yesterday. Sounds like you need a repeat scan to set your mind at ease. Hope the days pass quickly until you get your next appointment. I would be inclined to complain, especially if you paid privately.

So tired today! Roll on half term! A meet up sounds like a plan. I have my scan on Tuesday but let me know what your plans are and I'd like to join you.

Morning girlie. Our tests showed nothing wrong and our consultant has prescribed 75mg aspirin from BFP and weekly scans. I am also very stressy about TTC so you will have a buddy!

I'm coming up to my fertile time and I've got thrush. BRILL. Any tips?!

twilight I agree with what others have said, sounds like inept sonography. Hope the time passes quickly til your next scan. And I have the same difficulty with being assertive - can be so hard to do in those vulnerable situations.