Recurrent Miscarriage Support - tests, treatment, trying again - thread 10

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

Wow lovely uplifting news Tanny!!

Can I ask about clexane injections. Mine always has a tiny drop on the needle when I pull the cap off. Does that mean I am not getting the full dose?

Thanks all..gosh so many names on here I am having trouble keeping up.

cat nice to know your hubby turned out well as an only child! Why oh why do they leave voice mails like that at the end of the day? Did you have genetic karyotype tests on you and your husband? Yes due dates are hard aren't they..good you have a new fertility cycle coming up.

longest let's try and put DC's possible near misses out our heads..but v hard I know. Sorry to hear you are having a bad day..hope the clinic answers your questions properly, and by the way I think they are ALWAYS running late.

tiny and jbrd good luck with counselling - positive step. Oh, and when I told OH about this potential loss, I realised he actually didn't know HOW MANY we had lost..hopeless, just hopeless!

triple and coco I got bfp on CD 25..thing that worries me the most is a 5mm embryo with no heartbeat -who knows. Tomorrow I may know more.

Tanny everything everything crossed for you

I think this is the longest limbo so far..but really I feel sure its a mc, too many bad signs. Tomorrow surely there will be no more limbo...

Waves all, am on my phone so I'll be brief. So pleased Tanny, good luck on Friday. Glad prof Brosens is taking good care of you.
Cat, hope you get some good news tomorrow.
Wishing bfps for those that wants and BFNs for those that needs. May this be our month!

bootles I will be thinking of you tomorrow and hope you get better news that you're expecting. Make sure you message us when you know.

Yeah it's a karyotype blood test. DH and I both had it. Bit scared it's going to be bad news but at least we might finally know why we can't seem to get a baby on board.

X

Thanks just feeling very nervous but what will be will be.
I hope you're feeling a little brighter this evening. Know you're having a difficult time at the moment. X

Triple, Not sure about the claxane, but I have heard that before and feeling was its normal. How did you get your prescription for it? Not needed yet, but my gp says she can't prescribe it without sending me to a haemotologist first. Anyone whose had it, how did you get it? Thanks

Good luck tomorrow, bootle. Thinking of you.
Thanks, cat, I'm ok. Looking forward to the hols! :)

Bootle am really hoping it's not what you expect. So, so horrible being in the limbo land.

Cat we had an odd result on DH's genetic tests, but still don't know what it is. Bloody buggers leaving a message like that!

Coco hoping you're still in this month.

Triple I get a drop sometimes on the end of the syringe. I wipe it off on the cap before injecting as I think a drop can contribute to bruising. I wouldn't worry about losing too much.

Just bloody Nora! What a fuss! Can you get Coventry to prescribe it, and then your GP can continue it? I was prescribed it by my local (mostly pretty inept) consultant and I stockpiled it!

Thanks for the support the other day folks. Had first session of counselling and found it really helpful. Going back next week. Feel positive that it'll help. Recommend to anyone going through a bad patch. Can't recall who said they'd managed to open the email but got no further, but my advice is just be really brief, in the email, leave a contact number and you can go in to more depth on the phone.

Bootles - I'm really sorry your in stressful limbo land. I very much hope you get positive news tomorrow.

Cat - good luck for tomorrow. Very much hope its good news for you.

Just - what a palaver. Is it because he/she is worried about the dose or what? Has your consultant advised re. dose or just said 'clexane'? Sorry if you've said and I've missed it. If its vague would gp feel reassured if your consultant faxed a specific treatment plan?

Tanny - glad things are going well. Fab news.

Can't scroll to last page so just waving to everyone else!

Its postcode lottery NHS rules in the claxane :( I have a letter and dose, but not a prescription. I'm going to try to get a letter from a haemotologist if I can, to smooth things over.
Glad the counselling went well twilight.
Good luck today Bootle.

Thanks Tanny. You are right about wiping it off as it has stung a lot when I have tried to inject with the drop still on the needle and I definitely have bruises now.

Just - I have got my prescription from St Mary's but I am seeing them as a private patient, so maybe they are more willing to give the clexane?

Thanks triple, the problem I've got (one of!) is that st Mary's haven't recommended claxane, but Coventry has. So I don't think st Marys would write it up for me. I suppose Coventry would but their prescriptions need to be collected at their hospital pharmacy only (just to make it interesting). Hence the need to involve my GP. Look at me, talking like I might actually get pregnant anytime soon! I've been thinking about the mind/body connection and going for some hypnotherapy... Bullshit or not, do we think?

It's maddening how different places prescribe different treatments. Assume your GP won't help just?

Thinking of you today bootle

Spoken to the lovely lady in genetics and everything in that 'area' is normal for me and DH. She'd called me because I sounded anxious last time we spoke on the phone. People can be very kind!

XxX

Probably bullshit, but I do think settling and calming helps, so could have it's uses...

Cat, good! One more thing ticked off the list.

I might try to persuade DH to come camping this weekend. Am feeling so sick in our disgusting cess pit of a house, that I need air to breathe!

Cat - wonderful news. Yay to the nhs for being compassionate to our anxiety!

Just - better to have it sorted in advance. Imagine how stressful it'd be trying to sort it if you were pregnant.

I think the mind-body connection is really important.. Just think of the research that says simply being monitored and reassured in early pregnancy improves outcomes. I watched a really interesting programme on the placebo effect (Horizon I think) which was fascinating and really has me hooked on the idea that positivity can help which makes my current low mood slightly concerning!

I'm sure everyone on this thread are seasoned TTC-ers but just for anyone who hasn't tried - grapefruit juice and evening primrose oil are excellent for ewcm. Can't take advantage sadly as have at Mary's appointment in a few weeks (I got my letter through - yay) and they are very firm that they do not want you pitching up bfp!.

Tanny - totally go camping. Love camping!

Thinking of you Bootle.

Just - that is annoying that you need to trek up to Coventry for the prescription. They can't fax it to your local pharmacy? I think It's good to get it sorted now - rather than stress over it when bfp comes!! I hope it is round the corner.

Ladies - I need some handholding. 5 weeks today and have started cramping in similar style to previous mcs (and in fact even earlier than previous mcs). Very stressed I will not make it to a successful 6 wk scan as always. If this protocol does not work then I wonder what will.

Sorry about the me me post.

Just popping in to offer a hand hold for bootle

Cat that's lovely!

Just I'm currently reading 'The Mind Body Fertility Connection' by James Schwartz. It's very convincing. Covers the diagnosis of unexplained infertility as well as the effects of miscarriage, talking about subconscious blocks the mind can put on the body due to stresses that we may not be aware of. It strongly recommends hypnotherapy, as well as positive affirmations. There are lots of case studies in there that make interesting reading.

cross post triple I'm so sorry you're having this stress. Remember that cramping is normal, it doesn't necessarily mean it'll have the same outcome as previously. Try and do anything that works for you to relax and distract yourself. I know that's the hardest thing to do though.

tanny Thanks for the update, excellent news, hope that it continues this way! I second the need to get out, however, camping is my idea of a personal hell But def drag your DH out, if that's what you'd like to do!

triple So sorry that you're having the extra worry! Knowing all too well that it won't work, I'm not going to say 'Relax', but try to take comfort in the fact this the cramping might just as well be a very normal pregnancy symptom! When is your scan? Hope the knicker-checking will not be too frantic

I sent the email enquiring about counselling off yesterday and got a very lovely reply the same day . My first session will be the week after next...
Those of you who have had/are having counselling sessions - what did you tell your work? The latest time slot they can offer me is 4pm, so I will have to ask work to be allowed to leave early on one day for the next month and a half. Did you disclose it was for counselling? Or just keep it vague and say 'medical treatment/therapy'? I'm not too keen on the whole department knowing that I am having counselling...

Triple, Barking is right... It can be a perfectly normal part of early pg. With my first ds, I thought I couldn't possibly be pg as I had all these period pains. Turned out I was 5.5 weeks gone!

Still, here to hand hold through the wobbles.

Bootle fingers and toes crossed x

Thanks barking. Yes I am trying to carry on as normal. I can't do much at this stage. I am thinking of going to EPU tomorrow but it's far too early - I don't think I would be able to get any reassurance apart from that it's an intrauterine pg rather than ectopic or anything like that. I guess that would be helpful.
How is your spotting? It may be worth it to be rescanned and for the to confirm mc is complete. But I went thru similar spotting and continues strong lines on frer - so I know the anxiety.

Bottles - hope you had more clarity today.

Thanks tanny and jbrd - yes I do hope it's just normal part of the pg business. But as we all know here it's hard not to stress. My scan is next wed - so a whole week to go. Aaaaargh.

Tanny good luck to you for Friday.

JBrd so pleased you have some counselling arranged. I have found it amazing for unpacking feelings and then packing them up again nice and tightly and after your loss I'm sure it'll help.

I told work about counselling, but they were complete bastards and tried to make me take it out of work time. Ffs. It is up to you, but they can insist on seeing appointment letters etc if they doubt that you're having medical appointments. If you trust your line manager, it might be better to be open with them and then fudge it with other colleagues.

I have to say that since becoming self employed my manager has been amazingly understanding, but my employee is a right slacker!

JBrd - I second Tanny in that if you've a supportive manager I'd confide in him/her and just come up with a vague cover story for everyone else. Does your work have an occupational health dept you could approach? I'm sure they'd be understanding and non-judgy given what you've been through so recently?

Shocked at your work though Tanny. They'd be the first to be annoyed if you didn't get support and then ended going on long-term sick with depression/stress. Dicks!

Triple - sorry you're having so much stress. Pg after miscarriages is just awful. And that's without the stress of cramps. Hugs.