Active discussions

Please or to access all these features

Talk
Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Support - tests, treatment, trying again - thread 10

988 replies

bakingtins · 02/06/2014 08:07

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

OP posts:
Justonemoretime · 06/07/2014 20:20

Hi Twilight, and welcome. Sorry you find yourself here.
Quite a few of us on here have been to St Mary's, so I'm sure you'll get lots of advice here.
There will be a VERY long form to fill in in advance, and they will take A LOT of your blood and they will scan you. They may book you in for a surgery spot if you need one (I had a septum removed), and they will give you dates for follow up appointments. You'll get a follow up blood test appointment about 5-6 weeks later and results and a treatment plan about 6 weeks after that. They'll ask you not to ttc during this process.
It's 50/50 that they'll find a cause (and they'll tell you that this is good news), but they'll offer to monitor your next pregnancy.
They're lovely, but they're busy, so take a book.
It may be worth taking any paperwork you have from your previous mcs, as they might want to take notes or copies of results etc.
Good luck! You have youth on your side! :)

Justonemoretime · 06/07/2014 20:21

Great day at our Tommy's fundraiser!

Recurrent Miscarriage Support - tests, treatment, trying again - thread 10
Catlover2014 · 06/07/2014 20:23

Welcome twilight.

I am quite new on here too but everyone is lovely and I am sure they will welcome here :)

So sorry for all you've been through and for the losses you've suffered. I can only imagine how hard it must have been. Also sorry you've been in a dark place :( Have you had any tests yet?

I've not got any experience of St Mary's but I know there are ladies on here who will be able to share with you on that front.

XX

Catlover2014 · 06/07/2014 20:28

Well done just! Hope you're not too tired :) x

Original poster
bakingtins · 06/07/2014 20:48

Fab news tanny and looking good just ! How much money did you raise in the end?
Welcome twilight and good luck for your appointment at St M's. It is a positive step to be trying to find some answers after so much sadness.

Had a fab weekend at Le Grand Depart and took Faith for her first trip onto Ilkley Moor bahtat. Wishing everyone a good week - anyone got anything significant this week?

OP posts:
Catlover2014 · 06/07/2014 20:53

Awwww that must have been lovely baking. If I were there I'd be looking into her pram with a broody smile hehe. Do you live up that way? Id love to move to Yorkshire or the Peaks one day.

I see my consultant on Wednesday with a view to starting fertility treatment again in about two weeks.

XX

Justonemoretime · 06/07/2014 21:00

Sounds lovely, Baking.
Tanny, I'm on the case ;)
Catlover, good luck with your next set of treatment.
We raised £315 yesterday, and are now over £1000 overall for Tommy's. :)

tannyLoo · 06/07/2014 21:24

Welcome Twilight, I've seen my local consultant and had nk cell testing at Coventry, but would have loved to go to St Mary's too. From what others have said, it really is an amazingly supportive and dedicated service. Being listened to and taken seriously is so important, isn't it?

Tomorrow my mum is coming over to have ds for the day while I work. She comes over every Monday, so nothing unusual. The trouble is that I don't want her to know yet about the pg. She doesn't get it, wanting another one, and thinks I'm just being greedy, contributing to food shortages and over population. She has pursed her lips every time I've told her, and it's really pissed me off! I plan to tell her if/when it becomes more viable.

I'm sick as a dog on all this medication for most of the morning, so I'm really going to have to get my act together to appear normal, and think up excuses for not having any coffee (not because it smells like tar!)

Hey ho!

tannyLoo · 06/07/2014 21:25

Just Grin

Justonemoretime · 06/07/2014 22:00

Thanks, Tanny, glad to hear you're feeling symptomy ;) sorry to hear your mum isn't being very supportive about your TTC efforts. X

Catlover2014 · 07/07/2014 06:52

tanny does she know about your mcs? Maybe she just worries about you but doesn't want to say so? Glad to hear you're feeling very pregnant :) xxx

tannyLoo · 07/07/2014 07:28

Thanks Cat, yes, she does know. After the first one she said it was probably for the best, as I was starting a new job! The second one was a bit dramatic as I had a massive bleed and ended up in hospital, so she was just worried about me. The third, fourth and fifth have all just been a bit of a relief, and she's just been worried about my health. Now she thinks it will get in the way of starting my own business, which it will. Honestly, she's just a bit harsh around this...

Triplespin · 07/07/2014 08:30

Hi everyone. I need some advice.

It's a bfp for me this morning. However I am now in a muddle as I have two consultants with differing views.

  1. St. Mary's advised me to start clexane and so I need to contact the and they will repeat my TEG. They don't blv in steroids.
  1. Mr.S who has recommended steroids which I am already taking but he doesn't agree with the st Mary TEG test and doesn't want me to take clexane.

What should I do? I want to take both the clexane and steroids. Should I contact st Mary's and also be upfront about the steroids? They may advise against it. I hate conflicts!! Should I say same to Mr S that I would like to take clexane and I hope that he will support me in my wish.

I don't want to have another mc. I really think this is my last chance before I give up and really want to give it my best shot.

TinyTear · 07/07/2014 09:21

Wow triple, that is a dilemma...

When I was in St Mary's they also told me not to take clexane/heparin... but I think Prof B wants me on it if I get a BFP... so it's tough when you get conflicting answers...

I also repeated my TEG in st Mary's when i got pregnant.
As I then had a successful pregnancy, I can't go back to them now...

Not agreeing seems like such a wooly reason... ask them if there are medical reasons NOT to and see what they say...

Good luck! I am testing tomorrow, so maybe me you and tanny can get nervous together...

But in a way I am half hoping it will take me one more month... not sure I am in the state of mind to chase Coventry for results... i'd rather have a strategy in place on BFP

tannyLoo · 07/07/2014 11:17

Triple congratulations on your BFP, and sorry you have this dilemma. I agree with Tiny, it seems really important to me to have the support of professionals behind you, so I think you will do best if you have buy-in from one of them. This is not about research or egos, it's about you having the best chance for a healthy pg.

I am happy I've been put on both, as it feels a bit more belt and braces, and this is my last shot (I think).

Good luck with it, and power to your elbow...

Tiny, you will cope with either outcome, but I'm still crossing fingers for tomorrow!

Triplespin · 07/07/2014 13:07

Thank you ladies. Yes I will be upfront with them as to why I shouldn't go for the steroid and clexane combination. If it's just a case of egos clashing then I will definitely not accept it. I also want to through everything at it this time around.

Tanny - I definitely do like prof b approach. How are you keeping otherwise? Are it nearly 5 weeks now?

Tiny - will you test tomorrow? It is definitely easier having a treatment plan in place before bfp, but I am sure they will help speed things up like they have done for tanny.

Catlover2014 · 07/07/2014 13:43

Congrats triple this is exciting news!!! Hope you can get a consensus from both sides. I agree with Tanny and Tiny, push and get them to leave their egos to one side. Let you know how you get on :) xxx

Original poster
bakingtins · 07/07/2014 15:43

Congratulations triple I'd go for both. That's the Coventry protocol and I reckon the truth is at the moment none of them know for sure what works for an individual. You need to feel you've given it your best shot and if either party is offended that's too bad.

Good luck tiny

It would be great to have all the T s pregnant together!

OP posts:
Justonemoretime · 07/07/2014 16:32

Congratulations. Triple, I'd go for both, too. Although the claxene would interfere with the teg, so maybe start it afterwards? I hate that they disagree with each other, it really isn't helpful! I'll be really interested to know how you get on, as I'll have a st Mary's vs Coventry showdown if I ever get a bfp. Good luck! X

Triplespin · 07/07/2014 17:52

Thanks Just. Lol @showdown! I am going to insist on both and try to standup for myself - something I don't do often.

Indeed fx for all the Ts. Thanks baking for your advice. At what stage did you start clexane?

I have has mild cramping all day and hoping it's not a bad start already. I am trying to stay positive. I have a bunch of appointments coming up (if I ever get that far) eg intralipids, 6wk scan, TEG repeat and I am not sure how to manage them with work alongside. I am considering telling work so at least if things don't work out they are aware (they already know of my previous mcs). DH is firmly against it and telling me to make up a string of stories.

So what do my level-headed mumsnet friends say?

TinyTear · 07/07/2014 18:03

I would and will tell work. Boss also knows of previous MCs...

Catlover2014 · 07/07/2014 18:35

I would tell work too. If it's pregnancy related they have to give you time off. Just easier that way!

Good luck with your meds and 1st scan. I have everything crossed for you :)

Xx

tannyLoo · 07/07/2014 19:00

Me too Triple, that way you can work with your bosses to manage time off for appts and have some understanding too. Prof B put me on both heparin and prednisolone on Friday after a scan, I was 4+3.

Cat, I'm 5 weeks tomorrow by ov date, and have morning and evening nausea. I always worry it's not enough, but that's not surprising. Smells are a bit funny, sometimes I have to leave the house when it is too smelly! Boobs are big but not sore. Tired etc. I'm so much calmer since the scan and treatment plan, and have acupuncture booked tomorrow.

Well, having got ds up from his nap an hour ago, I have discovered that he is breaking out in what looks like chicken pox! Talk about the shittest of shit timing! I'm sure that I'm absolutely fine, having had it as a child and inoculation as a teenager, but any advice/reassurance would be great. Do I need to let my GP know?

Tiny, they're still crossed!

barkingtreefrog · 07/07/2014 19:02

Another vote to tell work triple, if you're honest they won't think you're messing them around. Good luck with standing up to the consultants - will you have DH with you? Mine was great today asking all the questions he knew I wanted to ask but he could tell I was getting a little emotional and wasn't getting them out.

I've been lurking for a while as not been in a good place recently with more pg announcements from confidently glowing women who seem to have no concept of the possibility that not everyone has a happy ending. Anyway. Thought I'd update in case anyone else in a similar situation to me was interested. Had good news today as despite only two miscarriages, the consultant accepted that we were in a difficult position as we can't get pg naturally and we only have three chances left to get pg (2 x IUI 1 x IVF) so another mc for us could mean the end of our chances and there's not much point testing if you can't get pg again anyway... So he's referred us to the rmc and we're just waiting for our appointment now as they only do one clinic a month.

In not such good news my hcg levels today are still 800+, 17 days after the bleeding started. Got to go back in another week and see if it's negative by then, if not then it's a third scan and other options.

tannyLoo · 07/07/2014 19:12

Barking glad to hear you had such a good consultant, and there's nothing like being taken seriously and having a plan. I really hope you hcg starts to drop naturally. Mine has always dropped like a stone, but it must be hard to move on while it's still high. Hugs.

Ignore my chickenpox quandary. I've looked it up (should have done that first) and absolutely no risk. Twonk.