Recurrent Miscarriage Support - tests, treatment, trying again - thread 10

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

I know I'm not really here, but our genetic test results came back today. I'm fine, but DH has a "slight rearrangement" of one of his chromosomes. They say they don't know what the significance is and whether it is the cause of our mcs. We're being referred for genetic counselling.

Am due to ov on Monday. Have been BDing until last night.

What to do?

In my heart I think we just carry on, as we have one DC together and we can't alter DH's genes.

Any advice would be great. And then I'll bugger off again...

Oh Tanny, my DJ's cousin has something similar. Depending on the nature of the translocation it can be compatible or incompatible with life. Since your Dh is alive, things are looking positive! In terms of TTC, it can either be passed on and the baby be a carrier like your dh, or you will mc, or it won't be passed on at all. As I understand it, the risk of mc is slightly raised, but not massively so. Ivf with preimplantation genetic diagnosis may be an option as they can screen embryos to make sure a carrier isn't implemented. I hope you're ok and this is something now to work with, and not too much of a blow? How is you dh taking the news? Hugs!

DHs cousin* grr predicted text

DH is out collecting his kids at the moment and doesn't know yet. He'll be gutted to think it might be because of this. I know how he feels.

He has 3 kids in total, and no mcs in his past until these.

I ought to get on with housework and stop whittling!

Thanks just x

Oh Tanny not what you were expecting, is it? I was discussing this with my DH as we are expecting our results next week ( long story, was done a year ago but we never got them, after 300 phone calls on Thu found out they were actually done but never sent to us!!!) Did you get your's in post?
From what I understand from reading about it it's exactly what Just said. As you already have 1 child together it clearly can work even with your DH genetic condition.
As you are already TTC this month I would just carry on.
Did they tell you how long you'll wait for your appointment? Also if you don't mind can I ask if it was your local RMC who did the test for you?

Thanks sw and I'm very about your wait! It's taken just over a month to get the results. Yes, it was my local gynae consultant (the closest we have to RMC here) who ordered the test. The letter came from him and was a bit vague tbh, so not the full results. No indication how long we'll have to wait for an appt, but my gynae has offered for us to call him.

DH got home an hour ago and is digesting the news. As I predicted, he's feeling terrible thinking it could be to do with him. He also wants to know if the kids have got this too. His dad was a cystic fibrosis carrier, but he tested negative for that.

I guess we'll talk more as and when we have time...

Hi Tanny - I haven't been in your situation but surely your having gad a successful pg before should count for something.

Surprised that in the letter they have no commented on the implications of this and their suggested plan of action.

I would just carry on with TTC until you have more definitive info.

Odd they didn't give any advice on the letter...
At least you have your boy so know it can happen...

Prof B told me (paraphrasing here) that there are so many thing that need to work for a successful pregnancy that sometimes it's hard to know exactly what to do... So you may still have the perfect baby to come even with this issue...

Not making much sense sorry... But hoping it will all be OK

Hi everyone, I am more of a lurker usually, though did post on thread 9 when I was feeling really low.

My story:
Homelander, 40, 2yo dd conceived easily and easy pregnancy. 3 MMC June 2013 11.5 weeks blighted ovum, Sept 2013 9 weeks twin blighted ovum (tho one stopped growing earlier than the other), Feb 2014 17 weeks little boy. PM found nothing wrong with him. Had to have 3 ERPCs following this MMC due to retained products - have a bicornuate uterus which didn't help with this apparently.

Have been referred to the RMC at the Royal Free in London, they have taken bloods (not sure what they are testing for), have a scan booked with them on Monday and they want bloods from days 1-3 of cycle.

As well as that have seen a haematologist (I was under her for my daughters pregnancy due to mum and sister having DVTs) who sadly is having fertility issues herself and prescribed me 5mg folic acid and vit D and calcium. She also prescribed me clexane for when I next get bfp as I had one positive test for one of the APS indicators when pregnant with my daughter (I think!) but all tests have been normal since.

Have struggled emotionally the last couple of months, but am starting to feel better (apart from dreading my little boy's due date at the end of July) and thinking about ttc once the tests from the RMC come back and they give me the go ahead.

My bf suggested that I should just give up and be happy with my dd, but as I am sure you all understand, I couldn't give up with at least trying while under the RMC, and given i can get pregnant and have carried a successful pregnancy, I can't even think about giving up yet. But, am really scared about losing another baby and how I would cope.

Sorry, this has turned into a bit of an essay!

Also wanted to say bakingtins many many congratulations, so lovely to see nice news on this thread!

Tiny you do make sense!

Homelander welcome. Yours sounds a painful journey. So sorry for the loss of your boy. This is the best thread, I hope you stick around. I'm not really here, but had a panic today.

Ok. I'm going to pootle off again. We're going to talk a bit more but I think we know we're still going to give it a go. Thanks you lovely lot x

Thanks Tanny, good luck and hope to see you back with some positive news.
x

Hi homelander
So sorry for your losses.

I live near the royal free. Go there to the epu usually. Also have a 2yo...

Hope you get some answers soon.

Hi Ladies,

Hoping you can give me some advice please. I have had 3 miscarriages and testing completed at our local RMC all came back normal so have been referred to St Mary's I recieved a phone call today saying my appointment was tomorrow!

They said they would email a pack through but nothing has arrived - is there anything I wouldnt know when I arrive that I should check before hand or anything I should take with me?

Thanks....

Maybe ask your mum if you can if she had any probs, and take any paper work you have. And get there early if you can so you can fill in their very long form on the day. Good luck! X

Thanks just, I've looked out all my notes, it's really sad looking through it all and I've already got both our parents history. thanks for the heads up about being there early - I'm intrigued about the size of this form!

Its big. :) good luck. Xx

the form was Huuuuge, if i remember it well.
Good luck!

in other news i went to my GP yesterday to ask for help as I think I am having some sort of depression. don't even know if it might be PND triggered by the miscarriages and being around the June due date from number 4...

I am soooo lucky with this particular GP and he is lovely and I came out with a referral to some counselling (I said I would rather not do the anti-ds at the moment as still breastfeeding my 2yo and that is at least one of the few things that are working) a leaflet to self refer to physio (as my knee has been on and off dodgy which prevents me from running and increases me feeling blah) and an appointment in 3 weeks to see hopw things are going...

Hooray for nice doctors!

Good luck cavamonster form was 11 pages, they asked about your / your dh's siblings as well.
Let us know how it went.
Tiny it feels good to be listened to and hope the councelling will help a lot.
I sometimes feel like I need some as well but whenever I go to GP feeling low they recheck my thyroid /iron levels and it is always low - as soon as I take higher dose I feel better again. If you have issues with any of those could they recheck?
I am not saying you don't need the councelling just sharing my experience

london I do have underactive thyroid and also was reviewing my bloods yesterday and my dose is now ok (I have to alternate 125mcg with 150mcg of thyroxine, had to buy one of those old lady medicine boxes with a different slot for each day of the week)

Perfect Tiny you've got a really good GP by the sound of it.

I know...

it's actually a joke as apparently the first time I saw him after a series of useless GPs I mentioned to my husband that he was really good and I loved him...

I don't remember this (as I was pregnant and recently diagnosed with Gestational Diabetes so my head was a bit of a mess) but apparently I said he was good looking or words to that effect... and my lovely husband hasn't let me forget it and keeps taking the piss...

although he is cute! but he also looks younger than me!!

Hi guys. I'm still lurking around here as well as the pg after mc board, but I just wanted to pop in in the hope of some reassurance / hand holding.

I'm coming up to the stage I was at last time when my tests went faint and I lost it.

I'm trying my best to stay positive but its so very hard. Things seem to be progressing well, I'm just terrified that its gona go wrong. The aspirin and progesterone should help shouldn't they?

I have an early scan at EPU booked for 2 weeks time at just past 6 weeks. Trying to make it to that point.

Hi all.
Just a quick message. I've been really useless at keeping up on the thread.

I just wanted to say a huge congratulations to baking tins on the birth of your little girl Faith. Enjoy every second if her!!

Hopefully I will one day get my happy like you.
I'm currently going through mc number 6 and have an appt with prof Brosens next Friday.
Last month I even saw my little sac and yolk but it wasn't meant to be.
Hopefully I'll find some answers and be able to give my ds a baby sibling soon. The first was due in about 5 weeks so it would be lovely to properly pregnant by then, but we'll see.

Anyway, hope the rest of you are all well xx

Welcome to cava and welcome back to homelander

cava let us know how you get on at St Mary's. If they do't come up with anything new it's worth looking into NK cells.

seasalt sorry you are having a (understandable) wobble. Try to stay positive, today you are pregnant.

choccy so sorry to hear you are miscarrying again, that's really shit. Will this be your first visit to Prof B or have you seen him before?

No baking tins I've only seen prof Quenby. Have you seen him? :)