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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Original poster

Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

995 replies

bakingtins · 19/01/2014 07:41

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

OP posts:
BettyButterchops · 23/05/2014 21:44

Smile wonderful news baking, beautiful name x

Justonemoretime · 24/05/2014 08:51

Congratulations, Baking! Amazing happy ending. Xx

Amy2014 · 24/05/2014 22:03

Huge congrats baking! That's wonderful news and a beautiful name!

I have now convinced myself that's it's high nitrates in our well water that have caused me 5 m/cs in a row!! We moved out to the country 18 months ago...and it's since then all the m/cs have happened. When we lived in the city I conceived my little ones .. All fine.... Then I move out... Drink well water and m/c after m/c.... Am I raving? We have a R0 unit but I used to fill the kettle from the ordinary tap and boil it for tea... That tap water has nitrates in it and now I googled that boiling high nitrate water concentrates the nitrates...I am sending it off for testing next week just to see..... Do u think I'm just being a bit crazy or is it a possibility??? Dh thinks it's a mad notion... But still.... The timing adds up...

Purplefrogshoes · 24/05/2014 23:19

Congratulations baking Faith is a beautiful name Grin

Hello to everyone else, I'm giving myself a rest and still havent decided if I will TTC again Confused

nataaaaliee · 25/05/2014 21:54

Hello ladies :) I have been lurking a while..finally build up the nerve to add a quick hello post! It has been so so helpful reading everything and seeing how strong everyone is and that in fact people do come out the other side of miscarriages. I am a 23 year old nurse and have had 3 miscarriages now. 1st one at 6 weeks, 2nd at 12 weeks then my 3rd at 11 weeks..I have been referred to gyne but my bloods just came back with a raised APTT so who knows what that could lead too! Petrified of getting pregnant again, I just don't know if i could handle it happening again.

Anyway, lots of love to you ladies. You are amazing Thanks I think a large glass of wine is on the cards tonight! Wine

mintleaf · 25/05/2014 22:01

Really really happy for you Tins. Massive congratulations. Flowers

marshmallowpies · 26/05/2014 00:10

Congratulations baking & welcome to little Faith. I'm a newcomer to these boards but the support has been amazing and I remember your kind words when I was having my MC. So pleased for you.

Original poster
bakingtins · 27/05/2014 17:16

Thankyou everyone. We have been stuck in hospital with no wifi for 5 days as Faith was early/tiny and in fact she has had some initial problems with stabilising blood sugars and jaundice and spent some time in SCBU, but all coming good and we are home Smile

OP posts:
Triplespin · 28/05/2014 07:59

It must be wonderful to be back home finally and that baby faith is doing well now!! I read on the other thread about your delivery. Wow that is super quick!! Amazing you managed to make it in time.

How is everyone doing? Any prof Q appointments coming up?

tannyLoo · 28/05/2014 08:49

Baking I had a super fast delivery and DS was a week and a half early and was jaundiced too. I'm sure you know it, but he's a beautiful bonny 2 year old now. So pleased to hear you're home xxx

Triple I'm there on Friday. Trying not to think about it too much, but I need to write some notes in prep.

Justonemoretime · 28/05/2014 08:59

Tanny, just note your history, dates, significant details like how long you were trying for each time, when mc happened etc. They have a 'speech' that they give to explain their research and findings, then take your history. Then do the biopsy and give you a prescription if you need one for progesterone. The one to really prepare your questions for is the phone consultation when your results are back. Good luck!

JBrd · 28/05/2014 09:39

Baking So glad that you are home, hope you are all settling in and that everything goes smoothly from now on.

tanny Good luck on Friday! I shall be watching with interest, as the whole NK cell thing is one of the things on my list of possible next options.

I had a nice long weekend, celebrating DS's 3rd birthday. The dragon cake was a big hit, he loved it Smile
It felt really good to just focus on him and enjoy what we have right now, and I deliberately tried not to think about what's in store for us next. At least for a little while, now I'm back to to-ing and fro-ing. I need to call the bereavement midwife today to let her know about what we'd want in terms of memorial service etc. for the baby I miscarried - I so do not want to have that conversation. Just starting to feel a bit more stable again, and I worry that this will all stir it up again.
Now just waiting until the results from the post mortem, to start thinking about next steps. I have a niggling worry that DH would be more than happy to just stop and leave it all as it is... He has mentioned this a couple of times, as well as pointing out that he'd be happy to follow my lead - again and again, he does that, all ttc is always entirely down to me Angry

JBrd · 28/05/2014 11:32

Aaaannnddd AF has just arrived, slap bang exactly 28 days after the miscarriage. Wooohoo...Confused

TinyTear · 30/05/2014 11:41

Tanny how did it go? or is today and I mixed up my dates?

I am going on the 9th June (assuming I can take the day off). how long does the appointment take?

JBrd · 30/05/2014 13:50

Tiny and tanny How did you go about getting an appointment with Prof Q, and how long did it take? Can you self-refer, or do you need your GP/hospital consultant to refer you?

Original poster
bakingtins · 30/05/2014 13:54

tanny good luck today.

tiny I was there less than an hour and seen pretty much on time.

OP posts:
Original poster
bakingtins · 30/05/2014 14:01

Hi jbrd cross posted. You can self refer to Prof Q, google her (Professor Siobhan Quenby) to get her secretary Kerri's details. She seems to now be saying 2 periods post MC, then use barrier contraception, track ovulation and she sees you 7-10 days post ov, clinics are on Monday or Friday (which is likely to mean there's only one opportunity per cycle to get into a clinic) I actually booked a slot before I ovulated as I needed to sort time off work, but I have a very predictable cycle. I didn't get the impression she was seeing hordes of people, I think they'll endeavour to fit you in.

OP posts:
Justonemoretime · 30/05/2014 15:07

Tanny, how did you get on? I'm 9dpo on my third and final round on prof Q's regime. Who knows what comes next?! :/

JBrd · 30/05/2014 15:18

Thanks baking Might have to get the ball rolling, then I could go and see her in July, after we come back from holiday.
How much does it all cost with Prof Q?

If DH is game - I'm getting worried that he is starting to think that he doesn't want to try anymore and just resign from ttc. I swear it is like trying to get blood from a stone, extracting any form of comment or opinion from him regarding ttc and what to do next. But he said yesterday that he thinks that going down the route of donor eggs or adoption would just mean opening ourselves up to lots of heartache (as if it's been a walk in the park up till now!), which is a massive blow for me - I had started to think that adoption could be a real option for us...Sad
Now I am in a major panic (to the point I feel as if I'm struggling to breathe) about what might or might not happen in terms of family expansion.

Which, if you look at it, is actually very ironic, since it used to be DH who wanted children long before I even considered it!

But if he sticks to this, I might not have any other choice than ttc again.

TinyTear · 30/05/2014 15:38

I emailed her secretary Kerri. I think the email is somewhere in this thread...

It costs £360 and in my case then the trains from London and a cab from and to the station...

Tryingno1 · 30/05/2014 16:02

Hi all
Just had my d and c. Belugh. Am feelin ok and hopefully I can start moving on now

Jbrd-I'm sorry about how ur feeling. I can only imagine. I suppose it's still so soon after your latest loss your dh might need more time to see how he feels? I sometimes worry my dh will want to stop at some point and I feel like I never will stop and I worry what it will mean if we come to that place....I say for you wait a little longer and give him more time to grieve and see how he feels in time?
When r u seeing the midwife? Although u don't want to discuss things again it's important for your closure maybe? ad sometimes discussing it can be important to deal with the loss head on...much easier go bury head in sand sometimes.

Hope baking u and faith and doing well :) ur very lovely coming on here givin other people advice still. Hope it enjoying ur well deserved little one
Waves to everyone and apologies if I don't make full sense I'm still post general

X

tannyLoo · 30/05/2014 21:34

Oh, I've just got back to wifi to find all of you have been thinking about me. So touched. Really.

I saw Prof Brosen (Prof B) rather than Prof Q. I've read quite a few of his articles so was a bit in awe. He thinks that my history makes it highly likely that I will benefit from their treatment plan. It made me cry to hear him talk about me as a "typical" mc sufferer.

Results should be back in 4 weeks and I'll have a phone consultation after that.

JBrd if you can afford to go, I think it is good to look into, when you're ready. Sounds tough with your DH. Mine is a big soft heart on your sleeve kind of guy so I'm afraid I have nothing to offer on that one, apart from to make sure you communicate your feelings to him.

Tiny it'll be really interesting to hear what your experience is.

Baking I kept talking about you! Your ears must have been burning!

Just really hoping it works this month...

Well fuck me I'm knackered. Six hours driving after a restless nights sleep. I need bed!

tannyLoo · 30/05/2014 21:38

Trying sorry lovey, somehow I missed your post. I hope you start to recover a bit now. I've not had one of those for quite a while, but I remember being wiped out and a bit spacey for a couple of days. Box sets and ice cream is called for...

Tryingno1 · 30/05/2014 23:43

Tanny glad u got something constructive from the appt. something to focus on and hope next time is the lucky one under his care.
I've watched so many shit films and eaten so much icecream tonight! Plan to continue the same all weekend

Justonemoretime · 31/05/2014 07:31

Glad you felt it was so positive Tanny, hope it wasn't too uncomfortable.
Trying, I agree with the TV and ice cream, wishing you a speedy recovery.
I'm convinced I am now infertile and it will never happen. Need to snap out of it! :/