Recurrent Miscarriage Support thread 14 - tests, treatment, trying again

[Justonemoretime]

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats :)

March & bythesea - sorry to hear you've both been baby bombed. Keep your chins up x

Hugs march and bythesea. It's rough, isn't it? I hope you have a bit of a break from it over Christmas at least.

I am at dm's now. Long journey amd dh ddoesn't drive so totally knackered but dd has been quite funny and I had fun wedding dress shopping for dsis. Think we found one for her.

Hope you all have peaceful Christmases.

Sorry for absence, have been at my parents with very little reception.

great news from Bootles and longest.

Sorry any newbies find yourselves here but it is the most informative and supportive place.

Got results from Coventry yesterday -nk cells 1.1% so def not raised at all. Trying not to flip out until have had telephone consultation this evening - for the Coventry grads, you've had success on just the progesterone/heparin mix haven't you?
(clutches at straws)

We are about to embark on the annual pilgrimage to God's own county for Christmas. I wanted to say a big thank you to all of you for your support in my RMC journey. I hope you all have a happy and peaceful Christmas and I'm looking forward to answers, new treatments and happy endings for you all in 2015.

Hi daisy I think in fact the majority of the Coventry grads have not had NK issues, and there are several pregnancies doing v well on the heparin/progesterone protocol. Hopefully you'll be next.

Hi Daisy, my nk results were 1.76, so well within 'normal' range. I've been on the Coventry protocol of 400mg cyclogest twice daily (was 200 but increased after light spotting at 5 wks) and heparin injections which I stopped last week. I think this protocol works wonders, and hopefully it will for you, too.
I'd like to echo Baking's thanks and good wishes for Christmas and 2015 to all; you ladies are truly a lifeline. xx

Me too everyone. Don't know what I would have done without all you lovely ladies through this dark time. Let's hope there is lots more light at the end of the tunnel for us all next year and keep the good luck going for those of us still to conceive!

Yeahh bootles more fantastic scan news. Hope you have a more relaxed festive season. march that was quite a spectacular baby own-bomb. There will be a place for you in heaven I am sure and good training for when the shoe is on the other foot.

I am finding it odd telling people. People are aware that I have had one mc, but only a few know this is pregnancy number 4. Wierdly I am feeling the urge to be more open about previous losses than I ever have been. I don't want it to feel like a dirty secret. But it seems people don't want to know, no one asks any questions. Hey ho.
Symptom wise I am in whole new territory. Had mild freak out when I suddenly stopped peeing twice a night and when I couldn't feel bump anymore. After reading a bit more I think it is bump moving up out of the pelvis. Feels like a loooong time til next scan.

I'm back, a bit, still feeling ever so wobbly but over the initial shock. Thank you for your thoughts.

My dad was a chronic alcoholic who died from advanced heart disease after years of abuse. We had an on/off relationship, and I hadn't seen him for ten years. I think this is what is hitting me the hardest, that he thought I didn't love him, and that I pushed him away.

At the moment it's making me quite low and I'm not sleeping well. The funeral isn't until the new year, so still lots to go through before then.

The pregnancy is fine though, and I am 30 weeks today. Lots of kicks and stretches, lots of slight motion sickness and braxton hicks, and have started to waddle.

There's been loads to catch up on here, and it's lovely to see so many healthy pregnancies getting established, and some treatment plans ready for the new year. Next year is going to be a blinder!

I have been on such a ridiculous journey this last year, and without your support, advice and understanding it would have been bleak and lonely indeed. Thank you all from the bottom of my heart. x

Tanny I am sorry. That must be so hard. I had an easy relationship with my dad so I miss him terribly, but I do think in some ways it makes it easier that I don't feel there was lots left unsaid. Your dad will know that deep down you loved him. He was the one who let you down, not the other way round. Alcoholism is a cruel disease that takes over everything. Take care and hugs xx

((hugs)) Tanny, that's hard. Thinking of you. xx

Thinking of you tanny. Such a mix of emotions over your dad. Glad the little un is doing so well though. Hope you have a lovely peaceful Christmas waddling around getting ready for his/her arrival

I'm sorry Tanny, that must be so difficult for you. Am thinking of you.

I realise that I've dipped in and out of here, I struggle to keep my thinking about my mcs to a reasonable proportion of my time, but I'm so grateful to you all for answering my questions. Thank you all so much.

Hugs Tanny.
X

Big hugs Tanny xxxx

tanny that sounds incredibly tough. I can't imagine what whirlwind of emotions you are experiencing right now. Alcoholism is such a needy and destructive disease. Distance is the only way to protect you and yours from a determined alcoholic. Incredibly hard, but absolutely necessary, so please do not beat yourself up. I have seen first hand that unless they are ready and willing to help themselves, alcoholics are impossible to help. There is nothing you could have done that would have changed this heart breaking outcome. Take care of yourself and bump. Xx

So sorry for you tanny

Tanny - that must be incredibly hard Take care of yourself and bump. Alcoholism is a cruel disease for everyone involved.

I'm now at my mum's in Switzerland for Christmas, we'll be here until Saturday. I'm grumpy and would have loved to just stay at home, not seeing anyone, but no chance. Already told DH that next year I'd like to have Christmas just with us, no other family (he wasn't overly keen, but I have a year to work on that ). Not looking forward to it all, it'll be a lay low and grind your teeth effort to get through. I'm really not feeling sociable these days...

cloud forced sociableness (I may have made that word up) is such an effort. Start working on dh now and hopefully next year will be a Christmas the way you want it. Hope it all goes as ok as it can. Hugs for all the crappy bits of the festive season, and roll on a new year x

Tanny that's rough. I'm so sorry you are going through this. The disease of alcoholism is so destructive and terribly sad. I echo what belle and the others say. I hope you manage to find some peace, and remember we are to hear to listen about non-rmc issues too. Look after you and bump x

Sorry to those who have been baby bombed - it's awful when you are suddenly caught out.

daisy hope phone consult went well. As per prof Brosens, only about 1 in 10 who pass through his clinic actually have high NK cells. Mine were high so am on pred, but plenty of others were normal, with pg's progressing well.

belle the symptoms will change as you go along, if you get too stressed though, try and get another scan somehow.

I am stressing as symptoms dipped again - only had scan last Friday but the relief really doesn't last long. I have a hospital consultant appointment tomorrow (gp insisted on booking me in v early due to my age and history - I'm only 9+5) and already feel tired at the thought of explaining Coventry and begging for clexane as I am nearly out.

In the meantime, I wish you all a peaceful Christmas, and am so grateful that I found this thread. No-one but no-one understands like you you guys do. Thank you for all the support and encouragement. Hugs to all xx

Hi all thanks for your comments. I have a rescan booked for tomorrow morning to see if the sac has passed I'm hoping it has as if not they want to admit me boxing to remove it.
I'm finding it all very confusing trying to clutch at straws as to why this has happened i have been pregnant 6 times 3 births 3 mc 1st mc in between 1st and 2nd then 2 mc this year. I fell pregnant when my youngest was 5 months all my births have been ceasarens so I th maybe mc was down to my body not being ready then it took 7 months to conceive again. I have an appointment booked with my GP to see if any tests can be done I was told by the gp I saw when this mc started that they would refer me if they do we will see. X

Bootles - Prof Quenby told me last night that she'd send out a private prescription for the clexane if I was running out and my GP wouldn't prescribe. Might save you fighting with consultant?

Thanks daisy yes that's my back up plan. I have enough to get me through Christmas, so will see what consultant says today and e-mail Coventry if I have no luck. Hope your phone consultation was ok.

sj hope the scan goes as ok as it can today and you are saved an admission. Push for your referral. If you do still need an erpc, ask for them to send the products off for chromosomal testing.

Cloud, I hope that the family visit and the who Christmas hoopla isn't as stressful as you fear. A quiet one next year sounds good. But, of course, hold on the the thought that a lot can change in a year.
Sj, sorry that you're still going through it. Hope that everything is resolved soon and without too much more time in limbo. I hope that this yealds some answers and enables you to move forward in 2015.
Bootles, wishing you well. Hope you are able to relax and get scans and meds sorted without too much stress.
Belle, I'm feeling the limbo, too. I am still weeing a few times in the night and last night I even felt quote nauseous (yay!), but, apart from looking like I might have eaten all the pies, it does all feel a bit unreal. The next scan in February seems a very long time away, and even the 16 week midwife appointment with the possibility of the hb/no hb doppler is making my head spin - I want to hear, but what if she can't find it? I would lose the plot! I'm 14 weeks today. I keep getting totally paranoid that stopping the heparin has made all my blood vessels in the placenta close up (Tanny, Tiny and Baking are all proof that this doesn't happen), and I'm still weaning myself off the progesterone (now down to 200mg once a day), and I do need to stop that totally in the next day or two. I think we'll see where we can get a private scan just to keep me sane!

Thanks everyone. Belle your comments particularly resonated with me. My DH is also an alcoholic and I could see myself going the same way, so we gave up booze 4.5 years ago. My struggles with my dad shaped who I am and how I relate to people, and it means that DH and I have a very honest relationship around this.

I guess I wish I could have had the same honesty with my dad, but it has to work both ways, and his relationship with drink was the most important one in his life, and he couldn't be honest about that.

It is good to talk it through, but I'll try not to dominate the thread, I promise...

Just I had similar fears about giving up the clexane, but I think you must stop needing it much earlier than12 weeks in reality. I begged an extra scan from my consultant at 15 weeks, at which he started talking birth plans and caused my head to explode!

My fear was 16 weeks, I think getting that extra reassurance around then helped...

Can you post a link to your latest blog entries? I've been enjoying my morning reads!

cloud enforced festivities suck, but a lot can change in a year, you could be in a totally different headspace this time next year. I had a massive family christmas last year, all the grandkids together. I coped by taking on all the cooking duties, which kept me busy and being quite tiddly a lot of the time, but not pissed - never pissed. Also made sure I got some time to myself every day. I think it was the first christmas in years that I managed not to weep and I suprised myself by having a nice time. Hope you find a good coping strategy, and if not at least you have ready access to good chocolate.

just so its not just me. Friday I could barely walk five minutes without needing a wee. Could also feel hard bump just above pubis. By Sunday, need to wee all the time gone and bump much harder to find. Boobs also nowhere near as sore and not nearly so knackered. I have read up and this is classic entrance into second trimester, but I too think I will be heading for a private scan for a bit of reassurance.
bootles symptoms wax and wane, TYAP! It is good that you are seeing a consultant so early. If you have trouble getting the prescription, point them to this thread, I think it should be compulsory reading for all rmc consultants.

sj sorry you are having such a crappy time, tough to deal with at the best of times, must be especially hard at christmas. I hope you get a break and the sac had passed. I know it is hard not to look for reasons, but at least 50% of women in our position never find a cause. The good news is you have three children so there is no reason to think you can't have more, you might just need a little help along the way. Be good to yourself.